starting epirubicin/CMF on 18th July

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Hi Girls

How are you doing Gill? Hope side effects are minimal.

Managed a full day in work yesterday and really enjoyed it. Spent most of the day chatting!

Up early this morning taking the drinks before my CT scan at 9.00.

Have a good day

Mal x

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Gillian
Friday - bring it on! Let's get another out of the way.

I envy you eating like a horse. I'm living on Frosties!

Mal x

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well done Gill, half way through the first lot already!

Still have stubbly head and tho everything else is loosening...the dratted leg hair is proving persistent.

Mal-I get my next on Friday too...done not too bad this time round so hopeful the next is OK too.

Didn't get too much trouble with the mouth, eating like a horse too, I really thought I might loose a bit of weight on chemo, but the opposite seems to be true for most.
Love to all
Gillian

[Guest user]

Nice one Gill.

So far so good. No trips to London this time. Take it easy and be kind to yourself. Let the family carry on waiting on you.

You are sooooo lucky living near the sea. Our caravan is in Wales but we live Manchester. It's a couple of hours drive and we don't get there as often as we would like.

Anyway - you're halfway thro' Epi now aren't you? Fantastic.

Hope No 2 will be a good one for you (as far as it can be).

Mal x

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Hi - had 2nd Epi this morning. went well withe the line - whichis in my chest. it is still a bit sore but not as sore and the stabbing to find a vein.

my lovely step daughter made me a pasta salad - to we went to see the sea and eat it. tired this afternoon. they say i will be because my Haemoglobin is not very up, but enough to go ahead. - so dvds from the library and rest this time!

Glad you had a good weekend Mal - so Wales - do you live in Wales too? Ho lovely to have your grand children around. I have two 'nearly grand sons'. my step daughter's son who is 15!! tomorrow and my youngest son's fiance's son who is 3.

My eldest son has done all the ironing!
My sister is doing the Phone round when there is something to tell everyone - this means I only make one phone call - it is a good system.

It is good giving people jobs! they really are helping.

hear from you soon.

gill

[Guest user]

Hi Girls

You both sound as though you've good week-ends. We did go to the caravan after all. Friday morning I couldn't even swallow spit so phoned my trials nurse and she told me that it wasn't an infection, it was the chemo destroying cells and anit-biotics wouldn't touch it. Basically I'd have to put up with it. So I thought 'what the hell' may as well go. Took grandchildren Joshua (9) and Sophie (6) who'd been given strict instructions from their mum. So glad we went. Yesterday took them round Carnarfon castle and the afternoon on the beach followed by a meal at a floating restaurant. It was lovely apart from my damned throat and taste. Food tastes dreadful even the consistency is awful. Should be losing some weight hopefully (there's got to be a bonus). Anyway kids take your mind off things for a while. Today my sore throat's gone just thrush in my mouth. Strange how all my side effects have been in my mouth etc. even my sense of smell. Sitting at home I kept saying 'what's that dreadful smell?' It was lillies in a vase. Had to put them outside.

Human again today. Even having a drink as I write. Great to know I'm going to have a few good days before my 2nd Epi Friday.

I've been trying my wig again but can't get used to it. It keeps creeping up at the back & front. Maybe be different when the hair's gone I suppose, or it may just be my big head! I bought a turban- type thing the other day and tried it on for my grandkids. Their faces were a picture. Trying not to laugh. I don't think it's me really. I wear a lot of scarves so have been trying those. I'll have to wait and see.

I envy you Gillian being so handy making your own scarves. I can't make anything. Tried making curtains etc but even with a sewing machine still can't sew a straight line.

Has your leg hair departed yet? Wish that was the first to go.

Is your line still bothering you Gill? Where exactly is it? In your arm, chest, where? Hopefully you'll have no bother tomorrow with your 2nd. I've got an early appointment at Christies on Friday (9 am) which is great. I should be home for lunchtime. I've also got my CT scan re-scheduled for Wednesday.

Tomorrow is another grandson's 9th birthday so off to his party in the afternoon. Hopefully a couple of hours in work Tuesday and Thursday.

