72267members
378639posts
cancel
Showing results for 
Search instead for 
Did you mean: 

"cooking" in April/May 09 any others new to rads ?

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Good morning all!
I hope you've had good weekends, that the coming week goes smoothly and the sun continues to shine.
I just have 4 booster sessions to go now, the first of those was on Friday. They put an attachment onto the machine with a thick metal template, and position it really close to the tumour area. Just one burst of zapping rather than two so it's a bit quicker.
At Northampton General, they have an alternative therapist you can got to as part of your treatment, and I managed to get a cancellation appointment to see her on Friday & had a reflexology treatment - very relaxing and seemed to improve my back ache into the bargain! I'm seeing her again on Friday for an aromatherapy massage. Apparently, if you have chemo she sees you before every treatment. Absolutely brilliant service. More hospitals should provide it.
Also have to agree with the luck/burn theory. I'm quite pale-skinned and burn fairly easily, but I've been lucky so far in that I've just gone a little pink, no real burning to speak of. My subcutaneous contracture is, however, getting harder by the day 😞

Be good to yourselves
Phili x

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi All

Finished whole breast treatment today - just three boosters to go can't wait. Am very red and sore but have been told 99.9% aloe vera gel is OK to use. Haven't blistered yet though but think it will happen. I have also been told to use padding under the breast where it is sorest.

Saturday morning rads so different from a weekday. Only three of us there when I got there so was in and out. The radiographers were more relaxed and able to chat and answer questions - they're usually so rushed in the week. Also plenty of parking spaces!

Enjoy your days of freedom.

Lynn

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

I'm with you on the luck theory Topsymo, I was told that although some may "burn" and it feels like sunburn it actually isn't the same thing at all and it makes no difference if you react well to sunlight or not.
I started applying the aqueous twice a day for two weeks before and am upping that now and make sure I drink plenty water and I've got quite sizeable 40e boobs,boob has firmed up but not sore or itchy just feels a wee bit warm.

topsymo
Member

Re: "cooking" in April/May 09 any others new to rads ?

Do think a lot of how we react to rads is down to luck. I have a fair sensitive skin ( very susceptible to insect bites and sunburn) but never had any trouble at all during 15 rads.

I applied the aqueous cream religiously - but really don't think it made that much difference- I never had any sensation of being 'cooked''. Certainly wouldn't encourage anyone to spend money on expensive creams - unless you already have probs.

I don't have very large breasts- maybe that helps- so didn't wear a bra during my treatment course- just a stretchy vest.

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi Jill,your lucky getting given cream,I had to buy mine ! Right enough it was a huge tub from asda for £1.99 so can't really complain, am half way through it now and 7 rads down 8 to go ! Whoop whoop !

One of our machines was down today so had a bit of a wait then the poor lady infront of me got told that she was relaxing too much and had to go under the simulator again for re measurements.......note to self.... don't get too relaxed !

So far so good,skin doing fine,glad it's the end of the week,got a 5 day stretch next week and am booked in to stay at hostel at hospital,wonder if I should take my cabbage with me......

Sandra x

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Thanks Jill, No one told me about no baths, consequently I've been soaking for England every morning which obviously hasn't done me any good at all because Under my arm is so sore today that they told me to tuck a cotton handkerchief under my vest top as it looks like clothes are rubbing and it's about to blister! Bummer when I've only had 9 sessions with 10 more to go, oh joy!!!
hope everyone enjoy their 2 days off.
Jo xxx

lavendersblue
Member

Re: "cooking" in April/May 09 any others new to rads ?

Have just got back from Jimmy's where I have caused mayhem , during my setting up and measuring .....lol .....my boobs are so big they found that they hadn't got all the tissue in their sights and so had to do it all again , had to find extra bits of machinery....by this time there were thousands of extras , pushing prodding and poking....so it all took twice as long as it should have....what fun !!!! Why is it when you know you have to lie very still , you just need to move something !!!!

