Well i havent even got a nice shaped head!!!Its like the rest of me at the moment, its an odd shape :'-( xx
This is bloody horrible ahhhhh I am sick of feeling horrid and hairless... But at least I am still here and I am fighting it just want to feel a bit better to fight harder!! I have had an uncomfortable day couldn't bare anything on my head today hope tomorrow is a nicer day for us all hugs and sleep to you all.
Afternoon ladies, well still exhausted..... Have spent most of day led in sofa.. Come down from steroids is horrible, still can't sleep, feel sorry for myself, aches and pains...oh and constipation
Could quite easily hibernate right now... Feel so rotten and miserable 😞
Hospital tomoz for echocardiogram ... Let's hope the ticker is doing a good job as can't be doing with any complications right now.
Gonna go for walk with dogs and blow away some cobwebs, will either make me feel better or worse.
Hope everyone else is well
Hugs and love penny xx
Silverjill - when I catch a glimpse in the mirror of me with no hair and no make up - a boiled pudding springs to mind !!!
morning ladies.am so jealous of you supertrouper having 12 hours sleep,i to can`t remeber the last time .did get a good night sleep on sat but took drugs(taz)i`am have thinning of eye brows and lashes.so far veins have hold up.so hope that last`s.can`t wait to get back to work.hope yo go back part time when going though rads.but will have to see.anybody at home.OH has just gone back to work so it`s just me and the cats'
hope every body has a goo day and night.
Oooh,I'm jealous Super, 12 hours sleep. I can't remember when that happened to me, even with wine or Zopiclone. What a luxury. I am constantly tired,more so since being on TAX don't like looking in the mirror either,despite make-up, wig, earrings, etc. Now I've got CBA syndrome! Today I was pottering around in PJs and dressing gown till mid afternoon when I forced myself to have a shower and get properly dressed. Have to say it did make me feel better, but now CBA to take it all off again!
Getting really windy here, Sussex coast. Got OH to semi dismantle patio heater and put it in the garage. So often we don't get round to it and the umbrella bit gets trashed in the wind.
looking forward to enjoying my best days from now till next chemo on Thursday. Wishing everyone a good night's sleep and minimal Side effects.
Just wanted to let you all know that I had more than 12 hours sleep last night. Couldn't believe the time when I woke up! I must have needed the sleep. I am on day 12 post chemo 4 and beginning to feel almost back to normal again. Going to make the most of my good week which begins on Wednesday.
Severe weather warning for the north of the UK - OH has been out to fasten stuff down in the garden and to take the sun shade of my swing seat. Would hate to find that had blown away!
Full moon tomorrow and officially autumn on the 23rd. Went to a garden centre last week and they had the Christmas cards out!! Shocking!
It's a lovely pic of you mine was nearly as long as yours very dark. I carn't bring myself to take it off my profile pic on Facebook. When I joined this site I had no hair so not sure what to put on here yet. Hope you got done more sleep I hate waking up sweaty I have to Change then that wakes me up and hubby..
Well 2 hours hours sleep and woke up with nightmare and sweaty, not nice!!! Just coolin down and will try again!!!
Yes silver I know what your saying... Not liking what I see in mirror at mo and all the makeup in the world isn't really helping. Very close to taking profile pic of as don't even like seeing old pics (few months ago) of myself 😞
Hugs penny xxx
The worst for me is when these side effects goand you ha e your good week and catch your self in the mirror ..... Now that's scary lol well it is in my case x hope you get some sleep xx
Can't sleep !!!!!!!! Bleeding steroids! So strange to feel so exhausted and tired but unable to sleep...... Not liking this.
First 2-3 days post 4th fec and could sleep anytime and probably anywhere 🙂 but now finished steroids my head is buzzing 😞 it's so horrible and making me ratty.
I know I've got a long way to go yet but really can't wait to feel normal again although chatting with my oh last night and said the same thing and made me realise what normal could be as when treatment finishes I know I will never be the same as I was. I know this is a life changing experience, just fingers crossed it's all good at the end of it!