Edinburgh - I've been once. Won a week-end break there about 30 years ago. Loved it and keep meaning to go back.

Let us know how you go on tomorrow Gill.

Keep off the gin.

Mal x

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I have made some scarves and some nice silk ones, have made a few wrap type things too which are a bit flamboyant but good for evenings out I think Have found that wearing a little scullcap type of thing under the scarves makes me feel a little more secure and stops them looking too thin.

The wig is still smirking (as mirkin, now there's an idea...) at me from the shelf but I think I will wait till the stubble goes as it is acting like velcro just now, if the OH had curly hair they would never be able to separate us!

Hope you ladies are having lovely weekends
Gillian

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what are your two going to do about covering your heads? scarf, wig or nothing?

I am getting obsessed by scarves - I have loads now!!!
gill

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Now I understand the festival things. I would love to go the the Edinburgh Festival. It is Gay Pride in Brighton this weekend. Never been, it just grinds btn to a holt.

I thought my sister was a long way away - she lives in Newark, but you have got distance. Thatnk goodnes for the telephone.

Did you do the hair thing? I still have some wispy bits which are half and inch long, still loosing it. I have really got used to it though, it is the Groshong Line I hate.
It's all relative isn't it. we just hate the worst thing and other thing that others hate we don't mind.

At least I won't have to be stabbed for 2 hours on Monday.

Glad you are getting on with the new boob.

Hi Mal - you must have gone to your caravan - hope the sun shines.

gill

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Hi there,
I'm in not so sunny edinburgh. My sister and her lovely family are in brighton...I miss them so much and it's so far away!
I have sent to OH out for a bottle of gin and i intend to get guttered (scottish term for "tiddly") and sit in the bath and shave the hair off. I think it's goins and I am tired of waiting for it!!!!!
Had to cancel a couple of shows...got to get through this bit...I think it's the worst part, crazy really, worse than loosing a boob (the new one is great by the way)
Love to both,
going to drain the sherry while I wait!
Gillian

[Guest user]

Mal, yeah - hairy knickers, hairy pillow, block the plug; it's great.

I still have a spiky covering but the pale white scalp if very evident! tried the wig this morning and it seems like too much hair now. It is amazing how quickly you get used to no hair.

District Nurses this morning - sometime.

Epi no 2 on Monday - after no 3 Ultra Sound Scan of Liver to see if it is working then 3 more if it is and change if it isn't. I will try not to think about that until nearer the time.

Have a good time if you go to the caravan, but don't over do it 🙂

Gillian, where do you live - where is the festival you are going out to with your tight knickers on?

I want to go and watch the Gay Pride Parade in Brighton tomorrow - see how tired I am, I want to be fit to start the whole thing again on Monday.

gill

[Guest user]

Glad you're both happy tonight.

Gillian - Sounds as though you're out on the town enjoying yourself tonight.

Gill - you seem better now after seeing the Onc. The line should make it easier for you on Monday. Did you say you're having 3 Epi? So after Monday there'll only be 1 more? Or are they just scanning you then?

I've got hairy knickers to look forward to have I?

Thanks for mouthwash suggestion but have already been using it. Will see how throat is tomorrow. Should be taking grandkids to caravan.

Mal x

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Hi gillian and Mal - I am happy now!!!

I will stay on the Epi and after 2 more will have an ultra sound scan of my liver to see what effect it has had.

My line is not SO sore now, although I cannot do the one bra strap up cos it is under the skin just there - men!

any way much happier now

I have had the hair knickers Gillian - he he
My hair is still coming out but I had it cut so short it does not seem to matter now.

try Corsodyl mouth wash as a gargle Mal or Difflam spay. hope the Antibiotics kick in soon don't suffer though go back to the chemo dept.

bye for now

gill

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Gill - You seem down at the moment, I do hope things improve for you. I know a lot of people gain benefit from counselling sessions they do help you get your head round things yourself. What is it you're worried about with your Onc? Do you not know whether you're HER + or-? You also mention change of chemo? I think we've all been in a dark place at sometime or another. Having had panic attacks etc when my dad was so ill I'm just surprised that I'm dealing with this as well as I am. BUT you've had a long journey unlike me and I can't imagine how it feels to have a recurrence etc.

