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starting my pink road of cemo, 15th nov

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Re: starting my pink road of cemo, 15th nov

Good luck tomorrow, polly. Will be holding your hand across the t'internet:))) I fancy Pb too, maybe we could organise something??
kerry xxx

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Re: starting my pink road of cemo, 15th nov

Hi girls. Getting a bit anxious now about op tomoro. Trying to get house tidy but feeling v tired. Still have bad back which like Janette I've managed to convince myself is something more sinister.
Friends popping in and out today to wish me good luck and bringing early birthday pressies. Didn't really want to see anyone but felt better after seeing them.
Kaz and Notts hope u enjoy PB. Would maybe like to go later in t year if anyone else going.
Love to all others too.Will let u know how I get on.
Polly xx

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Re: starting my pink road of cemo, 15th nov

Hi all from inside PB. Phone signal cr*p but the place and grounds are lovely. I have room next to Kaz. She is as amazing as you'd think

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Re: starting my pink road of cemo, 15th nov

polly - all the best for tomorrows op....
Kaz -n nottsgal - enjoy penny brohn - look forward to hearing about your experience there and kaz hope your mom feels betta soon. glad u had nice time at andys
jan - hang on in there, test will soon be over
margaret - yippee you finished chemo - great
Kerry - keeping busy re op is good idea. i have never been one for make up but i do like the eyebrow pencil i had from the LGFB session- not sure im very good at it though- i can make myself look very surprised by using the pencil!!
suzyB - sorry you been low - chin up - you can do it
Jo - yes lots of aches and pains post chemo and yes they make us worry lots dont they
reeb - hope scotland is lovely

well you can tell it is no longer a bank holiday, the sun is shining - it is a beautiful day!! what a shame the bank hol weather was yukky for all the things people had put on.
just logged on to say "hello" pre rads appointment. i am so confused re creams now - was told by hospital NOT to use aloe vera during rads and that aqueous cream will not help stop burning.???

have a good day all

claire x

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Re: starting my pink road of cemo, 15th nov

Morning:)
Mary - yay - youve finished the chemo:))))) i rub my eyebrows off too, their was a thread on here about someone getting their eyebrows tattoed on and then they grew back either higher up of lower down than the tattoo.......eeek, will stick with my pencil.
Kaz - hope your mum feels better soon. enjoy the pb centre. and you get too meet nottsgal too:))))
Took the rest of my dressing off my snb, it looks ok, except for one small bit. Excited to be able to get a shower, small things, lol:))))
Polly - thinking off you and wishing you well for tomorrow. big hugs x.
Trying to get organised for my op next week, with the kids been off and me trying to fill my time so that i dont think about op, its not really working:)) WIll have to take everything i 'think' i might need with me, husband is crap. when i had scarlett i asked him to bring me clothes to come home in, he brought me a squash tshirt, nothing else!!!! Will have to catch the bus to hospital, husband given that week off to one of the staff, he 'didnt realise' so he wont be able to visit during the day, and they dont let kids on the ward. Hohum.........
Positive thought for the day........the path without obstacles probably leads no where..............
kerry xxxx

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Re: starting my pink road of cemo, 15th nov

Sorry, not been posting much lately but been keeping up reading.
Had last tax on Friday YESS!! (3 fec & 3 Tax)and can't believe that parts finished. Radiotherapy should be finished by end of July.
Hope everyone else gets on OK.
Polly, good luck for Wednesday, will be thinking about you.
Janvis - sorry you're having all the tests and waiting again doesn't bear thinking about- hope all is well.
Reeb- Hope you enjoy your trip up here. Weather very changeable- few sunny spells but rain and winds badthink it's to be better tomorrow.
Mrs Bird - Think my dressing for SNB came off early in the shower but they had given me extra dressings. If it feels comfortable and not rubing should be OK. My eyebrows have gone as well, although I've now got some stubble on my head. I draw in the eyebrows then they get itchy and I rub them off by mistake!
Poppy - best wishes for your mum and hope her pain gets better.
Glad you enjoyed your week
Margaret

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Re: starting my pink road of cemo, 15th nov

Kaz, Notts - I am sure you will enjoy PB - it is so peaceful and you will meet lots of people.

The good weather is due to come back tomorrow for your vitamin D levels.

Kaz - I hope your mum starts to feel a bit better soon.

