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really frightened now!

18 REPLIES 18
scaryskittle
Member

Re: really frightened now!

Hiya, sounds like you have had a bit of drama but glad  its a painfree time for you now, I will get the path. results on Thursday and will learn my next step of treatment then. I still have the blue dye stain on my boob from 6 weeks ago!!!

Hope your doing well, bug gentle hugs xx

Peedles
Member

Re: really frightened now!

Giving everyone big hugs it's such an anxious time waiting waiting Waiting you're mind is so full of ifs and when But this site is fantastic and helps so much Hence while I'm awake at this time in the morning! Thank goodness we all have each other to bounce of xx good luck to everyone who is getting results xx
Anniej
Community Champion

Re: really frightened now!

Hi ?Benandflo, got all my fingers and toes crossed for good results for you. Excellent news re lack of fluid. The exercises are really worth it. 💪 Let us know how you get on. X

benandflo
Member

Re: really frightened now!

Hi Annie
Drain came out on day 3 as accidentally pulled it slightly 😢🤢. However now at Day 8 post surgery and no fluid buildup thankfully! Each day getting easier still very 'tight' across mastectomy area and swollen. I have an A cup so at the moment don't look any different! Want Friday to come now for results keeping everything crossed 🍀🍀xx
Anniej
Community Champion

Re: really frightened now!

Excellent news, Scaryskittle. Onwards and upwards now.😄 really pleased for you. X

Benandflo, hoping the news is good for you, too. Drains are a bit if a nuisance, aren't they? Have you got a small longhandled bag you can pop it in ? Very useful going to the loo as you can hook handles over shoulder, leaving two hands free for knicker control! Also useful for I pads, books, lippy when you are wandering around. X

benandflo
Member

Re: really frightened now!

That's fantastic news! I am praying mine come back good too. Find out 4th august. Surgery went well came home only yesterday though as had a bit of a reaction to dye. Just now very bruised but not any pain so that's good. I am so pleased your results were good. What's your next step? ❤️❤️❤️
scaryskittle
Member

Re: really frightened now!

Hi benandflo ☺, the scans all came back clear (yay!!!) My first bit of good news since diagnosis ☺I am now in day 5 of recovery after having margin shaved and mode clearance. I have a drain in that's a bloody nuisance but not feeling too bad. How are you? And how did your surgery go on Saturday? Lots of positive love and hugs coming your way xxx
benandflo
Member

Re: really frightened now!

Hi scaryskittle,

 

I just wondered how you got on on 17th with results?

 

I hope you are ok.  I have my mastectomy on Saturday, it's such a dreadful thing to go through isn't it, i feel like I'm in a trance all the time with a false smile.

 

Soooo glad I found this site though it's all so positive with such amazing ladies.

 

Sending hugs xxxxx

Sam890
Member

Re: really frightened now!

Yes, full node clearance. Unfortunately I have to have Herceptin as well.
Ms Merton
Member

Re: really frightened now!

Always good to take someone in with you!  I guess you have had a node clearance and will have chemo and radio. It is a long road and there will be bad days but most of the time it's business as usual. I have just finished 11 months of treatment and i feel really good.  Best of luck with your journey. Xx

Sam890
Member

Re: really frightened now!

Thanks Ms Merton. Bit of mixed emotions with results. Took friend with me who asked questions and listened for me. I was so grateful for that. Finished with my surgery but have a long road with treatment.
Ms Merton
Member

Re: really frightened now!

Sam - good luck with your results. Do by all means put your faith in your medical team, but also make sure you know what diagnosis and treatment options you are being offered - or not offered - and why.  Ask questions and sense-check what you are being told. Remember the NHS restricts diagnostic tools for financial reasons, such as MRI scans, which are routine in other countries or in the private sector. Personally I would also advise asking for a copy if your post-surgery path report and being comfortable you understand it - the BCN, oncologist, or this helpline can assist. Best wishes. Xx

Sam890
Member

Re: really frightened now!

Hi Scaryskittle. Like you, I was told there was cancer in the nodes and unclear margins so have been in for my second op and awaiting results this Thursday (13th). I haven't been offered any other scans and nothing has been said about finding any more. All we can do is put our faith in our team. My thoughts are with you.

Ms Merton
Member

Re: really frightened now!

Hi Scaryskittle. I agree completely with Annie.  If you have any lymph node involvement, you get a full body scan just in case. In the private sector they give you a bone scan, CT scan etc whether you have lymph node involvement or not.  It is considered routine for all bc cases.  The NHS would also do this if it had enough money!  Also be aware that things show up on these scans which need further review but are not necessarily cancer. For example, I had "hot spots" on my neck which on further investigation turned out to be just wear and tear. But in the unlikely and unfortunate event that the bc had spread further, you'd want to know asap so they can give you the best treatment. I am also a stage 3, as is Annie (I believe) and many other ladies on here. We have to accept the reality that we are statistically more at risk but I am also hearing from lots of ladies on this forum who had stage 3 many years ago and are living happy, fulfilling and healthy lives.  After 11 months of treatment, including mx, node clearance, chemo and radio, I actually feel really good at the moment both mentally and physically.  Personally I think having counselling and doing yoga helped me a lot. Lots of fresh air and walking also works well on anxiety.  I will admit though that on a bad day I've also been known to indulge in a bit of retail therapy too!  Give yourself some treats. Sending you all best wishes. Xxx

scaryskittle
Member

Re: really frightened now!

Thanks Sue, I love this forum, its helping me so much, with all the positivity, results day is 17th, will update then,big hugs xx
scaryskittle
Member

Re: really frightened now!

Thankyou so much. love to hear such positivity, I will update you on results day - 17th!! Big hugs xxx

Anniej
Community Champion

Re: really frightened now!

Hi Scaryskittle, what a shame your surgeon did not get clear margins. Not to worry, there are plenty of ladies on here who have had to go back in for a little shave, and some who've had two. When I had my breast and lymph node biopsies done 2/3 LN showed signs of cancer, as well as the ductal tumour in the breast.  As a result I had them all excised. Good call by my consultant as 7/15 were cancerous. They had done their job and  prevented it spreading. Until you've had all the tests and the path results back no one can tell you, and to try to second guess would not be good. Again, I'm afraid it's a waiting game. I had CT scan to check for spread , but my consultant was always so upbeat that I was quite reassured that whatever the results it would be treatable. I'm hoping that I'm passing on some of that positivity. Let us know how you get on. Hugs. X

Sue C
Community Champion

Re: really frightened now!

Hi

I just wanted to acknowledge your post and to say how sorry I am to read your news. I'm sure you must feel so anxious now.

I have not been in your position but I know someone who has and she did not have any secondaries. After mx, and follow up treatment, she is fighting fit, more than 5 years on. So it doesn't necessarily mean that it has spread. 

They have caught it early and the good thing is that you are having all the tests done asap, so they can treat you accordingly.

Sending a hug and let us know how you get on. There are plenty of ladies on here who will listen and understand what you are going through xx

scaryskittle
Member

really frightened now!

Hello all you lovely ladies, me again, I have been told that my margins were not clear and the 4 nodes they took out are all infected. I am now waiting for urgent CT scan, bone scan and MRI before going back for more surgery and having all the nodes taken out. Does this mean I am  likely to have secondary cancer? I was diagnosed by screening and they led me to belive, in the beginning that it was caught so early, I would prob have little complications!!

Anyone else in the same boat? or been where I am now?

thanks in advance for all advise xxxxx