They told me all about the nasty burning side effects, I might get and that my breast lymphoedema will get worse....what joy !! I start my treatment proper on Fri 22nd, which will be followed by a bank holiday, so I will get three days off the next week...which I shall probably be glad about . They gave me some Aqueous cream to rub into my boob , and said...no shaving, no deodorants , no perfumes , body sprays ,or talc to be used during those three weeks, and to use only Simple soap and Johnson's baby shampoo...also no baths , as they don't want the skin to get over soaked , so only showers .

Hugs,
Jill

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi

I had to go to a different hospital for my rads this morning(St Thomas') and although one of their machines was playing up fortunately it was not the one I was booked on. I was in and out inside an hour which is reasonable. We had to go on the motorbike because I needed to be back at my own hospital for a herceptin dose also today. To say it rained in London early this morning is a bit of an understatement!! It poured and we got absolutely soaked. Never mind-its the weekend and that means 2 days with no rads.

I hope everyone has an incident free day and all the machines are working perfectly.

Andie

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Well, I've finished my "whole breast" treatment and today start my booster sessions - 15 down 5 to go! This time next week I'll be finished.
Just a little pink & itchy today, but very mildly and where it's pinkest & itchiest is not where the boost rads will be aimed at so it shouldn't be too bad.
I'm going to a 60th birthday party tonight so will try & get one of the complimentary therapies that Northampton General have on offer - massage or manicure if poss.
I hope everyone's days go smoothly - no long waits or machine breakdowns!
Take care
Phili x

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Andie and Pat,that really is a bummer having your appointments shifted around like that. I hate it when things don't go to plan, was bad enough having my rads delayed today as got hi jacked by physio who wanted to start her session on time and rads were running late but was dragged off with me saying but I will lose my place and be here for hours ! Got some other exercises to do but seeing as am lucky that arm and shoulder are as good as before it was a waste of time for me and resulted in an hour long wait to get on my machine....grrrr.

Then got stuck behind a convoy of german tourists in huge motor homes ,not good when the road back is a bit of a nightmare at the best of times and they were driving at 20mph and braking heavily at every corner oblivious to the queue of 15 cars behind them ! Thank goodness my rads not in the holiday season,would certainly have to have stayed up there for the duration.

However, it was nice and sunny today,long may that continue .... hope we all get seen on time tomorrow...... then two days off before the long stretch........

Sandra x

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Oh Andie, poor you! Saw your posting on our usual thread and you sound so down. Please try not to worry as my Gran used to say it'll all come out in the wash!!! You may even have your other appointment changed yet, you know what hospitals are like for changing outpatients appointments at the last minute, they don't think we've got a life!!! I had to juggle this morning had an outpatients appointment for my 2 year old that's been bookd for 6 months, got a letter last week and they changed the day, not just the time but the day, by which time I'd already got my rads booked in for the duration. I/ve been flapping about it all week as thought I don't know how I'm going to get from Epsom Hospital, drop her back to a friends then get to Marsden in time but as it happened, we were seen early at her app and mine was running 25mins late so even had time to nip to the loo and get a drink when i got there!! All that worrying for nothing! You see, My Gran was right!!
Jo XX

cass141
Member

Re: "cooking" in April/May 09 any others new to rads ?

Andi, snap! " hrs before appt they phoned and cancelled as machine broke - again. So now the missed appt is added to the end which should now be 21st May - bummer! Hope this is the only delay. When they give you your appt get them to juggle it if necessary to fit in with your echo, I find that they're usually pretty flexible. Fingers crossed tomorrow goes well - my appt is 6.50pm so if they have a backlog I may need to stay the night! Hope everyone else's day goes ok and as planned..... Pat x

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi All

I spoke too soon yesterday.
This morning just before I left for the hospital they phoned to cancel my appointment. The machine has broken again and they already had a lot of people waiting. They assure me that it will not make a difference to my treatment and they will add the missed appointment onto the end. The only problem there is that I have an appointment for an echocardiogram
on that day at my own hospital. I suppose it will all get worked out, but at the moment I am panicing at having to yet again juggle two appointments on the same day at different hospitals.