Jo - my skin peeled 3 weeks after RADs finished and I am still using aqueous cream (over 8 weeks now)

Millikins/Reeb - I am trying not to worry but I think this is easier said than done for me.

I hope you have all had a good bank holiday even though it has been really wet and windy.

Janvis xxxx

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Re: starting my pink road of cemo, 15th nov

Hey my lovely pinks, , xxxx

Polly, good luck for wednesday hunny be thinking of u. . xxx
Mrs bird, no way about your eyebrows my finger tips have been splitting again, suppose it just goes to show h much the cemo is Still in our system. . .
Suzyb was wondering where u was x ur normal Hun for wonder how ur gonna luck xx

reeb Enjoy scotland xxx
Janvis, try not to worry, , we are all here wishing u well xxx

It's freezing, , where's our vitamin d supply!!!!

Off to penny b tomorrow, , see u there Notts x x

Had w week at andys, loved it, , got on really we'll, he really is my number1

Moms been really bad, pain in her back, , just hope the cemo has started to shrink the c.

Jo, keep on with the cream, n alo Vera gel. Mine blistered n pealed the week after my rads finished. ,

York, , , any others????? Need to confirm numbers, , had deposits for 9 people. .

Hugs to all, , , have good few days, I'll be back, ,

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Re: starting my pink road of cemo, 15th nov

Afternoon 🙂
Suzy - it's not vain, at all. Think that it's only natural to worry about how it's going to look.
Polly - good luck for wednesday, will be thinking of you:-))
My dressing for my snb is coming off, they said to leave it for seven days, its day 6 now, it should be ok to remove it, shouldn't it? Frightened I catch it and pull the scar.
My eyebrows have fallen off:-((((((((. I used to go make up free most of the time, now it's all eyebrow pencils, eyeliner and mascara to look even vaguely normal:-))
Kerry xxxxx

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Re: starting my pink road of cemo, 15th nov

Suzy, it's not vain to want to look normal. But if you wanted to look like a supermodel, then yeah, you're vain ;0)

Polly, best of luck for Weds. Poppy and I will be at Penny Brohn so we'll raise a carrot juice to you on the day.

Kerry, hope everything is healing up nicely. My advice is keep doing the exercises for several months afterwards.

Reeb, have fun in Scotland. Claire, hope your son has a great time in Italy.

Milly, hope your skin settles. I used aqueous cream as rads unit didn't recommend aloe vera gel (even though I had some at the ready). I didn't have problems with my skin but then that could just have been luck.

Hugs to everyone and have a nice, wet Bank Holiday.

xx

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Re: starting my pink road of cemo, 15th nov

Hi all

Missed you all, we're all not posting so much these days but xxxxx to all
Good to hear you're all a-running and a-dogwalking and the like! I'm still super creaky and old-biddy-like but need to start the fitness before I stop moving altogether!

Millykins - I'm also having super clavical RADS, I had 9 lymph nodes infected and I think that the collar bone area would be the next port of call for the cancer cells if they were going walkabout so this is why they zap us there. Finally start June 6th, like everything else with me I've had to wait longer than the advised time 😞

I've had a real down time post mx, I suppose the realisation that I'll never be the same hit me again. I had a look at recons on the internet and they all look pretty awful - stupidly I hadn't realised that there will be the huge mx scar running through it so it'll look ugly whatever. (Yes, I've always been vain!!!)

Good Bank Holiday Monday to all
xxxx

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Re: starting my pink road of cemo, 15th nov

Hi all

Off for a few days in Scotland so will be out of touch (forecast is terrible!) but good luck Polly for Wednesday, will be thinking of you.
Jan - hope your scan will be ok but it is a worry. Hopefully they'll tell you the results at the time.
Claire glad your lad has gone to Italy, he'll really enjoy himself but in the meantime do get yourself out and about.
Kerry - hope things are going ok
Hugs to all

Take care of yourselves

Reeb x

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Re: starting my pink road of cemo, 15th nov

hi folks - how are you all doing?? it is wet n yuk here and i am feeling a bit bank hols blues ish - no kids around and not a lot to do, my mind takes me in daft places when i have time to think as i'm sure you will relate to. think i had better get myself up and out and find some company to perk myself up

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Re: starting my pink road of cemo, 15th nov

Hi Jan

Just wanted to say I know how that worry feels - horrid & difficult to put out of you mind when you have to wait. I had a bone scan before my chemo as I said to my ONC that I had an achey back & hips but it was all clear. In every liklihood it will turn out fine & be nothing sinister just another annoying thing to deal with. My bones ache now from the TAX & it is hard not to let your imagination run away but we have to try to keep going until the tests & results & then enojy the feeling of relief when it is all clear!!!
big hugs to you
Jo XXXXXXX

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Re: starting my pink road of cemo, 15th nov

Thanks Polly and Kerry

I will be there with you Polly and thinking of you on Wednesday.

