Nicolajane.com view all protheses, have two models in silk made by truelife. I am also very comfy in a weighted foam form. It has good shape and with the extra weight stays in place well. I would have thought that if your problem is allergy to silicone you should be able to get the silk form from the NHS or some help via a cancer charity.
Have a look at the website that Lavenderblue posted last night on make your own protheses. It is an America site, I think, but may be you could have a go using a neck pillow, fabric and filling. Have you tried putting an additional layer between you and allergy boob. A piece of fabric or even a sanitary towel.
Just had a thought how about putting a coat of vasaline on skin as a barrier cream. I think you can probably ditch the contact boob.
I think I read that Amoena send out trial forms. I am wondering if the silk one would work for you. It is worth trying their customer service and also the ladies at Nicola Jane.
It is amazing what a forum can do. Before yesterday I thought I had used up all my options now I am on a new tack and i am sure it will solve my problems.
Thank you for sharing your ideas.
Good luck with your sewing I hope it also solves your problem.
Together we are so much stronger.
Let me know how it goes.
I have tried knitted knockers as I can sew but not knit. I have had two kk both have been huge and notat all suitable. I think I may have been unlucky because others speak well of them. I will try the doll making Web sites for the material and wait for you to let me know the link for the pellets.
If you like you can use the messaging service on this site.
I am thinking I will get a friend to make a pattern out of muslin and go from there.
What a brilliant idea. If you make dolls making a boob to suit you should be a doddle. I think we have to help ourselves. Where do you get the rubber pellets?
I am so sorry to hear about your woows. It is horrid to not be able to get it right. Have you asked to have the other side removed? Have you asked about having a reduction on the remaining boob? My remaining boob is a reconstruction and was big. When I went flat the otherside after chemo and radiotherapy I had a reduction. For me it was more complicated but with a quick recovery. My plastic surgeon said it was the first recon reduction but it was a fairly common operation when ladies were left with one large breast. I would give it a try. I am sure you know we will never be the same again we just have to make the best of it.
Before you buy any more forms is there any chance you could get to a Nicola Jane or Amoena shop. I think they also hold sessions at the bigger units. Ask you breast care nurse or at your nearest cancer centre. Finally maybe if you are very big and droopy you might be able to either yourself or a friend could make you a form. I am thinking of doing this using a squashy neck pillow filled with micro beads.
I hope some of this helps.
Just to add my ten pennies worth. I never go without a bra as I have a D cup recon. At night and evenings I wear a pull on bra from Sainsburys. I find them soft with loads of stretch. This means the recon is supported and it adjusts to the flat side. It will even take my weighted foam softy although it does ride up sometimes. I think you can get a similar bra that has a bit of foam padding, so a pocket, which you might be ablemto fit a softie into. The hospital sofie which is filled with just soft padding is not In my opinion much use for everyday use. The Nicola Jane foam weighted sofie on the other hand is brilliant.
Lavenderblue, I was going to suggest that you could be allergic to silicone but others got in before me. I would suggest you try a swim prothesis as I don't think they are made from the same material but I don't know if they do partials. I would suggest you contact the two customer service depts they are brilliant either by phone or email. Good luck NetteW
Sorry you are having such problems. Nicola Jane just sent me their new catalogue. Noticed a note saying that in addition to the catalogue they offer more sizes and styles including up to 52 band size and up to K cup size - they suggest calling them and they will do their best to find something suitable. Might be worth a try. I don't have your problem but I have found Nicola Jane very helpful and they do have a good range. I did try the Been-a-boob mentioned below - did not work for me but I can definitely see that would be good for larger sizes as Lolly says. Best wishes - hope you find something which works.
Hi, I couldnt wear my softie as it would ride up and looked stupid. I cant wear my silicone one as i cant stand it touching the scar area as too tender. I cant go without a bra as my other side is a D cup, and with 2 children, didnt want to look different and remind them of whats happened.
My answer... the Been-a-Boob from Nicola Jane £30. Its got the right amount of weight, its cool, it moves naturally, u can swim in it, and most of all it doesnt sit on scar area.
Worth a look x
Definitely not having recons. Flat and Fab sounds fun - but I am not on Facebook. If I decide to join Facebook I will definitely have a look!
For any of you who have had either a single or double mastectomy and aren't having recon, we have a great UK group, with lots of chatter, advice and support. Some of us go flat and some wear prostheses. It would be great if any of you would like to join us. Here is a link to our page. Hope to see you there. Gill
I wore a soft bra immediately but only for short periods. to be fair i am post reconstruction and can wear M & S Adored bra with shell prosthesis. I work 3/4 days and on the days im not in work i wear a soft bra with knitted partial (knitted knockers). I dont think i could wear Bra everyday and i put on soft bra in the evening whilst in the house. I am still uncomfortable now 7 months post reconstruction. It sounds like your surgery was more involved.but hoping things pick up for you soon and you're able to get out and about with not too much pain.
