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ned!

27 REPLIES 27
Mildred1602
Member

Re: ned!

Great to find a post in this section!
Wonderful news that all the treatment has been worth it.
pussy
Member

Re: ned!

CONGRATULATIONS Aroma WHAT FANTASTIC NEWS it gives hope to all us with secondaries trying to battle the regime of medication
hoe your hip op goes well and you have a lovey xmas and new year
if you feel upto it at some point could you say what type of cancer er+ her2neg etc.and what chemo you had
only my cancer did not respond to chemo i was allergic to capcitebine and arimidex did not work either so on tomoxifen at the min while they come up with something else
kay

nannabarb
Member

Re: ned!

such wonderful news, gives me hope for a friend struggling with secondaries.
Have a terrific Christmas and the best New Year ever xxx
Guest user
Not applicable

Re: ned!

Great news and hope all is well. Have a wonderful Christmas to each and everyone of us.
Seasons Greetings
love jacky xxxx
Kayteeb53
Member

Re: ned!

Brilliant news Aroma! Your hip replacement will be a doddle compared to what you have been through already.
kay x
Guest user
Not applicable

Re: ned!

soooooo pleased for u fantastic news have a totaly great christmas n fantastic new year you def deserve to all the best for the future hope u stay clear of this horrid disiese for many years to cum x
sue x
aroma
Member

Re: ned!

i never gave up ! every time i was fobbed off i asked for another scan etc !! think they dreaded me coming in lol! but if its got me this far please just know your own body and ask for another oppinion . there are loads of new treatments being trialed so you never know which one may work for you ,thanks for the fundraisers im still here .
Guest user
Not applicable

Re: ned!

That's great news and gives hope to those of us less far down the road who've had a few treatments fail that there might be something else out there that works if we can hang on long enough to find it.
Guest user
Not applicable

Re: ned!

Great news!!
applestreet
Member

Re: ned!

fantastic...congrats...long may it continue..

Guest user
Not applicable

Re: ned!

That's absolutely wonderful news! Thank you so much for telling us. It gives us all hope.

I hope the hip replacement goes well. Happy Christmas to you and your family.

Love the photo, btw!

Ann xxx
Ramsfan55
Member

Re: ned!

Wow, that is amazing! Thanks Aroma, it is an inspiring story and just shows what can be achieved. Long may you stay NED X
Suzanne x

aroma
Member

Re: ned!

well its a long story but here i go ,my left breast was really sore so in 2005 i went to the gp who said it was probably hormonal ,1 then as it wasnt getting better and was dimpled and ached all the time i was reffered to hospital in the dec ,i had needle aspiration and mamogram but was told that as the fluid was clear it wasnt anything to worry about ,by this time i was really upset and just knew they were wrong ,i insisted on being seen a few weeks later where they did a core biopsy which revealed lobular carcinoma in situ ,i was started on a course of chemo to try shrink the tumour ,this made me so ill i was admitted to hospital a few times ,i had ulcers in my mouth and couldnt stand up .the anti sickness drugs ddint work for me .i must admit it was a really hard time ,i had my mastectomy and was told after that out of the 16 lymphnodes remeoved they found cancer in 12 of them and after a scan i had spots on my liver ,the outcome wasnt good so i again had further chemo which made me rock in pain the bones were so sore i couldnt bear to be touched ! my skin came off my hands and feet i also lost my nails on my hands and feet too .so a total mess this was coping with loosing my long hair too ,which as you know is an awful thing to cope with as the wigs arnt too nice ,i wore loads of beautiful bandanas at that time .ive had various tests on susupicious lumps and bumps recently had a full bone scan ,i have osteoporosis partly from the arimadex and not being given a bone strenghtener which is vital as this puts you into menopause which affects your bones .there have been a number of things misdiognosed for me but thankfully after my latest scan i was told that im ned and after 6 yrs of treatments am now discharged from clinic unless i feel anything else is wrong ,im having a total hip replacement on the 18th of dec but hopefully i can now start to look to the future with my family .so there is hope after diognosis ,6/9 months ! and now 6 yrs later proves it .
nicky08
Community Champion

Re: ned!

Wow, Aroma, what fab news 🙂
Wishing you and your family all the best and have the best Christmas ever. Thank you for posting and keeping the stable/NED secondaries flag waving.
Nicky x

dib
Member

Re: ned!

Fantastic news,have a wonderful Christmas,
Love Di.x

Ramsfan55
Member

Re: ned!

Is it possible to give us a brief outline of your journey since diagnosis please?

aroma
Member

Re: ned!

oh yes i fully intend to but first im having a hip replacement on the 18th then a nice restful christmas ,its the first for my new greatgrandaughter so lots to celebrate this year .xthanks for all the goodwishes .i wish you all health as well .x
Ramsfan55
Member

Re: ned!

Wow what wonderful and inspiring news. So pleased for you.
lots of hugs
Suzanne x

amd66
Member

Re: ned!

Much much love and congratulations! especially after reading your dx at the end of your post xx
Lisa_x
Member

Re: ned!

Now that's put a smile on my face! Congratulations!

lottie63
Member

Re: ned!

Thats just the sort of news we love on here, so pleased for you, you go girl ..... Go and enjoy the land of NED , im smiling reading your post just so pleased for you x

Guest user
Not applicable

Re: ned!

Hi Aroma,
Congratulations on your good news

Enjoy your celebration!
Guest user
Not applicable

Re: ned!

Uplifting news - its nice to hear there's hope for us all.
jacky
catseye
Member

Re: ned!

Hi Aroma,
I have tears in my eyes as I read this....what fantastic news!!! I join the others in wishing you a fantastic Christmas a wonderful, happy future and a BIG celebration!!
XX
libsue
Member

Re: ned!

Fantastic aroma, you must feel such relief. What a wonderful early Christmas present.

Best of luck for a long, healthy and happy future.

aroma
Member

Re: ned!

still cant beleive it ,feel a bit weepy dont know why ,think its such a releif aftera rotten few years ,so wish my sister was still here to celebrat with me but sadly she lost her fight 3 yrs ago ,but im so grateful to be here .
RevCat
Member

Re: ned!

HURRAH! Congratulations! Long may it be so. Go celebrate big time. 😄
aroma
Member

ned!

hey guys just want to share my good news with you ,after 6 yrs and despits having spread to lymphnodes and liver spots have been to clinic today AND BEEN DISCHARGED N,E,D!!!!!!!!!! cant believe it after going through absolute hell in the last few years im now cancer free ,so thankful for all the treatment ive been given without which i could have been a differant story as was given 6/9 months at the beginning ! x