Hi Louise and all other June buddies
Thank you for your messages - I have gone for the shave and got my wig, although I was saying to my 12 year old daughter tonight - most people only have to take their clothes of to go to bed I now have to take off one boob and hair as well. My ex husband came around this evening to see how I was as had second chemo today as well and first word was WOW - that is the exact look you have been trying to get for your own hair for years - and he was right plus the roots won't need redoing.
For those suffering with sickness I have found salt and vinegar crisps and ginger ale is helping me out on that one.
Good luck Louise for tomorrow and to all us strong ladies going through this journey - together. x
Ive just had my 2nd chemo today and feel pretty good. When I was diagnosed at the beginning of February I had long thick blonde hair and was definitely one of my better features, I had it cut short after diagnosis. After my first chemo there didn't seem to be any hair loss then the weekend just gone it was coming out in handfuls, on the brush, in the shower and it was so dry and brittle, it was dull and made me feel really yuck and I will be honest I cried this week over my hair loss (didnt for losing a boob though). Always hoping that I might be one of the lucky ones with minimal hair loss.
Before my chemo today I had my second wig fitting, I chose 4 to try on and I went on my own. The lady was brilliant and I tried on one and it looked fantastic. However more hair fell out into the hair net, I looked in the mirror and could see the bald patches and there were some at the back, so I made the decision there and then to have it shaved - a number 3 apparently! Have had the wig on since and feel great, I feel more like me before diagnosis, I even got chatted up in the waiting room. A friend came round this evening that I havn't seen for a while and he said I really like what you have done to your hair - he couldn't believe it was a wig. I haven't been brave enough to look in the mirror without the wig on - but I know I feel and look so much better with it on and I know I won't get any more days where I am going to be having more hair coming out.
So to all out there it is doable and also all the best celebrities wear wigs.
Best wishes to you all x
I had my second round of AC last Friday, with similar SEs to first round for first few days, sick/nauseous, no appetite, bad taste in mouth, constipated, very tired and spent a lot of time in bed. Feeling a bit better today and think the worst is over. Spoke to the nurse and she said they would try to adjust my anti-sickness medication again next time but overall she thought I was doing well. Next time I'm planning to eat just fruit and veg soup for two days before chemo and not eat afterwards in hope that will help with the sickness. I heard from a friend that refresher sweets helped with morning sickness and gave them a go as well as the travel sickness wrist bands. Also tried hot lemon, ginger and honey, one of the few things I could stomach drinking - never knew water could taste so awful!
Not ready to cut all hair off yet, have a small bald patch appearing but still enough hair that it's not obvious. Have been told to expect to lose all of it including eyebrows and eyelashes when I move onto Taxol, so getting ready to embrace baldness and will have wigs/hats at the ready. Still going with the cold cap for now.
Sandie73, I was told skin sensitivity could be a problem and to avoid perfumed products. Hopefully your BC nurse can give you something to clear it up quickly and it does not flair up again.
Hope everyone else's second round goes ok.
I just started my first chemo session last Thursday and not suffered too bad with the side effects so far. However my face, chest and back have erupted in a spotty rash 😞 my temperature is normal but to be on the safe side I phoned the emergency helpline at the hospital. As I am not unwell, the nurse advised me to take pirition and managed to get me in to see a doctor this evening.
Hope they can give me something to get rid of this. I am going to be a bridesmaid in a month's time. Its bad enough I will probably be bald by then but to be spotty too 😞
Has anyone else suffered skin problems on the EC chemo regime and what medications worked for you?
I am so sorry to hear about the hospital and the temperature.....They gave me lorazapam to sleep - go figure, I understood it was for anxiety, but I am not particularly anxious. It actually has helped me sleep. I hope you feel better soon!
I had my 1st chemo - TC - last Wednesday and I didn't crash until Friday - then I could hardly get out of bed - I ached all over, even my ears. I didn't vomit, just felt like I had the flu. I feel slowly better - this is day 5 of feeling bad and while I am certainly a lot better than day 1, I don't feel really good yet. I am so tired and I have a low grade headache that will not go away and the body aches are still with me. Does anyone have a good drug for the pain and headaches? The problem is that I am allergic to codine. I still have my hair, but I know it won't be with me much longer - maybe another week and I just haven't had the energy to go look for a wig. I have 3 more chemo treatments to go.....I do not know how any of you could do this and manage a regular job or small children - you have my sympathy.
How are you doing after your first treatment? I had my first chemo on 12th June too and have been surprised how well I have felt and coped. My hair is just starting to shed a little today but that was expected. I am having 3 FEC and 3 of something else (side effect - can't think straight!) Anyway hope you have been ok too.
Hi Tinker47, I know what you mean about trying to make a joke out of the hair loss with family and friends and yet again we seem to need to put a brave face on it and laugh along with them. Sometimes I get a little fed up with all the brave faces I have to find. But I want another 30 years at least so a short period of no hair if it means no recurrence then bring it on. I do now take a very active interest in scarves and bandanas and am trying to find ones that match my normal fun self.
Good luck for next Wednesday.
Take care xxx
Hi everyone thought I would join the June thread as had my first chemo on 4th June this year following a mascetomy then lymph clearance. Side effects fortunately so far have been minimal, a little sickness on the afternoon after chemo and lethargy. I have my second chemo next Wednesday. I thought I might be lucky and not lose any hair as thought it would start to go within the first 2 weeks, then it starts coming out yesterday. I have my 2nd wig fitting the morning of my second chemo but was so hoping I had escaped that effect, have tried to be strong and make a joke out of it with the family but to be honest - not to happy, I am happy to explain to strangers about my pic line when asked - but the hair loss! Im just wondering if more will come out after the 2nd chemo to a point where I will need to shave and does anyone know when it starts to grow back - ive booked to have 6 x FEC, followed by radiotherapy and hormone treatment.
