Thanks Jets and Tweasel
Thanks for the encouragement.
And in answer to your question, Jets, the mx is planned for the end of the chemo, which felt like good news to me because I can have an immediate reconstruction that way I think. Although the plan has chaned a few times already so I'm not taking anything for granted!
I had had it confirmed that I am starting FEC-T on Monday. I found the lump on Jan 1st, have had a WLE - where they couldn't get a clear margin, lymph node removal on one side, CT and bone scans (both clear thankfully), so I am relieved to finally be starting. But also nervous about which of the long list of possible side effects I am going to face and how well I will face them. I read the 'top tips for chemo' thread but it scared more than reassured me so I am going to take one step at a time, and just learn to deal with whatever happens - probably with the support of this forum!
Good luck everyone
This is my first post here. I finished 6xFEC a couple of weeks ago and just want to give all you ladies who have just started/just about to start their chemotherapy journey a huge hug. I was diagnosed last October aged 39. I can't deny that chemo is really tough, but please be assured you do get through it and there is light at the end of the tunnel. I was quite lucky, and managed to work all the way through my chemo (apart from 2-3 days after each infusion), because I categorically refused to give in to it. There wasn't a day throughout the 4-5 months of treatment where I wasn't suffering from one side effect or another, but it was manageable. For me, the worst side effects by far were the nausea, the terrible taste you had in your mouth for the first 10 or so days after treatment, and the mouth ulcers which lasted from around days 10-14.
Jets - I noticed on one of your posts that you are going to get Emend for your next treatment. For me, that drug was an absolute godsend! I was violenty sick for 3 days after my first chemo, and was prescribed this for the following treatments to help combat the sickness. I was never sick again throughout the rest of my chemo, athough I did have horrendous boughts of nausea thoughout.
The worst thing for me to deal with at the time was losing my hair - I was completely distraught. I shaved mine off completely before it started falling off as I wanted to save myself that trauma. I refused the cold cap for 2 reasons, the first being that I didn't want to put myself through any more hell than I was already going through and, second, if I was going to do the chemo, I wanted it to blitz everything, including my scalp! Although I lost a lot of eyelashes, I managed to hold on to about half of them (although I had to hide my mascara during chemo), and I managed to hold on to my eyebrows until just before number 6 when they started to fall out. Although I still have a few noticeable eyebrow hairs, they have gone very, very thin and I can't wait for the re-growth to start.
Although chemo is horrific, and really takes its toll on us both mentally and physically, just remember that it's not the enemy, it's your friend. As hard as it is, it is doing it's job, as if that is how it attacks the healthy cells, then just think what it's doing to the bad ones.
Much love to you all, stray strong, and focus on the finish line.
Hi Eileen -
Please use the messaging system here - click on my name and send personal message. I've had a message from you but not the information I need! You then need to type your personal email address - I cant pick it up from the forum messages. I will then email you directly the link to the FaceBook page - I think you will find lots of support there. There are lots of people different ages and from all over the country and some at the same hospital and near you.
Awful worry about the medication - hope this gets sorted. I had a blood transfusion yesterday and feel LOTS better today!
First session today and was ok. Only problem was I was delayed as they didn't have the right bloods done, so they took some and I was to go back after lunch. When I went back, they realised they had made another mistake and still not have the full complement they needed, so an urgent sample taken and a few tears and expletives from me, before I finally got underway at 3pm. Apart from a funny feeling in my nose, I felt no ill effects......... so far 🙂
Hi Eileen and Lena
All systems go for you both!
Just wishing you the very best and agree always best to pop questions to your unit - I phoned at 2 am when throwing up once and they were amazing.
Hi. I had appointment with my oncologist toady to discuss my chemotherapy. Cancer was confirmed a couple of weeks ago and I've had all my scans to exclude spread. He told me they would give me 3 lots of FEC and 3 lots of D. He said that they like to do heart scans first, which could be done next week and start chemo the following week. I said,I'd had enough of waiting and just want to get started. I am fit and healthy and run regularly, so he agreed that they didn't really need to do it, so instead organised an ECG, which was done right away and then he told me I could start chemo tomorrow!!!!! Yikes - it's real. A bit of a shock, but it means one step closer to kicking cancer's butt!!
im also a Sarah!
I would jump at the chance of 4x anything as opposed to more at the moment - it's amazing how things change so much with the different research and it sounds like you have a really progressive oncologist and that can only be good. In the future I am sure that chemotherapy treatment will become much more personalised as many of us are probably overtreated a bit with different stuff during this process.
