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radiotheraphy and burns on breast

32 REPLIES 32
lynne65
Member

Re: radiotheraphy and burns on breast

Hi ladies
Went to c my BCN today she gave me flamazine and fresh dressings. Nearly all my skin has peeled off now underneath my boob but th new skin looks raw but it's so sensitive so I'm just wearing a stretchy seamless vest under my clothes.
I was told that it could b a few weeks before the rawness subsides 😞
I just keep saying to myself "it could b worse" as many of u out there have had a rough few months.
My luv to u all
x
Seabreeze
Member

Re: radiotheraphy and burns on breast

Hi Rosie14,
Sorry to hear about the burns...my radio nurse said usually about 2 weeks, my key area of burns was slightly different since it was where I had boosts of radio (around nipple). With the boosts and somewhat sensitive skin it lasted about 4 weeks.
If it's bad and looking like it might peel or flake then it may be worth asking your radio nurse if Flamazine (a special burns cream) would help. It really helped me since it enabled new healed skin to form below before outer skin v gradually flaked off.
I hope it improves soon.
Seabreeze
rosie14
Member

Re: radiotheraphy and burns on breast

How long do the burns last? I am now a week post rads and am still very sore in the lymph node area under the arm.
lynne65
Member

Re: radiotheraphy and burns on breast

Hi Pam
Glad to hear ur getting there, I get tired about 4 ish every day strange isn't it. Like u I have 7 grandchildren and without them I'd b lost. They've cheered me up no end over th past few months. Im lookin forward to spending time with them over xnas.
I went to th hospital Monday and I'm going again tomorrow to see my key worker. My skin has peeled and I'm really sore, I haven't been able to wear a bra all week as it rubs too much. The hospital has given me dressings and a tube of some clear gel, they also gave me a cooling gel pad which is lovely. I need to go bak tomorrow to get more dressings.
Take care
x
pamlicious
Member

Re: radiotheraphy and burns on breast

Hi Lynne

 

I had the bra on off on off for a few different reasons over my recovery but I am back wearing a soft one finished my rads end 28 October so all should be good from now on hopefully.   My boob is still swollen in sort of ridges around the scar and my nipple is super super sensitive looking more like a walnut when it gets cold.  But I feel on the mend, I get fatigue but I think its getting better slowly, I have wrapped all the Christmas presents up today took me 4 hours (we have 7 grandchildren) needed a serious half hour rest after that it just comes in waves.  Good luck to all, keep smiling xxx

 

melykins
Member

Re: radiotheraphy and burns on breast

Hi Angel77
Yes I am suffering under my bust area was brown and this is peeling off showing pink skin underneath and sore. My nipples are also crinkled up and sore. They are peeling 2 weeks after my treatment and l am tired midday. I also got red skin near my scars I am going to see my GP next Monday for cream and make sure things are looking ok.
lynne65
Member

Re: radiotheraphy and burns on breast

Well I ended up going without a bra yesterday, couldn't stand anything against my skin as ur was too painful. My friend brought me some E45 cream earlier so plastered it over my sore bits. It stung at first but I'm hoping it's gonna ease the soreness
X
lynne65
Member

Re: radiotheraphy and burns on breast

Hi both
Thanks for ur messages, I finished my rads last Tues but I'd been lucky to get away without suffering until Monday this week. Iv got work this afternoon for 4 hours which I can't get out of so I'll try the t-shirt option under my genie bra,, hope it helps. Thanks for ur support guys
xx
Seabreeze
Member

Re: radiotheraphy and burns on breast

Lyne69,
I did the same as Melykins and it helped avoid under boob soreness - though I did burn around the nipple. Are you still having radio or are you just post radio... (sorry if you've said below, I'm a few weeks beyond and occasionally nip back to see if I can help). If so Flamazine may help on the burn area - worth asking your care nurse. Bravado seemless silk maternity bra has a very wide and soft underband which with T shirt fabric below reduces friction. Hope that helps and that it improves soon.
Seabreeze ( now healed and burn free - just a tad swollen in area of boosts)
melykins
Member

Re: radiotheraphy and burns on breast

Lynne65 the same is happening to me. I found wearing a shirt then putting a soft Asda bra on top helps a little
lynne65
Member

Re: radiotheraphy and burns on breast

Hi Pam
Not been on here for a while, I seem to b suffering in exactly the same place as u. Just under my boob in th crease. My skin has turned a dark brown and small brown spots have appeared too. Now the skin is blistering and peeling leaving it very raw and sore. I cannot wear my bra and now not even a soft genie bra. I have applied my pure aloe vera gel religiously since day 1 but couldn't escape this.
Feeling really sore.
x
pamlicious
Member

