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"Diagnosed in February"

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Re: "Diagnosed in February"

hi lovely ladies x ah sharon that is definitely pants 😞  I have my first hospital appt on Monday and I'm getting really scared now. Im starting to think that what they told me last week may not be the full story. They seemed pretty sure when talking to me that that they couldnt see anything in my lymph nodes but they didnt test them or anything. They also said they couldnt see anything in my right breast but what if it just didnt show up. They also said id be on tamoxifen for 5 years so does that mean im hr +? they never mentioned that but it doesnt sound like its a good thing. I dont really know what it means. I thought I had a good idea of what was going to happen but maybe I just heard the 'positive' stuff. It doesnt help that I had my tests and biopsies at a screenong clinic but my surgery is elsewhere so will they want to do  all the tests again? I was really hoping that monday theyd be able to say what they were going to do and when and i could get on with it but now Im just dreading more bad news. Hope everyone is coping xx

Member

Re: "Diagnosed in February"

Hi Judimam and glad you enrolled in our all inclusive, friendly club. No problem too small to discuss here!
Hi Fuffs, well it's all a bit confusing, a lot of things are for me, it is a grade 3 infiltrating ductal carcinoma of no special type, associated high nuclear grade DCIS of solid and comedo type, invasive tumor and on and on the report goes...ER and PR negative but HER-2 positive. Virtual hug to you too x
Member

Re: "Diagnosed in February"

Hi Judiman
Welcome to the club that no one wants to be a member of but is full of lovely strong ladies! I've had amazing support here and received lots of virtual hugs. I had a lumpectomy and sentinel node removal on 10 Feb and today got my results. Looks like I'll need chemo, rads etc and genetic testing, which may lead to double mastectomy. I went through all sorts of feelings when I was first diagnosed, disbelief, denial, anger, sadness (lots of meltdowns at inappropriate times (shopping in Sainsburys!) and honestly thought i was losing the plot
Normally I'm quite a positive person, I run my own business, but I became a completely different person. All the feelings you have we've all had so we all know exactly how you're feeling. You will get through it as you're stronger than you think. Sending you virtual hugs xx
Member

Re: "Diagnosed in February"

hi Tussie

How were your results?
Member

Re: "Diagnosed in February"

Hi I'm Judith 39 and unfortunately I have joined the club today. I have a 12mm invasive ductal carcinoma grade 3. Surgery taking place on 12th March and I have been given the choice of lumpectomy or a full mastectomy. Thinking of going with lumpectomy as it's small but it's the radiotherapy that's frightening me. Nurse is coming to see me on Tuesday to answer any questions I may have and I have appointment with surgeon again next Friday. Not 100% sure how I am currently feeling.
Member

Re: "Diagnosed in February"

Hi and thank you for your support. Had a meltdown in clinic today when I received my result, I think the breast care nurse went home today with black and blue arms as I was clinging on to her for dear life. Anyway, calmed down ( a bit) now. Hope you all have a good weekend x
Member

Re: "Diagnosed in February"

Yes Tussie stay strong .. Hopefully all will be ok next week for you .. Xxx
Member

Re: "Diagnosed in February"

I feel for you Tussie, just keep as strong as you can, but dont beat yourself up in those bad moments - we all have them. Take Care Val x
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Re: "Diagnosed in February"

well I dont know what I am yet lol - but having surgery on 10th - expect they may tell me at my follow up 2 weeks appointment
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Re: "Diagnosed in February"

Hi Janey - yes I followed you on here as you said you were going on here. Would like to keep in touch and follow whats going on. Take care x
Member

Re: "Diagnosed in February"

Hi all! It's so good to read all your posts especially now as I got my results today and know I am not the only one.Not the news I was hoping for, now grade 3 instead of 2, not enough margin so another WLE next Friday, if that's not enough mastectomy, then possible chemo, radiotherapy and herceptin. In complete turmoil at the moment. Everybody stay strong! X
Member

Re: "Diagnosed in February"

I am so glad as my nurse gave me the results not the consultant and I googled it and got myself in a right state ... Thank you for letting me know xx
Member

Re: "Diagnosed in February"

Hi Cocolily, I asked the oncologist today about being her2 positive and did it mean the cancer was more serious. She said it used to be seen like that but that was before herceptin. She said herceptin is an amazing drug and having it puts us on the same success level as non her2 cancers.  Janey xxx

Member

Re: "Diagnosed in February"

Hi Val and Janey. I wonder if it depends on what area you live in ?
It is pretty scarey whatever cancer we all have isn't it. Wish I wasn't her2 positive though but hey ho!!!!
Member

Re: "Diagnosed in February"

Hi Val, just saw your post on the other thread, thank you for your support over the past few week.  I'm glad you have joined this February thread too as it will be easier to keep in touch.  Janey xxx

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Re: "Diagnosed in February"

Hi Cocolily, I asked my oncologist why I was having chemo first and she said they prefer to do it that way at that hospital. I thought it may have been because I have lymph node involvement but I have seen other people on here that have lymph involvement that have surgery first so it is all very confusing.  I would have prefered surgery first as I just want the cancer out but at least I will get the chemo over with. Janey xxx

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Re: "Diagnosed in February"

Hi - I was wondering the same thing too.  I was diagnosed 9th feb, surgery on 10th March followed by chemo later, I expect April.

