starting chemo in January 2012

[samos]

HI Joyce, as Pat says, there is a thread for those staring chemo January 2013 so that would be a good thread to 'join' so you can share on an ongoing basis with other girls who are at the same stage as you.
You may be pleasantly surprised by chemo in that your se's may be mild - mine were - and you do tend to find that those who suffer more tend to post more ie bad news travels quick!
I made sure I drank plenty of water - especially on chemo day and the following few days - and I had a spoonful of Manuka Honey each day.
Food wise for me the biggest problem was that everything tasted 'off', even water, but it didn't actually stop me eating anything! If you do suffer indigestion, then your GP can prescribe Omeprazole for you - it's brilliant.
Again, I'd give alcohol a miss the first few days after infusion, but if you fancy a drink, then that's ok, you can have one. It's mainly a case of listening to your body.
fingers crossed chemo will be as kind to you as it was to me!

[Guest user]

hi joyce,
there is a thread for all us December jems , just have alook undergoing treatment ...chemotherapy then look for thread welcome January jems.
To answr your questions everyone is different my se started 3 hours after chemo was rough on and off for a few days but now day12 of 1st lot of fec feel good.
Hot food ..if you mean spicy they say be careful in case it aggregates tummy but i also love spicyspicy food and made myself a hot spicy stir fry...was gorgeous and i fine .
Feel fre to ask any questions ill answe best i can.
Good luck joyce
love an hugs
pat xxx

[Airlinelady]

Hello Ladies, I am due to start chemo on 17th Jan - then every 3 weeks x 6 - can I ask these questions:
How many days will I feel ugh?
I love hot food - will I be able to have it?
Will I be able to have a glass of wine?
Will it make me morose?
I know everyone is different, I am a little scared but know I have to get through it. I am very lucky in that I have a small invasive with DCIS and Receptor results 0, CT & MRI scans are clear.
Good luck all, I feel like I am in good company.
Hugs,
Joyce x

[clare83]

Here's to a happy, healthy future xx

[Guest user]

Hi Samos!

You are lurking too - a much better 2013 for all of us!

[samos]

Happy Healthy 2013 to all 2012 girls - Sue xx

[samos]

I echo what Julianna has said! BCC provided us with a safe haven where we could simple 'be ourselves'. I honestly believe that making this unplanned and unwanted journey amongst 'friends' made it bearable, and indeed may I even say pleasurable? Yes, I haven't totally lost my mind, but as well as the lows, we shared some fun moments, and I thank you all for joining me on this ride.

To BCC I will always be indebted, as through this forum I have met some amazing 'girls'. I use the term girls as I don't quite think we qualify to be called ladies lol.

We don't want to leave anyone behind, but fb is the future, we are as Julianna says 'moving on'. So if you are out there, and want to join us - then do let us know!

Sue xx

[Guest user]

The sun is shining today, I am in a good mood - the days when I've spent most of my time in the pram is, thankfully, over. I do still frequent the FED UP sofa - how can you not? All of THIS seems surreal. Me? With cancer? Surely not.

I now seldom 'do' this site - it is true, you only post when you are miserable. But would hate to leave anyone behind with not support - so, girls, if you were only a reader, this would be the time to speak up and message one of us and join us on FB where we attempt the 'moving on'.

My sincere thanks to BCC for providing this forum for us! You provide an invaluable service to all of us, BC 'sufferers'! So a big THANK YOU!

Julianna

[samos]

I've pm'd you Dee - our fb group is great, it's so easy and informal, and private so only us can see the posts etc. Do it ASAP.
Sounds like you are doing well, I hear rads are very effective, and you seem to be recovering well. Lots of the girls are starting Tamoxifen, so you can pick their brains etc and share hot flushes:)

Think the change over to this new site has meant most of us find posting now very tortuous, and fb is so simple. I know what you mean Julianna about straying on to threads that have the power to scare us, and yes it is sad that new groups continue to pop up - i really can't believe the numbers of women going through this awful disease!
I'm also stiff first thing, but thought that was old age! Good old Tax I believe.

Well, I'm feeling good, the 'twins' are behaving themselves, although they do feel a bit strange, like they're not really mine lol.