Sorry head going for it 🙂 xx
Hi im having 6 EC no F and no tax not sure why? I am triple negative too l.ooks like there are lots of us in the same boat. I have a very tiny bit of hair which grew after my first lot all dropped out about less than a quarter of an inch. I havent lost any leg hair and my eyebrows and eyelashes are still there but perhaps thinner. not sure how soon we have our rads after chemo does anyone else know?
I have my fourth ec on thur i think there are a few of us on number four on thursday.I think it gets harder the more you have i was tired a lot longer this time and i got bad constipation ,not sure if it was from the emend i was given.
In the meantime i am going to Blackpool for a few days to see the illuminations and i will be back for thur (as long as i dont get blown away lol).
I hope everyone is keeping ok and se are minimal ,good to see you on here again andrea ,enjoy the rest of your weekend .Love Sharon xx
I've had 4 AC and 1 TAX.3 more to go, next one on Thursday. I'm having mine every 2 weeks.Also Triple Negative so will have 3 weeks Rads, but no hormones.
side effects from TAX have been worse for me. Very sore feet from Day 4
when steroids finished. Hands also suffering, but not so bad. Have been taking Paracetamol and Ibuprofen. Fatigue has also increased.
My feet haven't felt quite so bad today. I did put blue nail varnish on as recommended by some to reduce possibility of nails coming off, but took it off because it looked awful.
Hair on head went after second AC, i still have some lashes and eyebrows although they are thinner.
Constant runny nose due to no nasal hair. That was the first to go.
Just over half way with my chemo now.
Wishing everyone a week of minimal side effects.
Hi I only having fec then rads then herceptin had no 3 thurs gone. Had bad day feel bit better tonight.
Half way through is good. Heat pads applied when having chemo really helped plus some other steroid too the heat pad at home helps too. Hope we all have a bouncing week ahead of us with no side affects xxx
Hi queenie, I am only having fec x 6 then 4-5 weeks if rads.. Triple negative so no hormone form chemo, not sure if it's a good thing or not.
Had 4th chemo Monday gone and completely wiped me out although starting to pick up a bit now.
Do feel like making myself a cosy cave to hibernate in at mo 🙂
Hope everyone well on this miserable saturday afternoon
afternoon july ladies.day 10 post fec 3.not to bad s/e.dont think i am having t just fec. still we are all half way through.hope vains hold up for fec 4 on the 21 sep.still manging to hold on to eye brows and lashes.but for how long i don`t know.am not working untill after chemo ends in nov then 4 wks of rads.is andbody just having fec
Hi Angel and Squirrel - good to see you both posting on here.
I will be watching with interest as you both go for your first Tax this week and mine is on the 21st. Please come back and let us know how it was and how you are feeling so that I have an idea of what to expect. I know we all react differently but there do seem to be general similarities.
Hope you all have a good weekend and that your roofs are in good order. We have some loose ridge tiles that my OH is going to try and cement down before what's left of the hurricane hits after the weekend.
Ultra sound on Thursday shows that treatment is working and the consultant Rad. said she could see it on one screen now. Came out with a huge smile on my face.
Got my fourth treatment Friday but first of the T, not sure what side effects to expect other than perhaps a sore mouth.
Eyebrows getting thinner and look like someone is taking a rubber to them. If I could keep them like they are now I would be pleased as they are quite a good shape.
Boob hurts a little if I bend over to pick anything up, I guess it is just the muscles pulling on the tumour a little.
I am coping well with working full time and everyone is being really good. But I am glad to get home at night and take the wig off. Although used to waering it now I feel happier wearing nothing, less restricting.
Off to a football match this afternoon, so have to make sure I wrap up warm.
Have a good week-end everyone
Hi Everyone, yes guilty as charged Supertrouper, I have not posted for a while. Found that the SE from Fec worse each time but now feeling great - just as my first Tax is looming on Thurs. Feeling bit worried- veins not great now but I am going with my frozen peas for my fingers. Feel so sorry for the lady who has to wait til Oct to get a wig appt. That's not acceptable ! Without my wig I would be lost! Finding I am having to draw my eyebrows on ( a gift from a thoughtful friend) . Bought some eyelashes yesterday. What a hoot! Let's just say I thought I had a steady hand but failed miserably! Anyone any tips? Good luck to all. We are getting there! Xxx
Hi My two little boys - I think the other "months" get more frequent posts that the July thread. I have started posting in both June and July as I realised that my first chemo was actually at the end of June. I have just finished my four EC chemos and have my first Tax on September 21st. I too am worried about the side effects but as I will be 7 days in front of you perhaps we can compare notes. Well done you on persevering with the cold cap and with good results! I was doing a comb over within 14 days of the first chemo despite using the cold cap. Some things in life are just not meant to be!!