How are you feeling in yourself? Your 2nd Epi is due Monday isn't it?

I've not been too bad except this damned sore throat. It's like swollowing a bag of razor blades. All the glands in my neck are up too. Got antibiotics from GP yesterday but not touched it yet. I was hoping for a few clear days before the next onslaught next Friday.

Let us know how you go on.

Mal x

[Guest user]

Hello ladies,

sorry you've been down Gill, hope you got it out your system and are feeling stronger again?

I got my new boob today and I am really quite impressed, its a bit damn sweaty so I will make some pockets I think, but looks pretty good!

Hair has started to go, knickers first i guess? No change on my head yet but it feels weird. I think I will have to wear a scarf out anyway, couldn'y bear it if it started falling out at some show in the Festival.

Off to have a few laughs tonight at a couple of shows.

Wish I could get my chin up, well chins actually, maybe some sort of bandage to keep the hair on and the chin up...Jacob Marley methinks
Love to all
Gillian

[Guest user]

Hi there,

pretty rough day yesterday cried most it.

I had my line put in on tuesday - was sedated and don't remember a thing - but it was very sore yesterday and I had to have it flushed.

I went to a counseling session as I was offered one, but it was useless. she wanted me to feel angry and have panic attacks. when I said was not angry as I could not see the point - I said I was disappointed and I had stopped having panic attacks after seeing a Healer.
She gave me the breathing exercises anyway and gave me another appt in a few weeks - I don't think I will bother. I need someone to sort my head out not my breathing.

Not so sore this morning although I cannot wear the bra strap on that side. Seeing onc this afternoon, not looking forward as he is always bad news. he is very nice, but I am frightened of what he is going to say HER" + or -. Changes chemo drugs or not. oh heck!

If you go to Scarborough don't stay at the Grand - we moved to the Mount during the first evening - as did other guests.
Scarboro' is a lovely seaside town with faded grandeur and tackiness and old fishing port and character and sandy beach.

I have a wig which looks great - which I have not worn out yet. It seems quite secure now I have virtually no hair - I just like the scarves. My son says I was always a hippy, so they suit me.
Trouble is my hair was coloured and the wig is like that, but my hair is grey and will be like that when it grows, so maybe I should have got a grey one.

I have had a prosthesis for four years now. I have 2 in fact a sticky one and a loose one. I wear bras with pockets most of the time with the loose one - I don't care what they say it moves if not in a pocket. the sticky ones you can have after a year - on the NHS. You can wear them for swimming, but I don't bother.

I'll let you know what happens today.

chins up - lips stiff - except when they are not!

bye girls, gill

[Guest user]

Hi Girls

Hope you're fighting fit, getting ready for the next round and planning a wonderful week-end.

Still playing around with my wig. It's just doesn't behave like 'normal hair' and I'm not keen. OH says it looks better than my hair. Cheek! Think he's just saying that to make me feel better - it doesn't. Like you Gillian it'll probably stay on the bed-head where it is. My Maggie Thatcher wig that I bought online I've put in the 'dressing up' box for the grandkids. You were only a few days behind Gill weren't you? So it's countdown.........

Gill - did you have your line in? Hope it went OK.

Popping into work for an hour tomorrow to see everybody. May wear my wig and wait for a reaction.

Mal x

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If it was up to me I wouldn't bother with a falsey but as I have never seen anyone else going solo, I don't have the confidence.
While I'm at work I don't bother but if someone comes in unanounced I do a quick disappearing act and scrabble around!

I am constantly surprised about how OK I am with all this, everyone says "oh you are so brave" but I don't get it, what other option is there? You're right, you just get on with it.

I got a wig a couple of weeks ago, and after rescuing it from the cat who had adopted it, it awaits me at the top of the wardrobe like a menacing rat! I probably won't wear it as I am petrified it will blow off or turn round or something. The embarassment of which will be worse than being bald I think.