Hope everyone else has an incident free day

Andie

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Morning all!
I hope everyone's day goes smoothly. Sorry to hear about your weekend appointments, Lynn. What a pain!
I think the tiredness is really kicking in for me now. I've started to feel completely exhausted after my sessions, as if I've had a really heavy night and missed a few hours sleep, and dehydrated - like a hangover without the fun! And I slept all the way through my alarm this morning so was late getting my daughter to school.
Still, the sun's shining and I've not yet come under any pressure to get back to work.
Phili x

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi Andi

Yes luckily they did manage to get hold of me before I left. As I had a lift yesterday I was leaving a little later otherwise I would have been well on my way by public transport. I'm being treated at the Royal Berks in Reading and its a long round trip. I'm more frustrated by the fact that I have to go in on Friday evening and Saturday so its mucked up my weekend

It must be more annoying to actually be under the machine when it breaks down, especially laying still. I found it difficult laying still for 45 minutes last week when due to shrinkage my measurements were out and had to \be redone.

Hope everything goes OK today for everyone

Lynn

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi Lynn

Did they manage to get hold of you before you actually left for the hospital. The machine that malfunctioned during my treatment yesterday was back up and running today, but I understand that the machine that broke down at St Thomas' yesterday has still not been mended. Very frustrating for everyone due to be treated.

Take Care

Andie

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi All

What a difference a day makes. I arrived a bit early and got seen early. They lined me up easily and the machine was in perfect working order. I actually left the department done before my real appointment time.

Today is the first time that my skin has looked a bit pink but at the moment it is not sore at all. I am putting on the cream as instructed several times a day so hope that change of colour is the only reaction.

Good Luck for tomorrow everyone

Andie

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi All

Appointment cancelled at last minute today because of machine breakdown. Got a phone call this evening to say it will still be broken tomorrow so now have to go Friday evening and on Saturday - fed up with all this.

However I can definitely recommend the Aloe Vera Gel from Holland and Barrett - very soothing.

hope all your next treatments go better than mine.

Lynn

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi all and moonwolf, well that's me a third of the way through,whoop whoop 5 down 10 to go. Got told my skin seems to be holding up ok at the mo, boob just feels a lot firmer and a wee bit warm but not sore or itchy ....yet.....
Thanks Pat for letting us know about the H & B offer, there should be a post made that recommends products or special offers, would make things a bit easier if folks wanted some advice.

Got an earlier session tomorrow and physiotherapist booked in for appointment too, do the rest of you have that scheduled in during your treatment? Hope it is all going well and not too burny burny.

Sandra x

cass141
Member

Re: "cooking" in April/May 09 any others new to rads ?

Welcome Moonwolf, my boob went a little pink after the first session. And it feels warm to the touch, no soreness yet though, I know you can get a reaction up to a couple of weeks after treatment finishes. If it's sore slap lots of aqueous cream of aloe vera gel - must be 99.9% - it's on offer at Holland and Barrett. Or at rads they'll recommend what to use. How many sessions are you having? Pat x

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi girls. Had 1st rads yesterday. Surprized I already ache in breast and was a little red beneath breast when I woke up today. Is this normal I didn't expect reactions for 2 weeks?

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Good morning all!
I hope your days all go smoothly - nice weather, no traffic or parking problems, and certainly no machine breakdowns!
Phili x

cass141
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi ladies, another early appt and thankfully Andi, machine was okay - hope this stays the same for the rest of our treatments. I was on 5 again, two girls that haven't seen before, and they just couldn't get me lined up. I was pushed, pulled, prodded and poked - then, because it STILL wasn't right they did it all over again! I've heard ladies on other threads talk about feeling like a piece of meat, I know what they mean! Andi, I have a similar time appt for Monday but am going to see lymphedema nurse first. I will look out for you. Popped into my office (which is upstairs from radio) and asked manager to contact Occ Health for me to discuss going back to work. She said it could be a month before I even see them. Will start back p/time at first but hoping my energy levels won't fall too much from the radio. Sandra, glad you're feeling so good - please pass it down the line! Well, sunny but windy day again - had to hold on to the wig going into the hospital! Hope everyones treatment goes well today, and hi to everyone else. Take care, Pat x

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi Foxy

I started to go pink after session one - the radiologists were quite worried and thought I may have picked up an infection so I had to see a doctor. After 13 sessions it's very red but hasn't cracked yet so I may be OK Feels very hot though. I'm using aloe vera (99.9%)and aqueous cream - slapping this on immediately after treatment.