Hope everyone has a good weekend - and keep the posts coming!
hi all day 9 post fec 3 not feeling to bad.slepping still a problem.have had a rash has anybody noticed that they have it`s like a prickly heat rash (red with a white head ) or so the doc said.day 4 of my period (wish they would just stop)try`ed to book a appiontment for a wig can`t get in untill oct so i might not bother am quite happy wearing bandaanas and beenie hats.i`m off work at the moment but hope to go back part time after chemo.have had op. so only need to have 4 wks of rads.Hope everyone is coping today, best wishes to you and thank you for your posts, can't tell you how much it helps sharing experiences & just knowing that I'm not alone.
Hope everyone is OK.
Penny sorry to hear that you are suffering but glad your happy with your line that you had fitted -- was with you in spirit on Monday for treatment.
Gyspylady -- enjoy your grand-daughters crhistening this weekend -- hope the weather stays dry for you....
Gardic - I agree the weather does affect peoples mood and get up and go!!! This summer has been pants!! Maybe the sun came out in sympathy with all of us going through this treatment and thought if we couldn't enjoy the summer then noone else could too!!!
Supertrouper - Glad your sleep patterns are back to normal -- I have no trouble going to sleep but am always awake at 3pm for at least a couple of hours -- just love hearing hubby snoring silently (not!) beside me!!!
Sassan - I was hoping to miss out on periods whilst undergoing chemo - although they are not as long they do make their appearance felt for at least 2 days a month!!! No hot flushes though...
I have had a complete nightmare with my 3rd FEC -- appointment was scheduled for 2:30 on Tuesday but didn't manage to get into the chemo unitl until 7pm where they then realised that I was a cold cap and if everything was going to be done and dusted I wasn't going to leave until after 10pm -- was tired and emotional and very upset as I think we all work ourselves up when due to have chemo -- anyway went back on Wednesday morning first thing to have the treatment done which was fine and actually a little more relaxing but was a sick as a dog -- this has been the only time that I have been sick or even felt sick luckily took some more anti-sickness and went to sleep for the night and felt a lot better in the morning --- Start my first TAX session on the 27th September so worried about what side effects are going to be part of the course....
Am still keeping going with the cold cap -- hair is thinning but at least I am have something to comb over -- look like a 1970's football player lol!!!
It would be lovely to hear from everyone -- the other months seem to always be towards the top of the page.....
Love and hugs
Evening girls, well post 4 days 4th fec, feeling rather whacked out and very sicky this time, although havent been sick..... Just soooo tired (fatigue) it's horrible 😞
Soo pleased I had cannula line fitted as chemo was much easier to administer.... Arm is still sore and can't stretch it still...
Have used cold cap for first 3 fec but gave it a miss Monday as couldn't stomach the head pain, very nervous about losing the little bit I've got left 😞 do wear hats most days, and wig at the ready.
Hope everyone is coping ok. Might not come on much but do read most of thread.
Thinking of you all,
Hugs penny xx
3 out of 6 FEC down but I'm stepping out of cycle to enjoy a lovely boozy holiday (in UK) next week.
So far so good, my pattern seems to be to feel rough for about 5 days right after the injection and then i'm completely back normal.
Hair update - what's left on head is still growing, what's left 'down there' is still growing, legs - you've guessed it, still growing...i've lost about half of my lashes on the lower right lid but all of the others are holding in there, brows are a little thinner but appear to be growing (much to my disgust grey)...
Have got a very annoying abcess recurred on my tummy (had one a few years ago) but am chucking the anti-biotic sink at that.
Other than that, still all do-able!!! Positivity is oozing out of me and i'm actually beginning to see the end of this damn chemo road.
Good luck to everyone for the next couple of weeks - hope that SE's are minimal xxx
Good to see everyone is coping as best they can and getting through this.
I have my ultra sound tomorrow, hoping it has shrunk....