Sue x

[Guest user]

Girls! I have not been on BCC forum for ages. The temptation to look in the secondaries thread is too great and it distresses me to see that there are 'starting chemo' threads for every month. I don't know, somehow I thought it has stopped since I've stopped chemo... Weird.

Anyway, I am back to normal now. Finished rads a while ago and I am one of the furtunate one, no problems with my skin or with fatigue. My joints are still stiff, when I wake up or if I sit a bit longer when I get up I am doing the old woman shuffle.

Hope you are all doing well?

Julianna

[Dee101]

Glad your op went well Sue, and you are taking plenty of rest (but keeping up the exercises.. very important!). No I'm not on FB, but think I better join as feel I'm missing a lot, as not many of our original ladies are posting on here any more. There used to be so many posts I couldn't keep up with them all, now there are only a few. I know most of us have finished chemo, I finished rads three weeks ago now, all the 'sunburn' has faded, just peeling a bit now. Hopefully the rads has done what it says on the tin! But I guess we have to wait. I think it's TamoxIfen next, I'm waiting for my next appointment with my Onc. Are you able to pm me so I can work out how to join the FB group....I'm so not techie!
Dee xx

[samos]

Finally able to post again as ever time I've tried I've failed! Thank goodness for fb!

Well as you all know my op went very well, so now it's just a case of recovery and recuperation. And I'll be watching you Clare to see how you get on with your ps and nipple planning! Oh the joys of recon:)

Needahug - I've every thing crossed for you that your throat doesn't delay your last chemo!

Are you on fb yet Dee?

Come on Dawn, we have you on fb so updates should be quick and painless.

Well done Lindyloo for finishing rads - have you thought about joining our fb group?

Surprise surprise it's almost dinner time - roast lamb:)

Be good,

Sue x

[clare83]

Gill, congratulations on finishing rads, well done.
How strange your hair is growing more on your right side. I have hair growing everywhere too, don't like the amount on my face. I mentioned the goose bumps at my last check up but the doctor didn't seem to have any suggestions other than to keep it moisturised. It seems a little better so I hoping it will settle down soon. Have also had itchy rash on my neck but that has improved in the last few days. I was "prescribed" exercise for the aches in my legs and have taken the advice on board and have been walking most days. It has helped.
I am back at the end of August for the next D care jab and next week to see the plastic surgeon re possible nipple reconstruction.
Have a good summer, let's hope we get some sun soon.
Clare x

[Guest user]

Hi Clare, I dont post on here often , but do read to keep up with how everyone is doing.
I have got the goose bump things on my arms too.
Hair is growing everywhere, more so on my right side (BC was on my left) weird
Finished my radiotherapy on wednesday!! so no more daily trips to the hospital.
Im back there in september for my next D trial check up and jab.
Hope the sun carries on shining today 🙂
Gill x

[Guest user]

Hi Dawn, great to hear everything is going so well for you and you are putting your new found energy to good use. Will be great to hear from you on the FB page when you have time to post.

Dee, agree weather is the pits! Never know what to wear these days. Great news that your hair is making a reappearance, think I am seeing some growth now, too, although 'old' cold capped hair still seems to be coming out at an alarming rate. Have you joined the FB group, Dee? Quite a few of the old 'January' group are posting over on there these days.

Well, doing everything to avoid infection didn't work! Have red and swollen throat, inflamed glands and a blocked ear!!!! Aarrrrggghhh - typical! Hoping antibiotics from GP do their work quickly and I don't get a delay next week - don't think I could bear it! Have got an appointment to see surgeon later this month but still trying to decide whether to go NHS or private for surgery - finding it a difficult decision.

Hope everyone still on here is doing really well. Hugs all round x

[clare83]

Dawn and Dee, good to hear from you. Keep in touch even if it's just a quick post. Everyone is very quiet, I hope it means feeling well and enjoying the summer(?).
I have a check up today at the hospital as it's 6 weeks since I started on Letrozole. Feeling tired and achey but it's not too bad. My skin is "goosebumpy" - don't know if that's the drugs or the hair follicles waking up.
Dee, I too have about 1 cm of grey hair, not a good look on me. Eyelashes are fab, have been using Rapidlash for about 6 weeks. Brows are back, had to have them waxed last week, ouch, skin was very sensitive.
Clare x

[Dee101]

Hi Ladies, not been on for a while, hope everyone is doing ok. Wow, its July.....where is time going! Weather doesn't seem like July though!