I dont think this is an infection as I have it since FEC4 which was in January. I think this is why I am worried. If it was nothing serious - I would have expected it to go by now. But you are right we will always think every pain is something sinister.

It is the waiting game again - going for tests and waiting for results - just when I thought I was getting some sort of life back again!!

Janette

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Re: starting my pink road of cemo, 15th nov

Hi all:)
Claire - yay for jack:)))))
Janvis - i have had a bone scan, before chemo started. I had to go for an injection, then went to meet my friend for pots of tea. Went back for the bone scan, took about half an hour ish, just laid flat with a machine over me, the machine moves along your body so your face/head is under the machine for the least time. Hope this helps. I didnt mind it, too be fair, would rather have it than an mri:)
Polly - i have had back pain from around chemo 2, onc reckoned it was kidney stones. I worry too about my lack of chemo, surgeon said it stays in the body for a long time, but getting the pains in my boob like i did before, just want it chopped off!!! Good luck for wednesday, will be thinking of you:))) xx
This morning we have been doing a collection for will's rugby team, 18 6 year olds in a busy shopping centre. Wine needed.......lol:)))
Whilst we were in town i bought a few bits for my holiday, maxi dresses and stappy tops. Felt nice and normal to be buying pretty girly things, will worry about the underwear/big boob/little boob situation later. Never, ever thought i would need chicken fillets!!
Armpit not hurting as much as i expected, doing the exercises and using it as before, it just pulls a bit every now and again. Desperate for a shower though, dressing can come off on tuesday.
Hope everyone has a nice weekend
Kerry xxxx

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Re: starting my pink road of cemo, 15th nov

Ps my Mx is Wednesday so I'll be holding your hand. Xx

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Re: starting my pink road of cemo, 15th nov

Hi all.
Claire. Really glad for Jack. Hope has a great time.
Janvis I really feel for you. I have a back ache too and am convinced it's something sinister. I had a urinary infection diagnosed at the pre assessment last week. The nurse asked if I had ant symptoms but I didn't really tho i had a sore back on one side and was just starting to get a pain in my side. Thought then that the pain was my kidney as it eased off for a few days. Came back again tho soni thought the antibiotics werent working and got stronger ones. Still have the back pain tho so it can't be kidneys.
I'm worried cos my chemo didn't shrink the tumour as much as they hoped and also by the time I have the mx it'll be 8 weeks since my last chemo. Anyway I think we're bound to worry about every pain. Hopefully it's all fine. I had a bone scan about 6 months ago and it's ok. From what I remember the results don't take long. Wishing you good luck.
Polly xxxxx

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Re: starting my pink road of cemo, 15th nov

Not posted for a while but have been catching up on posts.

Kaz - sorry to hear about your mum. I hope the emend helps - it didfor me.

Lif - wedding sounds great.

Exercise - you are all sounding really fit. I have only managed to do 1 and a half miles a day and I thought this was good

Claire - glad that Jack has had his plaster off and he is going to Italy.

I hope you all enjoy PB next week. I really enjoyed my time there and my keyworker phones on a regular basis to ask if there is more they can do to help.

I have to go for a bone scan on Wednesday. Scared. Had back ache for a couple of months but Onc said she "wanted to finish poisoning me first and would check later". Trying to think this will be OK but not sure I trust my body anymore and I am, deep down, expecting bad news. Has anyone had a bone scan and if so - how long does it take to get the results back.

