Hi Jeremiah29
Popped into this thread and it all fell into place. Presuming that t = taxotere and c = cyclophosphamide. I now know why i am feeling so bad for so long. I had herceptin with my first tc. I think this combination is lethal. I am pleased that I will not be having more herceptin till after the other 3 chemo cycles are completed.
Thanks for sharing as it makes so much more sense now.
Hope you feel like your self soon.
I too started chemo in June TC 1st lot wasnt too bad sort of what I expected then had 2nd dose 6 days ago plus herceptin injection. That 2nd dose was sooo much harder to bear am only just beginning to feel human, couldnt quite believe I could feel that ill and still be alive. Still hopefully the worst is over, well until the 31st July when I have my next dose. Am dreading it already . I have 4 grandkids the youngest being 3 and I was worried how she would cope with a bald nanny but bless her she has taken it all in her stride and keeps stroking my head like a dog!!!!
Hi Evyone
Hope all is going well for you all!!!!
I was thrilled yesterday when I managed to get an appointment for today to get my gene testing done as they were only offering me August or September before and both dates were chemo dates!! I explained I needed the results back (they take 8 weeks) before I have radiotherapy as if I carry the gene I will need a mastectomy and not radiotherapy. They gave me a cancellation for today at St Barts in London.
Imagine my horror when I woke up this morning looking like I had been in a boxing ring. My eyelids were swollen and my face really red and spotty with what looked like water blisters about an inch in size under my left eye! No way was I missing my appointment so today not only have I had to travel into London (1 hour - 2 trains each way) with my wig but also with a grotesque face!! If I can go out looking like that then I think from now on nothing will bother me lol. Glad to say face starting to improve and am assuming its water retention from chemo. Still at least it now matches the ever expanding body!!!!
Thursday I have my 3rd chemo but this time I have emend for sickness plus two others they give me, lactulose for constipation and omeprazole for the heartburn beginnig to feel I dont need food as will be filled up on tablets alone. Still if they work and I dont feel as rough this time then well worth it.
Good luck all! xxx
Hi Angel77,
One thing they told us to take here is a 24 hour antihistamine allergy drug - loratadine 10mg - (I take a generic version) starting the day before the chemo. Then I take it every day for 6 or 7 days. I don't know if that has anything to do with not getting a sinus infection, but I haven't had one. I am doing TC for 4 cycles.
Good luck.
Hey Cowgirl,
Glad you coming out of the fog now. I agree with you the lethargy is a pain as dont seem up to doing much and the weight is piling on!
I agree the best advise about meds from this forum has been to take all meds given whether you feel you need to or not and this has worked well for me for 1st two FECs.
I am on day 5 after 2nd FEC and feeling not too bad so going for a walk to try and save a pound or two on the tummy.
Take care xxx
hi all. just a quick question .ive had 2 lots of chemo TC-H so far and due 3rd next week .after both sessions ive ended up wit sinus infection .has anyone else suffered with infections after chemo ? x
Hi All
Just popped into this thread to thank you all for sharing while I was waiting for the July Neebies, I found your advise more useful than in the hospital. I also prepared me well for my journey.
Your advice and experiences continue be the best source of information for me.
A BIG THANK YOU.
x x
Hi Everyone,
I am on day 6 after my second chemo and finally feeling decent enough to sit at the laptop. I have felt so crappy this time - worse than cycle one. Yesterday I slept all day (and most of the day before and the day before that) then got up about dinnertime for a while to feel really nauseous. The lethargy is just overwhelming - along with fog, barfyness and bone pain. Ugh. Fortunately, I had really good blood counts, so they could do my chemo on schedule last week and I didn't have to wait. The day after each of my chemo treatments (TC), I go back in for an injection of Neulastin which builds up my white blood cells and also makes my bones ache. I am less embarassed about my poor bald (well, not quite - it is stubble about 1/8th inch long) head - I wear the wig for sort of public events when I don't want to be noticed, otherwise I wear a ball cap, but at home, I am just the baldy. Ok, here is the only thing I have figured out to make it feel better - Take all the pain meds they give you (I take Aleve and Tramadol) and take the sleeping meds (I love Atavin).....don't try to tough it out. I wanted to tell you all that I am sorry for all the trouble you (Athens, Roxie, mommy2dolly and Pixie) have been going through and hope you all have a better day.
