Starting chemo on Thursday 19th June. 3 sessions of EC90 and 3 sessions of Tax over a period of 18 weeks. Find the whole idea of chemo daunting. Can't decide whether to give the cold cap a go. In my chemo folder, there is a leaflet about the paxman cooler. Has anyone tried it and what is it like? x
many thanks for all the info in your post - I have my first blast of FEC tomorrow and the info from you and others really does help.
I was interested to read about the "cold gel strips" you used - where do you get those? Seems like a useful bit of kit!
One of my February Valentine 2013 group had TCH. She had very few side effects, no sickness, but I think she did get some diarrhea. Although afterwards she did get peripheral neuropathy, which is quite common with Taxotere. She had TC x 6, and Herceptin for 18 months, beginning the same time as chemo. You will find some of her posts in the February Valentine thread, look for Lola. All the best. xx
Just to say good luch for tomorrow. Are you having the cold cap? My (lovely) breast care nurse said I might as well give it a go - but I'm not holding out much hope of retaining my hair! I've had quite a while to get my head round things as I found my lump in January - I know that would be worse for some people having that long to think about things, but it's worked ok for me. My stomach does a flip every time I think about it but by tomorrow night we'll be 16% of the way through!! Good luck xxxx
hi all .. my chemo is TCH there isnt a lot of people having this combination as its farely new just was wondering if anyone on here knows people thats been on it if so how did they manage and what was side affects plz . mine is tomorrow TCH x4 and continue herceptin for a year x
Hi mummy2dolly, yes i'm having 12x weekly Taxol after AC, with a break every 4th week.
All the best to everyone starting this week.
had my appointment for bone scan today its tuesday 10 things are really going quick. Not having surgery till after chemo, my head is just swimming at the moment
So glad you are all starting to feel better. I had my first dose on Thusday and reported felt fine. 4 hours after I started feeling sick so took some more antisickness meds. 5 1/2 hours later the sickness started but once my stomach was completely empty it stopped and just the feeling of nausea continued. The first night my head felt like it had been hit by a bus on the left side. Migraine type pain at he back side and front of my head and my eye jaw and teeth hurt on that side. So no sleep that night plus the feeling of nausea. One of those cold gel strips to the forehead seemed to have calmed it by 8.30 the forllowing morning. Apart from that its only this nausea feeling which is bearable but will try to get some stronger meds to try and avoid next time.
My stomach now feels bloated so decided to try a run this morning as thought why still on the steroids I would have the energy! I managed about 10x 40 second runs what a cop out! My chest was tight and I had no energy but carried on walking inbetween so hopefully may do me some good mind hasn't helped the nausea lol. I am missing my running like mad.
I applaud those of you still managing your running and am as jealous as hell!!! Looks like my run will be to the chemist for sennocot rather than round the nature reserve!!
Not sure what side effects come next as my first session but still feeling rather blessed not to be suffering as some are. I am dreading the actual part of losing my hair which I know will come soon and not sure how I will handle a bald head or others seeing it especially hubby. But I have two wigs one human hair one synthetic both a total match to my normal hair so will shave my head as soon as I start losing it and get my wig on. My eyebrows have been tatooed so I can stay with a parting and no fringe so hopefully will look the same. I think once my hair has gone I will settle down and handle it better and might quite enjoy the synthetic one that I only have to shake to be able to have a good hair day!
Wishing you all the best with minimal if no side effects and look forward to hearing how you are all going!!
Glad to hear most people are feeling better again. I had a few rough days after my first chemo last Thursday but went back to work yesterday, great to get some normality back. Sleeping a lot better too.
Runner29 my BC nurse said to expect a low point for a few days each cycle, hope you are feeling much better today.
mummy2dolly I'm having four cycles of AC every three weeks as well. My surgeon told me to eat healthy mediterranean style diet but did not mention supplements. I am going to check with my oncologist which supplements are safe to take.
Ria2056 everything happens so quickly at the beginning it does feel like a rollercoaster but everyone I have spoken to has said the beginning is the worst stage of the process and that it does get better. Thinkng of you.
The thought of the chemo session was definitely worse than it actually was, however, I will still be glad to get the port put in before the next session as my veins are a bit of a nightmare. I sucked ice throughout and have been brushing my teeth and using mouthwash and up to now, haven't had any mouth problems.
I've felt a little bit sick but certainly nothing to write home about and have been a stickler for taking the antisickness on time and drinking approx 4 litres of water every day. I've been eating fibre with every meal so no digestive problems either at the moment. I've manged to work every day since and although I'm finding it pretty tiring, I'm sleeping well. I'm a little bit anxious about how well I'll feel when the steroids stop tomorrow but also feel blessed to have not suffered hardly anything up to now.
I hope that those of you who have been unwell are starting to feel better, I'm thinking about you.
Lots of love
Hi all, i had rather a rough time to be honest! The hospital day centre tried alsorts but nothing seemed to work on me so was transferred to St James's in Leeds where i was kept in overnight although i think the cocktail i had been given during the day had started to kick in! I am now feeling much better, get tired quickly but eating ok and sleeping pretty well. I am hoping for Emend at my next chemo to try and avoid this happening again! Hope everyone else is doing ok and tries to enjoy the time till the next session as much as possible. Love and hugs, Sam xx
Had my first appointment with oncologist yesterday, she said I was triple neagative not sure if that is good or bad.I have an appointment Thursday and the on the 16th start my chemo which is FEC-T. Must admit very anxious about all of this the last two and half weeks have been a rollercoater
Just back from my first chemo this morning and have to say for all those starting theirs the thought was far worse than the actual chemo. Apart from a cold arm I felt fine throughout and was only at the hospital for 2 1/2 hours (FEC and no cold cap). It is now 3 hours after treatment and apart from feeling a little lightheaded I feel ok. Not sure if it just hasn't kicked in yet but fingers crossed I will not get too many side effects. I am drinking like a fish as told this helps, we can but try!
Good luck to you all.
Just popped on to say hi to the June group. I had my first chemo session last Thursday. The chemo itself went ok but I had bad few days afterwards with nausea and the meds making me feel very dizzy and thinking how am I going to get through 6 months of this! Phoned my BC nurse and she said they would change my anti-sickness meds next time and will ask for Emend which seems to do the trick for most people. My sleep also seems to have been affected, was wide awake from 3-7am last night and going to ask about natural remedies as prefer not to have to resort to sleeping pills. I've cut my hair from long to very short and had loads of compliments on my new look 🙂 have also opted for the cold cap, will let you know how it goes.
I had no choice about chemo as had Grade 3 IDC with 6 positive nodes. Had WLE and full node clearance. I had to have CT and bone scans which my surgeon told me was standard protocol with lymph node involvement and not anything to worry about. Very scary few days but thankfully all my scans were clear. My lump was also strongly ER positive and I was told I would need 10 years of hormone therapy. I'm single and live on my own but have had amazing support from family and friends.
Good luck to anyone starting chemo in the next few days and weeks, it's not as bad as you think and even though I had a rough first few days, I'm feeling almost normal again today 🙂