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"cooking" in April/May 09 any others new to rads ?

cass141
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi all, well the early morning appts are def the ones to have - in and out in less than half an hour and that included having pics taken again. Hope everyone elses rads goes ok today. Lulu and Lizzie, bc is bc, we all have varying degrees of it and treatments to match but the physical and particularly the emotional toll it takes is devastating for everyone. There are people on the forums that are several years post-dx and they still have ups and downs so it's natural to feel weepy and angry at times, mine come at the most inopportune times and I just have to excuse myself and leave before I either dissolve in tears or batter someone!!!! Well, for a change, in the south at least we are forecast to have a gloriously sunny bank hol weekend (that's prob just put the kybosh on it!) so I hope everyone gets the chance to go out and enjoy it. I've already bought my Factor 50+ cream in prep (now it'll DEF rain!!). love and hugs Pat x

LizzyM
Member

Re: "cooking" in April/May 09 any others new to rads ?

Morning all

A new club to join!!

Planning this afternoon, then starting 15 sessions (hopefully) 18th May. (Neck and neck now, Sal!)

Will update re East Yorkshire recommendations on creams, deodorants, and of course, quality (or not!) of musical accompaniments, later!

Lulu, sorry to hear you are feeling low, I'm also no chemo / no lymph nodes, but, you have still had a stressful time, + an op - only natural that you are going to have ups and downs. I know, we are relatively lucky, so many people have so much more to deal with - but, as I've said on here before - "It's still a shi*ty stick, we just have the less shi*ty end" Sorry if that's a bit "earthy" but it sums it up, I think! Look after yourself, body and mind have had a traumatic time lately.

Hope it goes smoothly for all today,
Lizzie XX

cass141
Member

Re: "cooking" in April/May 09 any others new to rads ?

Andi, I'm on Elekta 6 mostly but a few are 5. Times are either b4 9am or after 5pm, one is at 6.50pm! My onc is Dr Harris altho I'm under Dr Ellis who I've yet to meet! Staff are lovely there aren't they. I will look out for you, I'll have my 'Cory' wig on, short marble brown bob, unless I'm having a blonde day in which case I'll be wearing 'Cory' in Sunny Blonde!!!!! Salopets, i too had just started to wear my normal bras and now I'm back to soft ones, I think sports bras, pref mainly cotton are ideal, and go one size up, my boob had just gone down after surg and now it's swelling again. Oh what fun. Lulu, the poking and prodding will hopefully soon be over. I'm really sick of getting my boobs out very five mins but it's not 4ever. Hope you feel better tomorrow when you go. Think of the 3 day break. Sandra, wonder what you'll have tomorrow - a bit of Abba maybe! Hope all goes well for everyone tomorrow. Pat x

AndieT
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi Pat

I wonder if any of our appointments are close. We may even be in the waiting area at the same time. Mine are all on the Elekta 5.

I have been told that after rads I will be having tamoxifen but at the moment it hasn't been prescribed. The senior lady I saw today said that would happen when I see the oncologist on thursday week.

Are you by any chance under Dr Sawyer?

Salopets I had a bi -lateral mastectomy and to date have not even bothered wearing the softies. I seem to be quite happy flatish. They have said for the duration of the rads wear something loose that doesn't rub.

Good luck tomorrow everyone

Andie

lulu650
Member

Re: "cooking" in April/May 09 any others new to rads ?

Find the daily commute into hospital really depressing. I'm on the much lower end of the scale of breast cancer, in that I had no chemo and lymph nodes were clear.

I had a bit of a cry driving home. There were many seriously ill patients going in who were patients at the hospital. Patients being wheeled in on beds, wheelchairs, with drips. I felt fraudulent just being there. I suppose because there was a space between hospital appts and the radiotherapy, I had begun to feel normal again. Now I'm back to being prodded and poked around, just doing what I'm told.

Still, not long.....glad everyone else is coping so well x

salopets
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi Sandra, glad to hear they're keeping you entertained whilst your cooking. I've got my planning appointment next Wednesday and then I start 3 weeks rads on 20 May. I'll certainly be glad to get going on it, as it will be 14 weeks post surgery when I start. I have to go to Brighton, which is only about 15 miles, but the traffic there is horrendous, so goodness knows how long it will take. I've also got a meeting there on Tuesday, which they call a "welcome meeting". You get to have a good look around, are shown the equipment and have a chance to talk to staff, so at least I'll know where I'm going when I arrive for my appointment.