Still grabbing at my scalp waiting for th inevitable, I'll let you know

Staying happy,
Gillian

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It must be kind of embarassing if your boob jumps up I suppose. I only had a WLE and so I have one normal boob and one mangled, but at least it's something to fill my bra. You'll feel more confident I'm sure once you've got your rubber boob.

Have you got your wigs now? I went for my NHS wig today with my daughter and we had a real giggle. To be honest I didn't feel comfortable with any of them but got one all the same. I've been wearing it in the house today and trying to brush it into different styles but without much success.

Yep - stiff upper lip and all that (not much choice really have we?)

It's amazing how you cope with everything that's thrown at you, isn't it? When I was first diagnosed I thought it was the end of the world but you adapt and get on with it.

Mal x

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At the moment I have a piece of wadding shaped like a pastie, that is meant to fill my bra and be boobed shaped. In reality it is only there to irritate me and jump up to say hello to anyone who cares to look. I would be as well to have a soft toy with a smiley face there.
So I am getting some kind of weighty silicone thing that might at least stay where it is put?
I will go for recon next year hopefully and just hope they can do something with the other one at the same time???
Glad we are all bearing up in proper British fashion
Bye Girlies
Gillian

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Gill - really glad you had a great break in Scarborough. I've never been there, my OH is always saying how lovely it is. I'll have to give it a try.

Hope your blood count is OK now. Do you have it taken before your Epi? I have to have mine done the same day which is a bit of a pain. Although by the time I'd seen the Onc and Trials nurse the results were back. Sounds as though you'll be ready for a rest this week-end before no 2 on Monday.

Had my CT scan cancelled this morning. The scanner had broken down. It'll be another week or so before I get another appointment.

Gillian - what an earth's a rubber boob? Pardon my ignorance!

Mal x

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Hi all,
Gill-poor you with the hairy hand-fulls, I was going to go for the shave with you but you've beat me to it. Guess mine will go in a few days then. Hey ho.
Mal-I go in next on the 8th too, it's quite strange to think of all of us doing the same things at the same time, it's like a little club, or a secret society.
I'm feeling really good at the mo, I can't stop eating.
You have a busy old week Gill? Ive got a rubber boob fitting on Friday but otherwise just work and a few shows at the festival, gone for laughas this year largely.
Take Care ladies
Gillian

[Guest user]

HI Mal and Gillian,

I had a great weekend in Scarborough - very tired tho'. I had not realised how little walking I have done over the pat 2 weeks. what with feeling uck and then the low BP. I have walked and walked = legs ache.

Scarbro was lovely - evening a sea fret. but don't stay at the Grand, we moved out.

The hair - the hair has gone, this morning I had hand fulls. My scalp felt strange yesterday. I spent an hour by the loo, running my fingers through it and putting down and flushing. then on the way to the station I went to a hairdresser who did a grade 7 all over. I tied the emergency scarf round my head and - it's ok 😕

My white cell count was extremely low before I went, but they said I could go if I felt ok. I did phone the local hosp before I went, but did not need it.

I am having my Groshong Line put in tomorrow. counselling n Wed, onc on thurs, blood test fri and then if all is well 2nd Epi on Monday. wow that went quickly! I wonder if my white cells will be ok?

an Epi every other week is going some Mal, I hope it works for you - in the feeling well sense as well as the other way, of course! Hope you can have agood wkend in Wales - go steady.

I relate to the feelings you have both had.

bye for now
gill

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I know what you mean about the hangover feeling (but like you say 'used to it'). It's hit me a bit more today. Felt as though I couldn't walk a straight line and soooooo tired. Sore throat too. Nothing I can't handle though.

Yesterday felt great and had daughter and family round. Promised 2 grandchildren that we'd take them to our caravan in Wales this week-end. Hope I'll be Ok as I don't like breaking promises to them.

Have you lost any hair yet?

Telly in bed?

It must be difficult working for yourself. I'm lucky really 6 months full then 6 months half pay but really want to get back before the end of August. Not full-time though. Maybe 20 hours per week or so.

Take it easy. When's your 2nd? Mine's 8th August.