Lynn

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Well, my machine broke down today too! I had to lay there while a technician came in and fiddled around. One radiotherapist had the presence of mind to cover me up as I wasn't allowed to move.

Day 6/21 and just a bit pink with no soreness. Got told off for using baby lotion instead of E45 but in the next breath told that I might blister whatever I use.......love that positive thinking... However, beginning to swell on the back of my arm. Feels uncomfortable and will need to contact the BCN again.

Caved in and got a sick note to cover me for the next 3 weeks. At least I don't have to worry about putting my foot down on the motorway going home. Work will have to wait.

Now, who's going to be the first to blister? Hopefully no-one!!

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi all, gosh hope my machines in hosp don't all break down,only 3 there,would end up having to go to another country ! lol, think this the only place that does rads in North Wales.

Well, am hale and hearty and drove myself in again today,I am sure they must be blasting me with happy drugs as I feel great ! Been on the tamoxifen for 5 weeks now( not even nolvadex,but cp pharmaceuticals) and don't have any side effects either, am just waiting for all these side effects to sneak up on me and bite me on the bum when I'm not looking ! However, am just enjoying the moment !
Boob is firming up,was told that it just won't be the same as before..... just feels a wee bit warm at the mo but am only slapping on the aqueous and the cabbage is still in the fridge !

Sandra x

cass141
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi all, Andi I do hope the machines are up and running tomorrow! My sister-in-law had radiotherapy last year (for lung cancer) and a few times, when the machines broke down, she had to go to St.Thomas. Fingers crossed... I live in Rotherhithe which isn't too far from London Bridge, 15 mins in the car, less on Jubilee line which I sometimes use. I don't drive - my husband drops me and sometimes waits round the corner, or if he comes in with me parks across the road in car park. Other times I go by tube which is simple and quick. As for boob, I'm sure I read it is a possible side effect, it had just started to get to a similar size to the other one and now it's getting bigger again, plays havoc with bras! I'll check what time I'm in on Monday, thinks it's an afternoon one too. Foxy, my boob was actually quite pink after the first session, but at the mo it's not painful or sore. Keep slapping the aqueous on ladies. Hope everyone else ok. BTW how you doing Sandra? Lynn hope throat clears up soon. Well, let's see what tomorrow brings. Pat x

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi Foxy

I started going pink last week, round about rad no 8-10 I'd guess. It subsided over the weekend, but has pinked up a bit again after today's session.

Phili x

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi Jo,

Sorry to hear that you are having a bad time on tamoxifen..have you asked whether you can switch to the Nolvadex D brand as the side effects are supposed to be minimal.

Ladies....how long did it take before you became red from the rads?

Foxy

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi all

Thanks Pat for advice about sore throat - am seeing onc tomorrow so will check then.

Foxy - yup I think feeling tearful comes with tamoxifen unfortunately.

My problem is that I'm shrinking! I've been measured three times now - mainly because swelling from the operation keeps going down.

Lynn

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi Pat

It was Elekta 5 that broke down. My appointment was at 11.45. I have been in touch with the appointment clerk to bring my friday appointment a bit earlier and in the course of conversation she said that 2 machines broke down today.

My only latish appointment is next monday at 5pm all my other late ones they have managed to move for me. Do you have far to travel and where on earth do you park in the vicinity of Guys.We have to hunt for a motorbike space!

You mention that your boob seems a bit bigger have they said that that will go down again when the rads are finished.I thought I was imagining things but obviously I'm not.