Well not too bad so far (hope not spoken too soon). Yesterday was left feeling very tired and quite grotty, so slept a lot. The unit have given me 2 types of anti-sickness and steroids to take over next few days and injections start Tuesday. Been up since 5 ish this morning and feeling ok so far.
Hope others are doing ok too and if not I hope it improves for you soon.
Its going to be a strange sort of life until October.
Take care all xxx
I have found wearing the wigs okay up to now but when I noticed the bald patches I shaved all my hair completely off. This has meant that my scalp has stayed pretty cool underneath and when I get home from work, I just wip it off and leave my head uncovered. My children haven't really batted an eyelid and I like feeling the fresh air on my head. Also, when I've been feeling a bit rough, standing in the shower and letting the water run over my scalp feels really refreshing.
I had my portacath fitted yesterday under general anaesthetic ready for my next FEC chemo on Wednesday. All went well (touch wood) and apart from a little discomfort and a strange pulling sensation in my neck, all is fine today (touch wood again) My veins are so bad, they had to use a cannular that they use on babies to put me to sleep!
I hope that everyone who had their treatment this week is doing okay and that everyone who is due to have round 2 is ready and feeling okay.
Sorry for not replying to ladies individually, I really must start remembering names, think chemo brain may have struck already!
Big hugs to everyone 🙂
Hi all, I'm starting FEC-T tomorrow morning, 3 x FEC then 3 x T. Feeling a bit nervous but I know it needs to be done.
I have very poor veins so went for a PICC line today, it took over an hour and a half and 3 attempts!! But the cns was very persistent and thankfully got it in the 3rd time (3rd time lucky really does work!).
I am 51 and was diagnosed late Feb with DCIS and IDC. Already had wle, snb & anc in late Mar. Positive nodes and no clear margin so then had mx late May. 2nd op also found LCIS & a small tubular tumor. In the words of my surgeon I had a 'busy breast'. Hopefully the other one is on strike and wont do anything silly.
I read the monthly threads quite frequently but now its time to join in.
Take care xxx
Hi, just popped over from the May 2014 thread and noticed you all mentioning about hairloss, wigs scarves etc and wondered if you had heard of Heathers Hair? (sorry don't seem to be able to attach link) I have a fringe on a headband and wear a bandana or scarf with it. I have a wig which looks good but is too hot! Anyway I hope this may be of some use to you and all the best for journeys.
So glad to see you on the Forum Cowgirl! I'm just popping in from the February (2013) Valentines, when we were going through what you are going through now, losing our hair was one of the biggest issues. Somehow those little hairs have a lot of who we are wrapped up in them! I know its hard to believe at this moment, but it will come back -- I went to the hairdresser today because the new curly hair I have now was getting too long! Good luck with what you're all going through and I hope the path is as easy as possible.
I havent seen a breast care nurse for over a month been waiting for counselling since dx end of april i know everybody going through it aswell but im so low ive hit rock bottom got the hair issue next tried wigs on broke down and i hated them its all to much!
Well had my first chemo 11 june after been totally petrified then by friday ended up rushed hospital with bad infection pain was unreal had blood in urine was sick and bad the other end aswell. Ive just been disshcarged but this has made my fear even worse im so scared even more for next lot i really dont know how im going to do it feeling bit better just very panicky temp bit low so i panic even more everyone else seems so much stronger and coping far better than i am i hate this disease !
I had my first FEC chemo Monday and have been suffering with heartburn since Tuesday, it got worse yesterday, I am reading through all my leaflets and cannot find it on a side effect list, anybody else had it after their chemo
Hi - I am new....just had my first chemo treatment today - TC - Taxotere and Cytoxan. I am scheduled to have 4 treatments, each 21 days apart. So, one down - three more to go. I feel fine so far, but they warned me that it will take a couple of days to start feeling worse. I dread losing my hair and tried on a few wigs while I was at the clinic. They were so awful - the one with my color hair looked like I was wearing a small, curly animal on my head. I will keep looking.
Thanks Athens feeling lots better. Hope everyone else who had any side effects are too!
I decided to wash my hair last night and treated it like a delicate child even used my macadamia oil conditioner lol mind when I think of it now bit of a waste of time keeping it in good condition as its all falling out!! Never left any on my pillow last night but have left a trail wherever I have been today lol, my daughter told me I am a health hazard and to stay out the kitchen lol. I only need telling that once. My other daughter thinks its time to shave it but I am still hanging in there, luckily my hair is thick so you would not know I have lost any. Got my two wigs out today though and put them on the polystyrene heads so all ready lol.
Athens as regards the wigs obviously I havent worn it yet but the real hair one I was told to wash as you would real hair. My synthetic one I was told that it should not be washed too often as it ruins them and that if you shake them and they stay pretty solid this is a sign they need a wash. My wig supplier said its roughly once a month. The supplier has 5 short videos on their online site to show you how to do various things with them. Have a look its www.studionine.co.uk and then click on the wigs and it will take you to the videos they are quite helpful.
Rach I just realised your a day ahead of me so if you have lots of bald patches then it wont be long for me! Mummy2dolly good luck for tomorrow I know what you mean about now knowing what to expect!
Good luck to everyone with their next chemo and hope we all get our medication adjusted so this one will be easier than the last!! xx