It makes me feel better to hear what you are going through - misery loves company?.
Hi Athens
So sorry to hear you have been put off for another week but its best they get you right first. My oncologist only gives the injections when they feel you need them so I havent had any. My friend who is under the same hospital but has a different oncologist got 5 days of them as standard after each chemo and her husband had to do them. So it must be a oncologists choice, maybe they decide from your bloods results before any chemo is givena nd if your bloods are good dont give until needed and if they are fairly low before do it as standard.
Glad eveyone is getting on with their hair loss as feeling good really helps overall.
Good luck and hugs to everyone xx
Hi Athens
So sorry to hear you have been put off for another week but its best they get you right first. My oncologist only gives the injections when they feel you need them so I havent had any. My friend who is under the same hospital but has a different oncologist got 5 days of them as standard after each chemo and her husband had to do them. So it must be a oncologists choice, maybe they decide from your bloods results before any chemo is givena nd if your bloods are good dont give until needed and if they are fairly low before do it as standard.
Glad eveyone is getting on with their hair loss as feeling good really helps overall.
Good luck and hugs to everyone xx
Hi all
When I got my pre chemo appointment through I noticed they had put me down with the wrong consultant on the wrong day so when I had my chemo I said and they changed it whilst I was there. When I got there for it today I was told sorry your not booked in you cancelled it for Tuesday. I explained no I changed it to the correct consultant as you had made a mistake. The receptionist then told me sorry its not booked in. I said well I have chemo Thursday to which she replied you will have to cancel it and I will book you in for a pre chemo check on the 27th and you can have chemo a week after. I then burst into tears and my daughter who was with me also then creid as I was. The receptionist looked at me and said I will get my suprvisor can you take a seat. The supervisor came to see me to say I have spoken to the chemo nurses and it has been arranged for the consultant to see you as an extra as though she was doing me a favour!
This whole chemo thing makes me emotional anyway and to tell me I would have to wait 3 weeks for my next chemo just done me. Two hours later when I got to see the oncologist she was really apologetic that it had happened and I had had to wait and said the recpetion staff had no thought for patients and how it affects us all or the staff as now due to their errors she was seeing 14 ladies instead of 7. She said you done the right thing insisting. I said I never I just got upset when they told me I had to cancel my chemo. She then replied they said what!!!! We dont cancel chemo unless your unwell and not or 3 weeks and they have no right saying so. She then told me if it ever happens again to go straight round to the clinic or the chemo ward and explain and they will sort it for me.
I know things go wrong but I left there with a severe headache due to getting so stressed and this was one of my good days!!!! As if this isnt all stressful enough for us all. Sorry to moan but its only all you on here who will understand how suggeting putting of a chemo treatment is so upsetting. Everyone else just says well at least you would have had another couple of weeks feeling good. Actually no I want it all over and finished as soon as possible!!!
Hugs to you all and I hope everyone is now feeling better. Good luck to all of you who are due your next chemo. xxxx
Thanks Polar_1, glad your wig looks so good, hope mine does too.
Unfortunately hubby is more of a wimp than I am and flatly refuses to do them and I don't blame him for not wanting to.
My injections are for 5 days starting on day 5.
xxx
Hi all,
Sorry to hear some of you having tough time, Athens and Julie286, hope you improve soon.
Also sorry not been on for a while, will try to do better over coming weeks, just not used to being on forums at all.
Runner29 you are so brave going out with nothing on head...wow! not sure I could do that, though at the moment still have hair, but it has started coming out and I am leaving hair trails wherever I go. My daughter keeps asking when I will get it shaved. I do now have wig on order though so am getting prepared.
I collected my breast prosthesis on Monday, I've christened it Betty (boob), but can't wear it for too long as still quite tender and still some fluid there. It does look loads better than silly softie that you get after the op. Yes I have to have names for all the bits...I have Peppa Picc, Betty boob and soon Wilma wig.