Take Care everyone. Good luck in the morning Pat

Andie

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi All. Today was a breeze - several available parking spaces and less than 10 minutes behind schedule going in. I feel dog-tired now so will be going for a nap. I hope everyone's side effects get sorted out
Phili x

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

just had session 6 of 19 and feeling a bit sore again. Also loosing more movement in my op arm but will see physio tomorrow and hope she can help. I started tamoxifen 9 days ago and so far side effects are hot flushes and night sweats getting worse, more tearful than usual, dieting and getting fatter by the day and itchy chest and back of shoulder blades which rads team don't think is down to them! Will see Onc next week and discuss and will report back if this is all normal on tamoxifen!
Take care Ladies.
Jo X

cass141
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi ladies and welcome Lynn. 4 down and 11 to go! Andi, which machine were you on today - I was on Elekta 5. Appt was 8.40am, went in on time and was back in the car by 9! Am same time tomorrow so hope it runs smoothly - unless the machine is playing up! No Lynn, I can't say I've noticed any SE other than boob a bit pink and warm to the touch, and a bit bigger. Sounds like could be tamoxifen. Check with onc or dr. Hope all goes well for everyone today. love Pat x

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi Girls

Today the rads machine played up big time. 3 times they lined me up , moved the machine into place to start and the alarms all went off because the machine malfunctioned.3 times the engineer said he had sorted it out. Eventually they got to a point where I was a third of the way through zapping and the alarms went of again, they then took me to another machine to get finished. All together this took an hour and a half so you can just imagine how many people were waiting. They put a notice on the wall that the wait was indefinate!!

I hope that today will prove to be the only day that there are problems, on friday I need to get back to my own hospital for Herceptin a delay with rads will be a major problem.

I hope everyone else had an uneventful day

Andie

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi Ladies

Thank you for welcoming me to the thread.. 🙂

Lynn...nice to see you on here! The rad went ok, a bit of a wait though but shouldn't complain. I have also had a sore throat but mine has been since I started the tamoxifen. I've only been on it nearly a week but feel so tearful, is that normal?

Take care ladies and speak soon

Foxy x

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi All

Hope you don't mind me joining in. Nearly at end of rads - 6 more to go (yippee).

However, I just wanted to ask - has anyone else had a sorish throat and loss of taste buds while on rads? Mine has been sore almost since I started and most food tastes horrible. The radiographers say it isn't due to the rads but I'm not sure. I'm also on tamoxifen so wonder if this may also be a cause.

Hi Foxy - how did the planning go?

thanks

Lynn

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Welcome Foxy,I've not had chemo so can't blame my forgetfulness on that ! Will blame it on the terrible tamoxifen.....but havn't really had any probs with that so far .....keep you posted on that tho...

Am really enjoying travel free days and will be rested up for my 4 day stretch next week.

Am just slapping on aqueous cream twice a day at the mo and don't seem to be having any trouble ,boob did feel a bit warm but is fine at the mo. Was told after treatment to wear factor 50 or cover up,didn't really plan on going topless during the summer,have had enough of getting em out this year !

Hope you all having a good Bank Hol and the weather holds up tomorrow.

Sandra x

cass141
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi all, hope you're all chilling and enjoying the weather. Jo, lovely to hear from you, I was gonna ask you how you were feeling after the tax. I was like you, the last tax was pretty good re: SE but 5 weeks on I still feel quite achey, my ankles swell up periodically as well. My hair is growing but it's very patchy. I still have a baldy head but it has bumfluff on it! But I said to my daughter earlier that, for the first time today I can actually see my hairline so it's coming back but very slowly, I'm sure yours will be the same. Sorry you've had probs with your arm, get physios to help you out again. My boob is a little bit pink, and a little bit swollen but apart from that, not bad. Topsymo, what does onc say about lack of hair? I have been on other forums and I know hair comes back at varying rates, some people's seems to come back so quickly. Fingers crossed we'll all have a good covering b4 Xmas!!! Jo, radiographers told me that the aloe vera gel is useful for soreness and itching, but in general to stick with aqueous or E45 which I slap on religiously. Welcome Foxy, hope your rads goes well, we're all in the same boat here. I was advised to use factor 50+ during and after chemo and for the summer as skin had become very dry due to effects of chemo on skin. I don't put it on the bits that are being zapped apart from a bit of my neck, just everywhere else. Andi, Sandra, Jill, Phil and Lizzie hope you're all okay and making the most of having 3 days off (for good behaviour!!) and all the best to anyone I've forgot, blame the chemo brain (it comes in quite handy sometimes!!). love Pat x

topsymo
Member

Re: "cooking" in April/May 09 any others new to rads ?