I'm reassured by the comments so far that it is not too problematic. Do you all find you need soft bras? I've only just started to wear my normal underwired ones and not looking forward to going back to the "engineered by Wimpey" ones. Also, I find all the soft ones are cut really high and they show under summer clothes/v necks/t shirts etc, as I'm quite short.

sandra44
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi all, ooooh was subjected to "islands in the stream" with Kenny Rogers and Dolly Parton !

Am fine and dandy just a little warmth in the boob,haven't resorted to the cabbage leaves just yet....

Oooh you biker chic Andie, you wouldn't catch me on one of them,got put off as a teenager when my shoes fell off,right enough don't think that clogs were the ideal footwear !

I had some pics taken of boob today so they can monitor it visually through treatment and was in and out very quickly so can't complain,I find it strangely relaxing,am sure they must blast me with some happy drugs while I'm in there or maybe my euphoria is due to escaping the mad music ! Lol.

Got a mate driving me up tomorrow so am looking forward to treating us to a nice lunch !
I have been on tamoxifen a month now and take it at night before I go to bed with an evening primrose tablet,felt a bit nauseous first couple of days but that passed,only side effect I have is it seems to have affected my sleep,can get off ok but after 4 hours seem to be very restless and not having a proper deep sleep,but nowt else apart from that so can't complain.

Hope all your skin is holding up and your slapping on that cream.

Sandra x

cass141
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi Andi, snap, most of my treatment is Guys, and the last Friday zap on 15th May will be at tommies so that I can see onc there. I work at Guys in the Urology centre, I'd only been there about 8wks when all this happened so have been off ever since. Now looking fwd to getting back to work, even if only p/time at first. What a nuisance when they cancel appts, I'll be glad when thenonly reason I need to go to hosp is to work! You're very brave on the bike, I wouldn't be too keen. Haven't you started the tamoxifen yet? The senior radiographer that I also saw today (Jane?) checked my notes and said onc clearly said I would start tam after chemo so will begin tonight .(I've read that if you take it at night it cuts down on the nausea). Well, 2 down 13 to go and we have a nice 3 day break after tomorrow. All the best to all, Pat x

AndieT
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi

Pat I am having my rads mostly at Guys but a couple are at St Thomas'- the hospitals belong to the same trust-it is pot luck which one you are sent to.

Today after my rad zap I had to see the senior radiographer which is standard proceedure - and will happen every thursday during rads treatment. Then on the last thursday I will be sent to the breast clinic to see the oncologist.( No appointment just wait your turn)I just thought it was in, zap and out again, wrong again.

Travelling on the bike was OK. The rain held off and we made good time. Hubby has now decided that thats the way to do it!! When will he realise that I am a lady of senior years and have no desire to reclaim my biking youth.

Having made the effort to get to the London hospital as afficiently as possible my own hospital cancelled my prothesis appointment so I could have gone by train after all.

I have never heard of a magnapulse and would be very interested to know how effective it is. I too will be going on tamoxifen, but am still suffering from hot flushes post menopause. The chillow is very good as well, but I will give anything a try(even vegetable leaves if they work)

I hope everyone had a good day and is looking forward to being further 'cooked' tomorrow

Andie

cass141
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi all, Abby thanks for the tip, good old m&s. I bought a sports bra from a local sports shop and it's not bad but will have a look at the m&s ones. On their website they have a pack of two for about £12 or something. I bought a size bigger and it's much comfier than my normal bras. Well, todays appt was much quicker even tho they took pics again. Been told I can commence tamoxifen - goody!!! More hot flushes and night sweats to look fwd to. I might buy a 'magnapulse' it's avail online and at Boots and is supposed to be very effective at reducing flushes and sweats assoc. with menopause - anythings worth a go. Well Andi, no rain! Hope your appts went well, which hosp are you having rads at in London? Sandra, used the leaves yet? My boob is a little bit pink at the mo. Not too bad tho. Hope everyone else is doing ok. Pat x

topsymo
Member

Re: "cooking" in April/May 09 any others new to rads ?

Had my rads in Jan and found radiotherapy a complete doddle.after the horrors of chemo. I had no skin reaction ( even though I have a sensitive skin & had previously had cellulititis)- and I found the staff very pleasant, kind, efficient and quick.
I had an hour's drive each way which I mostly did alone ; parking was often a problem and NOT free but the actual treatment was almost a pleasure after my very poor experience of production-line chemo sessions. No after-effects thus far except the irradiated breast is firmer than the other one!

