So sorry not been on here for a long while but getting back to work full time plus having lots of hospital appointments has been so time consuming!! Last week I was actually told that all my scans and tests showed no signs of cancer!!! It was a year for me in March and with triple negative the first two years are the crucial years for it to return so already a good way through that, I am beyond happy!!
This week saw my daughter celebrating her 21st and me my 50th I have been spoilt, spoilt and spoilt. A surprise party, surprise Spa, numerous lunches and meals out....wow what a week. I went to Gran Canaria overe Easter so have a lovely tan again. Off to Mexico in July so can't complain. I think so far this year I have made up for last year!!
Julie you will be away soon I hope you have a fabulous time!! New York wow definitely making the most of it!! Pixie sounds like your making the most of it too!! Good luck with the mammogram I know we all hold our breath until those results are back and expect we always will.
Hope evereyone else is going on ok. Would love to know how you are all doing but I expect you are all getting on with your lives again now so maybe dont get on here. This page was a God send when we were all going through it!!
Love and hugs to you all. xxx
P.s My hair has grown beautiful and believe it or not I have had it cut to get the curls out and have a lovely bob which actually really suits me and makes me look so much younger!! Who would have thought I would choose short hair over long!!
Sorry for delayed reply. I have been stuggling a bit with going back to work nearly full time and feeling very tired. It was great to spend a week in the mountains in Austria, lots of clear air, delicioius healthy food, time with friends and almost managed to forget about the 6 week slog through radiotherapy!! Seems like an age ago now as has been all work since I got back. But I've just been away for another weekend in Sussex near the Seven Sisters which was also wonderful as the weather was so good and feeling so much better as a result. You must be looking forward to your June holiday, not long to go now 🙂
Hope everyone else is doing well if you are still on the forums? Roxie, hope your scans were ok? I'm coming up for a year since diagnosis this week and seeing my oncologist on Thursday, then have mamogram in May.
Love to all,
Pixie and Roxie - so good to hear that you are doing well!!
Roxie have you had your bone scan yet? How are you feeling?
Pixie, glad the rads weren't too traumatic. How was Austria? Are you back at work now?
I don't look at this site very much any more - purely because I don't have time! But it would be good to hear how everyone else is getting on?
It was a year since my diagnosis at the end of February so we had a group of friends round and celebrated Chinese New Year - it seemed quite appropriate!
Off to New York with my husband and two teenage daughters in June.....I am beyond excited!!!!
Lots of love to everyone - hope things are good
Just wondering how you are all doing?
I finished radiotherapy last friday, 6 weeks went very quickly and I didn't have too many skin problems in the end, but feeling very worn out now and not really in the mood to celebrate. I am enjoying not having to do the daily commute to hospital though.
Am off work now for a couple of weeks and going to Austria next week which will be great as have not been away for over a year and finding it very difficult to switch off and relax properly at home!
Happy New Year, belatedly...
Sorry for being quiet for a while. I had a load of technology things go wrong over Christmas including my broadband not working for two weeks. Then forgot my password for this forum and it took ages to have it reset.
Glad to hear you are all ok. I was worn out by Christmas and not in festive spirits at all - spent a lot of those days napping!! Feeling much better now and hoping 2015 is going to be a better year for all of us. I started radiotherapy last week and on Friday I'll be able to say I'm a third of the way through, and will have only one month of treatment left to go, except for tamoxifen. Radiotherapy has gone ok so far, am slathering on the aloe gel.
Julie, I had my locks upgraded after the burglary and am slowly dealing with all the different people I need to speak to for the insurance claim, will get there eventually.
Cas, sorry to hear you had some down days and know how you feel. Think we'll all have to deal with a few ups and downs after everything we've been through and need to be kind to ourselves and not expect too much too soon and remember this group of lovely ladies is here for support if we need it.
Happy New Year to everyone!
Hi Roxie,I'm also having problems with pain in my shoulder blade. I've had blood tests and an Xray, both were okay but I've still got the pain 😞
Good luck with your bone scan.
I hope you are all doing ok. I am currently waiting on a bone scan as a precaution so hopefully that will be very soon. Have started a phased return to work and the first two mornings were good but tiring lol and that was just chatting. My hair is doing well I can even use gel and spike it but not a lok I want lol. Just need a bit more length on the top and no one would ever know its not just cut into a short style!