Re: radiotheraphy and burns on breast

I am not shouting to loud but I think I can see the light at the end of the tunnel, my burn has suddenly turned a nice healthy pink whoop whoop, shhhh I say to myself dont want to celebrate too soon but fingers crossed xxxx
Good luck to all xx
rosie14
Member

Re: radiotheraphy and burns on breast

Pat I am very sorry that you are experiencing such a torrid time with your burns and I do hope that it will improve for you really soon and then you get start feeling mentally better which will help with your physical condition. Sending gentle hugs to you!🌻
SML1903
Member

Re: radiotheraphy and burns on breast

Thank you Seabreeze and Pamilicious for you advice. I have got myself cotton bras as I normally try to wear them anyway but will also try adding an extra layer of cotton. Hopefully I will be able to avoid some of the problems you ladies have suffered.

Take care and best wishes to you both. x

pamlicious
Member

Re: radiotheraphy and burns on breast

Thanks Seabreeze my nurse said I was unlucky if I could have managed another day I would have got away with it, it is on my list to ring up on Monday although it is not as sore as it was.
Hi SML
I do agree with Seabreeze its not that bad, now its just a need for me to start with the recovery properly, and to get back to 'normal'. Good Luck x
Seabreeze
Member

Re: radiotheraphy and burns on breast

Hi Pamlicious,
If the wound has got bigger since you spoke to the radio nurse it may be worth another conversation? I escaped skin breakage, plus my burn was different and different location...hopefully someone else can help from their experience.
hi SML,
Radio isn't so bad, I think many women just go a bit pink. Does help if you wear a v soft bra, cotton if pos, and consider using a separate layer of soft cotton within the bra to reduce any friction and aid air/cooling of skin (I chopped up some old cotton t-shirts) Also not everyone seems to be affected by fatigue so please don't be put off. Here if you do need to chat once you get going.
Seabreeze x
SML1903
Member

Re: radiotheraphy and burns on breast

Hi Everyone

I start my rads on the 27th Nov and after reading all your posts I have to say I'm not really looking forward to it. They don't warn you of any of this when you go for your planning appointment. If you tell people you are having radiotherapy they say "oh that's the easy part you don't get side effects with that' Well oh yes you can get rather horrible side effects. Will now be telling these people about the tiredness and the possibility of burns which can carry on even after you have finished the treatment. Good luck to you all and hope you all recover as soon as possible. x

pamlicious
Member

Re: radiotheraphy and burns on breast

Hi Seabreeze
I finished my rads 22 October, its in the crease underneath my bust and started off as the faintest blister on 8 November, I spoke to the hospital who said get the Mepilex Lite via prescription and use the dressing. The breakage is now around the size of a 50p and is just sort of raw. It is not getting any worse now, anybody any ideas on how long healing takes? Thanks in advance. Pam

Good luck to all x
Seabreeze
Member

Re: radiotheraphy and burns on breast

Pamlicious,
Have you finished having radio sessions or are you still having them? You mean the crease below? Is it pink and sore or small raised dots or brown speckles?
I had burns near nipple, pink and itchy elsewhere..
.the above info may help others be able to help re their experiences
X Seabreeze
pamlicious
Member

Re: radiotheraphy and burns on breast

I have a burn in the crease of my breast I have been given Mepilex Lite as a dressing but its does not seem to be getting any better after a week any ideas what I should expect next?

Seabreeze
Member

Re: radiotheraphy and burns on breast

Hi fried angels!
I burned, particularly around the nipple which went a chargrilled looking brown. I used a cream post end of radio (it has metal in it so can't be used during radio itself) called Flamazine which I think is usually used for preventing infection in 2nd and 3rd degree burns. The cream was provided by the nurse at the radiotherapy centre. The cream was very good at helping the burned brown layer of skin stay on just long enough for healed new skin to have formed below before the outer layers flaked off. I knowvit sounds a bit crazy but i also wore pieces of soft cotton t-shirt material on the skin side of a very soft bra (bravado seemless silk maternity bra) which reduced friction and i think helped save me from any under boob skin breakage.
Hope that helps one of you fried angels. ..
Seabreeze
pamlicious
Member

Re: radiotheraphy and burns on breast

Thanks Grumpy I have slapped the cream on so far just dont no about the broken skin, should get the dressing tomorrow finger crossed. Good Luck xxx
grumpy
Member

Re: radiotheraphy and burns on breast

I got burnt during rads but I slathered aqueous cream all over several times every day, and wore old cotton tee shirts. The burns weren't too bad, the skin went red then brown sort of spotty, peeled a bit the healed up quickly. The key seemed to be using the cream every couple of hours, and I used it instead of soap. It's about £5 for a big tub that lasts for ages and I still use it now as a body lotion.