Abby
Member

Re: "cooking" in April/May 09 any others new to rads ?

I got some very comfy bras from M and S they are like sports bras with very deep band they don't look fashionable but boy are they easy to wear. X ABBY.

milly38
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hello
Are you going to Clatterbridge? as I have two sessions left there , Don,t worry the therapy is far less demanding than chemo, yesterday was the first day I was tired out and had to go to bed early....everything else has been fine you use aqueous cream every day and you shouldn,t have a problem...my skin is slightly pink and I only have three sessions to go...The team there are tremendous they have all theinfo you need at the Macmillan centre and have you enquired about hospital transport....I am picked up and dropped off everyday by ambulance or volunteer driver...My whole experience has been really positive .

cass141
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi Ladies, I agree with Sandra and Andie, it was fine. Although I waited an hour b4 being called, and they measured me up again and took x-rays - they said theat would be done each week of rads. Actual zapping only took 3 or 4 mins at the most. Jill, I'm sure you'll be okay, my boob is still a little swollen from surgery in Nov, as long as you look after the skin well it 'll be ok. Lulu, hows it going? Phili, you're almost done! What are the booster sessions? Sandra, has the cabbage been used yet! I found the underside of my boob was a little tender, bra seemed to rub so will see if I can find a sports bra to wear. Oh well, we're on our way. all the best for today, Pat x

sandra44
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi Jill, when I got my appointment through for planning I got my first rads date/time through as well. I got the rest of my timetable today and have them all round about the same time,also got a session with the physiotherapist booked up and an appointment with the onc in the last week.

The day after I got my stitches out(WLE and SNB) my boob exploded ! Had a huge amount of fluid/yuk come out which got swabbed and it wasn't infected,had another major explosion(literally) 2 days after and it leaked for a good week or so after that.However, it is all fine now,was initially hard and lumpy under scar but have been gently massaging it with aqueous cream and it has improved a huge amount,rads can make your boobs firm up and go hard. My onc said it will just not go back to the way it was ,unfortunately.Great that you have finished chemo tho,am sure this will be a stroll in the park after that.

Fingers crossed for a dry day tomorrow Andie,good luck with that. Better go zzzzzzzzzz now.

Sandra x

Philidel
Member

Re: "cooking" in April/May 09 any others new to rads ?

10 down, 5 (plus 3-5 booster sessions) to go. Now going a faintly pink colour, nipple rather itchy and site of tumour very hard, lumpy and puckered up. Otherwise the whole process is fine. The staff at Northampton General are lovely, and it seems very efficient there (apart from the parking being a bit of a pain). Luckily I haven't had to drive there yet as friends & family are taking turns in "chauffeur-ing" me.
I'm hoping to get my booster planning session re-scheduled soon.
Phili x

AndieT
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi

Rads-1 down 14 to go.

Compared with chemo and surgery this was easy.It only took about 15 minutes in all including getting undressed and dressed again.I have my own gown and a wealth of information about cream to use.

The journey into London on the train is a nuisance but only a few of the appointments will involve rush hour travelling. Tomorrow I have to be in London early for rads and then in Kent at 1pm for prothesis fitting so I am going on the back of hubbies motorcyle. Please all keep your fingers crossed for a dry morning, I really don't do motorbikes and rain!!

Jill I had to wait for my schedule to come in the post following rads planning. It took about 2 weeks.I suffered with seromas after my surgery and was worried that the swelling I still have would delay the rads but it hasn't been a problem. After surgery in my naive mind I expected to be dead flat but the reality has left me with what can only be referred to as man boobs.

Good luck everyone

Andie

lavendersblue
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hope you don't mind me joining this thread, but I have an appointment for my rads measuring up and tattooing session on the 8th May . I haven't yet got a date for the start of my treatment proper, I presume they will give me that date on the 8th.

I will have to travel to Jimmy's in Leeds for my treatment, about half an hour away .

I have just finished my chemotherapy today...4 sessions of Epirubicin plus 4 sessions of Xeloda tablets , I am so glad to put all that behind me.

I had my six monthly checkup with the breast surgeon last Monday, who tells me I have Lymphoedema in my breast tissue, and my breast is painful and swollen now, so I am really worried about what the Rads will do to it . Anybody else have this problem ?

Hugs,
Jill

sandra44
Member

Re: "cooking" in April/May 09 any others new to rads ?