 

I only know that mine is oestrogen fed so hence the hormon treatment after the chemo.  Dont know any of these other details that others seem to know.  Expect to find that out at two week follow up meeting and the road forwards.

 

Val x

Member

Re: "Diagnosed in February"

Janey I am exactly the same as you but having surgery first then chemo herceptin radio and then tablets Pretty scarey .. I wonder why some of us have surgery first and some have chemo first .. X
Member

Re: "Diagnosed in February"

Hi Everyone, I was diagnosed on 13th February, apparently my breast cancer is ER and PR positive and HER2 positive and was also found in my lymph nodes. I start chemo on 4th March and will be having 3 EC and 4 T with Herceptin. After chemo I will have surgery, radiotherapy and then tamoxifen, so the full package for me. Wishing everyone well with their treatments.  Janey xxxx

Member

Re: "Diagnosed in February"

Hello I was diagnosed a couple of weeks ago - same diagnosis as you Tracey.  Will start chemo on March 7th.  So terrified.

Linda

Member

Re: "Diagnosed in February"

Hi Tracey and welcome to the BCC forums

Along with the support here, please feel free to call our helpliners for further practical and emotional support 9-5 weekdays and 10-2 Saturdays on 0808 800 6000

Here's a link to further information and support ideas from BCC which I hope you will find helpful::

https://www.breastcancercare.org.uk/treatment

Take care
Lucy BCC

Member

Re: "Diagnosed in February"

I am HER2 negative. I know I can deal with this, I'm not bothered if they have to take both boobs, but it's hard psychologically to think I might have cancer in both, and having to have a third lot of biopsies is pants! Sharon
Member

Re: "Diagnosed in February"

Hi all i'm Tracey 

I have been diagnosed today 26th Feb as grade 3. Approx 6cm tumor in the right breast and cells found in the node in my armpit. I have been told i'll have chemo first then surgery. My husband was with me at the clinic, and i've been to see my mum and dad to tell them. I haven't told my 2 sons yet (22 and 17), but planning on telling them tomorrow. Dreading telling them. It feels very strange talking about chemotherapy, it just seems like it's something 'other' people have, not me. I don't wish it on anyone, but glad to know i'm not on my own. 

Wishing everyone a smooth journey through their treatment! xxx

Member

Re: "Diagnosed in February"

Sorry to hear that you have another worry restless but once you know, you can and will deal with it. I am hoping that you are ok ... I was told I am HER2 positive today so will have to have herceptin as well . Anyone else been told this ? X
Member

Re: "Diagnosed in February"

Another difficult day today. I had just started to feel more positive with hopes of an op date tomorrow. Got a call from the breast care nurse this morning to say that MRI shows two masses in left breast. My original tumour is in the right, so this may mean I have cancer in both breasts. Complete shock, now have to have ultrasound and biopsy of left breast tomorrow, then more waiting for results. Absolutely devastated. Still waiting for lymph node result too. Can it get worse?
Member

Re: "Diagnosed in February"

Hi all,

 

Just a little reminder that our General Live Chat starts tonight from 8.30pm to 9.30pm. If you have any questions about your breast cancer diagnosis, then you may want to join this chat service to speak with Rachel our specialist nurse who is happy to help. You can also speak with others who face similar challenges to you for more support.

 

If you are new to our Live chat service and would like to join, please click on the link below to register.

http://www.breastcancercare.org.uk/community/chat

 

Best wishes

June, moderator

 

Member

Re: "Diagnosed in February"

Hi girls! Diagnosed in Feb, had WLE and SLNB 12 Feb and now waiting for my results appointment tomorrow. Trying to stay calm (not very successfull). Yesterday I went in to work, the day went quickly but they insisted I shouldn't come in today so here I am reading all your posts. It is so comforting you have no idea, well of course you do silly me. I too find it hard to tell people, my vey best friends live abroad so email is a great way to communicate. Getting used to look at my new boob that have a massive linear scar, they took away the nipple and areola. Very best wishes to you all x
Member

Re: "Diagnosed in February"

I was diagnosed on 6th February. I could feel my lump but it couldn't be seen on mammogram or ultrasound. Had two biopsies and they still weren't sure. Also had tho whole lump removed and biopsied when grade 2 Idc was diagnosed. Took from my first appointment at the breast clinic until 6th February when finally diagnosed.
I had a snb and despite saying on the day tho two they took looked clear the results came back from the lab as one micro bit in one.
I am booked for mx and immediate Ld reconstruction for 17th March. Waiting to hear whether chemo and or radioradiotherapy. I will definitely have tamoxafen.
😞
Member

Re: "Diagnosed in February"

