Fingers crossed for you both that it goes ahead next week!! I have had chemo 5 this afternoon and the feeling that this time in 3 weeks time chemo would have finished really is a great feeling and has given me a boost. Good luck!!!! xxxx
I totally agree with Julie, if we cant be ourselves on here where can we. We all know that feeling down is a big part of this horrid disease and treatment and we all know that daily we put on a brave positive face for family and friends. But here we can let it all out and no one says you have to stay positive because they understand that letting it all out does not mean we are not positive, it means we need a release and here we can do that. That how we can support each other in a way others cant support us.
I was eligible for gene testing due to having triple negative but also my family history made me eligible too, otherwise I would not have qualified. As they do not know what "feeds" so to speak triple negative in England that makes you eligible for gene testing. Thankfully mine wasnt fuelled by a faulty BRCA1 or BRCA2. That is why I have agreed to be involved in the research for them to identify new gene faults that cause both ovary and breast cancer as the more they can identify the more we can guard against getting it again.
I do know you can still get gene tested if you dont qualify but it costs around £2000.00. To be honest if you dont qualify then the chances are you dont have the fault gene's anyway.
Hope this helps. Hope your are feeling better today runner!!
Onwards and upwards. xxx
Thanks tomorrow is my next one.
Was your gene test not put down as an emergency as part of your treatment plan? They done mine as that so I would know what to do after chemo. They then told me from the gene place they would see me in September, but once I said I need the results then they see me on a cancellation.
Good luck everyone hope all is going well!! xx
Wishing everyone especially those with all the added complications all the best.
After last posting about my last chemo's side effects being minimal I was hit by a load of new side effects which knocked me sideways so not posting I am doing well again so as not to tempt fate!
I was wondering how I am going to cope with the last two chemo's evern considered not having them at my lowest point but today I received my gene test results which were negative and although I thought I wasnt worrying over them the weight has been lifted from my shoulders. I couldnt wait to tell my sister and kids that they dont have to worry, such an amazing feeling.
So now I am going into my last two chemo's knowing my radiotherapy has now been booked to start about a week after my last and I can hopefully see an end to all this horrid treatment by the end of October. Having to have boosters to the radiotherapy but can handle that thought now. I wont count my chickens though until all finished!!!
Good luck and love to you all xxxx
I also am sorry about your news....hoping they can figure out a good solution for you. Lots of good thoughts for you....
Well had my ultrasound yesterday and it was not good news my large 4inch tumour has not shrunk at all, seems the only reason it feels smaller is chemo has softened it.
Now very unsure with the next stage of my treatment.
Thats brilliant news that there is no tumor!!! Hopefully with the other options the chemo you have had so far will have been enough. I am sure when you see your oncologist they will put your mind at rest as how things will proceed. Big hugs and wishing you all the best xxxx
Dear "thread" friends,
I can't tell you how much I have appreciated your kind words and support. Late this afternoon I called the oncologist's office to get the results of the MRI of my brain that I had yesterday....everything is clear or negative! There is no evidence of a tumor in my inner ear - thank heavens! I have been a wreck. It is kind of "good news/bad news", because it means that I won't need brain surgery, but the chemo drugs are causing the problem and although I need the final chemo treatment, apparently I can't risk more damage to my inner ears. So, I guess I am going to have to hope that 75% of my chemo treatment is good enough. I will meet with my oncologist next week and maybe start tamoxifen or whatever.
Love to you all and I hope you are getting through this....
I hope all of you are getting through this ....I keep having this awful dizziness/vertigo with the chemo (TC). The 1st and 2nd chemos caused just a few days of dizziness each time, but here it is 2 weeks after my 3rd chemo and I am still not much better. I have been really wobbly. My oncologist sent me to see an ear/nose/throat doctor to try to figure out this vertigo. Well, that doctor said that I shouldn't have any more chemo, because it appears to be damaging my inner ears and causing the dizziness - possibly permanently. But he also said I need an MRI of my brain/ears because there may be a tumor growing in the inner ear. I went to talk to my oncologist after I left the ENT doc and he said that while it is not good to miss my final chemo (I would only be getting 75% of the benefit), but having permanent dizziness is worse. What a mess - between a rock and a hard place. So, I really don't know what to expect, but it is terrifying. The MRI is this afternoon.