Well I hope you all had it as easy as me today ! Well,apart from the drive...but then I actually quite enjoyed that too ! May not be saying that by the end of it though !

I swap my parking ticket for another one at the desk and rads patients here don't have to pay for parking either.

Also got given a nice deep purple gown with a multitude of poppers for the duration. Was in for less than 10 mins with 2 30 sec zaps and that was that. Oooh and had The Bee Gees playing "you should be dancing" lol yeah right when have got to lie stock still with my boob out....it did make me laugh.

Sandra x

Abby
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi all I have finished rads in march and had a nasty rash about 2 weeks ago like when you get sunburn and prickly heat all rolled into one.
A nice BC Nurse gave me some burn cream called Flamazine that helped a great deal because the itch and soreness was driving me mad.Christies was great and had a special car park for radiotherapy patients, I am going back on Friday for a check on my skins progress.

I had problems with a frozen shoulder and was very worried I wouldn't get my arm in the right place for long enough but they were very good and I managed it without any pain. Sometimes you get a feeling like you have a lump in your throat that you cant swollow but they give you some medicine to sort it.Hope this helps Hugs ABBY

sandra44
Member

Re: "cooking" in April/May 09 any others new to rads ?

The only time I was weighed was for my pre op assessment the day before my op, will report back tomorrow after the first appointment.

I've not heard of people feeling sicky,just tired or sore or itchy or having their boob split open.....eeeeekkkk.! Raring to go now and got car filled with good music and murray mints !

Oh and I've got the savoy cabbage in the fridge chilling nicely....just in case.....

Sandra x

redders
Member

Re: "cooking" in April/May 09 any others new to rads ?

Everyone reacts differently to all these treatments, but I had no problems with rads of 25 sessions (5 weeks x 5). I drove myself to all the sessions and carried on working part time. I used Aloe Vera gel (99.5% pure) to begin with and then used Emu Oil which is used in Australia for rads patients. You can buy it on eBay. Towards the end I did get some problems -I'm fair skinned and quite large boobs - but nowhere near as bad as the onc said it might be. I was 64 last year when having the treatment so I'm no "spring chicken" but I really thought it was okay apart from the nuisance of going all the time. I made a little chart and kept ticking off the days as I went & that seemed to help a bit too.

lulu650
Member

Re: "cooking" in April/May 09 any others new to rads ?

first time yesterday which was ok. I've already been weighed and had a blood test prior to radio but a student nurse told me that was nothing to do with radiotherapy but probably to track any problems with medication. He also said there should be no nauseousness associated with radiotherapy.

Any thoughts? This wasn't what I'd gleaned from the posts here. Glad my husband is able to drive me to the first two appointments as it's a fight to get back through rush hour traffic on the motorway!

Phoebe
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi Ladies,
I finished rads 5 weeks ago. I used [and still am] the radiance cream from the bristol cancer centre. It is expensive [£16 for a pot] but is amazing stuff! Has got in it- aloe vera, royal jelly, jasmine,lavender and rose. Kept my skin from burning, itching and splitting and the nurses commented how good my skin looked after 15 sessions.
well worth the money-good luck to you all having rads at the moment
Leadie

Do wish I had looked more carefully at this thread. Have just completed a 5x round treatment to the face and had agony with skin around one eye. "Use anything" was the answer to a cry for help from the hospital. "Use Aqueous Cream" was the pharmacist's response.

In fact the only thing that helped was "Baby butter" or Badger Balm, both of which are made from olive oil, calendula, chamomile and no parabens or animal fats. E45 and aqueous cream both stung like mad. I may put some Radiance Cream into stock in case of future need.

cass141
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi all, Lulu hope it goes okay for you today. For some reason I'm getting a bit anxious about even, even tho I've been told it's a picnic compared to chemo. I guess once I get started, it'll be fine. It's great when people that have been thru it post and share their experiences - especially when they're so positive. Well, there are a few of us for which d-day is Wednesday so look forward to comparing notes. The provisional schedule I've been given includes appts at nearly 7 in the evening! Most are either 8.40am or around 6pm, will get actual times at first appt. For those with a long journey, hope your times are more appropriate!!! Will check in later, Pat x
PS Sandra - cabbage leaves? I will if you will!

sandra44
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi Lulu650

Hope you had an ok time at your first rads today and not too long a wait......

