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newly diagnosed

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newly diagnosed

Hi my name is Debbie and I've just been diagnosed with mets to my lungs and bone I start the oral chemo tomorrow and I'm really struggling to come to terms with the diagnosis and to accept it. I want so much to get a positive head on and come to terms with it perhaps that's when you start living everyday. I just want to tell you about my history I was diagnosed with breast cancer 21years ago I had a lumpectomy 5 years ago it returned as a new cancer to the same breast I had a mastectomy and have just been diagnosed with secondary . Thanks for reading it would be lovely to hear from anyone 

14 REPLIES 14
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I am sorry to hear this is happening to you
Thank you fir posting on this site. I will follow your progress and wish you all the best.
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Community Champion

Debbie, I'm glad your chemo has been going good so far! This will also help you adjust, bc feeling l I just sure won't! There's no magic answer to this. I think for me it was time and just every day  life that keeps moving. I did try to put it in some perspective by reminding myself, YOU'RE not the first or last, OTHER'S have made it through worse things, IT'S not my child, LOOK at people who are born with health issues and have never had a normal life, ARE you going to waste the time you  have left, YOU better get up and pay the electric bill, etc. I also found keeping busy helps. Hugs!

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Hi Debbie

We all felt the same way as you do when first diagnosed it's just that some of us have had much longer to adjust which is why we might seem to be coping better. Believe me that's not always the case! Take time to adjust, it's like being hit with a sledgehammer and that's even before you start any harsh treatments! Check out other threads which are very active to see how much support there is and also some humour, which we have to allow ourselves otherwise we'd all go completely mad.

Take care and hope that the SEs keep to the minimum.

Nicky x

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Hi ladies so sorry for delay in writing back to you all just had my head up my arse not being able to accept it or most importantly move on and start living with it and finding the strength to not let it consume me my every waking thought is death and my family you ladies seem amazing how do you cope on a day to day basis what gets you to a place where your living and fighting it I've been on chemo for a week now and no side affects which is fantastic thanks for all your support big hugs to everyone that's messaged me xxxxxxx
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Hi Debbie and Abney, jst wanted to say hello and welcome and echo everything the others have said. This is a very scary process and only people that have walked the path know how you really feel so feel free to rant, rave cry etc whenever you want. We rte all here for you.xx

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Thinking of you Debbie. Hope you are being able to cope a little better each day. Hugs! FF

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Hi Debbie, so sorry you have had to join us. It is hard , raw and scary . I remember at the beginning thinking will there ever be a day when SBC won't be my first thought. The truth is therre are days that are still tricky , but less of them , SBC is NOT my first thought of the day. Of course I wished this has never happened , however I have found a new me and so will you. There is fantastic support here . Don't be too hard on yourself , cry if you need and be gentle with yourself. It does get better, honest . Marie xxx

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Hi Debbie and welcome to this part of the forum - a place none of us want to be in! I see you have already had some lovely responses and I hope this has helped you. I think the fact that the time between having your primary to developing mets is so long it would indicate your type of BC is slow growing. I would hope that this means you will react well to the chemo and get good periods of stability and shrinkage. I have had mets for over 8 years now, bone 1st then liver added 3 years ago. I have luckily responded very well to the chemo's I've had and it's only at the moment I've had the first slight progression in over 3 years. I am due to start my new chemo regime in a week or so. It is always a shock to hear you have mets but my advice is not to search the Internet,  It's a very scary place! Don't listen to statistics - even from your onc - they are way out of date. And allow yourself time to adjust. We all, over time, get to grips with this diagnosis, some of us need counselling, others manage to adjust on their own. Read the Xeloda/Capecitabine thread, there's lots of useful tips and info on there plus other ladies who are on it. The Bone mets thread is also very active and most SBC ladies post on there at least some of the time.

Take care and come back whenever you want advice, support or just a good old rant - we completely understand!

Nicky x

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How did the chemo session  go, Debbie?

 

at least a start has been made towards bashing the cancer, hopefully you will begin to feel more settled.

 

do come back and chat to us, let us know how things are.

 

love and hugs,

 

Moijanxx💚💚💚

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Wow thanks ladies for your reply I sat and cried this morning reading your messages it's great to know that you know how I feel and there's hope out there lots of love and hugs back Debbie xxxxxx

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Hiya Debbie
Welcome to our family where you will find help and support from lots of other ladies that have all been here and got theatre shirt !!
Mine came back after eleven years to the hips, femur and spine ....just as I had forgotten about it all. Sometimes you feel like you have been hit by a large juggernaut !! But as women ..we get up everyday and deal with what gets thrown at us !!
Please look around the threads here ..join the secondary private forum for games book club and gardening etc .
Carolyn xxxx
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Hi Debbie and Abney,

 

 

Debbie, as Abney says, you have come to the right place..we are all here for you.  So sorry you have had to join this' club' and like most of us, it sounds as if youve had a big shock.

 

im not as much of a veteran as you, my primary was diagnosed 16 years ago....the mets were found about three...to liver and bones.  iwish you the very best for your chemo and a very good response.xx

 

love Moijan💚💚💚

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Community Champion

Welcome Debbie and Abney. Hang in there girls! "Cap" is usually a  fairly easy chemo for most. Just to throw in some hope, I've had lung mets for 11 years and its in most of the  lymph nodes in my chest. One presses on the main artery to my heart. I have one bone met in my spine. I wish you the best. FF

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Hi Debbie I just saw your message and just wanted to send you lots of hugs and say I know exactly how you feel. I've also been newly diagnosed with Secondaries to the lung, chest lymph nodes and One pushing up against my stertum. my original BC was in 2014. So I really understand how you are feeling. There are lots of lovely ladies on here who have been a good support to me so you have come to the right place my love. Hopefully we can support each other and if you are starting the Cape tablets there is a thread for that in the treatments page which is really helpful. Sending you lots of love and hugs xxxxx