I was totally spoilt christmas and it was lovely I do hope you all were too and had a fab time! We are coming up to a new year and can hopefully put this rubbish year behind us. For those of you still having treatment then hopefully that will end soon and the new year can be a fresh start for you too.
We all deserve a fantastic 2015 after the year we have all had so at the strike of 12 tomorrow night I will be thinking of you all and raising a glass to a healthy New Year for us all!!!!
So sorry to hear your news....as if you dont have enough rubbish going on in your life without those b***s doing that. Seems odd that you were targeted and no one else does make you wonder if they have seen your activities over the past few months and taken advantage of it.....just proves how low some people can sink.
Hope your ok now and that your chemo has now come to and end so you can get on and enjoy christmas!
Hope everyone else is doing ok and just incase I dont come on here before christmas I wish you all a very happy christmas. We have all got this far and we deserve a fantastic christmas!!!
Wishing you all the best!
After reading your post I wondered if you have seen any of BCC's publications about BC within families? I have put for you below links that I hope you find helpful. Also if you need to talk to someone in confidence then our helpline team are just a free phone call away. 0808 800 6000 lines open weekdays 9-5 and Saturdays 10-2.
I was so sorry to hear your news about the gene testing results.....and then the double whammy with the additional chemo and falling down the stairs. It is just so unfair - you are way too young to have to go through all this.....it is crappy for all of us, but particularly for you.....but, you are strong and you were in such good shape (as a runner) when all this started - that's got to be positive and will hopefully help you get through this miserable time. I wish I could do something to help. I am sending lots of hugs and good wishes/prayers. Let us know what they tell you about the additional chemo - we are here for you.
Cas, I am glad that you are feeling a bit better,
Love to everyone,
(I am not going to tell you how nice it is here at the beach, but we all deserve a break like this...)
Cas so glad things are now going well for you and normality is now returning.....good luck with it all xxx
Claire I cant begin to know how your feeling you seem to be having one blow after another just wish there was something I could do to help. Why do you need more chemo? I will be thinking of you and if you need to chat to someone removed from it all then private message me and I will be more than happy to be your ear to let off steam etc. I am here if you need me xxx
Cas I do hope your feeling better after your mx and that all is going to plan, have been thinking of you!
Pixie good luck with your last chemo and I hope you find rads a lot easier as I did!
Merrill so pleased to hear how well your getting on and I hope you have a fantastic time at the beach in California I am so jealous. Enjoy you deserve it!
Julie I hope you are still feeling good and that work hasn't proved to much of an ordeal!
Ria how are things going, have been thinking of you lots and hope things have improved!
Claire so sorry to hear your news and how rubbish you feel. Take advantage of the councelling offered by the genetics clinic and take your boyfriend along they really do explain all the options available, including if you wait before having the ovaries removed what type of checks etc you will get. I realy feel for you as you are now having to make such big decisions at such a young age, this illness really is so unfair. Big hugs and remember we are all hear if you just need to vent. I have a friend who also came back positive to BRCA2 and she found it hard enough and she has her family so it must be very hard for you. Dont make any decisions until you are happy to do so! xxxxx
Cas, how are you feeling now after your surgery? I am so glad to hear that so many of you seem to be improving and are even starting to get back to "normal". I had my follow-up mammogram last week (it has been about 6 months since all this started) and that was nerve-wracking, but fortunately they gave me the results within minutes and the radiologist said that everything appeared to be fine - whew!!! They only did the left breast - which was the side where I had the cancer, lumpectomy and radiation. I will wait another 6 months for my normal mammogram. I am having really sore and stiff knees from the Anastrozole pills - I limp when I walk and the pain can keep me awake at night - my oncologist said that this is a typical side effect, but if I don't improve in a couple of months, he will switch the medication and see if it works better. I am starting to "go commando" without a hat or wig - my hair is still really short, maybe 3/4 of an inch long, but it lays flat on my head so, unfortunately, I still look mostly bald. On the bright side, tomorrow, we drive to California - to the beach - yippee!!!
Love to all of you and here's hoping we all continue to improve,