I share your concern about HAIR! Had my last Taxotere in December and still have hardly any hair. Will I have to spend the rest of my days in a wig I ask myself- or will it start growing in a real rush once the weather gets warmer?!

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hello Ladies, mind if i join in to?

Hello Andie and Pat, know you both from other threads. Pat we're about same stage as we did TAX together. Hows your air coming on by the way. I saw a girl who finshed same time as us and she 's got loads, i've hardley got any and am panicing that I might be one of the minority who us left pemanetly bald after TAX!

Rads, just completed my first week of four (Inc 4 days booster). Was quite sore after day one really and more that a little upset as everyone had told me rads a walk in the park after Chemo! I've also found that I've lost quite a bit of movement in arm after just one week of rads which is really upsetting as have had physio most weeks since my surgery in October and November, it was doing so well and had nearly 85 to 90% movement back, now I'll have to start all over again when Rads finish end of May!

I was advised at Marsden to use either Aqueous or E45 and so far have just used Aqueous but am already quite sore. A Friend said she used 100% Aloe Vera and she had no probs at all so might look into that!

Have ditched bras for forseeable future and am wearing vests with support, so have therefore cancelled all social engagements as obviously can't wear proper clothes!!!

Take care Ladies
Jo XXX

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi Ladies

Do you mind if I join in?

I had my op last Oct and again in Nov and then 6 x FEC chemo and after a month off I started my rads on 1st May.

I was going to put factor 50 suncream on but I was told at my planning to avoid suncream and just cover up instead...it's so strange how we get given such different information!

Take care
Foxy

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Three cheers for the three days off!
I drove myself today and made a detour to my office on the way back home. Got back & felt absolutely wiped out. I think the 2 week time lag is just kicking in. My boob is also rather pink & sore/itchy now, particularly the nipple & underside.
The booster planning involved more felt pen, a stencil & a sheet of clear plastic - all very Blue Peter!
Oh and with apologies to anyone with tattoos (other than the rads ones), I did ask the radiologists how they manage to line up anyone who's heavily tattooed. They laughed & said "It goes something like - 1 cm to the left of the dragon's tooth, ..." 🙂
Enjoy the (hopefully sunny) weekend xxx

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Whoop whoop 3 days off for good behaviour. Was in and out in 10mins today,pity it takes up all day to get there and back but have found a fantastic pub with great food so had a really lovely lunch and as my friend was driving had a large gin too.

Am sure they must be zapping me with some sort of happy drugs in there as I come out feeling strangely elated. Am sorry that you had a bad day yesterday Lulu,I'm the same as you,WLE and SNB no spread and no chemo,for me I think it might all hit me after treatment has finished,am too busy getting on with it at the mo but hopefully at the other side of it I will be too busy just getting on with my life again.

Well it was 9 million bycycles by Katie Melua today and had a conversation about the difference between radiotherapists , radiologists and radiographers........Don't ask cos can't remember... don't know if another side effect is brain has turned to mush.....

Hope you all have a great bank hol weekend,catch up next week.

Sandra x

cass141
Member

Re: "cooking" in April/May 09 any others new to rads ?

Hi Andi, quite agree about the freedom pass, british rail do too well out of people! Let me know the date of your latest (timewise) appt and I'll see if it coincides with one of mine. As for skin and sun, I was recommended to use a sunblock - I've bought factor 50+ - while on chemo and rads. If you ring the chemo unit they're great for advice on anything like that. I too tend to cope very well with the big things - like surgery and chemo- but the smallest thing can have me in floods of tears, I guess it has to come out somewhere. Lizzie you did make me laugh - I have to go to drs periodically to get astma meds etc - I can just imagine getting my boobs out for that! It's like when I had lymphedema nurse appt, slight swelling in hand - I was so surprised when she asked if she could see and examine my boobs! Oh well, no good being shy I spose! Enjoy weekend all, love Pat x

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Hi Girls

Number 3 done and dusted and now a 3 day break.

