Hi BFM
Sorry you find yourself here but welcome. I know it feels like the world has just collapsed but you will find a way of coping and I promise you, it will get easier.
As cromercrab suggested, you will probably have a drug called Zometa which is given IV every 4 weeks. It belongs to a group of drugs called Bisphosphonates and they are given to help stop the cancer cells from infiltrating into the bone. You can read a bit about them here:
breastcancercare.org.uk/breast-cancer-information/treating-breast-cancer/secondary-breast-cancer/bones
The infusion only takes 15 minutes or so and is usually pretty well tolerated with few side effects.
Things to ask:
Hormone status. Are your ER/PR + or - If you are positive, then there is the option of anti-hormonals such as Tamoxifen or aromatase inhibitors such as Femera
What is your HER2 status? If your are HER2 +ve then Herceptin will be an option
Your onc should discuss options with you re: hormones Vs chemo to start with. I was given chemo first because of the spread to my liver but depending on the amount and size, you may be offered hormonals first. Whatever the decision, you should ask your onc why s/he has decided to do one rather than the other, so you are clear.
If your onc talks about chemo, you should ask which one and how many cycles along with side effects. Then you can come back here and tell us all and we’ll give you some top tips about how to get through it and what to expect.
You may be offered radiotherapy to treat the lymph nodes further down the line and you might want to ask about this.
You should also ask about how you will be monitored and how often e.g. CT / MRI scans; ultrasound scans etc
Do they offer support from a breast care nurse?
Is there psychological support available (e.g. psychologist). I saw one a couple of times and it was really helpful.
Some people want to have an indication about the likely progression of the disease (the “How long have I got” question) and this is obviously a matter of personal preference. I chose not to ask because reading through the stories of other women in a similar position, it quickly became apparent that SBC is a very individual disease and I don’t think there is an onc in the world who could give you a definitive answer.
There are women living well with SBC for many years. Give yourself a chance to come to terms with it and take it one day at a time. You’ll have good days and bad days; days when you think “what’s the point” and then others when you think, “I’m feeling really well”.
Don’t Google stuff to do with SBC. Stick to sites such as this and MacMillan cancer support.
If you’re having trouble sleeping, you might want to ask your GP for some sleeping tablets to get you through the next few weeks.
Are you going on your own tomorrow or do you have someone you can take along for support? Come back for a rant / advice / support. There are lots of us in the same boat with lots of experience of coping which we can share with you.
Hang on in there.
Laurie x