Sue, hope everything went ok and you are resting & recovering well.

Dawn, well done for finishing all your treatment. I bet you can't wait to get out in your boat! I finished my 25 rads last week, a little bit sore too......and very pink! Keeping covered up in the sun....not that we've seen much of that lately! Ha ha. I too have had to start shaving my legs again, five months with nothing, and now all starting to sprout......everywhere!! I have about 1 cm of fuzz on my head now! Hoping it will get thicker, wish it wasn't so grey!

Angel & Needahug, just one more CMF, yay! Sorry to hear about the problems with your vein, sounds nasty, all this treatment we've had really does give our veins a hammering. My Onc assured me they will improve.

Julie, bet you're glad you've finished chemo and your Picc line is now a thing of the past! Go get those T-shirts!

Kim, hope you are recovering well, 12 days in hospital, you poor thing, must have been very tiring, good to be home now. Hope they looked after you.

Hope everyone is ok! Have a good week, hope the sun shines.
Dee xx

[Dee101]

Lost my post!! Will try again...

[Guest user]

Just a quick hello, hello!
Glad to hear you are OK Sue. I still haven't got around to going on FB. Not enough hours in the day at the moment, which in some ways is great, but in other ways I could do with a holiday. But we have to wait until the boat comes out of the shed as it's costing us a fortune!
Not long to go now for the last two, yippee! I do think about you.
I've completed all treatment now and just have a follow up in a few weeks I believe. I now have to shave my legs! Where I had the rads is a bit uncomfortable, but my energy levels are back to normal. I do seem to be using it all tough.
I will eventually get onto FB, promise! What with one thing or another I don't seem to have the time or energy to get around to it. Sorry.
Dawn XXX

[Guest user]

Not been on for a while - have been busy with chemo and entertaining MIL! Hope everyone is OK.

Well the open air dance display was fantastic but I viewed it only in glimpses from the comfort of a moving car! It had started to rain and there were huge crowds, so for once I did listen to OH and didn't risk getting amongst them all - last thing I need at this stage is catching something and chemo being delayed.

Great to hear your progress, Dawn (and that of the boat - sounds as though it is really coming along now). Brilliant news that rads have finished for you, it must feel a relief. What is next for you now, Dawn? Is all your 'active' treatment complete?

Oh Kim, it sounds like you have really been through a lot. Great to hear that you are back home and improving. Big hug x

Julie - LOVED your garden makeover - really want to join you in that fabulous bar with the glitter ball and the Jack Daniels! Brilliant news that you have finished chemo now. What is next for you?

Emma - have to admit these CMF cycles are coming around a lot more quickly than I had expected - 1 more cycle to go seems a bit surreal. Yes, FB definitely seems to be where people are checking in more frequently these days.

Sue - wishing you the speediest recovery - great to hear that all went well and you hope to be out of hospital later this week. We miss you - big but gentle hugs x

Hope everyone is doing well and that you have a good week. x

[Guest user]

i havent been on here for ages and lots of postings!!!!
I saw you on this morning Julie,it didnt record properly on my tv either for some reason so watched it on iplayer,you are sooooo lucky your garden looks fab,could do with that here,my garden is a real disgrace no exaguration (cant spell!!),am looking into getting someone to come round to sort it...i hate gardening.
Good to hear from you Dawn,beware the fatigue from rads now you have finished,i was floored about 2 weeks after but it soon passes,really quickly.
Glad you are home eventually Kim hope you heal well and soon.
Sue good luck for today hope they look after you
well me and Needahug had our 2nd part of CMF yesterday so just 1 MORE TO GO!!!thank goodness,cannulation went okay yesterday,my own anaethatist comes to cannulate me as my veins are well and truly f*****!!!!!!! He is amazing though and usually gets me first time but yesterday with the 1st attempt my vein blew....it didnt hurt and i was none the wiser only knew as he said so and he was sooo apologetic...he manged 2nd time though and then gave me a huge hug!!bless!!!!!
Anyway i shall catch up with most people on fb as i am on there daily!!
xxx