Janvis

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Re: starting my pink road of cemo, 15th nov

hi all, just a quick post to say - jacks cast is off and he is going to italy tomorrow!!! - have been sorting/packing around rads appointments - he sooooo deserves this holiday after the yuk of the last few years

have got next weeks appointments and yes they are mid day ish which is good but they didnt seem pleased to have had to make concessions

hugs to all and no, i woudn't have got thru this wityhout you lot. my friends have got used to me referring to you lot as my internet friends now - i hope we do all get to meet up one day, would hate to loose touch (i am still unsure if i have everyone on facebook - dont think i do) -still not sure if i can do york

hugs

claire x

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Re: starting my pink road of cemo, 15th nov

evening chaps - it has got more quiet on here. perhaps now we are mostly post-chemo we have a bit more energy for getting out & doing stuff rather than sitting at the PC?!?!?!?
I am amazed to hear about the walking, running & general fitness of everyone. most impressive.
I agree how invaluable this forum has been & how unsuitable I found the local support group - mine were very kind & well meaning but def couldn't relate esp to having a 4 year old child & going through this!

started RADS yeaterday & skin already starting to get a bit dry & sore so think I'm in for bucket loads of aloe vera to survive. my skin has always been sensitive so I am not surprised. at least I have 3 days before next lot. They are treating the upper chest as well as the MX scar area - super clavical I think they called it & that is where it is sore but if it kills any stray cells then it's fine by me - did others have that treated as well. I didn't even know there were lymph nodes there as no one mentioned it before???
I seem to hit a wall about an hour after treatment & have to have a rest but once Ihave I am fine tiredness wise sonot too bad as yet. we'll see after next week though!"!

hoping weather stays fine for bank hol. not doing much - my dad's for lunch tomorrow - mum for lunch sunday & local fun day monday- very low key but quite enough for the time being.
must book some therapies for after RADS - has anyone doen acupuncture. also the phyto soys stuff seems to be helping with hot flushes as they are deffo less frequent & less severe so more manageable. still acheing but again it is slowly getting better

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Re: starting my pink road of cemo, 15th nov

Polly, not surprised your OH was a bit taken aback.. hey ho, with all the hospital time we're clocking up, might as well add the antenatal dept. onto the list!!!

Nottsgal - blimey, makes my local cancer group sound like playgroup!!!

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Re: starting my pink road of cemo, 15th nov

Hi girls. Am impressed with all the fitness going on. I managed to walk the dog round the block. Am feeling a million times better than I did after the tax though so can't complain.
Reeb well done on your training and Kaz too. Notts well done on Wii fit. I keep thinking about it but haven't done it for a long time.
Kerry 4 dogs n 4 children. Wow.
Had to go back to hosp for another urine test and blood test before op. Had a bit of a surprise as the blood test request was from the ante natal dept!! OH wonders if I've been having an affair. If only I had the energy.
Feeling a bit out of sorts today don't know why. Prob because op is looming. No friends around today either.
Claire any news. Did your son get the cast off and get to Italy ?
I'm quite pleased to be considered'young' at the moment cos have felt like I'm 100.
Lif the wedding photos are fabulous. Thanks for showing them.
Keep well everyone.
Polly xx

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Re: starting my pink road of cemo, 15th nov

Have to say I took one look at my local group and ran away fast (well in a fashion). Kerry sounds a fantastic idea. My gp phoned last night to see how things were going and I mentioned how naive I was about all this even though I thought I was pretty clued up and he agreed that this is probably something that you don't really understand until you have to go through it all so having someone to support who has been through it would be great. Almost like a cancer buddy system.

Lost two finger nails yesterday so that's 7 in total, at least not many more to go!

Kerry - new puppy in the house will be great. If it's not due for a while gives you plenty of time to puppy proof everything.

Kaz - a busy day, well done on the run

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Re: starting my pink road of cemo, 15th nov

Lol Trip, the Derby breast cancer support group can't even manage flower arranging, one of their talks was wild flowers. Think a lot of them are too old to pick the flowers.

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Re: starting my pink road of cemo, 15th nov

mrsbird that's a fantastic idea. The only thing local in Salisbury is a generic 'cancer support group'.. where they have lectures once a month on such fascinating subjects as flower arranging and architecture, so I'm guessing it's not really aimed at younger people...lmao. Good luck with it.

