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"Diagnosed in February"

139 REPLIES 139
kilimanjaro
Member

Re: "Diagnosed in February"

Fuffs123, you are spot on about trying to find somewhere to park at LRI. It's a shame that we can't go to Glenfield for everything. I took my mother-in-law there the other day to see a skin specialist, after having been there about 2 days before to see my oncologist. Once you've managed to park the car somewhere, you then end up in a broom cupboard to talk to the oncologist. 

Fuffs123
Member

Re: "Diagnosed in February"

Hooray, my onc appt is finally through. In my strange world, it's something to feel grateful for! Think you'll all know what I mean. See the genetic counsellor on 27th, lets hope me and the OH are not divorced by the end of the month, the parking at Leicester Royal Infirmary is terrible! Xx
Fuffs123
Member

Re: "Diagnosed in February"

Hi Tussie

Well you think in this age they could send it via email wouldn't you. Today I got my appt through for genetic counselling, which I was told would take ages but nothing from oncology. Frustrating or what. You can't help worry what will be growing while you're waiting. As my tumour is ER+ I wonder why they don't start you on hormone treatment straight away? Anyone know?
Tussie
Member

Re: "Diagnosed in February"

Hi dear all!
I am in the "waiting room" too, will know hopefully next Friday. I think I will have more or less all the treatment box options ticked, chemo, Herceptin and rads, the grey area is mastectomy or not.
Fluffs, can't' they send your ref letter electronically? X
Fuffs123
Member

Re: "Diagnosed in February"

Hi Tussie

Well I'm glad I made you laugh! We all need a bit of light relief some time. I'm in the horrible waiting stage, to see the oncologist but they keep losing my referral letter from my surgeon. Still, at this rate I'll be eligible for the onc-dx test, which is available on the NHS from 01 April. Might save me from unnecessary chemo. X
Tussie
Member

Re: "Diagnosed in February"

Hi Fuffs, made my day reading about your sandwich story!
Restless and Katielou2 I do feel for you, it is a bumpy ride isn't it. Just had my second WLE last Friday so hoping for good margins this time. X
Fuffs123
Member

Re: "Diagnosed in February"

Well today was a classic! Popped to the garden centre to cheer myself up with a nice hanging basket when OH suggested we had lunch in the rather nice cafe there. What would I like said the young girl behind the counter? I'll have a tumour mayo sandwich please says I. Sorry I meant tuna mayo I said hastily! You can tell what was on my mind even subconsciously. I could see the funny side of it as did the OH but poor girl, she looked very shocked. Just another day in my very surreal feeling life at the moment. 😃
Fuffs123
Member

Re: "Diagnosed in February"

Hi Restless and Katielou2
Just wanted to send you virtual hugs. You're both going through a really bad time. I can only say I'm thinking of you and send you lots of support from the smallest county in England, Rutland! Xx
Restless
Member

Re: "Diagnosed in February"

Totally drained. Went to clinic for results of biopsy on the left breast. In addition to invasive cancer on the right I have atypical intra ductal hyperplasia on the left, plus had more biopsies (the 4th time now) from another suspicious area in left. Battered and bruised and fed up. Now booked for double mastectomy on 11th March. At least that will give me peace of mind. Keeping fingers crossed that lymph ok as not sure I can handle any more bad news.
Katielou2
Member

Re: "Diagnosed in February"

Hi everyone, I also would like(?) to join you. I got initial diagnosis on 20th Feb following biopsy, saw oncologist today for full diagnosis. I'm not sure I took it all in, still feel like I'm in a bubble! I have grade 2 invasive lobular cancer in one breast, lymph nodes enlarged, CT scan shows no spread and MRI shows other breast is clear. It is ER+, HER2 results were borderline so sent for further testing. Surgery not appropriate at this time but will need mastectomy at some point but priority is to stop growth and shrink tumour. I'm not yet post menopausal which was a surprise to me so today I had Zoladex injection to induce menopause and started on letrozole, I will have repeat biopsy in 3weeks to see how tumour responds to this treatment.
I really don't know what to think as was expecting surgery and chemo, just seems to add to feeling of unreality!
Initial thoughts were all around will I survive this, now don't feel able to ask/take in any info re likely prognosis.
It's just so overwhelming to start to think too much about it!
Chez666
Member

