It was my second MRI, I had a head loop one four years ago (when I had a brain hemorrhage), but I was a bit drugged at the time, so didn't really remember too much. I was a bit apprehensive about the MRI as well, but it really wasn't that bad. You are given some music to listen to through headphones but you still hear some noise. It was also shorter than I had expected - about 20-25 mins.
The CT is the easiest and quickest - no probs. The Bone Scan is a bit strange at first, as the camera is very close to your face, but not bad once it is moving down your body.
I've got a 15 yr old daughter, so know what you are going through. Not nice as at that age, they're old enough to know the full impact of what is happening and young enough to really need their Mum!
I'm hoping that once we get started on treatment, we can feel some sense of purpose. Are you getting any pain like Jets and me? It seem so long that I now get the impression the evil cells are moving around my entire body! I understand that's a common feeling from a couple other people on here.
Try not to think about the actual tests too much... I think they're the least of our worries at the mo!
Do you see the same doctors every time you go to hospital? So far, I've seen two breast surgeons and finally last week, an oncologist.
Thanks for your kind thoughts for tomorrow. Please keep in touch and we can share the burden of our experience!
Spooky... I'm in the exact same situation as you - I had my Bone Scan today at Guy's and last Friday, a CT at St Thomas and the previous week, an MRI. I'm scared ridgid waiting to see Oncoligist on Wednesday but desparately want to get on with the treatment. I had a biopsy on 12.3.15 and it seems to be taking so long to know the true extent. I understand that it is normal to feel as if your entire body is being invaded. I have been told that, subject to the results, I will be having EC chemotherapy to shrink lump before any surgery, and Letrozole. Please let me know how you are doing, as it seems like we will be embarking on a very similar trek!
After the Bone Scan today, the radiographer asked me if I had any pain, any breaks/accidents, arthritis or any recent dental work. Made me v anxious, as I wondered what he had seen and if those were standard questions. Has anyone out there experienced similar? J x
I was like you and had one boob removed. Now know no chemo or rads - hooray. But am on the hormone therapy for the next 5 years or so.
As my Lymph Nodes were clear I opted to have an implant, that was nearly 3 weeks ago
All the best for Thursday
Ooo yeah. My girls asked some round about questions and I realised they were too scared to ask if it eas catching.
Its a doozie isnt it.
Im 45 have 2 girls age 10 &11. I was diagnosed in October. had a masectomy in december, starting chemo next week.
I quietly told them I have a lump. It doesnt hurt. (They could feel mine under the skin it was large )
It had to be removed cos it will take up too much room.
Then I'll need chemo , which will make my hair fall out for a while.
I talked to them about pink ribbon fund raising, they always buy a pen or something, and how all that money means they know how to fix it as they studied lots.
They had overheard a bit, one asked me in the car on the way to school if I had cancer ( swerve! ) as I too was waiting for the plan.
Ive spoken to their teachers as well incase of school melt downs.
Got a lovely book called the year my mother was bald, explains everything from a childs view point, I learnt heaps too 😉
Its so overwhelming, my girls have been fine, they dont watch hospital dramas and they trusted what I told them.
Much love xxx
I am recovering froma one side mastectomy because of lobular Beasty
Sorry my children are all grown - didn't make it any easier in the telling though and my grandchild - much younger than your 2 we told I have a bad shoulder, made more sense to her and she was oh so gentle.
there are a couple on here who have told young children and there is a book/story i can remember they used which was helpful
I'll see if I can point them in your direction - if I can find them!!!!!
Perhaps they will find you anyway
All the best, don't be down,
I always say keep smiling (very hard I know) but it helps. Do admit to yourself you are overwhelmed by this thing and have a good cry if you need it
Keep popping in here I and many others find it a great source of strength and knowledge
DO NOT GOOGLE
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