Thankyou for your msgs....In the early days I was always on this site, I dont know whether you can get my old posts up....although I had fantastic support through people on here, I also found some very scary posts aswell...I used to trawl through looking for similary diagnosis and came across many posts with people saying how releaved they were to not have any lymph nodes involved and how glad they were that they could have hormone treatment, I know they didnt mean to scare people, but I found it so scary to think I had been so unlucky!
I know many ladies that are going strong with node poss tnb....why shouldnt that be the case with you too.
dont hesitate to private msg me anytime, i dont come here much, but will always get a email telling me ive had a msg.
And remember, stop doing those statistic calculations and going on random sites they will just stress you out and dont relate to you as a individual. X
linros - how wonderful your response to the chemo. I love to hear good news stories. Thank you.
Jinny - you are an individual, statistics are based on old data. Hang in there; as linros says, you need time to come to terms with your diagnosis and you'll start to feel better once you're underway with treatment to zap the little blighters.
Thank you and u described it so well exactly how im feeling crying my heart out behind close doors and to be honest i felt lik that today talking with oncoligist nothing positive at all apart from saying think of the cup half full i asked if she sees many with my diagnose doing well her answer was a few i hold on to every word she says thinking back to anything positive its like a bad dream i wish i could wake up from thank you for taking the time to reply i appreciate it so much your my insparation xx
I know youv sent me a private message but thought I would reply hear so others can hopefully feel a little more possitive about being triple negative.
Im sorry to hear how your feeling, I know I have been in that very very scary place to, as ive said before I had a awful prognosis when I was diagnosed in June 2006...over 8 years ago. I was triple negative with all of my lymph nodes possitive 2 tumours and also had spread in nodes above my clavicle, my appointments with
My oncologist were always doom and gloom and I couldnt see a future at all, I used to take myself off to the bathroom and cry my heart out, thinking of my 2 daughters coming to terms with me not being here, I was terrified, as you are.
The only thing that makes you move on is time, thats all I can suggest really and I know thats not much help, but with each day that goes by it starts to get a little easier, its very small steps but in time you will not think about it every minute of the day.
I sometimes look back and think about certain doctors a saw that told me basically id be lucky not to have secondarys, and it makes me angry that they give me this information and ruined the early years after my treatment had ended, as I kept thinking about all the negative things they had said, and I wasted them years worrying... they dont know whats going to happen..and thats what they should say !.
You havnt been diagnosed with secondarys and you could very well be ok, and in 8 years sending a post like this one, to someone else who is as scared as you....
Triple negative can reapond amazingly to chemotherapy, I know a few ladies still going years and years down the line thats hav had tnb with poss lymph nodes.
Try not to go on loads of websites , the info is sometimes outdated and scary as hell... hope ive helped a little....small steps forward, youl get there xxxx