Thank you PaulS, you were absolutely right. My cancer hasn't spread beyond my lymph which is such a relief.
Thank you GLB38 - yes you are absolutely right about the sleeping and eating.
I received my CT and bone scan results today and they are CLEAR!!
So relieved. It just goes to show that you can feel really exhausted, unwell, have aches and pains prior to diagnosis and NOT have secondary breast cancer. It's important for the newly diagnosed to know this as looking on the internet, the only info on exhaustion pre-diagnosis and pre-treatment would seem to point to secondary breast cancer. That clearly is not always the case.
I skipped out of that consulting room delighted that that I only have primary breast cancer - isn't it strange how the goalposts move.
I think the stress of dealing with all of this, which makes it all like a living nightmare, and the terrible stress of waiting for teats and results exhausts all of us, and the fear and anxiety don't go away so we don't really rest properly. I completely agree that you need to listen to your body and be selfish in the sense that you should think first about yourself. What you are feeling is completely normal given what you are dealing with and I was told that my adrenalin would be supercharged for weeks as the waiting and the tests and all the anxiety continue. This rush of adenalin makes us exhausted! And then when things are more settled we can expect to crash. And need some days to simply sleep and recover. My doctor told me this. I like and trust him.
So, this does NOT mean that the cancer has spread - it means you are human and you are dealing with a horrible situation that you have been catapulted into with no preparation. I won't say dont't worry because you won't be able to stop worrying, but try to do things that make you happy and be with people you care about. This definitely helps.
Welcome to the forums.
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Hi I'm new here.
I have just been diagnosed with Lobular breast cancer - stage/grade 2 with lymph node involvement, hormone receptie positive (that's all I know at present).
I have MRI, bone scan and CT scans to come. Obviously I'm terrified, but the thing that's frightening me the most is the crashing exhaustion that I feel - I can't go for even a short walk, even folding clothes makes my arms feel weak. I'm told this is probably stress, but in truth I felt a bit week and wobbly weeks ago before I was worried about cancer and it's getting worse day by day. This waiting to know what is going to happen and how far things have spread is driving me insane.
Did anyone else feel this extreme weakness and exhaustion on diagnosis and not had widespread cancer? I'm terrified that this tiredness is being caused by the cancer having spread throughout my body.
Does cancer that hasn't spread everywhere make you feel so terrible? The only info I can find online suggests that chemo/radiotherapy causes exhaustion with breast cancer.
I undersand that extreme stress can make you feel awful, but I have never felt physically like this before. It's like flu without the fever. I am eating and sleeping not too badly the past week or so, but eating doesn't alleviate the flu feelings.