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Re: starting my pink road of cemo, 15th nov

Just a quick one.
Wondering if there is anything available to the support on this site, local to yourselves? The support and advice on this forum has been invaluable to me, I honestly don't think that I could have done it without you lovelies.. The medical stuff is explained but you guys reassure me I am not going mad. Madder:-)) we are all so encouraging, it really feels as if I'm not doing it on my own.
Got a bee in my bonnet about trying to set something up, local to me, to help people in this situation. Someone that has been through this is much better placed to help and advise or just listen. Even just a nice text was a boost on a bad day.
Will have a word with bcn.
Kerry xxx

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Re: starting my pink road of cemo, 15th nov

Kaz. I am here:-))))
Claire - stomp your feet and demand your appointments be booked, it's the 'system' failing to realise that us younger ladies actually have a life and responsibilities outside of breast cancer. The surprise that's shown at the youngness is evidence of this, would these people be able to comment on our size or colour? Nope? It's ageist, lol! Makes me so cross...........
Kaz - yesterday sounded like very full day.
Reeb - admire you hugely, marathons and mountains! Wow!
Ooo, got good news:-) I have been wanting a French bulldog for ages, been saving my £2 coins for years, because they are pretty expensive, and to get a good one the waiting lists are long. Well, got rang last night and a lady has a litter due in June, and I can have one............sqquuuuueeeeeeeeeeeeeeeeee. So excited:-) just need to work the logistics of 4 dogs, kids, holidays and more surgery, lol!
Feeling very washed out today, was supposed to be meeting a friend for lunch, can't be bothered. Kids are off next week so will need energy for them. Armpit and boob are are bruising nicely, nipple still could star in avatar, surgeon looked at me as if I was a fool when I said it didn't matter what colour it was because it was getting chopped off soon! Think she was a bit flustered to be honest, she dropped her bag, then some notes, then her mobile, hope she sorted her handling skills out before she got a scapel in her hand!!!
Have waffled lots, sorry.
Kerry xxxxx

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Re: starting my pink road of cemo, 15th nov

Where have all the pinkies gone

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Re: starting my pink road of cemo, 15th nov

hey all xxx

claire, well done on rads, , x thats naff about appointments, , explain to them u need advanced app times. .

reeb, , oh my gosh, , look at you climbing mountains, , good luck n good on ya gal

lif, good re the walking, poor dogs, lol

pam, be ace to see ya next week. .

mmmm we all look well, thats not hard after how we looked when on cemo!!

thanx for kind wishes for mom.

i went to the haven, hereford today, counselling session, tears most of it, mad really as i felt great when i got there. . seems like tamoxfen n finishing treatment mean sort of the end, , still got to re balance health again. .then i saw bc nurse. . very good chat, no tears. then nutrition lady , then massage. . had very nice day

then walked dog then andy come in nd took me on a training run, , , lol, ive never ran before, , i walked then jogged then stopted n cried then ran ect ect. lol

nite ladies xxxx

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Re: starting my pink road of cemo, 15th nov

Kaz - hope your mom feels betta soon. well done to andy on marathon
nottsgal -i agree quoting acts does seem like a big thing to do/accept
LIF- think i'd best start walking too
Reeb - i don't know about get fit, you sound as if you are fit already with eveything you are doing. well done
Kerry/Polly - the ops will soon be done and dusted.
polly -hope infection goes

well , back from first rads - dont want to be playing this game any more!!
i was scrutinised by the male nurse who booked me in and checked name/details etc. he said (wait for it kerry) - "you are a young lady??" yes, said i (why as you say do they have to remind me that i am young to get this) and "are you pregnant?" "you are young?? "

so upsetting for me on both levels, yes i am young to get bc and no chance of being pregnant - did i have to yell from the roof tops, i am young to have bc and my other half dumped me so no i am not pregnant.??

then he offered me tomorrows appointment- seems they only give appointments a day at a time - not good when relying on friends to take you on hour each way trip, and be home for jack - and offered me 4pm on friday - so i would have to go through birmingham in rush hour!! this is despite "late morning" app preference being plastered all over my notes.

i cried - he must have wondered what on earth he was dealing with - sobbing woman. anyway got slot mid morning but no apps for next week as yet - hope i dont have to go through this every day for 5 weeks. it was worse than the actual treatment.

on the jack front, no cast off - my stupid ex messed up on the appointmenty and took him a day too early - its not as if he has a lot to think about at the moment either apart from himself. jack going again this evening so still fingers crossed for italy trip.

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Re: starting my pink road of cemo, 15th nov

Reeb, you're amazing to be considering a marathon walk with climbs. I was quite proud that I did 40 mins on the Wii Fit this morning (Wii Fit age now 41), which is feeble in comparison to 8 mile walks. Your sister's OH is an insensitive git (that's the polite version).

