Hi
My name is Annabel. I haven’t been officially diagnosed yet,
I have my appt Tues. However, I have most of the IBC symptoms…been on
anti-biotics that haven’t worked etc. So although it will still be a
terrible shock, it won’t be a surprise when they confirm it.
I was
recommended this site from some new lovely friends on the Macmillan
site, I recognise some of the names on here…hello! I suppose because
it is a very small group on Macmillan I thought I’d come over to see if I
can talk to more ladies with IBC. I have read through a few of the
threads on here and do feel a bit more positive as at the moment I am
terrified by my prognosis and IBC in general. I have quite a large
lump/tumour that is worrying me, others have said ‘size doesn’t matter’ I
have also been stuck in the system now for months due to one reason and
another, so fearing huge spread. I am basically fearing everything and
imagining the worst outcome and even being told it’s untreatable. I have
stopped myself googling now and am just trying to get a bit more
rational but finding it very difficult.
I have 2 young children,
so my worst fear is them losing me and me not seeing them grow up, this
has made me very emotional. I have had some great support and made some
caring friends. I am hoping to do the same on here and hoping we can all
help each other through this journey.
I hope you don’t mind me
coming on here without a diagnosis yet, I’m hoping all your treatments
are going well and looking forward to talking to you.
Thanks for reading
Annabel
I am wearing your shoes too