oophorectomy

[Rattles]

Hi Max, I'm sorry to hear you have these problems. I've got lymphodema too and suffer chronic nerve pain. I've had my ovaries out. It's not been easy. For me, the issues have emerged further down. I'm happy to share, but only if it's helpful. I really wanted to let you know there is a thread about this very subject under Family History and Genetics.

BCC - maybe you can add link?

Rattles, xx

[Herewego]

I would have loved to be able to talk a bit of Irish during this journey as I lived there for a couple of years but my chemo was EC+T 😉

I was so concentrated on getting through the 9 months of treatment and thought I'd just be taking Tamoxifen and then that was it. And all was good for 1.5months and then the draft of side effects started appearing - for some reason I seem to attract some of the more unusual ones too like hand rash (dermatologist was soooo excited about it due its rareness while I was just "DO something to stop it!"), caught also impetigo from my toddler in my hands (surprised even the chemo unit nurses with this) and now on back of that my nails are peeling again...

I'm getting weird aches and pains in my back but since I've lost all confidence in my own body I can't tell whether it's just wear and tear, muscle pain from exercise or bad posture from lying down on the sofa! Blood markers are clear have to wait another month before my regular oncologist checkup to see if they want to investigate. 

Hope you get some relief soon and feel free to moan here xx

[maxr1974]

Hi herewego, thanks for your message. It is difficult getting through all of this, especially if you are hid by problems all the way. I am usually positive about stuff even laughed when I was told I had to have fec... I called it my Irish chemo ( feck.... Chemo) it just seems a bit more difficult at the mo. Xx

[Herewego]

Snap Max! It's so eerie to read your post as I'm 41, diagnosed just over a year ago (her- but highly er+ & pr+ with lymph node involvement (8/17), on Tamoxifen since August and exactly the same lymphoedema & nerve pain from rads but on right side. 

My periods came back just before xmas so I had oophorectomy two weeks ago, and couldn't be happier. I didn't want to take zoladex (or for that matter any other med) with its side effects and possible contra effects to what meds I'm already on. Also the op removed a lot of worry although I'm now going through menopause for the 2nd time. 

Just go for it and set your mind rest xx

[maxr1974]

Hi, I was dx 4 years ago. I spent 2 1/2 years on tamoxifen. Came off due to very bad pain in joints and bleeding that was only stopped by an endometrial ablation. I have been on anastrazol and zoladex (I am 41) for 5 months. I have now stopped those due to again bad joint pain and now carpal tunnel syndrome. I saw oncologist today and have decided to have an oophorectomy to put an end to the hormone worry. ( was her + and er + with lymph nodes affected 5/11). My question is has anyone gone down this path? Also is there anyone with the same problems. Add it to lymphoedema in my left arm, under arm, chest and back, and chronic nerve pain all down to surgery I would be very happy to know that it I not just me. Xx thanks.