Mal X

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Hi all,

everyone seems to be coping very well I think?

I was fine really, just a bit knackered and rubbish on days 4 and 5
Feel pretty darn good now, just the omnipresent slight hangovery kinda feeling (used to that anyway)
Ive been working everyday except sunday, not as many hours as usual but glad I have not been incapasitated as I really don't want the business to go down the pan at this stage, a later stage maybe....hee hee

Good luck over the next few days Mal and rest as best you can,perfect excuse to watch telly in bed

Love to all
Gillian

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Gillian - how are you doing? Feeling OK?

I can't believe how well I've felt. No side effects to speak of and I'm beginning to wonder if they've given me any drugs at all! Just had my last steroids so am holding my breath that don't go downhill now. How did you feel straight after your 1st epi? Did it take a few days before it hit you?

I took the opportunity to ask the onc about returning to work on a part-time basis working flexible hours. She thought it was a good idea. I just want the normality of getting back to work, so I'm looking to go back at the end of August.

Have you been making the most of the sunshine? Made any more wedding plans?

Gill - hope you had a brilliant time in Scarborough. Are you still feeling OK?

Mal x

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Well that's the 1st epi over and done with. Went like clockwork and no waiting! Just feel a bit 'delicate' and spaced out.
Drank plenty as advised. I'm sure more horrors await over the next few days.

Was also told today that I'm on the E-Xeloda (Accelerated) arm of the trial. That means 4 x Epi every other week followed by 4 x Xeloda (tablets). I've just put the dates on the calendar and I'll finish Epi 5th Sept.and Xeloda on 21st Nov.

Are you all still OK?

Mal x

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Gillian
Congratulations from me too.

Water, food, lollies and cuddles - not necessarily in that order though! I'm a bit twitchy tonight and probably won't sleep much. It'll be strange going to the chemo suite tomorrow as last year at this time I was taking my Dad. He had cancer and although I knew it was terminal he didn't. They thought chemo would give him a bit longer, but it didn't and he died in September.

Gill
Gosh you do get about. London last week and Scarborough this week-end. Not surprised you overdid it. The weather forecast is good so you should have a great time. We went to Madeira in February a few years ago and loved it. The weather was great too. Something to look forward to. I think that's important.

Not looking forward to tomorrow plus have a CT scan on Monday. Have been having a problem with my shoulder so am also waiting for bone scan. Great!

Enjoy the sun.

Mal x

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hey congratulations on the wedding!! Gillian.

take it steady and rest if you need to- say she who over did it!!

Mal glad you had a good holiday - have just re-booked one to Madeira ( had to cancel the October one) for Feb.

yes I enjoyed the shows - but that was the over doing it bit!

I have rested since and am well enough to go away this weekend on a long planned trip to Scarborough with parents and husband of course. I phoned the hospital to see what thier proceedure is for chemo patients - so I won't need it.

'see' you all after the weekend.

gill

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Hi Mal,

I really really think that drinking lots (helps them get good veins too) of water and eating really well beforehand, must have helped me. I have kept a little notebook with things like "bit queezy" didn't sleep too well" etc , just so I can compare as they go along.

I really was a bit rough yesterday, felt a bit like I used to if I had stayed up all night drinking too much. But went to docs for more drugs. I should have gone sooner I think, now I am back on the anti-sickness I am full of beans again. Well......not quite....but so happy to feel like a hooman bean again.

The very best of luck...remember ...water, food, lollies and cuddles

Yes it's my own wedding!!! OH got such a fright when I was DXd he blurted it out, got him now though HAHAHAHAHA(manic laughter)

Gillian

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Gillian (that sounds better than Gill 2)

I'm really impressed that you've managed to work at all this past week. Did any of the tips help other than the ice lollies?
People say the nausea is a bit like morning sickness. Do you agree? I thought I'd keep a diary of chemo with side effects etc although I'm sure it'll be different each time. You should be picking up now though into your second week and then the third week - party!

Is it your wedding you're planning? If so that's wonderful. It really gives you something to look forward to and think about. A boat house in Argyll sounds idyllic.

Keep your chin up. One down.....

