Wow, here I am 2.45 am finding so many women with similar experiences. Although medical staff warn about the pitfalls they somehow reassure that is unusual and give the impression most women breeze through. I am beginning to realise that we are probably the norm. Earlier i read there are problems in 25-30% expanders!
I had two mastectomies two years ago with expanders. I still have tight chest muscles despite the physio I did. Luckily no pain. I still feel bras are really uncomfortable- I strip them off as soon as I get home. At work I am always fiddling with them to try to get more comfortable.
I massge in Vit E cream daily to keep the scars supple. And I still have to stretch my arms a bit to keep muscles less tight.
Three months ago I decided"hang it I don't have any boobs yet why I am bothering with a bra?" So I started wearing crop tops from M and S. They were so comfortable I forgot I had them on. I didn't even have to sow a pcoket as they keep my softies in place.
I always used to be large breasted but as I am now going to be much smaller however it ends up, I have to think differently.
Unfortunately reconstruction is proving a long drawn out process with lots of twists and turns. One side expanded well, other had to be replaced but now looks like will have to be removed a second time- not sure what will happen next.
Its a long journey so be kind to yourself. There are women who have got through it can tell us its worth it. But when you are in the middle of it all this can be hard to remember.
Best of luck to you all.
My surgeon wouldnt do a double mx, even though ive had bc twice by the age of 40. My other breast has always been healthy and they will not remove healthy tissue.
I would have loved to have recon, however, would never consider it whilst my kids r young. I know i made the right decision as its already taking too long to recover without recon (due to previous rads/surgeries to same area). I was only in hosp 1 night. No way i could be away from my kids any longer than i have to. I want to recover as quick as poss and enjoy life with them again. Maybe one day i will have recon, but right now it is not my priority. Cancer has taken away enough of my time with them.
Everyone has their own opinions/reasons. Good luck with yours xx
A gentle hug back! It all seems never ending doesn't it? I can't wait to feel 'normal' again and be my old self as you say though knowing its not unusual certainly helps. Hope your feeling better soon take care Xxx
I feel for you! The post op symptoms are depressing. I have an enormous build up of fluid that feels like it could burst! i had a mastectomy 2 weeks ago and also had 15 nodes taken out. Now, feel sore, sweaty, swollen, fatigued and depressed! I am due to have chemo shortly and herceptin. Having to function day to day feeling like this is almost umbearable.However, knowing that this is not unusual takes the panic out of the situation.
A gentle hug from me aso to you with a soft squeeze.
Oh wow I feel for you all ! Is it because the medical staff make everything sound so straight forward? Then afterwards it is so matter of fact! As it has been said it is such a roller coaster! I hope this sounds right but it does make me feel better knowing I am not on my own and although every case is different this is ' normal' what I am experiencing. Thank you again for your posts it means such a lot this forum is what keeps me going!
Love to you all gentle hugs and hoping all our recoveries will be speedy Xx
Its so frustrating isnt it? I was originally told 6 weeks to recover, so once I went past this I felt that I wasnt doing very well. Now Im being told 6-12 months. I have 2 young children and chose not to have recon so I didnt have a long recovery, but its still longer than i had hoped, and I get very impatient to get back to normal! Second time around at age 41, I feel that cancer had disrupted my life enough, and I just want to get on with it now!!
PS, my swelling is still so big i cant hang my arm normally. However, ive had an ultrasound and it showed no fluid. Ive been told it will go down eventually.....
Thank you lolloy and rattles will try the tips you have advised. Part of my problem is that I was so independent before and I am very impatient. Consultant said it was healing well. There is a swelling but not enough to drain. The advice was to keep doing the excercises. Feeling quite low at the moment everyone seems to go through so much, I been told today that I will need Chemo and Rads feel like I have not got away with anything! Still the alternative is unthinkable so will press on ! Seeing onco Monday week will know more have to see an Urologist as well beause of reoccuring water infections, feeling tired of it all but have to find the strength to keep going. Love and gentle hugs to you both thanks again for advice Xx
Hi there, sorry you are having a rough time. Its early days post your last surgery. I had a completion mastectomy after a reconstruction went wrong on a breast which had previously had surgery (long story). It was ever so painful afterwards. I couldn't wear a bra at all for months due to poor healing. I am sure the nerves are all jangling. I found wearing a silk camisole helped. Use a feather to softly stroke the skin if you can. It helps desensitize the area. Bio oil or moo goo do a product when the skin is healed up. Keep going with the exercises. It will improve. I don't post often so pm me if you need any help.
You need to remember three ops is a lot to cope with. Try to be kind and patient. You will regain your independence.
Hi everyone. I have had three surgeries since begining of July. WLE and sentinal node was the first. Second lumpectomy and Lymph node clearance last was completion masectomy. I have spoken to the BCN about my post op symptoms and she said I have to realise I will feel like this after three surgeries. I had the MX at the beginning of Sept but feel worse now than at the start. I do the excercies but feel so sore the scar is tight and there is some swelling but not enough to drain. The pulling and weird sensation across my chest is horrible and I cant bear anything touching it making dressing difficult. The pain around my rib is sometimes unbareable just where you bra sits. I know we are told about nerve damage pain etc... but is this permanent or will it get better? I was unable to have reconsruction at same time and am now wondering whether or not to go through it in the future. Get results today and appointment for onco in 2 weeks. Generally feeling emotional and like a burden on my family (who have been very supportive). I was an independant woman before all of this I feel lucky to be alive but feeling apprehensive about the future. I know everyone is different but will these symptoms ease and when will I start to feel confident again?
Love and gentle hugs to all you ladies on this journey Xx