[clare83]

Sue, good luck, hope it all goes well, sending you big hugs. Hope to hear from you soon. xx

[samos]

Good to hear you are home Kim, we were all worried about you, pneumonia is NOT good! I bet you are really enjoying your own bed and real food:)
Well done Julidons finishing chemo and hope all goes well today with the PICC line removal! Sadly I missued the programme, so echo what Clare says -picci's on fb would be great! Hope you are enjoying relaxation time in that new garden though!

Well, today is my last day with boobs - seems really surreal to think I have condemned one to the bin, but the other must go!
It's also high time I packed my bags, as although I'm not due in hospital until 7am tomorrow, part of me wouldn't be surprised to get a call asking me to come in later today!

Be good whilst I'm away!

Sue x

[clare83]

Well done Julie, have you worn a T shirt yet?
I set the TV to record the garden makeover but didn't realise This Morning was in 2 parts (silly me) so I got the beginning but not the finished result. I have to say it brought tears to my eyes. Hope you're pleased with it - can you put some photos on facebook?

[Jules68]

Hi all ..
not been on for what seems like months, hope some of you managed to catch the garden make-over x x

have now officially finished the chemo on the 20th June, Picc line comes out tommorrow I cant wait to wear a t-shirt...hope you are all doing ok x x

Lots of love

Julie

[Guest user]

Hi all,
Well I'm home, I did have the op done, much to my own great surprise. It was a gugruelling, emotionally exhausting 12 days in hospital. My surgeon, nurses and all the other staff were absolutely fantastic and I can't praise them enough, for putting up with me. But now I'm home, not eating hospital food, in a bed with no wheels and a comfy sofa with an ever increasing butt dent in it and being throughy spoilt. Well that's another stage done and once the bruising etc heals I'll be a lot happier.
Good luck on Wednesday Sue, I will Be thinking of you, the waiting was the very worst bit.
Kim xx

[samos]

hope the performance went well needahug - but open air? and the weather???? Hmm......

Dawn!!!!! Really good to hear from you - and also good to hear the boat is coming on too, it's a big prpject isn't it, but fongers crossed now you are at the end of active treatment, and your energy returns, then you can begin to enjoy it all a littlle more. Your team seem really on the ball re how you may feel when treatment finishes, lucky you. others appear to have been brushed off with a call us if you have any worries...
It's easy to get side tracked here isn't it - but don't!!!! Atick to this thread - and fb - or else!!!!

Spent the day getting the house in order ready for next Wednesdays op. And busy day tomorrow with Herceptin at home and then review with the Herceptin team! Highlight will be going out for a Chinese with David (son) and Danny ( adopted son - well as good as, as he's David's best mate and gets to see me bald!!!!)

Hope we are all well!!

Sue x

[Guest user]

Hello!
So sorry I haven't been on. I came on to wish you luck this week Sue and it was lovely to see you were wondering about me. I've just been so knackered. I finished my rads on Friday which is fantastic! We've been working on the boat every day during the week, then I had a late appointment for my rads. That didn't leave much time or energy for getting on the computer and the weekends have been spent resting basically. And that's before all the other usual daily stuff which still goes on, such as housework, running round after wayward parents and socialising. I've been keeping an eye on the thread though, but a couple of times I've been distracted by another thread and wished I hadn't looked. I must resist that. I haven't even got around to going on facebook properly. Hopefully now I don't have to go to the hospital everyday I will have a bit more time and energy.
The boat is beginning to come together a bit now, at least we are putting paint on rather than taking it off. I can't wait to get it into the water.
I had a 'review' half way through my rads which basically seemed to just be to see how I am, which I thought was amazing. They are really aware that ending your treatment can be a difficult time and if I start to feel down I must go and see them. It's very reassuring.
Anyway, I think I will be fine, although I do feel a bit like I've been through the ringer. I still don't feel like the life and soul of the party and feel a bit less confident, but I'm happy enough. I have a LOT to look forward to.
So good luck on Wednesday Sue, I will be thinking of you. I hope you will be pleased with the results.
And big hugs to Emma and Needahug, NEARLY there!
Dawn XXXX