As for return to work, the psychologist at the hospital told me that after you've had any type of cancer you are covered by the disability discrimination act and work has to adapt for you. I was a bit shocked and although I want a phased return and not to be doing such long hours as before, I don't think I need to be quoting any disability acts.

Kerry and Polly, all the very best for your ops.

Kaz, looking forward to meeting you at Penny B. Don't worry about work people saying you look really well etc. I've started saying 'yes but no-one sees me when I'm not well' just to make the point that I'm bound to go out when I'm looking and feeling well.

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Re: starting my pink road of cemo, 15th nov

Big hugs Kerry and Claire ur doing this all back to front....crap but you will get there....you have got sooooo far its nearly over xxx
Reeb, I know exactly how you feel! I think those of us who are on the go and felt fab before being told that actually no...you have cancer and now are being told you must be fab because you look it yet feel crap at times because its not like 'before' find it quite tough in a weird sort of way!

Its hard to explain but if you were used to running or hard physical work just being ok and fit in a normal person sort of way which feels unfit and tired to you is frustrating!

Walking really is the key and my dogs also look at me in a resigned sort of here we go again AND its peeing with rain sort of way....but keep going Reeb You will get around that course....I just know you will xx

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Re: starting my pink road of cemo, 15th nov

Hi ladies

Touching base, been at my sisters for a few days which was great even though her oh told me he'd never seem me so fat. Thanks a bunch!

LiF sounds like a fantastkc wedding, I'm so glad you had such a fantastic time
Polly good luck for Wednesday, I'll be thinking of you. It's been such a long haul. Same for you Kerry, I'm not surprised you feel fed up, don't think I ever want to see another canula but I'm having a lump removed from my neck at the beginning of July so needle phobia will continue unabated.

Claire - glad you had such a super time in France.

Was having a chat with someone about phased return to work and was told that you are still officially off sick so shouldn't be relied upon as you are entitled to not go in if you feel like it or go home.

Been trying to get fit, so have started walking 8 miles a day, poor dogs are starting to look a bit fed up but am feeling a bit better and lost a few pounds. I'm taking part in a fell marathon in a few weeks that involves over 5000 feet of climbing. I've done it for the past 18 years so didn't want to pull out even though I know I can't run yet. Anyway been in touch with the organisers who have kindly agreed that I can walk the whole thing and they'll keep the marshalls in place for 10 hours by which time I hope to finish. Thought it was really good of them. Walked up one of the hills yesterday just to see if I could do it needed lots of rests but did get there in the end.

Saw my bcn on Tuesday and found myself in tears. I think it's because bevore all this I was fit and well, ok I had cancer but I wasn't aware of it, I felt fine. Now everyone is telling me how well I am and I feel like a wreck. It's hard to have the faith that all this has worked when you feel worse than you did before especially when they tell you it will take a long time (and by that they mean a couple of years or so) to feel ok again.

Anyway going to try some more cake baking this afternoon. After all these months of trying this is a skill that has shown no sign of improvement. I'm in the process of losing another finger nail (b****y tax) just hope it doesn't come off in the cake mix!

Anyway, take care everyone. Kaz, hope the emend works for your mum. Hope children are all ok and get to go to Italy etc.

Reeb xx

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Re: starting my pink road of cemo, 15th nov

Morning:)
Polly - hope the infection clears up.
Kaz - glad your mum is getting emend:) hopefully it will make her less sick. I put compeed cracked heel cream on my feet, before i go to bed and during the day when i remember! I use foot file too, but onky the smoother side. The cream works really well if you smoother it on your feet and then put socks on, i have an ongoing battle with my trotters!!! My hairdresser said that she would use a semi permanent colour on my 3 months after chemo, she deals with a lot of cancer ladies so i trust her:)
Feeling a bit better about stuff today, feel very messed about by the hospital, no one seems to be responsible or willing to make a decison with consulting some higher force. A bit peed off with being treated like a numbnut as well, and if one more nursey type person tells me i am very young to be going through this then i will scream!!!!!!! Wasnt one person who didnt comment on it, even the cleaner, with that sympathetic tilt of the head..........................
I need to go the day before my op 'incase' i need a blood transfusion, because i am still aneamic and my wbc is still low. hohum,
Arm feels fine, not painful, i just know its there.
Hugs to all
kerry xxxx

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Re: starting my pink road of cemo, 15th nov

kerry and polly, , i wish u both luck for your up and comming ops, you have both already come so far. xxxxxxhugs

claire, so glad u enjoyed france, did u loads of good
val, love the pics, lovely

pam, we are off to penny b, next tuesday, yehhhhhhhhhhhhhh be nice.