Re: "Diagnosed in February"

Hi fuffs, sorry to hear about cancelled appt, that's pants and definitely deserving of points towards the trophy as well as anything that is comfort food but avoid anything which is good for you x x x
Fuffs123
Member

Re: "Diagnosed in February"

Hi Karen. I'm sure that donuts are a potent anti cancer treatment and the ones with the cream in as well as the jam are doubly effective! I can also recommend cheesecake served with cream. However, I must counsel against doing your physio exercises immediately after eating either or both or after a rather large curry. Believe me I have personal experience! However, doing your exercises when slightly tipsy works very well🍷🍷 and makes the wings one nearly bearable. Feeling fed up today as the oncology dept have lost my referral letter from my surgeon and that means more delays. Surgeon is fuming but can only send them another. Hate the waiting, where's the cake and the wine! Bring on the donuts 🍩🍩🍩
rosie_ree
Member

Re: "Diagnosed in February"

Karen I think you should start your own study into that 🙂 x
Karen50
Member

Re: "Diagnosed in February"

does anyone know if jam doughnuts have the same effect as cabbage and asparagus 🙂

Karen50
Member

Re: "Diagnosed in February"

Hi lena

 

I saw my consultant on Monday and he will remove my right breast, taking whatever they need from my tummy to reconstruct and reducing the other side too. I still have to see the plastic surgeon to make sure its all possible but he said Id have 2 teams working on me, it would take about 4 hours and that it could all be done at the same time. xx

rosie_ree
Member

Re: "Diagnosed in February"

Lena,
There is a really good information booklet on this site with regards to options after mastectomy. It also has a chart which states general operation times, hospital stay and recovery times for each option.
I am 30, losing my left breast also, I have my consultation today to discuss options but based on the table/chart on here an implant is the way I would like to go. It has the shortest operation time, hospital stay and recovery period and I have a one year old little girl who needs me.back on my feet so for.me I think that's the option il take.
Hugs x
Lena2
Member

Re: "Diagnosed in February"

I am still at the stage of having to lose my left breast and having my bone scan on Friday. Will know more next week when results back for CT and Bone. I am 74 no previous illnesses at all and very agile and fit but would also like the tummy tuck version. I have been told they will reduce my right breast in keeping with the new one. To date I have not had any discussion as to which way to go but how long an op if this is all done at once or is it just the new breast with fat from tummy? I feel this is all happening to someone else as I am so detached from it all - I think it has not sunk in yet.
rosie_ree
Member

Re: "Diagnosed in February"

Definitely, it was my brother that pointed me in the asparagus direction so I skim read some info on it. Apparently the reason your urine smells after eating asparagus is because it removes toxins from.your body and that's effectively what the smell is. So it's a natural detox and can help your immune system? It is quite interesting and we all have to eat 😉
There is a lot of research into green vegetables in general and there help with the immunity x
Fuffs123
Member

Re: "Diagnosed in February"

Hi Rosie-ree
I think I may have drawn the short straw here with the cabbage! You do wonder if there's actually some foundation to these things, perhaps they contain some sort of natural substance that either boosts your immune system or attacks cancer cells? After all, aspirin was originally derived from a tree! (I'm not advocating using alternative medicine to treat cancer by the way) but wouldn't it be wonderful if chemo became a thing of the past one day. X
rosie_ree
Member

Re: "Diagnosed in February"

iv been told about cabbage, and also asparagus therapy.
Il go for the asparagus and we can compare notes 😉
Fuffs123
Member

Re: "Diagnosed in February"

Hello all, just had to share this as I prepare for what is probably another sleep deprived night. Polish friend told me today that his mother's cancer was cured by eating lots of pickled cabbage! He wasn't joking. I'm off to Sainsbury's tomorrow to buy out their stock but I'm a bit concerned about the possible gassy side effects! OH has doubts about the efficacy of this treatment. Can't imagine why. Must mention it to the oncologist, if I ever get to see him, as I'm sure he'll want to add it the arsenal of weapons. Hope you all have a good night. X Francine
bushy
Member

Re: "Diagnosed in February"