[Guest user]

Oh Sue, that must have been quite a scare you had there about your dad. Glad he turned up safe and sound - transport has a lot to answer for! Hope all went well with the procedure - speedy recovery vibes being sent as I type. x

Requests for sacrifices will be coming thick and fast next week, I fear, stock the fridge up, Julianna, we need you!!!! 🙂

The lack of recovery between treatments and this blooming awful and seemingly never-ending nausea is really getting to me now - body is feeling like it has had enough and is going to start protesting before long. Hoping to muster a little energy later to go and watch my older niece perform in a huge open air dance production.

[samos]

awww needahug i can't believe how this chemo lark is dragging on for you and Emma! I think you are right that having lo's has kept you focused and grounded as it's easy to just sit back and wallow just because you can. and then you feel sorry for yourself...

Surgery is still looing a goer for wednesday, and then all positive vibes will be welcomed - and Julianna MUST do a sacrifice!!

Had a real shock today when I recieved a call from hospital! Not my hospital, but the one my dad was due at to have a procedure to remove a skin cancer from his head. They were ringing to say he hadnt turned up!!!! Cue me all worried and picturing him lying at the bottom of the stairs... Happily he turned up late due to the transport being delayed - phew!

Sue x

[Guest user]

Hello - hope everyone is doing well. Had another sofa day today - still not feeling great 😞
Hi KevinJ - the cumulative effects of the chemo over time, do make you feel much more tired and the recovery between cycles takes longer. My mouth has suffered since the second drug prescribed for me (TAX) and I really empathise with your wife re the mouth ulcers - really uncomfortable - I had these when I was having TAX . Fortunately, I haven't had mouth ulcers on CMF (so far!) but do get a very unpleasant feeling and taste in my mouth which is difficult to manage - has your wife been prescribed anything to help? When my mouth was really sore (with ulcers) my oncologist prescribed some gel called 'Gelclair' which I found helped - a bit fiddly to use, but it leaves a protective coating in the mouth allowing it to heal. I have also been using a mouthwash called 'Difflam'. I have bloods taken only on the first dose of each cycle too - similar to your wife, my bloods were low this time, and you are right, they are likely to dip even further before second dose. I am finding that I feel very tired throughout the whole cycle of CMF, though worse with nausea, etc. during the first two weeks.
Well done to your wife for working by choice, trying to keep some level of normality through this nightmare is so important. I am not working at the moment as my work involves coming into contact with a large number of students,etc. on a daily basis and my medical team thought the risk of infection unwise. I think for Angel18 and I, a lot of our 'normality' at the moment comes through us both having young children to keep our minds occupied.
My chemo is neo-adjuvant - I am due to have a Mx after chemo has finished and will then have rads. My holiday to USA was booked before my diagnosis and all being well will go ahead between my chemo finishing and having surgery. I am not sure what my energy levels/stamina are going to be like but it is an important family holiday that I really want to happen. It must have been a huge disappointment to cancel your holiday earlier in the year, but it sounds as though you have something really good to look forward to in November and most likely, your wife will be feeling a lot better by then.

Sue, delay re surgery must be sooooooo frustrating, really feel for you. Fingers crossed for Wednesday. Will be thinking of you and sending lots of positive energy. Perhaps Julianna can offer a special sacrifice to the surgery gods?
You are right, 8 chemos = tough - hate the fact that I need to have no. 9 too, still I suppose it completes the set, 3 x epi, 3 x tax, 3 x cmf - what is it they say? third time lucky?

Well done on getting your bloods up, Emma, or shall I call you 'POPEYE' from now on! Sounds like a good plan - spinach and dark chocolate going on shopping list right away! Hope se's settle for you soon.

Yes, Dawn - hope all is OK!

[samos]

I was wondering where Dawn was these days? She has a fb account now, but she's not about there either! Where are young dawn?