Well went in at 9.30 and it turns out that this new chemo drug has to be made up on the morning you come in, its called Abraxane, so far so good so alot happier now just waing fof side effects to kick in
Had a trainee do my bloods the day before chemo and lets just say my blood shot everywhere and made my daughter feel sick lol then chemo day I had a nurse who really didnt want to be at work lol...she shoved the catheter in and it hurst as she wiggled it round and then took it out to tell my my veins look fat but they are actually really thin and it had gone right through and bent it. I then felt sick before chemo started lol.
Things then improved and she gave me the extra flush I needed when she disappeard for 20 mins to go to the cash machine lol another nurse came over and put a fast flush through which was good. Well all that said my side effects are still there but so far not as bad. Not sure if its all these meds now working or whether my body has now got used to FEC but I still feel nausea but not sick or nearly as bad, Heartburn still a problem but taking what the hospital gave me ply having gaviscon at night not sure if I should but helps and the onc agreed that with the lactose she gave me I could also take 2 senna at night which has helped slightly. My arm is swollen and a little sore but not too bad but that did come on later last time and it was still hurting from last time so that may be it.
Anyway I am much more positive this may be a better regime so fingers crossed, so ladies hopefully there is hope for us all not to have such a rotten time.
Thinking of you all going through your trials and hoping that things are also improving for you all and I hope Ria that this chemo works for you. we are all thinking of you. Big hugs xxxx
Well saw the oncologist this morning, whom has decided that she wants to give another chemo drug a go, this one I can not even pronounce, but she informs me its not used often as it is very expensive, so tomorrow morning I am having my third different type of chemo in as many weeks, the SEs will be about the same if not worse, so looking forward to that NOT?
If all else fails and third time lucky goes wrong then its down to surgery I go to remove the offending 4inch tumour
I am so sorry to hear about your problems with the chemo and I don't blame you for getting depressed.....I had my 3rd chemo (TC) a week ago and I expected to feel horrid for maybe 3 or 4 days, but this time it was much worse. Here it is a week later and I am finally starting to feel a little better. I felt so awful (still throwing up and terribly dizzy) yesterday that I just lay on the couch and cried - and Ria, I don't have nearly as much as you have to feel miserable about..... My poor husband was running around to pharmacies trying to find a new nausea drug that the doc prescribed. This crappy disease and wicked treatment - $%!&. Ria, I hope they can figure out how to help you get your chemo. I have one more round of this chemo in two weeks - and since the side effects are just getting worse and worse, I am already dreading it. Hang in there everyone.
well yesterday was awful, had a massive allergic reaction to the doxetaxel this time 7 minutes and 20 mls they had to stop it. Iam now back to square one
My FEC did not work my white blood cell were low which set me back a week with work, last week DC gave me horrid SE and i had to have a week off work and yesterday did not go at all so i am really upset my chemo is now delayed and now work is mucked up again.
Got oncon Thursday and probably start another regime.
Is there anyone who has had this type of chaos with chemo , cause I am getting really depressed about it
Off to chemo this morning and dreading it, i was really bad with my new regime and oncologist informed me it is not going to get any better this time. I am going to get extra steroids but hell not looking forward to being bad for 10 days at least
Sorry for the moan
Hope everyone coping ok and enjoying a slight distraction with Commonwealth games.
Thought I would share a funny with you... I have a picc line and on Tuesday went in for normal pre chemo bloods. Well the nurse not happy with the way it looked and thought it might be infected so had to see doctor. Doctor thought there might be a clot so sent off for a doppler ultrasound. When we went to the department for it a nurse said you must be from Oncology, after I asked my daughter how did she know and my daughter said it must be something to do with you wearing a bandana and looking like you have no hair under it...lol. When I went in for the doppler the lady said take off your trousers and shoes.....well the picc is in my arm...so I was just stood there looking from my arm to my legs in total confusion until my daughter told her its my arm...she then apologised and explaned she had been doing legs all morning. Upshot was no infection and no clot.
Had 3rd Fec yesterday and now like most of you half way through. Change to 3 x Tax from next time.
Take care all. xxx