Hope everything is going well Rita! xx

newey47
Member

Re: "Diagnosed in February"

Good luck rita - take care x

Fuffs123
Member

Re: "Diagnosed in February"

Hi Karen50

Welcome to the snivel club! We're growing very fast, not sure if that's a good thing or not. Actually I think it's good that we can admit to having down days without being chastised for not being so very cheerful all the time. Sounds like you are in very good hands and you have confidence in your surgeon, which is so important. I think. Reading some of the things that surgeons have said to some of the ladies makes me liviid, so tactless and seemingly without any understanding of how one might feel about losing a breast (or two even). Don't wish to seem sexist but as they are mostly men, i wonder how they would feel if someone said we're taking your little chap off?! I was born and brought up in Hammersmith by the way so you can't be too far from there, if you're going to the Chelsea. Great hospital, right place to go. I spent many years living in Chiswick also as a child before it became very trendy! It was £5000 to buy a house there in 1960,lol You are such a lucky person, boob job and tummy tuck at the same time, what mote could you want in life?! If I have to go that route, they won't have any problems finding enough fat in my tum to use. i can tell you. Too many snivels = too many cakes! Clearly i'm a comfort eater and OH is a feeder! Today, I must tackle the VAT return for my business and since I have the concentration of a gnat at the minute, it will probably provoke at least one snivel. Will send OH out to get donuts in preparation. Xxx Francine
Cocolily
Member

Re: "Diagnosed in February"

Good luck Rita x
Welshgirl-1
Member

Re: "Diagnosed in February"

Good luck Rita with your op today xxx
Fuffs123
Member

Re: "Diagnosed in February"

Good luck Rita11 for today. Thinking of you and sending hugs. Xx
Chez666
Member

Re: "Diagnosed in February"

Good luck Rita x x
13gerbera
Member

Re: "Diagnosed in February"

Good luck Rita

xx

Sharon

rosie_ree
Member

Re: "Diagnosed in February"

Good luck today Rita x
Rita11
Member

Re: "Diagnosed in February"

A tummy tuck too! Today's the day of mastectomy for me. Surprisingly calm just want to get it done and move on to next stage. I can feel it has got bigger since diagnosis and skin started to change. Our treatments may be different but all in this horrible place of uncertainty.
Karen50
Member

Re: "Diagnosed in February"

oh my goodness..so many new replies and no time to read them just yet! But after a skim read Im def joining the snivel club too please! Just a quick update really...

Went to the hospital this morning and met my consultant. He seemed really lovely, a real, 'don't worry we'll sort you out' guy.  It was all pretty much as I expected. There are 3 tumours but only 2 biopsies were done. He said one option would be to biopsy the third and do mri's and if that came back negative then they could consider breast conserving surgery. He asked what I thought and told him that for my own peace of mine Id rather just go for the full mastectomy which he agreed was a good decision. have to have a radioactive coloured dye in my boob the day before op so they can see where my sentinel lymph node is. He says they look ok but 20% of cancers in the nodes cant be seen on ultrasound so theres still a chance it has spread but he seemed quite positive. Im seeing a plastic surgeon next Thursday who will obviously have the final say as to what will be best for me in terms of reconstruction but today he said there didn't seem to be any reason I couldn't go for an immediate reconstruction. Providing a scan on my tummy is ok, they can in effect give me a tummy tuck and use the blood vessels and fat there to use for my new boob. They can also reduce the other one so I'll have two teams working on me either side. Because its quite a long op and a lot involved I may have to have it done in Chelsea rather than in the marsden (which is 10 mins away) which would be a right royal pain but they have a better high dependency unit there. In hospital about a week, then at least 6 weeks to recover. Nurse showed me lots of pics too and they were really reassuring. So...still not out the woods but so far, looks like i'll make a full recovery, get a new pair of boobs and a tummy tuck to boot! Feeling so much better today. Still a few what ifs, but I feel much clearer about whats going to happen and that long term I have a very good chance of a full recovery xx will be back later to cacth up on the last 4 pages ! 🙂

Rita11
Member

Re: "Diagnosed in February"