Does anyone else feel like their skin has been Immaced (Veet) all over or is it just me? My eyes are a little itchy two with very few lashes left to filter the dust.
All the best
Fec no 3 tomorrow not looking forward to it as my arm really hurts been putting
Heat pad on to help any other tips greatly appreciated thanks x
I too have not been posting much, but I try to catch up with all the rest of the postings (bit selfish really - slap - ow)
Had FEC 3 today, felt a bit spaced out on the journey home, touch of the runs, then the buckets of hot water started.
Have had very few se's really. Get the flu aches on day 3, then I find days 5 - 9 are the worst, that's when my mouth starts playing up.
Escaping to Swindon for our grand-daughters christening this weekend, so I hope I'm true to form as I can cope with the se's I'm getting.
Well time to hit the tent.
Love to everyone and hope for small se's for all of us.
I've not been on the site for a while, still feeling ok had a few 'down days' probably through lack of sleep. That seems to be my only problem. I have a feeling the weather is not helping everyone's mood! The rain in Scotland is even worse than usual at present and thats saying something lol, between the rain and wind its hard to psych yourself up to get up and go out a walk but please believe me it makes you feel better, even on your very bad days a wee walk round the block may even be enough.
Due to get my bloods checked next Tuesday and keeping my fingers crossed that the pesky neutrophils behave this time and I get my chemo on Wednesday.
Hoping everyone feels a bit better soon and have little SE
Day 8 post EC no 4 and thankfully sleep patterns are nearly back to normal. Weather has been rubbish today so I stayed in the house and caught up with the ironing whilst catching up with "come dine with me"
July ladies are very quiet compared to the other months - why is that?
Would love to know how you are all getting on.
Day 5 post FEC 3 and thankfully feeling not too bad... had problems finding a vein good enough to use despite drinking loads of water but finally managed. Have been given some new meds to help stomach and seem to be helping, no heartburn this time yeah!! Sleep pattern is out of the window and sleeping pills from doc having no effect at all.
Due my period any day now but like queenie I was advised that the chemo could bring on an early menopause (I'm 48) still no sign of that yet but with all the other se's I may have missed them! Would be happy to skip a period or two whilst all this is going on I have to say..!
Still not bonding with my wig and hair loss still ongoing and yet I can't bring myself to have what's left all cut off.. guess I'm just not brave enough.
Hope everyone is coping today, best wishes to you and thank you for your posts, can't tell you how much it helps sharing experiences & just knowing that I'm not alone... xx
hi lisha had fec3 7 days ago and am just starting my period.i`m 46 onc said they may continue all the way through,or might stop. hope you are ok and the s/a arn`t to bad.have you had any hot flushes?i have them the day before.hope this helps
Hi everyone hope no one is suffering too much.
I was just wondering have any of you stopped your periods yet and if so at what stage ?I have my forth chemo next thur and was just wondering x
I am day six post EC 4 and like many others cannot sleep through the night. I have also turned into some nasty grumpy person and my poor OH cannot do anything right at the moment. I had to buy him some beer and a "sorry" card today to make up for the way I had been yesterday. Washed my wig today and frightened youngest son as I had left it on it's stand in the bath to dry and he thought it was some animal that was waiting to pounce on him. I am wearing wig number two which is hurting my head as it is too tight! I've had a lazy day today, too tired this morning to do anything so just stayed in bed with the curtains closed listening to the rain outside until noon. Hopefully I will start to sleep again tonight as the steroids should have left my system. Energy levels are so low that just walking up the stairs leaves me wanting to lie down for half an hour. Gone are the days that I used to go for long walks in the park. Hopefully not gone forever! I am looking forward to when the chemo finishes and I can start to claw back something of my old life. I know I still face surgery and radiation but from what I have read, the chemo is the hardest part. Half way there - now starting to walk through the middle of the dark woods and towards the light at the end of the path.
Best wishes to all who walk alongside, in front or behind me. And for those reading this who are about to take their first steps, be brave, many have walked before you and the path is well lit and easy to follow. x
When I was having AC chemo I had severe constipation was prescribed Movicol by the Onc.It did the trick for me.