I was originally going with dark nail polish but then found out about onicolife drops from this forum and that does seem to be good especially with T (which I think might put your nails slightly more at risk?)
If you PM me I can send you an email link.
Just ask to be added - its a closed group so only people in it can see the posts. There are few other ladies with children in GCSE year there also (mine are year 10 so doing some GCSEs this year but I am hoping not going to have too much impact ; Im single mum)
best wishes to you
Thank you, would love to join the March Marvels FB group. Can't figure out how to private message on here but I've just been on Facebook and requested to join. I quite like Facebook, and a closed group that's more private is great. Although I will still visit here too.
You are very welcome and hope you find lots of support - we have a face book group called March Marvels for starters in March (end feb early april also) and I have to say its a great place to get support - they are a really fun bunch and have been sharing side effects and helpful advice.
I had my first FEC on 16 and have been v sick but intend to ask for Emend at next chemo. I had a bilateral mx in January so after chemo 'just' 10 years on tamoxifen. Cant wait for the next few months to be over.
Im up at 3 am regularly ! Ive gone off the dawn chorus and am equally paranoid about infections.
If you would like to join the FB group private message me your email and I can send you the link.
its actually easier to use then this forum.
Hi all, this is my first time posting. Was diagnosed in Feb and had my first of 6 FEC cycles on the 9th March. Will have surgery following chemo then radiotherapy. It's going to be a busy year! I was admitted to hospital last Friday 13th because I was suffering from chills/shivering and had a low temp. My pic line that was put in on the 9th had started to bleed too. Thankfully I only spent 1 night in hospital, no infection but had penicillin/antibiotics IV.
Like other posts I have read I am hungry as a horse! Loving real savoury stuff like Marmite and cheesy things. Rubbish at pacing myself but now the fatigue is coming to meet me I am beginning to listen to my body and be kind to her.
I am becoming more anxious about being around people, except my lovely hubby! So scared I will catch an infection. Scared to leave the house at the moment. Hope these feelings will ease over time. I have the rumblings of a cold right now, temp ok in between the hot flushes. Got a fab remote control fan from Argos who is my new best friend. The nights are long, I sleep for about 4 hours max. Watching the dawn rise is my new pastime. But the dawn chorus is beautiful.
I am a total chatterbox! My posts might be long! Love and hugs to us all 🙂
I've emailed you the link to join the FB group (lots of energy on thereXX) - you should just need to click on it and follow from there but let me know if you have any problemsx
Hugs to everyone else who has started etc. Hope all going well today.
I found out today that i am starting chemo on Friday. I'm having a tour of the unit on Thursday at 4pm then having my chemo Friday at 2pm.
I have joined the facebook group March Marvels as well so will see you there xx
Zilles - asked same question! if you or anyone else havent made it on FBG yet this is waht you do
Click on the name of the person you want to send a private message to, this will open another screen where at the right hand side of the page you will see 'send a private message' click on this and again another page will open where you can type your private message.
then ask to be added - hope this helps x
Hi Lolk, I start on 10th, next week. The appointment with oncologist yesterday left my husband and I like rabbits caught in traffic lights. There is so much to take on board. Well done getting through your first treatment. Let me know how you get on injecting yourself because I may have to do it too if I don't want to trek over to hospital. I've a feeling there are lots of bad hair days to come, but the thought of lucious hair is appealing!
Well done to the brave ladies that have their first dose already. Hope you feel better than you expected, and respect to you xxxxxxx
All went well yesterday thanks and been feeling fine?!? My dressing table now resembles a pharmacy and I am just trying to remember what to take when! I am also having to self inject daily for 7 days post chemo to boost white cells. The district nurse came today to show me what to do so I have to do it myself tomorrow!!!!
I tried the cold cap but to be honest I dont think it will work. They wouldnt allow me to use the Paxman machine as they said it was normally used for longer chemo sessions and wasn't swiched on! So I had to use the cap from the freezer which I didnt feel was cold enough and ended up having it changed 3 times in 1.5 hours. They told me not to blow dry, straighten, use products, colour during treatment and only wash twice a week max so I am expecting v bad hair days going forward!! It is just a fluffy mess today and I cant even tie it back as got a short bob cut last week! If it goes it goes but the number of people I have spoken to (including wig man!) said that hair may grown back lucious...we'll see!
When do you start your treatment?