Sandra x

marble1966
Member

Re: "cooking" in April/May 09 any others new to rads ?

thanks Sandra. Posted you one back

sandra44
Member

Re: "cooking" in April/May 09 any others new to rads ?

I sent you a pm marble did you not get it? Let me know,or will go through it here if they not getting through,I know others having probs sending pm's but I thought mine were ok.

marble1966
Member

Re: "cooking" in April/May 09 any others new to rads ?

hi sandra,

how did you avoid the chemo, did you turn it down, or were you
told not to have it. just curious, you were diagnosed same time
as me with practicaly same diagnosis. i have one unclear margin
so had to go back in again, but am due to start chemo on 13/05/09,
then horm tabs & rads. thanks. still unsure about treatment
thats all as I had high 10 year non reoccurance rates. thanks

sandra44
Member

Re: "cooking" in April/May 09 any others new to rads ?

That sounds a bit mad,Glan Clwyd is very easy to get to,just straight off the A55, it's the journey to the A55 that is a nightmare for me,but at least I won't be doing it in the middle of the holiday season so that's something.

Olwen2
Member

Re: "cooking" in April/May 09 any others new to rads ?

I know Llandudno well, we live about 16 miles from Chester. I'd never heard of Glan Clywd until quite recently I think for us it would have been an easier journey to go there rather than to Christie's, we found the journey there abit of a nightmare.

sandra44
Member

Re: "cooking" in April/May 09 any others new to rads ?

I'm in Snowdonia(south) had op at Llandudno but have to go to Glan Clwyd near Rhyl for the rads,they have a newish cancer unit there,previous to that think the rads patients did have to go Manchester,would have had to stay there for the full 3 weeks if that had been the case.

Olwen2
Member

Re: "cooking" in April/May 09 any others new to rads ?

I noticed Sandra from your earlier messages that you live in North Wales, where do you have to go to for your treatment, is it Christies?

sandra44
Member

Re: "cooking" in April/May 09 any others new to rads ?

Thanks for your post Olwen, I'd be happy enough to put on a tub of lard if I thought that would help ! Lol.

Talking bout weird things like that ...I'm sure I read somewhere that about the old cabbage leaves in the bra trick. I know it is recommended to new mothers, in fact I have a midwife friend and she was the one who told me and it certainly worked for me but it was a bit whiffy having cabbage leaves cooked in milk in my maternity bra ! Just keep in the fridge and remember to pick off the caterpillars first !
Oooh in fact maybe I could fashion a bra out of cabbage so I wouldn't have to walk about topless at home, might save embarassing the postman....or maybe not....

Olwen2
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi,

Don't know whether this will be of any help to you ladies, fortunately radiotherapy is now a thing of the past for me. I was advised by my BCN to use E45 cream twice a day and to start it before the radiotherapy started, I took her advice but when I started treatment I used it 4 times a day. As I'm on the large size I was expecting to suffer but whether I have good skin or whether it was because of the E45 cream I had very little soreness. I found the area under the bust where my bra fits was the worst but I went without my bra as much as I could and if I went for a lie down on the bed I went topless to get the air to the area. I also read somewhere to drink lots of water to keep well hydrated. The ingrediants in E45 cream and acqueous cream are more or less the same but E45 contains lanolin and some people are allergic to this.

I know E45 is just under £7 for a 500g pot and acqueous can be bought in habs (home and bargain) for 98p for the same size, but I thought that E45 looked nicer than the acqueous which I thought looked like a pot of lard.

Good luck to you ladies, just remember that it won't be long before radiotherapy for you will be just a memory like it is for me and I only finished mine at the end of February this year.

lulu650
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi all, start my "suntanning" session on Monday for 15 days. Two hour round trip and hoping to work through it all. Had the tattoos already but no advice about creams.

Good luck everyone!

lolly73
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi

Just commenting on what Sandra44 was saying about aqueous cream. My 20 rads were April/May last year, I have very pale skin that burns very easily. As advised, I used aqueous cream that the hosp gave me during rads and for 6 wks after, and I never really had any skin problems. In fact rads didnt cause me any probs at the time, not even tiredness, guess I was used to tiredness with a one year old that didnt sleep through the night! My problem with rads is now, one year on, the bruised pain in my ribs and the stabbing pains are terrible lately, but normal according to my bcn.

jantrigano
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi All,
I am waiting to see the Radiographer for my planning session so very interested to read about your experiences so far. I will be having 20 sessions and my hospital is also a 2 hour drive away in Inverness.
We have decided to stay in our campervan nearer to the hospital and try to make it a bit of a holiday !
I am already 6 weeks post op and not sure when treatment will start. i have declined chemo in favour of Rads and Hormone Therapy so it is fingers and everything else crossed.
Good luck to us All and have a great weekend - Love Janet xx

sandra44
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi Andie and Philidel,
Glad I don't have to get trains for my appointments as would prob take me two days to get there ! It's the car for me, I have been able to book into the hostel at the hosp for rads 8 to 12 so am looking at that as a wee bit of a holiday in a health facility ! Lol.