Now I'm on Paclitaxol I'm not getting that problem. Am having really bad pains in my feet and slightly less so in fingers.Currently taking Ibuprofen and Paracetamol which is making it a bit better, but feeling down in the dumps and sorry for myself today.
Does anyone know if these TAX se's wear off before the next chemo?
Are there better days in between? I'm having mine every 2 weeks.
It was really frustrating when we couldn't get access to the forums - hadn't realised I was becoming addicted!
hi queenie , know how u feel about poo (lol) , im going for fec 3 on thurs , my sleepin all to
pot i usually can sleep for hours and hours but now seem to wake between 4-5 am for the toilet and then cant get back to sleep , luckily sometimes i can have a few hours when my little boy goes to school but its a pain !!!
hope u get better and get some sleep xxxx
afternoon day 5 0f 3`rd fec.have very bad wind (pooooo)sorry to be so blunt.constipated am sure i`am not alone.was ok`ish for the first 2 now all of a sudden can`t go.am takin lactulose to soften you know what and will try senokot tonight. have`nt got a wig yet just wear bandannas.not sleeping how`s everyones else sleeping habbits?would be glad of some input
have a good day
I just wanted to share this for those who are struggling with the hair loss..
I went down to our local pub on Saturday night and it was too hot to keep my bandana on..so I took it off...then promptly got chatted up by a rather lovely looking man! now that was a confidence booster - shame my husband was there really lol!!!
Day 9 post FEC three and like everyone else had the same pattern of se's I normally get, sleepless nights and tiredness. The interesting thing is that on day two I got stung by a wasp, and being anaphalatic to wasps had been concerned when I spoke to the ONC about it before treatment started. Normally it is epipen and 999, instead I had a small reaction and I believe some of the additional tiredness is down to the sting. Will tell ONC next time and at end of chemo ask for another test for the anaphalaxis.
The fundraising event went really well last Saturday and we made over £1800 for cancer charities. Planning my next events for November and next spring. Some of that money will go to my local MacMillan Centre.
Today I spent some time with my friend who is being treated for liver cancer. We took a picnic to a local park by the sea and just had lots of fresh air and a good laugh, then an ice cream by the beach. It did us both the world of good..... Magic.
I got my NHS wig cut today so now have the option of two wigs to wear out :0)
Ultra sound on Thursday to see how much the little squatter has shrunk, hope so.
Have a good week-end everyone
Good morning i am new to this site.i posted a comment on here but can not see it is that right?
mornin, well fec 3 is next thurs and half way there , ive been remarkably great this last 2 weeks the normal constipation , cold but thats it no headaches this time . not lookin forward to thurs as i know 5 hrs after fec im violently sick and ill so thinkin will book the doctor for my sickness jag on the bum (ouch) in advance cause know will need him about 6pm ! never mind thank god only
lasts the one nite 😞
hope ur all well
im used to my wig now , thinkin need to wash it today as stayin in all weekend ,
love to all
Good morning to all, i am new to the site. I started my first fec on 28th July having number 3 on Thurs. First one was horrid got infection and loads of ulcers second on good but very tired and sickly. Had a few good days but back to horrid again probs over done it. Nice to have others to share our horrid and nice and happy times. I only had 1/4 of hair left at no 1 grade so i took razor to it yesterday and had a very comftable night sleep no sensativity anymore its lovely but very white!
Sorry the wigs from China weren't a success. I did buy a long pink curly one for fancy dress/pink day sometime maybe, but the others were
more serious and I'm quite happy with them.
I chose 1 brown shortish bob which OH ids not too keen on as I usually have blonde/highlights. Actually I quite like it when I just want to go out low profile shopping etc. Have to remember that guys don't give way to brown haired ladies in traffic quite so readily - it's true - shallow b****ards!
I still have my TRENDCO NHS wig for grown up outings and visiting my Mum!
Hi jenben - yes we seem to have the same mind path. The mountain, the journey through the wood, the path we walk. Whatever we call it. It's hard and some days it seems too hard. But like they said during the war - we have to keep calm and carry on. I am looking forward to 2012 and lots of reasons to celebrate.