Tomorrows the day for mastectomy. Instead of being worried I feel keen to move on. My lump is bigger and the skin has changed even in the 3 weeks since diagnosis. Agree with club chairman others comments which I am sure are said with best of intentions not always helpful. Roll on tomorrow. Not sure I will sleep..
Fuffs123
Member

Re: "Diagnosed in February"

Evening all from the club chairman! No doubt about it, snivelling in the early hours of the morning will give you double points and treble if you have persuaded some poor furry creatures to come to your bed as hapless onlookers! If my poor old cat (Henry) was still with me, (oh snivel coming on) he would be soaking wet by now. Wonderful comment of the day, from a friend'God only gives difficult times to people who can cope with them (thank you so much God) followed by ' you will come out of this as a stronger and better person. Oh Yes but with no boobs, no hair and skin like e prune. Lovely! Had a bit of a snivel today when OH forgot to put the bin out, which means we have a wheelie bin full of festering rubbish for another 2 weeks. Lovely. Not exactly the crime of the century but feels like it to me. I shall need to make him feel very guilty about it. And expect a large box of choccies, lol. Waiting for the oncology appt is like slow torture at the moment. Heh ho. Sending hugs to all you lovely ladies, even if you do have dodgy armpits! Xx
13gerbera
Member

Re: "Diagnosed in February"

Hi Rosie Ree

 

My story was the exact opposite, in that if I hadn't kept my fibroadenoma my cancer probably wouldn't have been found for a long time yet and by then it would have been far more serious.  My cancer was at the back of my breast, near the chest wall and the swelling made the fibroademoma at the front of my chest stick out a bit which is what sent me off to the doctors.  Pretty sure I wouldn't have noticed anything wrong if I'd had my fibroadenoma removed when I first found it a decade ago. 

 

I'm not saying this to be contrary, just to say that fibroadenoma aren't necessarily a bad thing - I'll be eternally grateful for mine as I think it saved my life!

 

Hope your treatment goes well

xx

Sharon

rosie_ree
Member

Re: "Diagnosed in February"

Thanks Wemblo,
Sorry to hear that, I hope all of your treatment is going well.
It seems most people have these taken out which makes me.even more cross I was refused.
Wendyy
Volunteer

Re: "Diagnosed in February"

Rosie ree

So sorry to hear you're in this situation. Not sure it helps but I had a fibroadenoma removed 6 years ago on the NHS. It was their suggestion that it should be removed. I recovered well and had no further problems until last July when I had breast pain and went on to be diagnosed with invasive ductal mixed carcinoma. I guess you'll never know but thought my circumstances were similar. Hope this helps you.

You've found the right place for lots of support sending hugs xx
rosie_ree
Member

Re: "Diagnosed in February"

so, I found a lump in my breast 5 years ago, had a fna which found nothing and sent away being told it was a fibroadenoma. I requested at this point to have it removed and was told no that it was a cosmetic procedure and I'd have to pay privately (I was 25 but I wasn't asking for a book job)
This lump has changed and got bigger over the years but being a fibroadenoma that's normal. Due to finding a secondary smaller lump attached to the initial I got checked and it's cancer.
I can't help but feel if he had just taken it out I wouldn't be in this situation now!
Matty2
Member

Re: "Diagnosed in February"

Just looked in here

love that Francine really made me larff!

 

OH just puts his arm round me when I have a meltdown in middle of night, How does he know when I am 

Love the idea of having to have dogs on the bed to help you though it

Can definitely recommend Tarte au Citron though.

Into Hot Cross Buns at the moment - Waitrose ones, lovely plump fruit!!

 

That follicliwhatsit sounds awful, Am getting an under arm fuzz but not very much, putting it down to Anastrozole - still need to get something so I can clear it - electric razor here i come!