What an amazing find & what a great name - Knitted Knockers,,,, am sure I would have opted for one of these - but will soon be having matching surgery, all being well. Will definately see if my BCC nurse at hospital knows about this option.
Great post, thx
Lexilou x x
I used Amoena partial prosthesis befre reconstruction and currently just using a shell from Trulife. I guess i am fortunate the cupbaord at the unit i go is full and the Prosthesis Nurse great so have been offered good solutions throughout. One thing i did have when i had a full prosthesis is a knitted knocker with some weight in. Google knitted knockers. Excellent alternative in summer and very comfortable. Just another option.
Take Care Gilly x
I had WLE with reduction style reshaping of the affected breast, which has left me lopsided currently. (The surgeon said he can reduce the other side to match in due course as radiotherapy can reduce WLE side a little more). I am pleased with the resulting shaping - though have some lumpiness within the reformed / treated breast, and was fitted for an amoena partial prothesis. At the fitting this went from trying chicken fillet styled prostheses to more full breast shaped prothesis.
I find wearing it helped with confidence in the summer, but it was heavy and sweaty against my skin - surgery scars & rads. Bra fitting is not good on the treated side currently, and options are to wear the prothesis & have sweaty uncomfortable skin, or have a bra which doesnt quite do the job for either breast! Situations dictate how often the prothesis is worn & confidence needed at that time. This prothesis does leave a crisscross pattern on my skin.
Not sure if this helped - I will be opting for the reduction of the other breast in due course.
Good luck ladies, much love & confidence to be happy with your choices / fittings. x x
I did not want reconstructions either - as you say that makes it rather important! Like so many of these issues I think it is another where everyone is different - which is probably why everyone says try a variety. I had heard good things about the bean bag type prostheses and lots of people clearly love them. However when I tried them I did not like them at all. Hopefully your hospital will offer you a choice of silicone ones - they are expensive so I hope they would provide these. I started with silicone and still very happy with them, especially if I want to look really smart or want to wear the pocketed strappy top I found! I got the foam ones (which are much cheaper) initially because I wanted something lighter/cooler for summer weather - they are really comfortable though so I often wear them in winter now, especially if doing exercise etc. You can also get weighted foam if you are worried about them riding up but I did not find this was a problem for me. Good luck with your fitting. I hope they give you lots of help finding something which works for you.
Sorry you did not get more replies. I have Nicola Jane lightweight foam prostheses and Trulife silicone ones, both of which work for me - but I tried a couple of other types which were uncomfortable so did not go for them. Neither of mine has a lattice structure but not sure if this is because they are full not partial or because the manufacturers have a different approach. Might be worth looking at both their websites - I just looked at their partial prostheses online and some don't seem to have the lattice structure which is obvious in pictures of the Womanzone and Amoena ones. You could try asking them which partial prostheses, if any, don't have the lattice - maybe your hospital would then consider getting something specifically for you if you identified it and they don't have it? I am sure something will work for you - just hope you find it quickly as it is no fun being uncomfortable.
Here is a link to the publication that Somerset mentioned http://www2.breastcancercare.org.uk/publications/treatment-side-effects/confident-choice-breast-pros...
Welcome to the forums.
Just to let you know we have a helpline should you want any support or practical information, the free phone number is 0808 800 6000 and lines are open 9-5 Monday to Friday and 10-2 Saturday.
Can't help with partial prosthesis specifically as I need full prostheses but I do sympathise with difficulty with fittings and as nobody else seems to have replied I hope this may help. I did not really have any advice from hospital and not measured so when I could move on from softies I needed some help! Luckily I got some great help from one of the commercial suppliers - some of them have shops and do fittings. I found one with a shop I could get to - they were listed in the BCC publication on clothes and prostheses and I then looked at their website and called them before visiting. I have now been back several times - brilliant staff at the two of their shops I have visited. They advised on sizes and let me try different prostheses (and pocketed bras etc). This was really useful to me as I find it hard to work out whether something I see online is going to fit/be comfortable - and there are lots of different types of prosthesis so hard to know which will work. I avoided buying something which sounded good online but when I tried it did not suit me at all. Ended up with prostheses I am happy with. Maybe BCNs are restricted in what they can offer you so if you can it might be worth looking at the BCC publication and trying elsewhere.