Had my pre op today, only took a old three hours! Fingers crossed we are good to go for next Wednesday!

Sue x

[kevinj]

Hi angel

No she is having Rads when she has finished chemo it does seem to be the tablets that knock her about she took the last one today the next couple of weeks she gets better everyday, this time though she is suffering badly with mouth ulsers.I don't need to tell you it is a long regime over 28 weeks and then the rads for another 3 weeks. She has been offered the REACT trial which she has decided she will do, mostly because they monitor you a lot closer for the first two years,she goes to work to try and get her life back to normal (she is the boss so i don't think she works to hard lol)

[Guest user]

hi kevinj yes i have the chemo tablets too,i hate taking them,i find i feel crap from the 1st lot of injections,through the 2 lot of injections,right up until i stop taking the tablets,i take them for 2 weeks.Like Needahug i found the epirubicin more manageable.But there isnt much we can do,we just have to get on with it and put up with the se's.Bloods only need to be taken for the 1st round which i am glad about,as at least it quickens uo the 2nd round of injections.I also feel nauseaous and tired most of the time too....well done on your wife being at work,i havent gone back to work at all throughout treatment,dont think i would have the energy.has your wife had radiotherapy too alongside the cmf as this causes fatigue big time.

Needahug,i managed to get my blood count right up for this course of cmf,the nurse was very impressed,i basically ate lots of spinach,and some steak,even some liver.....all full of iron,and the nurse said dark chocolate is good too...
i dont come on here much anymore,just now and again....
xx

[samos]

Somehow Julianna when ever I think of you I always think alcohol! hope your friends haver gone home and the champers is out!
he he needahug - childbirth and sighs!!!! But great that only one and a half chemos left - 8 is tough!

Hi kevinj - sorry cant help with the CMF stuff, - but I just wanted to wish your wife well!

Been off hiking today to take my mind off the fact that I should have been having surgery today! but didn't work as I'm still peeved by having to wait yet another whole week!
Apart from that I feel fantastic - energy levels etc all seem back to normal.

Sue x

[kevinj]

Hi needahug she had a MX in January she seems very tired at the moment, her bloods were low when she had the first dosage and they don't do blood tests the second week so I am sure they would have been even lower then.
She has a lot of mouth ulcers this time which is something that she hasn't suffered with before.
She insists on going to work at least three days a week (totally her choice as her company have been fantastic they haven't even put her on the sick they just keep carrying on paying her as if she was in work)
Because of having surgery in January we had to cancel our hoilday to Dom Rep we were going in Feb so I have booked for us to go to Cape Verde in November and I can't wait.

[Guest user]

Hope everyone is doing well this week.

CMF cycle 2, dose number 1, complete! Cannula in on second attempt - thanks, Julianna for the sacrifice - though I think they would have preferred the champers 🙂 Already starting to feel the side effects - yuk. Blood counts were a little low, but still gave me the full dose! Hope bloods don't react too badly for the last cycle - could not stand to have a delay now. Need to go on my holiday! Hope you get on OK today, Emma - have been thinking about you.

KevinJ - Hope your wife is getting on OK following last week's CMF. Although I am having CMF, all of the drugs for me are given intravenously (the classic CMF delivery), but I do get horribly nauseous and tired. I also found the E (epirubicin) se's easier to deal with than those of the CMF - I suppose there is also the cumulative effects of the chemo to consider. Angel18 is having some of the drugs orally (tablets) like your wife, and I am sure she will be along to comment before too long - the se's you report however do appear to be similar to those she has reported for previous cycles. We have also debated widely on here as to why different regimens of treatment are given - I know my previous medical history was taken into account when my oncologist prescribed E-CMF for me initially, but I think it is very possible that some oncologists do have a preference for certain drug combinations. Has your wife already had surgery or is chemo neo-adjuvant?

Hahaha Julianna, you're right, it was me who was delusional about childbirth, I hadn't even planned on any panting at all - just a few gentle sighs and it would all be over ...hmmmm, right! Chemo at the moment isn't giving me any chance to go into denial, so am really pleased to hear that the horror of it all may soon be a distant memory x

FED UP bench is now my regular place of residence, too. It is really quiet on here - where has everyone gone?