Hi fellow feb diagnosees!I have grade 1 invasive lobular in the right breast. Telling my dad was the hardest but he's taking care of the rest of the immediate family. I told a few close friends at work and then I asked my boss to tell everyone else in a big team meeting they were having while I was off so that took care of them. My older kids were ok. Haven't told my 10 or 7 year old yet, waiting for my surgeons appt to know exactly what's involved first. I'm in Surrey too Laura. My other half has a friend who works at gosh so her area of cancer treatment is different but she told him so much of how I would be feeling and no doubt you all probably do too. My partner has been great but I hope he took on board what she said. Xxx
Member

Re: "Diagnosed in February"

Welcome to all you lovely ladies. I was aprehensive to join here but it's been fantastic, the news and support is phenomenal. Any time you need a 'friend', come here. I am waiting for rads to start, seeing Onc. 11th March and will know what drug. I cant thank everyone enough for helping me so be reassured you will be helped. Masses of love and xxxxxxxxxx

Member

Re: "Diagnosed in February"

Hello, I have also been diagnosed last Friday. One of the worst days of my life as I'd convinced myself it was benign!! Waiting for all the tests to come back but know it's grade 3 and been told am having chemo to zap it and any stray cells and because of my age; I'm 40!! Hopefully then lumpectomy although I did say take it all!! Telling the kids was tough but they've been great and was a relief to tell them, lots know now and that helps as well. Scans starting tomorrow and hopefully by mid next week will know when it all starts. Just want treatment to start now as am aware of it there all the time!!! Just to say your forum has been a lifesaver the last couple of days but it's taken me till today to pluck up the courage to join you!!. Life's a **bleep** eh!!! Watched my mother battle and win breast cancer but sadly ovarian got her in the end, so due to that I now have to have the genetic testing. At least they're being very thorough. Cheers, and all the best to all of you, and thanks for all the advice I've read over the past few days xxx
Member

Re: "Diagnosed in February"

Hi, I'm Sue, diagnosed on 4th February (wasn't that cancer awareness day?), grade 2 inv lob, just had wire put in today, WLE tomorrow and sentinel node excision (Hoorayyyyyyy) definitely radio, but will find out what else in two weeks time. It has been a long month!
Member

Re: "Diagnosed in February"

Hi ladies, I have been on the waiting for results thread for a while with some of you. Time to transfer here. I was diagnosed with Grade 2 invasive ductal carcinoma on 17th Feb. I'm 43 and live in Leeds. Hoping to get treatment plan on Friday, but definitely mastectomy and tamoxifen, just waiting to hear about chemo and radio depending on lymph nodes. Have pretty much finished telling people now but has been exhausting saying the same thing over and over. I agree with Janet, an email is a pretty good way and they can then choose to phone you and you can talk without having to 'break the news'. People will understand, it's quite emotional and straining having to talk to lots of people.
Member

Re: "Diagnosed in February"

Thank you both!
Janet I think I'll have to accept that I'm going to have to tell my parents over the phone. As for my friends, I will be doing that in written form of some kind as I don't want to repeat myself over and over. x
Member

Re: "Diagnosed in February"

Hi Rosie, so sorry to hear that you have had to join our club...and that is exactly what it is we are all in the same boat. Like you I was upset at the thought of having to tell my family, especially as my daughter in law is also a member of this club as well. So I took a leaf out of her book..I spoke face to face with those who I could and to those who lived afar I sent an email explaining the diagnosis and the treatment I was going to receive, some people may think this as impersonal but you only write the story once, and not the emotional roller coaster of having to repeat yourself on the telephone....keep in touch with us xxx
Member

Re: "Diagnosed in February"

Hi Rosie .. Sorry to hear you have joined this club !
I don't think there is any wl easy way to tell family and friends but have found out that people do care and offer to help in any way they can .. Glad you have joined the group so we can all support each other !!
Member

Re: "Diagnosed in February"

Hi rosie-ree and welcome to the BCC forums where you will find lots of support and shared experiences to help you through this difficult time, in addition, our helpliners are on hand with practical and emotional support for you so please feel free to call. Lines are open 9-5 weekdays and 10-2 Saturdays on 0808 800 6000

Here's a link to further support and information from BCC aimed at younger women including our 'younger women together' residential events which I hope you will find helpful:

https://www.breastcancercare.org.uk/younger-women

Take care
Lucy BCC

Member

Re: "Diagnosed in February"

Hi ladies,
I have been reading your posts for a while in the waiting for results forum.
This morning I joined 'the club' I have grade 2 invasive breast cancer. I am having my ct scans and bone scans tomorrow - very fast moving.
How do you tell people? I don't live near my family or friends (a 3 hour journey away) how on earth do I tell them over the phone?
My name is laura I'm 30 and have a 1 year old little girl and we live in Surrey at the moment 🙂 x
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Re: "Diagnosed in February"

Yay found it! I'm Karen, diagnosed 19 February, no date for surgery yet but appt at hospital this Monday. Hopefully no chemo or rads but mastectomy likely. We can take the journey together x
Member

"Diagnosed in February"

Feel free to join - diagnosed in feb post.
I'm Alison diagnosed 18th Feb, op on the 5th March, then chemo and then radio therapy .. What a journey !!!