I have 2nd fec tomorrow so don't suppose will get much sleep tonight, but that might be more for the fact its also my birthday and will be excited, lol.
Does anyone do their own injections? I seem to be under pressure to do them myself but really not sure about it.
Take care all xxxx
Hi Angel, I saw a tip to use a straw for drinking and also adding squash to water seemed to help. I had a good last week but tired this week and have round 3 on Friday. Gritting my teeth...
Julie, sorry to hear you are having a tough time and hope you have a better second week.
Good luck tomorrow Mummy2Dolly.
Hope everyone else is feeling better.
Px
hi all . i had my second chemo TC-H on 2 july and have lost most of my hair so today im going to shave it all off . the main thing i struggle with is the gcsf injections and loose of taste .. anybody got any tips to quench my thirst ? x hope your all doing ok . i have 2 chemos left to go
Hi everyone
I never knew they may change chemo drugs once started but it seems its happened to a few this month. Hope everyone is now on the mend and out of hospital.
Had two regimes now of FEC and at the end of the second week of 3 and now feeling ok again. Must admit after this one now dreading the rest as I know it will be about 10 days of feeling really rubbish.
I had one of my wigs cut by a local salon free of charge as part of the "my new hair" and I love it, she cut it to a photo of me just before chemo and now I look like me again!! She also showed me how I can put it up so its cooler on hot days without showing its a wig, she gave me some really fab advice.
Now I intend getting out as much as possible before next week and my third FEC!!!
Good luck and hugs to all xxx
hi
yeah i have a wig and two bandanas i must admit i thought the cold cap had worked but alas the girls on this site were right, my hair started coming out on the 16th and they all said around day 18, but never mind just wanna get on and start my new regime had one lot of FEC , the oncologist not happy with result so switching me to DC on monday
well my bloods were low so no chemo yesterday got my appointment for the 14th. Now have to leave my holiday a day early to have my bloods done before Monday, and hope they are ok and to top it all off even using the cold cap my hair is coming ok arggggggggg
Hi mummy2dolly,
How weird to have them change your treatment in the middle of it all....Tomorrow I have my TC - cycle 2 - and I, too, am dreading it....
Athens, I hope you are out of the hospital now and that the blood count is better - mouth sores, too. I haven't had those yet - it sounds miserable.
I wore my wig for the first time yesterday - it was hot, uncomfortable and it felt like it was riding up to the top of my poor bald head and that a strong wind might carry it away. I guess I will get used it it.
Hope all of you will feel good - or at least better - today!
Hi Everyone
Hope you are all starting to feel so much better!!
Athens sorry to hear your in hospital thats one place I know none of us want to be. Going through chemo is hard enough in the comfort of our own homes let alone not being able to sleep in hospital!! How did you find out you were neuropenic if you felt ok? I never take my temperature or anything unless I actually feel I need to.
Jane so glad your anger has now subsided and if your looking for fruit for your scarves your mood must have really lifted so thats good.
Good luck evryone xx
Hi Jane,
No apologies to us.....we are your bald friends, remember. We are feeling/thinking/saying the same things. I am very impressed, however, that you can do an 8.5 mile walk - good for you! I can't drag my sorry bones more than about a mile, maybe two.
Hi Jane
This is definitely the place to have a rant so rant away!!! My friend finished her chemo in February and is always asking me have you had your angry day yet and then says you wait til you do. Apparently during her chemo she had her angry day and she said others having chemo with her also did!
On her angry day she said she was having her bad day and then just went to her bedroom and it all hit her the why me, the anger, all she should have felt being diagnosed and going through treatment feelings. She said I was throwing stuff and smashing things and she said she never behaves like that. She said in her bedroom now she has a broken radiator cover that she done that day and she can't bring herself to ask her hubby to fix it as she said she was so horrible to him too and it acts as a reminder lol.
So laugh it off and put it behind you, this cancer affects us in so many ways and has to come out at some point emotionally. Hopefully you will now feel better and more settled. xxxx
Just big hugs for you.....you rant away and no need for apologies.
We have all been there him. That is what this site is here for. Xx