Mal x

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1st epi was last Friday and been up and down a bit since then, Yesterday was pretty bad and felt nauseus (sp) all day!
went back to docs and got some more anti-sickness and somehting to help the chronic heartburn, so today feel pretty ok really!
Still able to work, tho not at full pelt
I don't want to be too graphic but my period started today and boy...what a colour!
Upbeat enough to plan next year's wedding...started as a small affair but have decided to blow the holiday fund (no long hauls for a while anyway) and hire a boat house in Argyll
Hope everyone else is well
Good luck Mal, suck those lollies!
Gillian

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Hi All

Back from Spain last night. Had a brilliant time but it was so hot. My arm swelled up a bit and had to stay in the shade but glad I went. 1st chemo tomorrow............

Gill 1 - hope you're still OK after your first epi. Did you manage your trips to London and enjoy the shows?

Gill 2 - how did your first go?

Lian - you'll be half way thro' after tomorrow won't you? Did you manage to stay awake thro' Mamma Mia?

Let me know how you're all getting on.

Mal x

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you will enjoy the film when you are there!!

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Hi Ladies

3rd Epi has been a bit worse than the first two, I have felt a lot more tired with this one. It kind of feels like a yucky hangover! Today I have perked up a bit, still don't feel like doing anything though. I am saving myself as tomorrow I am going to see Mamma Mia! The showing doesn't start until 8.30pm, how am I going to stay awake!

Gill - The steroids always keep me awake for the first few days after treatment, how unfair as this is when when we most need our sleep.

Mal - I have found the accelerated route ok so far, but will be glad of the longer break when the CMF comes around. I only have 1 more Epi to go next friday, and it has whizzed by so quickly, I just hope the CMF flys by too. I am longing for a holiday, and am not allowed to leave the area! Strict Onc. So I will be holidaying in sunny Southend this year 😞

Lian x

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not SO good today - did not sleep so well - the drugs I think.

quiet day

got to be ok tomorrow - I will go anyway.

gill

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Bridie - Good Luck today!

Gill - hope you're still Ok and enjoy London.

Mal x

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nhs wigs arent too bad and you can always have them styled. hve a good holiday.

Bridie

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Two Gills!!

Gill1 - Wow. I bet you are a proud mum. Enjoy the concert. Is this the same son who lived in Manchester? Sussex - what a lovely part of the world. Beats cold, windy, rainy Manchester (bet it's not raining in Sussex). Sounds as if you're coping really well after yesterday. No way I thought you'd be up to the pictures today. Fingers crossed for you.

Gill2 - Good luck for Friday. Hope you're as well as Gill1 is. Let us know how you get on.

Lian - 3 down. Only 1 epi to go. Sounds as tho' you're suffering a bit more this time round. Have you found the accelerated Epi hard work?

This time tomorrow I'll be over France somewhere & I can't wait. I have one son who lives in Spain with his family (5 kids + 1 due Sept) and my other son flew out yesterday with his family (3 kids) + my elderly mother is coming with us. So it won't be relaxing but I will (hopefully) be able to put everything to the back of my mind.

My colleagues at work have organised a meal out tonight for me. A sort of 'good luck'.

Incidentally, my wig that I ordered online arrived yesterday. It's awful. I look like Maggie Thatcher. Hopefully Christies wig service will sort me out.

Will catch you all next week. Hope you all have a good week-end.

Mal x

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Mal, hope this catches you before you go. good decision, enjoy the sun.
Phil is a Ballet Student at Central school of ballet in the second year of a degree course (very proud mum)
we are in Sussex so the train is an hour - less time than finding a vein!

I am looking forward to the line - I can't do that again.

Gill - so far so good, feeling a bit over active - I think that is the steroids. Going to the pictures with my mum now.

g

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Hi all,

so sorry you have been travelling such a long road Gill! I am also hoping they will put a line in, I am more woried about the mess they will make of my lovely veins than having the line in. we wil see I guess.
glad it was OK for you, I have my first epi on Friday, I will let you know.

Glad Mal got away on hols, it's as important as anything I think to keep life good.

