So sorry that your pleurodesis didn't work. Apparently they can put in a drain that sticks out so that you can literally turn on the tap and drain fluid of yourself once a day (this is a very simplistic explaination) the respiratory bods talked me through it as a possible next step. This may be worth asking about.
I only had the left lung drained - they took off 2.25litres. It has helped to an extent - I can sing nursery rhymes to my granddaughter but going up stairs,slopes and keeping up with other people when out walking is still a challenge and just stupid things like lacing up shoes. I am seeing the respiratory team on the 14/3/14 to be reassessed. Not sure I would have it done again - the experience was pretty traumatic - the Local anaesthetic failed part way through. However I am able to move about and do not need oxygen so definitley better off than you.
Do hold on in there Angel and I hope the slope is slow and gives them time to come up something helpful. Thinking of you
Love and hugs Jacquixx
Hi angelfalls. Sorry to hear you are having problems with your breathing. Do you think it is because of the evorilmus rather than the BC? It is one of the side effects isn't it. I came off the e/e in Dec because it had stopped working but I had just started having breathing problems and I was very wheezy especially at night. My ct scan had shown progression to the liver but my lung Mets were still stable so I put it down to the evorilmus. I am on taxotere now and my breathing is much better. I think this is more to do with not taking the evorilmus than anything else.
Hope this is the same for you and that you improve soon. Take care. X
sorry to hear you're not to well, but if you need to talk to someone in confidence then please do give our helpline a call, they're here to support you. Calls are free 0808 800 6000.
Thanks for your good wishes Nicky. Izzy your comments are really encouraging - i am just waiting for the hospital to phone and say I have a bed then I'm off.
thank you for getting back - shame you could not have the whole proceedure. I did have fluid drained off about 3 weeks ago but sadly it has all come back, hence the decision to go for the pleurodesis and get the membranes stuck together. It is all a bit disheartening but I am hoping that this will provide longerterm relief.
I was wondering whether there was much discomfort once the talc was in causing the inflammatory response. I was in quite alot of pain for a couple of days after the pleural tap - I just like to be prepared for these things, I find it easier to cope with.
Hope your treatment is keeping you stable - I am on capecitabine at the moment but I think this may be reviewed once this proceedure is done.
Take care and look after yourself
Hi - due to go into hospital to have a pleurodesis on 12/2/14 to hopefully prevent fluid build up. Expecting to have it done under GA using talc.
Has anyone had this done - what to expect? How long is recoverery?
I am really hoping this will hold back my internal flooding as breathing is definitely getting tricky.