Good Luck for session 2 Julia; mine's next week. By day 8 I'd decided I was so fed up with horrible s/es I wasn't going to continue. Day 9 was huge improvement so common sense kicked in (apparently I have some!!!) and so have today chosen a wig in readiness. I decided against the 1960's Dusty Springfield one and went with the spiky-Busby-tall one.
In sympathy with s/e sufferers, but it's true, it does improve...
I'm not really sure to which group I belong as I started my chemo on April 29 and do not quite practically fit to the group there as some of the ladies having their third chemo already and I have just started. Luckily I have my second session today and hope it is much better this time than the last one. I should not complain much though as I did not have nausea (which was my biggest nightmare), but had some big troubles with fever, pain all over, no sleep for 8 days, terrible night sweats (had to change my sheets 6 times a night). Well, in any case, it's all doable, hard but doable. And I'm so happy later today I will be able to say 1/3 is done! Wishing you all luck and health and I'm very grateful you are all here (well, that sound super weird, I know). xxx, Julia
I was wondering if you ladies would mind me joining in your thread please ?
I had 6 x FEC-T starting back in May 2012 and this forum was an absolute haven for support. I made some very good friends, and even met a few of them - we are still in touch now.
I had my first Taxol chemo (this time around) on the 30th April, but Im having it weekly, so I had my third yesterday - and it wasn't very nice. I had a bit of a bad reaction and they stopped the infusion and gave me a load of other drugs etc. The Dr came round and said it was ok to continue but they had to slow the infusion right down. I really hope this isn't going to impact the treatment because yesterday's treatment was still only 50% strength and I am worried that I don't have the time left to have to stop, slow or change the treatment plan again (I have agressive secondary mets in my liver).
Sending healing thoughts and love to all those here,
Sorry your Portacath was so painful. Had mine put in on Monday and although they had a bit of a push and a poke to place it, it really wasn't too bad. I was nervous about them using it for bloods and chemo on Thursday but they did and no pain - didnt even feel the needle! I am a bit bruised but small price to pay for avoiding 'hunt the cannula site' twice a week! Chemo every week makes the veins on a one arm bandit hide in fear! (darned lymphoedema!).
Third chemo this week - got a week off next week ! Wonder what mischief I can get upto in a week? Any ideas anyone?
Hi all finally feeling a bit more human today and have managed to eat some toast and yoghurt. Hoorah. Started my lenograstin injections.Has anyone had any problems with these ?I cant bear the thought of any more aggravation at the moment.
Good luck La-La hope today goes okay for you x
Hope everyone is feeling a little bit better x
One of my friends who went through chemo last year recommended getting your nails painted a darker colour to stop any discolouration - so book your pampering sessions to have something nice to look forward to!
Morning ladies. Haven't posted for a few days as been pretty grotty, not sure if it's a bug, IBS in overdrive or stress or maybe a combination. Desperately trying to get well as don't want first chemo next Thursday being delated. Had heart scan and wig fitting on Tuesday, heart was ok which was a relief after problems I had last Autumn and wig fitting was a bit surreal! Wish I'd had a camera to capture OH expression when I went blonde (I've only ever been dark brown). They are bringing few different ones next week for me to try but I've also ordered one with some hats online, at this rate I will have a different look every day !
I spent yesterday at the local hospice as they offer day therapy, it was lovely and I came home feeling much more relaxed. I did arty stuff (which I love) and had complimentary therapies too, am already looking forward to next Wednesday. To be honest it was nice to have some "me" time and I would recommend it to anyone.
So sorry to hear so many of you have been having a tough time, I hope all settles and you all feel better soon. I'm keen to start the chemo next Thursday but admit am terrified by the thought of all the side effects.
Thanks to Lucy for setting up the FB group, such a brill name and picture. Look forward to us helping each other through the chemo stage of the journey.
Take care all, love Jules xx
Good luck for tomorrow La-la! Xx
Hi daisyj, sorry you've been feeling so rubbish, always better to be back home and hop things will pick up for you a bit now x have sent you a private message too, Lucy x
Hi all just surfacing on day 3. Couldn't keep anything down after chemo so was admitted to hospital for IV anti sickness and rehydration. Just starting to feel human although very tired.Sounds like most of us are struggling a bit.Hopefully things will get better.
Good idea 🐵 x
Hi girls, sounds crass talking about facebook groups when you are feeling lousy but just to make it easier ive made it open to search our Troublesome Tits group so you can all find it and send a friend request to join (noone else can see our posts). once we are all in i'll change it so no-ne else can search it??
Spoke to them and they said prob just side effects from chemo and as I suffer with sinuses its feeling alot worse :o( Temp went to 37.2 but back down now. Think an hours retail therapy in Home Bargains helped, lol! x
Thanks Sheila, Ive just phoned them now, waiting for them to call back, will let you know x
Ladies - I start chemo on Thursday.. and I too late to join the May TT club?
Dreading chemo but it helps to speak to others... I'll PM you my FB name (not a million miles away from this one..) 😉
OMG, after a brill first few days, a not so good Tuesday! I feel like my head is gonna explode! My sinuses are so pressured and my ear and throat sore :o( Temps okay so not to concerned yet but NOT HAPPY with myself!! Grrrrr! Hows everyone else feeling? xx
Am sending you all a private message re the Facebook group. There are currently 9 of us in the May starters. Ive sent you all a private message so if you send me a facebook friend request i'll add you to the group. I cant search everyone if your profile is private so you'll need to search me (mine is open to search for now) cant put my full name on here so will message it to you - long winded but we'll get there - do find fb a bit more user friendly but support and tips on here fantastic! x Lucy
Hi ladies, wishing you all a bearable Tuesday!
Jackie, thought you were quiet! Glad you're home and hope you slept alright.
After a pain free 2 days after treatment, I'm adjusting to having pain. It's like little cluster bombs popping off in my legs and torso. Starting day 5 meds, and rather worried about infection. Also constipated, metal taste in mouth and itchy eyes. Positive bit now....nausea has dissipated.
Borbie, how do I get into the TT fb club?
Borbie, I'm hidden on fb (because of my job). Can you pm me your name on fb so I can find you please? 🙂 xx
Morning girls, hope you all had a reasonable night x
I've set up the facebook group Troublesome Tits but as a secret group so you wont find it if you look so i need to add you if you can send me your names and what your profile picture is on facebook, Lou i cant find you?? Is your surname edited by moderator? My fb pic if it doesnt work is a black and white one of me in a wedding hat and says Dudley Road hospital with it.
Count me in when it's set up 🙂 Kate, no constipation for me so far, long may it last! I've just been out for a long walk and a huge ice cream...I only had chemo on Saturday, can't believe it! Xx
Troublesome tits had to be it Borbie! Let me know when u have set it up n send me a friend request, Louise (Doncaster) my profile pic is the same as my T shirt pic on here. Looking forward to some instant chat with fellow fighters! xx
Hi - Daisy, thinking of you today and hope you get on okay with your first session. Rest when you get home and drink plenty of water and peppermint tea and ginger biscuits (if you like them)!
Cass - if it helps, I have also had the same red cheeks but I am hoping it will pass soon! Constipation too - oh the joys!!
This is day 5 for me and I am glad the nausea feeling has passed - just a lot more tired than normal - it all still feels a little surreal but I guess just having to adjust to this new world!
Are you a Sheila too?? xx