Glad to have helped mirey. I printed mine out and look at it from time to time - tee hee!!
Seems it is a mysterious PAM50 test. We read about it in all media and internet sources BUT it is not available/offered in the UK no matter privately or not. Yet?
Perhaps I am missing something.
Hi I don't know if the test is available privately but there is the OncotypeDX test that can be done privately but costs about £2,000 and the samples have to be sent to the USA and it classes a large number of women in the "intermediate risk" category which still makes it hard for Oncologist to decide if chemo could benefit or not. The PAM50 test shows those at high risk or low risk of their cancer recurring making it easier to know who would benefit from chemo.
The online tests are ok but some are out of date and don't account for newer treatments and shows those that are still "alive" after 5/10 years so that could be living with mets or NED
I didn't realise this was an older thread, I thought you had started it mrey300 lol, I didn't see the other posts above about the OncotypeDX test derrr, sorry if I've repeated what was already on here lol.
There is a free online test that you can do yourself to get an idea of what benefits chemo might give you. It's called predict and can be found here:
all the best
Hi the PAM50 test is not available on the NHS at the moment. i have read that it might be in the next year or so but apparently it's expensive. Sadly it's always about the money. xx
I'd like to ask to HAS anyone done PAM50 test and saw the result report either privately or on NHS?
It seems all these tests, if to beleive media, exist only within the labs grounds and won't be available for us for along time. I've got a reply from Marsden: "we don't do PAM50", as of October, 2013.
Would appreciate any feedback please.
Hi Bowl of Cherries
My diagnosis was similar to yours (IDC grade 3 no lymph nodes involved). As I was having a mastectomy (due to 2 small tumours and DCIS taking up too much of the breast ) I did not have radiotherapy. I wonder if the test they are doing is for HER2? It could be that they have tested for it at your hospital and that you are borderline for HER2 positive, and they need another path lab to do another test (FISH test – nothing to do with “fishes”, My tumour was HER2 strongly positive so I had Herceptin infusions. HER2 postive can be aggressive.
I was offered the choice of chemo or not so I guess that I was “borderline” in the sense that my tumours were small – 1cm x 2, and no nodes invoved, but that it was grade 3 and HER 2 positive as well as ER positive.
I chose the chemo as the doc suggested the belt and braces approach was a little more reassuring. Not everyone would make that choice its very personal to each of us, what we can face and what we can live with without undue anxiet.
All the best with your treatment and decisions. I am now 15 months post chemo and 3 months post Herceptin and all going well and I wish the same for you.
The best advice I have seen is don't google – just use the Macmillan site and Breast Cancer Care or similar specialist sites as google seems to bring up too many unusual and scary cases.