Hugs to all x

[Guest user]

Yes, our thread is a bit quite, not like in the old days!

I know it is unbelievable but 8 weeks after chemo I can barely remember how bad it was. The hair on my back stands up when I think about, which I try to do as little as possible but ... the clear memory of the misery is gone! I guess this is like childbirth - once it is over, you forget how bad it was. I think it was Needahug who said once she thought she would get through childbirth by gently panting away!

Emma, I think there are plenty of us on the FED UP bench. I know I am one of them and Anne only leaves to go to the ANGRY bench. This stuff is just not getting better or at least not fast enough for my taste.

Tomorrow is last rads and I should be elated but funnily enough I am more angry and in a deep apathy than anything else.... Weird, huh? I have a bottle of champagne chilling in the fridge (sorry Emma and Needahug, Chemo Gods got my good schnapps as sacrifice today!) and we will have it tomorrow night (I have some people coming over for dinner) or I will have it after they've left, to be more precise!

I keep coming back here to post just to make sure we don't abandon anyone who is not on FB!

[samos]

ive been very remiss and not posted for a while - sorry. cant believe how fast time passes!

came back early from Redmire in Yorkshire as fed up because surgery postponed till the 27th! not a happy bunny.

good to see so many coming over to facebook now.

Missed Julie on tv but will check out iplayer!

sue x

[samos]

ive been very remiss and not posted for a while - sorry. cant believe how fast time passes!

came back early from Redmire in Yorkshire as fed up because surgery postponed till the 27th! not a happy bunny.

good to see so many coming over to facebook now.

Missed Julie on tv but will check out iplayer!

sue x

[kevinj]

Hi Angel
My wife is having e-cmf at the moment she had her second part of her second dose last friday, she was ok on the E part but it seems that when she is taking the tablets she feels Nauseous most of the time and very tired when she finishes the tablets she is fine.Do you feel the same ?
She takes two tablets when she goes to bed and one when she wakes up.Very few ladies on here have e-cmf when we asked our ONC why she was having this treatment, it seems that this is the standard at Clatterbridge didn't really answer our question.

[Guest user]

hardly anyone posting on here any more.....i dont come on here much,we all seem to be on FB i think now....
Julianna good luck for tmw being last one.....i have found 2 weeks after last rads the fatigue has hit me....i got up yesterday morning and felt shattered,after a good nights sleep too.
3 rd cycle of CMF tmw...urrgghhhhhh....so hoping my blood count will be okay tho,last time it was very low so i got a reduced dose.....i really really dont want a delay....felt fine all last week so not looking forward to 2 weeks of now feeling crap.......
feeling a bit fed up today so i am gonna go and lie on the bench and anyone else on there better move up.......
i guess at least the sun is shining and there is no rain....
Emma xx

[Guest user]

Maggie another emoticon!

Denmark got beaten by Germany tonight in the footie - no big surprises and it was a boring game even though the score was 2 -1.

Had a fairly decent weekend, did some shopping on Saturday and went to the movies today. Still, I am getting restless. My energy levels are back to pre-chemo and even though I feel stiff and shuffle around like an old person when I get up from the sofa or in the morning from bed, I think I am getting bored with being an invalid. Been thinking I might go back to work August 1st instead of September. We'll see if any side effects from rads will hit. Did I tell you? I will finally finish on Tuesday!!! Yippie!

Sue's surgery has been delayed a week. As you can imagine she is major pee'd off. The reason given? Breast surgeon has something else to do. Do you understand this? Why can't the PS perform the mastectomy?

Maggie, someone going through chemo when they are 79? Kudos to them - I wanted to say I am not sure I would bother, but of course I would! I hope I will never ever have to do chemo again but if someone said you ahve to have 10 more TAX and then you are cured, I would leap at the chance!

Getting late girls, so I will say night night!

