happy rads Hi kay.
Have a break over christmas, go up unitl 22/12 and back again on 27/12. Just want to get this year out of the way, its been horrible.
Will keep you informed of outcome, side effects if any.
thought I\'d replied to you! Obviously lost the plot!
Saw onc Thurs,liked the sound of his own voice and didnt find him very approachable
He had a quick feel of chest and neck and look at seroma.
Told me 8% less chance of it recuring if I have chemo so going for it .Said I could start the week after next because he wanted seroma to settle down,so I pulled a face and groaned and said I wanted to start this week so i wouldnt be too poorly christmas week so hes agreed as long as seroma is no bigger.So keeping fingers crossed.
Rads after chemo finished and I will be like you lot of travelling involved.
All this time they have told me I\'ll have to get a boost of the rad in one area where they couldnt go any further back because of chest muscle and even put a marker in breast last time they were in there.When I asked him about it he said No you dont need that! When I think about it the bc nurse faxed my form to the hospital where they do the rads and she told me shed asked for boost so I\'ll ask her next time I see her.
So do you have any time off rads over christmas?You would think appts would be same time every day!
Take care and let me know how you get on
it just gets better Hi Kay
Had to visits last week with onc, one to discuss treatment. At first he offered chemo but said there was only a 4% chance of it returning if i had it along with rads. Decided on rads and armidex, start 13/12....25days....mon to fri...for 5 weeks...bring it on. After reading the side effects of that and also the arimidex I will be well away, just hope they all do not hit at once. Infection has cleared. Full examination by onc and then discussed treatment. I think its going to be the journey back and forth (espeicially running up to christmans,hospital is Leicester city centre) appointments are not the same time, that will tire me more than the treatment itself. As i keep telling myself its the journey to recovery.
Good luck for thurs, let me know how you get on
hi elaine Hi Elaine
Sorry I havnt replied ,been to busy on the other site.
Ive decided to go for all I
can get,then if it comes back I can say I did all I could to beat this *******.
Problem is this seroma. Its now got blood in it when bc nurse drains it so she thinks they may not have sealed a blood vessel off last time they were in there or I may have done it myself. Dont know if that means they have to go in again or what! But it means chemo may be delayed! See onc on thursday.Did he/she examine you elaine or just talk to you?
I get chemo at local hosputal but have to travel to James Cook for RADS.
What is your treatment plan for rads?Every day/
Hows the infection,do you think its clearing up? Hope it is and you can get started!
Treatment Hi Kay
Thanks for your message. Saw onc tuesday, chemo was discussed but he said there was only a 4% chance of the cancer not recurring than if i had rads and tabs. Decided to go with rads. Had to go back again to have planning done today, but due to the infection i too start on 13/12. Where are your having your treatment?
I had my radio delayed my first op was on 10/11/2003, after which the wound turned sticky and opened up a bit so it didn\'t look that good and it was itchy. Strangely it was held together with glue. I should add I had the lump out as day surgery and it was meant to be benign.
I got told on 5/12/2003 that I had to have further surgery as I had in fact had cancer. My next op was on 19/12/2003.
By 24/3/2003 my breast had gone bright red with white looking lymph nodes glowing away in the middle.
7 days of antibiotics followed, 7 times a day. The swelling and pain persisted. So on 29/12/2003 I had a hole made in the side of my breast to drain out the pus etc.
for three and a half weeks I trudged back and forth to the hospital to have it dressed. By 8 feb it was ok to dress it myself.
On 26 March 2004 I started my radiotherapy. I finished on 19 April after 15 sessions interrupted for several days by Easter.
So all in all I waited from 10/11/03 to 26/.3/2004 to have my radio and they reckon it hasn\'t made any difference to my outcome. That is 4 months delay...
seroma update Hi Elaine,
Bc nurse came out yesterday and I havn\'t got infection either. However she drained it again as she didnt want me stuck over the weekend.Another 200mls however I dont think its filling up quite as fast as last time.Could be wishful thinking on my part though.I think that was the 6th time.
She also brought glad tidings about chemo.Start first 1 on 13th dec. Wasnt expecting that,as chemo hadnt been discussed till a couple of days ago,But she fully expects seroma to be better by then.By what she was saying I think you can have chemo but not rads until its gone.
As you say Elaine......Bring it on......the sooner we start ,the sooner we finish....June 2007 in my case......lovely,just in time for summer.
Take care and good luck for tuesday
infection Hi Kay
Thanks for your reply. Dont see the ONC until the 28/11 to decide when and where i start my rads. My mind is in overdrive all the time, try to stay positive but its difficult late at night when you toss and turn in bed.
I had lumpectomy on 24/10, everything seemed find for the first couple of weeks. Had two drains in one from breast and one underarm. Though i was getting on quite well when this football (well it felt like that)blew up under my arm, was very scared. Been back 4 times for release of fluid, not suffering from infection. Bring it on..............Still must try to be positive and be patient to find exactly what and when my treatment begins. Just a waiting game....
Thanks again for your mssage.
yes I dooooooooooo
I had WLE 16 Oct and had seroma under arm aspirated 5 times. last time tues 200mls. Bc nurse was concerned that it looked red and inflamed and is coming out 2morra to check it. She said the fluid looked free of infection though.However I thought it looked as if it had more blood in than normal!
Have they told you when they expected you to start rads?
I was told after the new year as there is a 10 wks waiting list so I fully expect it to be healed by then!
One girl tonight has been told by her oncologist that he wont do rads more than 3 months after op! She has had haematoma.
When did you have lumpectomy?
Poor you .No alcohol for 2 weeks.
Thats a long time to be on anti biotics !
I bet you didnt have a drain put in after surgery! I didn\'t!
I think its to save money, so they can get you in and out as quick as poss.
I have recently had this problem on Chemo\', havent got to the Rad\'s part yet. My Chemo was delayed a week as the docs were\'nt sure what to do, then I was given a seven day course of antibiotics and allowed to have my Chemo\' the next day. The infection now appears to have cleared and apart from the Chemo\' and antbiotics fighting to play havoc with my tum\', no other side effects.
Hope all goes well with you JillT
seroma clinic Been back to the clinic again to have the fluids drained from under my arm following lumpectomy. The area has become very red and inflamed and the doctor tells me i have an infection and need to be on antibiotics for two weeks. Am due to see onc on 28/11 to discuss radiotherapy although my bc nurse as said that this may be delayed until infection cleared. Will the rads being put on hold effect the chances of recovery? Really confused any one else had this problem