Off to bed now to relax and do some positive visualisations xx
13hrs post EC3 and steroids doing their insomniac job nicely. Hi ST see you are on the same path of mind whirring and working overtime. Cried as the chemo nurse asked me how I was today, all felt a mountain too high this last week. Here's to better weeks and some laughs maybe x
Day four after EC number 4 and all is well. I have been keeping a diary since I started Chemo and I can see a pattern has formed. I now know that I won't get a proper nights sleep until day 6 which is 2 days after I stop taking steroids. I know I will get constipated and then have trots. Mouth ulcers and tiredness. Hot flushes and cold sweats. But then by day 14 I will start to feel normal and do lots of things that I like doing. Just a shame that after day 20 it all starts again.
But - I am getting through it. Got a selection of wigs now, one from the NHS and the rest from ebay. 4 wigs are from china and cost £9.99 each and to be honest I wouldn't wear them outside of the house unless it was to a fancy dress party. The fifth wig that I got off ebay was the exact same as the NHS wig - same make, model and colour. Normal price nearly £200 but I got this for £60 and I am very pleased! I have trimmed it myself so that it looks slightly longer than my original wig. Now I can go out and say to people "I need to get my hair trimmed next week, its getting in my eyes" - who am I kidding?? Anyway, the wig shopping was fun and my kids enjoyed the parade. (kids are 32, 25 and 21)
Morning my2boys, sorry you've been a bit down but yes does get the better of us at times... Glad you feeling a little better though and enjoyed bank holiday. Amazing what a smile from the kiddies can do and seeing you smile would have done you all good 🙂
Thankyou for thinking about me 🙂 must admit things are getting harder. I'm sick of hurting, pains from line, aches in stomach and head. Eyelashes very sparse and hair thinning badly. Still going to leave cold cap Monday though as the thought still makes me feel sick. Scared though of losing it all in couple of weeks 😞 but wigs should be here next week so will try and have some bonding sessions with them. Ooh I could whine all day but gotta try and keep strong eh....
Take care for now,
Hugs and love penny xxxx
Sorry I haven't been able to post for a while -- have been reading the posts but have felt a little under the weather and down in the mouth and not really in the right frame of mind so decided to hold my pity party for 1 for a couple of days and feel a lot better now.... although I made myself enjoy legoland with the boys on bank holiday monday -- seeing their faces really did put a smile on my face and start to lift me mood.
Penny - Even though I was unable to post have been virtual holding hands and giving gentle hugs.... Well done with getting your Hiccman line fitted -- I am hoping that my veins hold out - my SIL who is a chemo nurse keeps pointing out my good veins to me....
Angie - wig looks fab and love what you have called it -- I have been and had a little quality bonding moment with wiggy wig today and had it cut and styled so it looks a bit more like my hair used to - must admit the guy has done a really good job I just need to get used to it.....
Penny - hope the wigs that you ordered bring a great big smile to your face when they arrive....
Queenie -- hope FEC3 goes well and any side effects are small and doable...
Supertrouper --- hope your iron levels sort themselves out -- apart from your list below I am not sure what to suggest --- I had to wait for my drugs to come down from the pharmacy for over an hour on my last session, although it was a little annoying I just enjoyed the time reading the magazines I thought my dad was going to self-combust with frustration....
Sorry to anyone I missed and apologises for the essay....
Love and hugs to all
Totally agree with you supertrouper it has been an awful summer 😞 although did manage a couple of days on beach with kiddies 🙂
Maybe you could try liver for your anemia. My mum occasionally makes it for me ti boost my iron levels, although I'm not a great fan it's quite nice cooked in gravy and peas served with mash 🙂 xxx
Hello everyone, well it is official, this summer has been one of the coldest summers on record. Feels more like autumn to me.
I am back from StalagLuft Hut after having the last of my four EC sessions. Had to wait over an hour for the drugs to arrive but passed the time reading magazines and telling my OH off for flirting with the nurses. My newts were 2.92 but my hemoglobin levels were 10.9 which means I am anemic. Need to go shopping for foods that will boost my iron levels. Guiness is first on my list, followed by Beetroot, almonds dark leafy greens. Any other ideas?
Good luck queenie will be thinking of you,
i've just ordered a couple of wigs off e-bay the chinese site everyone has been going on about. They are soo cheap and hoping they are as nice as they look on photo's, really quite excited about getting them 🙂
Hugs Penny xx