Julianna

[Guest user]

Julianna I am finding the forum easier now it must have had a few hicups when it was being setup. Sorry youre not feeling to great
it did say on some litreture that as all this ended we would feel a bit strange. We have to pick ourselves up and move on but it will
always be hanging over us. I'm going to do my best to move on and I have met some really lovely people on this journey. I said
goodbye yesterday to one lady 79yrs old going through treatment. I need to get out and about and loose some weight. I have admiration for all the ladies on here who have young children how hard is that!Good luck Sue for next weeks surgery and anyone else having treatment chemo etc. have a nice weekend.

[Guest user]

Maggie - hair and an emoticon! You had a good day!

Yes, Tracey, I've sent you a PM here about Facebook.

I think most of us now post on FB 'cose it is easier. But I am ever so greatful for BCC for this forum for bringing us together! I truly couldn't have done chemo without you girls!

Needahug, the book is CR*P. Sorry Wineoclock, I know you are enjoying it. I've given up on it and I didn't even get to the BDSM part - I wouldn't much mind that the story is weak, the characters absolutely unbelievable but she writes so badly, I can't do it. And there are not many books I have given up!

2 more rads to go! Yippie! For some reason instead of being elated with this, I am feeling really, really sorry for myself. Nothing I assume a little (!) wine won't cure.....

[Guest user]

Ah, thought no-one was posting as haven't had the ususal e-mails - anyone else stopped getting them? ... oh well, looks like it is back to checking the site.

Hope everyone is having a good week. Saw Julie on TV yesterday morning - what a fabulous garden Diarmuid's team created and what lovely family and friends you have, Julie. Very envious of the bar with glitter ball - love it. Bet I can guess where you are spending your days now. Was that TWO bottles of Jack Daniels I spotted on the shelf? 🙂 I shall raise a virtual glass to you.

Hello Kevinj, please do not apologise - everyone is welcome here. I am currently having CMF and have completed one full cylce out of a total of three due - my second cycle begins next week. I was originally prescribed the more ususal 4 x cycles of CMF, but have had some amendments to my treatment as time has progressed. I believe that Angel18 on this thread has completed 2 cycles of 4 x CMF, so we are due to complete our CMF treatment around the same time (all being well). I hope all goes well for your wife's second dose of CMF today - I did find the second part of the treatment affected me more, but this may be an individual thing. I hope I have addressed your query, but if not, please post again - more than happy to compare notes. You are right, there do seem to be very few people following the E-CMF route.

Julianna, do let us know how you get on with that book. Night sweats are driving me crazy too - duvet hokey cokey all night, every night! Not fun.

Dee - you sound really cheerful- hope all is going well. Are you going to join us over on facebook? There seem to be more posts on there than on here these days.

Tracey, weather is appalling isn't it? Can't believe the amount of rain we've had in past few days - it certainly doesn't help when you are trying to keep young ones entertained either does it? My LO will be 7 next month. Good to hear rads are going well, hope you've not got too many left. I understand that Julianna may have sent you a PM re facebook as you will need to link up with someone as a friend, who will then add you to the group (?) If you don't get the PM, post again, and I will attempt to do it (though not great with facebook, I'm afraid).

Hi Maggie - new hair = good news.

Hope everyone has a good weekend - penultimate round of CMF due to begin next Tuesday for us 'still on chemo' girls x

[pesteringpixie]

Hello Ladies
Hopping in from the April 2012 thread just to let you know about my Happy Bags.
I am making and selling these at £2 each and free postage, intending to raise as much as possible for Cancer Research, I would wish that every woman is given one of these bags to let her know she is special and loved.
If you want to know more, please message me and I can give you the link to my site.
Much love
Pixie xx

[Guest user]

At last got an emotion.

[Guest user]

Only two rads left yippee.
Missed Julie this morn but watched it on I player only saw the start and saw her with oh and family but never saw it completed. (too busy catching up on things re being away for three hours a day for rads). Hair slowely coming through....I,d like to say it,s blonde but i think its grey ha ha . Weather looking c--- for weekend, have a good one.

[Guest user]

Hello ladies
Where has our summer gone?preparing ourselves for another wet & windy weekend in Cornwall again,Rads still going ok.
Managed to get myself signed up to facebook but don't know where to go from there never used it before,any help please.
Needahug-my daughter will be 7 in Oct & my son is 4,5 on xmas day.
Catch up again soon.
Tracey.X