Oh was offered jab for pneumonia but he has health problems any way, perhaps it's anothe 'perk' of cancer

 

Guess what though - booked aholiday in Spain for September , so excited - first time i've dared look that far ahead

eileen728
Member

Re: "Diagnosed in February"

Good idea Francine. It's usually people who aren't going through this who tell us to be positive!! Like all 3 of your suggestions - chocolate and beer good for me too. And the occasional shouty rant xxx
Chez666
Member

Re: "Diagnosed in February"

Hi, it's an inflammation of hair follicles a bit like acne in your arm pit which I am blaming on the exemastine(aromasin) tablets 💊💊as I have a forehed full of then since starting them,,,still they say 50 is the new teenager😄😄 interesting re the jab for pneumonia, 💉💉not heard that one but as you say they are doing their best and only trying to help. I just remembered you delayed your tablets until,after rads, sounds like you made the right call. Have lots of strong antibiotics and OH must be hiding the chocs as they have not materialised yet, must drop another loud hint 🍩🍩🍩 as you can see playing around with symbols x x
13gerbera
Member

Re: "Diagnosed in February"

LOL actually Cheryl I think your joke might be my new favourite joke 😄

 

Must be the day for GP visits as I saw mine this morning.  She is absolutely lovely but what is it with GPs and injections - she was trying to persuade me to have an anti-pneumonia injection this morning. Is pneumonia another cancer side-effect I don't know about yet?  I decided she was just trying to be helpful and offer me something so that I felt supported and that was the best she could come up with!

 

Sorry you're still having trouble with the healing and I don't know what folliculitis is but it doesn't sound like the sort of thing you want anywhere near an armpit so I don't blame you for having a meltdown. Did you get some antibiotics or something to help?  I think you need to send husband out to get a stock of chocolate and tarte au citron as they seem to work 🙂

xx

Sharon

Chez666
Member

Re: "Diagnosed in February"

Ps it's folliculitis!! Can't tell jokes or spell x x
Chez666
Member

Re: "Diagnosed in February"

Sharon, firstly some career advice, don't give up the day job and become a comedian, having said that it did make me laugh so thank you! Red rash under my arm is focullitis, it's the only condition that so far I have that has the right first letter because everything else begins with an 'f'at the moment even if it doesn't . So last night spent time googling which I know was stupid and convinced myself it will turn into cellulitis and then lymphoedema so as is my new usual making a small thing into a drama!!! Wound still not healed after 8 weeks so had meltdown this morning with gp, whilst she was removing my coil and giving me a zoladex injection (fortunately not at the same time!!) and then drove to the hospital and had another melt down with the bc nurse!! On the upside Chelsea won the league cup yesterday.....sorry for the amateur dramatics and thanks for listening, Cheryl aged 53
Ps my joke of the day a ham sandwich walks into a bar, the bar tender says, sorry we don't serve food here. For vegetarians please replace with cheese.....
June_BCC
Member

Re: "Diagnosed in February"

Dear All

 

Just sending you all a gentle reminder about our daily Live Chat service - Talk Together. This is a private chat room where you can talk to others who are also facing breast cancer in confidence.

Talk Together takes place every weekday from 12.30 – 1.30pm and will not be moderated or accompanied by a nurse. If you would like to register or find out more information then please visit

 

http://www.breastcancercare.org.uk/talk-together

 

We hope that you enjoy using the service and that you find it help.

 

Thank you

June, moderator

newey47
Member

Re: "Diagnosed in February"

Ha ha Francine, that is so good, made me laugh.  OH said oh thats a bit strong isnt it?  lol - But then he is NOT us is he (bad english there).  We are all entitled do do whatever and act whatever way we do. Kepp up the good work

 

Val

13gerbera
Member

Re: "Diagnosed in February"

Definitely double-points for snivelling between 1am and 5am Cheryl, but you get half a point deducted if it's done in the company of a much-loved pet (whereas you gain half a point if it's done in front of a much-loved human) Smiley Wink

 

So, what's got you upset? Would my all time favourite joke help?  Yes? ...Well here goes then:

 

What do you call a fly with no wings?

.

.

.

.

.

.

.

.

.

A walk! Smiley Very Happy

 

xx

Sharon (aged 50 and a quarter)

Chez666
Member

Re: "Diagnosed in February"

And can we have double points for snivelling in the quiet hours, although i have just let my 2 westies come and keep me company in bed and they are snoring very loudly!! So it's not very quiet x x
Restless
Member

Re: "Diagnosed in February"

I love it Francine, you are in danger of making me smile
Wendyy
Volunteer

Re: "Diagnosed in February"

Lol Francine. Just the tonic I need.

Xx