Hope this helps

Grumpy

pamlicious
Member

Re: radiotheraphy and burns on breast

I finished my rads 10 days ago, today I have noticed some broken skin underneath my boob in the crease, my luck its Friday but after ringing hospital, they advised me to see the doctor and ask for Mepilex Lite, I got the prescription and now every chemist I have been to does not have it, I have the prescription at Asda who are trying to get me it for tomorrow I am awaiting a phone call as I type.  I know I have not got to put any cream on any skin breakages, any tips for over night?

Mysticalmoo
Member

Re: radiotheraphy and burns on breast

Caroline, I am struggling with energy too in the afternoons. I am now 2.5 weeks out of rads and I think it is improving... I have some days when I can also function in the afternoon! I was warned that this can take quite a few months to improve.

With regards to redness, I have had a really itchy prickly heat rash front and back. It was raised and had a few tiny blisters which pop and crust over. They are taking a while to heal so I am working really hard to keep them clean and moisturised so that they don't get worse but have not noticed any change for a few days. The colour is pink and is a perfect square around the breast. My radiotherapy consultant also warned that I will get a good peel like a sunburn but she said can lose quite at few layers....

Hope your recovery is speedy x
patricia4
Member

Re: radiotheraphy and burns on breast

Hi Caroline Welcome

Has you will see down below I have mentioned that I have a really bad burn.  I have seen several people regarding this some consultants and radiologist.   The normal range or burn, is pink, bright red with heat , and also there can be a brownish tint to.  I am not a doctor so cant advice you but, I think that the brown is okay as long has it is not to painful.   Where some of my skin went from red to slight recovery it went to a brown marking, in the shape of the treatment of the boob.

Keep a close eye on it you can always ring your hospital radiotherapy unit where you had the treatment or your BCN nurse for advice.

Unforuntately I am having such a terrible time, I am in such a mess physically and mentally, they are saying that it could actually take a few years to settle down.  I am on high dosage of drugs just to get through the day.

Pat

 

Lucy_BCC
Member

Re: radiotheraphy and burns on breast

Hi Caroline and welcome to the BCC forums where I am sure you find the support you are looking for

Whilst you await replies here's a link to the BCC information about side effects from radiotherapy which may help:

https://www.breastcancercare.org.uk/breast-cancer-information/treating-breast-cancer/radiotherapy/si...

Our helpliners are on hand with further practical and emotional support so please feel free to call to talk any concerns over on 0808 800 6000, lines are open during the week 9-5 and Saturdays 10-2

Take care
Lucy BCC

Caroline1
Member

Re: radiotheraphy and burns on breast

Hi I'm new on this board.  I just wanted to comment on the skin burns.  I completed my 4 weeks of Radiotherapy last week and my skin has continued to alter each day.  It started off a little pink, but now the whole breast, armpit and under the breast have become really sore, and it looks like a dark rash.  I wonder if it has to get worse before it gets better.  I am also really drained of energy from about Midday.  Anyone else?

patricia4
Member

Re: radiotheraphy and burns on breast

Hello
Just to say that I had my last radiotherapy treatment (of 15) finished on the 18th July.
Since then I have been in and out of hospital with a Radiation burn and infection.
It is really bad, but at last now it is being investigated properly with a CT and MRI scan.

It looks like the burn is a much more than what they expected, and the burn is further than the patch f the boob area.

Mine just started with a little redness, and the burn didnt come out till 4 weeks after.

Toulula
Member

Re: radiotheraphy and burns on breast

Hi I had been putting on e45cream on but never thought of under breast it sired and sore still putting on cream and taking pain tabs seems easyer today just hope it clears up soon so fed up of it all
lucy12
Member

Re: radiotheraphy and burns on breast

I burnt very badly in my armpit and they gave me a cream called flamazine - it was amazing stuff. Definitely speak to them tomorrow when you go in for your next treatment and they should be able to help.

 

Good luck xx

JAG3
Member

Re: radiotheraphy and burns on breast

I absolutely slapped on E45. And I hate to admit it - but I only showered, or washed the area once a week. Stinky and a bit messy with the cream, but I didn't want to expose my skin too much. It worked really well! I'd advise you to see your breast nurse though. Good luck & best wishes x x x

angel77
Member

radiotheraphy and burns on breast

hi just wanted to ask if anyone else is suffering from burns to there breast ? i have 4 more sessions left ( boosters) and im so burnt and so sore . ive tried the cream they have given me from the hospital and its not helping . my whole nipple area is full of scabs and crinkled up .. it looks soo bad and it so painful.. has this happened to anyone else .. if so what cream helped with it ...  23 sessions i was given and have 4 left x