Have got 2 school age children so am trying to keep things as norm as poss at home but just think would be totally wiped out by the journey if had to do it 15 times hence my little break from home near the end of rads.

The prob re the creams Leadie is that you don't know if you would have had the same results with a huge £1.99 tub of aqueous cream,I don't know if there have been any studies about what cream is best to use(the standard does seem to be aqueous) or does it just boil down to the luck of the draw and how your skin holds up regardless of what we are slathering on it.....

Sandra x

leadie
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi Ladies,
I finished rads 5 weeks ago. I used [and still am] the radiance cream from the bristol cancer centre. It is expensive [£16 for a pot] but is amazing stuff! Has got in it- aloe vera, royal jelly, jasmine,lavender and rose. Kept my skin from burning, itching and splitting and the nurses commented how good my skin looked after 15 sessions.
well worth the money-good luck to you all having rads at the moment
Leadie

AndieT
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi
Just thought I would join in to a thread where I can compare rads tales. I too start on wednesday 29th for 15 sessions.

I have a journey into London by train every day for mine. The hospital where I have had all my other treatment does not do the radiotherapy. The travelling will take about 1-1/2 hours either way, depending on the reliability of the trains, for what I am reliably informed will be a very short session at the hospital. I have also been slapping on the cream in advance as instructed at the appointment when they did the tattoos.

I had chemo first, then surgery, after rads I will be moving on to tamoxifen. I am concerned about the hot flushes that get reported on that because I already suffer quite badly anyway.

Look forward to comparing notes

Andie

Philidel
Member

Re: "cooking" in April/May 09 any others new to rads ?

Crikey, I thought my 80 minutes round trip was bad enough!
Good luck with that.
I've just completed a week of rads. Just 2 more to go then a few sessions of "booster treatment" to the tumour site. Unfortunately my booster planning was abandoned today as the onc was unhappy with my contorted breast & I have to go back to see my surgeon next week.
Please don't be worried about the rads - it's just my body healing awkwardly post-seroma I think and nothing to do with the rads.

sandra44
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi Pat, luckily I avoided chemo,the hosp had surgery(am 8 weeks post op) at was only 3hour round trip away,this one just that wee bit further.
I've been on tamoxifen three weeks now and no side effects as yet.....just waiting for the hot flushes to kick in.....

Had my planning on Monday and got 3 tattoos and not told to use any cream as yet but I have been slapping on the aqueous every day. I don't mind getting pink or red am more concerned that my boob might split !!!!!! EEEEEEKKKKKKK. More likely if you are "heavily breasted" like me......so I'm told ......oh the joys......

Sandra x

cass141
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi Sandra, poor you! 4 hours every day, you'll be exhausted! Did you go to the same hosp for chemo? What a nightmare. Must say I'm lucky, it's a 15 min car journey or same time on tube (I'm in London). I have just finished chemo - 4 FEC and 4 TAX and start rads same as you on Wednesday next week. I've been advised to use aqueous cream and also to use sunblock as skin will be v sensitive, I think it's to do with chemo too. And I've also been recommended Aloe Vera gel, but it has to be a high % like 95% or something. Apparently it's available in Holland & Barratt so will find out more. Looking fwd to it starting as it's another part of the treatment over but bit apprehensive too. Hopefully we won't get too pink - or RED!! Will you be starting hormone therapy as well, like Tamoxifen? Pat x

sandra44
Member

"cooking" in April/May 09 any others new to rads ?

Hi, just thought would start a newbie rads thread to hopefully compare notes/pinkness/waiting times/creams to use and any other general usefull or useless information to help us on our way.

I'm starting 15 sessions of rads on Wed the 29th April, my biggest hurdle is the hospital I go to is nearly a 4 yes that is FOUR hour round trip away ! No I don't live on the moon, just rural North Wales.

Look forward to chatting soon....

Sandra x