Lian, good for you, one more to go of the red devil (epi)? keep your pecker up
Gill

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Gill

So far so good for you then. Let's hope it stays that way. A line - the thought of that scares me more than chemo!

London sounds good. Are you staying over or do you live within driving distance? What sort of show is your son in? Hope you have a great time and that you feel OK.

I was told by the onc last week that my chemo would be starting this Friday and I mentioned that we would have to cancel our holiday. Yesterday I got a call from the trials nurse who said I could put chemo back a week if we still wanted to get away for a break. So I've put it back a week and booked flights to Spain for tomorrow! Can't wait although I was a bit torn. I really want to get cracking on the chemo but a break with kids and grandkids will be good.

Keep posting and updating and I will catch up next Wednesday when I get back. Really hope you have an easy time over the next week - you deserve it.

Mal x

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Mal I will let you know how it is for me
gill

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Mal

I did it - took all day - 2hours to find a cooperative vein. Drugs ok, easy! Having line fitted before next one.

glad you enjoyed your party.

I will see how I am tomorrow. Got to go to London to see my son in a show on thursday, Friday and Saturday so must be better by then.
gill

[Guest user]

Wooohooo 3rd chemo over and done with! I have felt a bit worse with this one, a little more nauseous, and a little more tired. Hopefully I will start to perk up again tomorrow. The arm pain has gone away a bit now, the nice chemo nurse soaked my arm in a sink full of warm water before putting the horrible toxic stuff in, I think it helped. Luckily my bloods seem to be ok, no one has said any different to me anyway! .........maybe I should ask more questions?? I suppose I just take it that everything will be fine...stupid maybe, but it works for me.

Hope you are all doing well.

Love Lian
xxxxxx

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Thanks Gill

Did enjoy the party and ended up staying later than planned. Had a dance and a few drinks and felt normal for a few hours.

Did I read on another thread that you are starting Epi today? If so, hope it all goes well. One to cross off! Come back and let us know how you're getting on.

I'm sorry to hear about your secondaries and hope they don't give you too many problems. Have they just been diagnosed? It's been a long road for you hasn't it? I was only diagnosed last month and just can't imagine..........

Can't blame your son going back south!

Must dash. Taking my son & family to the airport (we should have been going on holiday with them too).

Take care

Mal x

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My son lived inManchester for a year, he came back south in December.

Yes - no sick pay - just the weekly incapacity benefit. Need to work for normality as well as money.

My chemo is for secondaries - 1st diagnosed in 1999= lumpectomy, radio therapy and tamoxifen; 2nd 2003 = mastectomy and leterozol, tried Zoladex didn't like it and had hysterectomy; now in bones, pleura, lungs and liver whoops!

not had chemo before - maybe I should have had , I will never know.

hope you enjoy your party - a bit - anyway.
gill

[Guest user]

Gill23 - Not sunny in Manchester - but then we're famous for the rain!

Thanks. I'll have a look for the recipe.

I suppose you're lucky being a locum. Work when you're able etc..... but does that mean no sick pay? I have 6 months full and 6 months half pay but am still hoping to go back before the half pay kicks in. To be honest I think I need to do some work. Every little ache and pain I think is secondaries. Is that normal? I'm sure it is. I'm also fed up of not having any other topic of conversation.

When were you diagnosed etc etc?

Just getting ready for a party tonight. Not really in the mood but will probably do me good. A couple of drinks etc.

Malx

[Guest user]

Go cake seems to be a cake that makes you - go. It is made with bran-flakes and there is a recipe somewhere around on these threads.
Try the TOP TIPS one
quite sunny here today - Sussex - anyone else?

[Guest user]

I hope I can get back to work soon at least part-time. Am climbing the walls. I need to keep busy. Gill like you I've convinced myself that I've never been a sickly person and that I'll be fine. Glad you're feeling positive - it's hard sometimes isn't it?

What's this go-cake that I keep reading about?

Hope you all have a good week-end with some sun (it's been pouring down all day).

I'm at a party tomorrow night so am going to make the most of it and let my hair down with a few drinks.

Mal x