Pat I don't think we will meet up because all my appointments are around lunch time except a couple 4/5ish. When they said what time would you prefer my mean streak cut in. It would cost me £4.70 per day to get to Guys if I had to pay on the train. As I have a freedom pass if I travel out of the rush hour I get there for free.I can think of much better things to do with £70 than give it to British Rail.

It is so refreshing to hear of other people who admit to being tearful when they least expect it. I have done chemo and surgery with quite a positive attitude but suddenly tears appear out of nowhere. Last night I started to tell one of my daughters that I would have to find the outpatients department at the different hospital and suddenly I was sobbing my heart out(again). This BC seems to have completely robbed me of any self confidence that I had before.

I have to go to a wedding 2 days after I finish rads so like Philidel will have to see what I can find in the wardrboe that will suit the occassion. What with no boobs and very litle hair I would prefer to melt into the background and I will definatley be missing when the photos get taken.

With the sunny weather predicted over the weekend has anyone been give advice on being in the sun whilst on rads, my garden could do with some care and attention but not sure if I am allowed.

Have a good weekend everyone. Be kind to yourselves

Andie

LizzyM
Member

Re: "cooking" in April/May 09 any others new to rads ?

Get Gok to make us all over? - great idea!

I have a horrible feeling, that for a good while after this "experience" - I will be whipping the top off and getting the boobs out, without thinking about it - whenever I go to see a medic of any sort! Should be interesting during my hayfever season GP visits...!

Speaking of which (hayfever, that is, not my boobs!) I usually end up on 2 different hayfever tablets, a nasal spray and eyedrops. So...what a good time to get the prescription exemption certificate! Apparently covers ALL Rxs - has everyone chased it up?

OK, on my way to appt now - see you all later,
Lizzie

lavendersblue
Member

Re: "cooking" in April/May 09 any others new to rads ?

It is encouraging to read that people are coping well with the rads, although I am still a little anxious about my lymphoedema !!!

Pat I know what you mean about having to get your boobs out every 5 mins...I have big boobs and am fed up of the polite comments like , have you ever been offered a breast reduction , to what size cup do you take......not exactly good for the ego or the emotions which are fragile at the moment to say the least.

Will let you know how it all goes next Friday,and what West Yorkshire suggest in the way of creams ..... only a week away now !!

Hugs,
Jill

cass141
Member

Re: "cooking" in April/May 09 any others new to rads ?

Phil, soft vest tops are ideal and I can do that indoors. When I go out however it's a different story as I'm 34D - right boob is going towards an E cup again! - and quite droopy so I need a bit of scaffolding to help me out! The sports bra is okay at the mo and have ordered a couple of cotton ones from m&s so hopefully that'll see me thru. Hope you enjoy your parties, I think we should apply to Gok Wan en masse and get him to sort us all out! I love him but don't know that I could stand in front of that full length mirror in my undies and keep my eyes open!!! Hope everyone eles appts go well today. Pat x

Guest user
Not applicable

Re: "cooking" in April/May 09 any others new to rads ?

Lulu - sorry you're feeling low. I have gone through patches of feeling a fraud in comparison to other, more apparently ill people, but we're not frauds and you're perfectly entitled to feel miserable about it all sometimes. Try not to add guilt into the mix. As Lizzy says, it's a sh***y stick! Be good to yourself x
Cass - you wanted to know about my booster sessions. It's because I don't need chemo, so they've decided to cook me for a bit longer so I don't feel neglected. I have 15 sessions of rads to the whole breast area, then 3-5 targeted at the tumour site. I've got my re-scheduled planning for that today, so I hope I'll know how many sessions then.
On the bra front, I've abandoned mine altogether in favour of soft vest tops, but then I'm not very well-endowed! I am having to juggle my wardrobe a bit as having to cover up scrunched-up area on the top of my boob, make sure nipples don't show through as they're now pointing in completely different directions, and I've been forbidden to shave underarm on the zapped side. Gok Wan would have a field day! I've got two dressy parties to go to at the weekend so I spent hours last night trying on and discounting half of my evening wear. I think I've found something suitable for both. Still the node clearance does mean that dancing about with arms waving about in the air is likely to still be sore so the risks of flashing my "Julia Roberts" are slim. 😉