well whats news, went to Edinburgh with andy and he ran the marathon for breastcancer care. did really well and it was all very emotional, for ages it was the focus for us both, , cemo and rads would be over. over, hair comming back, ect ect,

moms been awful on cemo, really sick and in pain, she had another lot today, and they are giving her emend yehhhhhhhhhh
had hair trimmed today as it was uneven, but i hated it when the lady and i was talking about hair dye, she said the c word!! she said cause you have had cancer, , , , i wanted to run so far away and shout i havent, , , but i have and i dont like it. i had a nasty lump removed and then nasty medicine, , an im ok now, , , its simple. no need for the c word

effects of cemo are still here. fingers are cracking. and are really sore, and the heals of my feet look shameful, cracked and bled today.not sure what to do with them. .

popped into work today, and all i got was when u coming back u look fab. . . like id been on my holidays!!! im not going back till end of the year.

went to pilites tonight , however you spell it. lol and im off to haven Hereford tommorow for few hours.

hugs to all. xxx

ps ive received 7 deposits for york, anymore to come??? as i have booked 12 spaces and need to let the bnb know if its changing.

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Re: starting my pink road of cemo, 15th nov

Chin up Kerry. You've come a long way already. What's your date for Mx again. I'm next Wednesday. Discovered I had Urinary infection at pre-assessment. Don't know if i mentioned it before. Been on antibiotics for a week but don't think it's clear. Got another course of stronger abs starting. Will be devastated if they put the op off. Just want to get rid of it.
Claire-hope your son gets his plaster off and gets to Italy. And hope you get on ok with your rads.
Hope all else ok.
Polly xx

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Re: starting my pink road of cemo, 15th nov

Hi all
lif- wedding sounds fab:-)
claire- glad u enjoyed france. Hope your son gets to go on his trip.
Havnt been on for a while, t'internet not working. Realised i can use my phone!!
Escaped from hospital today, went in yesterday for my snb, they wanted to keep me in today too, just waiting for my blood test results. Totally frustrating, just sitting about waiting, they looked shocked when i told them that blood results dont take all day to come through!! Aneathestic lady took 4 goes to get cannula in:-(
Got to go back to the ward later today, just want to go to bed. Chemo seems so straightforward to this:-(((( Want my body back and for what i want to be taken into consideration. Had enough, dont have the energy to carry on.
K xx

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Re: starting my pink road of cemo, 15th nov

pasta sauce sounds yummy!! and i can taste things now as taste buds getting back to normal at last.

lots going on as ever.
my son going to hospital today to see if his plaster can come off his leg - if so, and with letter from doctor, he should be going to italy on school trip on saturday - fingers crossed, the lad deserves a holiday but not holding out much hope of him being able to go.

the alternative is a week with me going backwards and forwards to my rads appoinmtemts that start tomorrow. bit nervous but just want to get it over with now.

6 weeks post last chemo and hair growing back on most of body but eyelashes and eyebrows not yet coming back. taste on the mend and digestive system seems to be mine again but still ache from top to toe- anyone else?

hope you all ok. Claire x

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Re: starting my pink road of cemo, 15th nov

Glad you had a lovely break Claire, you needed it.

Went to see GP yesterday and am signed off til 20th June. My boss isn't too happy. I could tell he was trying to be nice on the phone. I mentioned phased return to him and he said 'oh yes, well we had that covered, giving you two appointments (meetings) with a 40 mile radius each day, rather than 3 appointments further afield'. Great, so that means a 7 or 8 hour day instead of 11 or 12 hour day. My GP had mentioned going back 2 days a week initially, so we'll see what the occupational health unit doc says.

I have my heart scan appt from the nuclear medicine department on 9th June, so very glad I'm now not going to be working that day.

Trip, thanks for advice re sauce for seafood pasta. I went with a white creme fraiche based sauce in the end as I thought tomatoes might overpower the scallops. Middle stepdaughter who came to dinner had seconds so it must have been alright.

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Re: starting my pink road of cemo, 15th nov

hi all - got back from France tonight. had a really lovely time. forgive me for not mentioning everyone etc cos ive read posts and cant remember eveything.

but LIF your wedding sounds fab i'm so pleased for you
Kaz - best wishes to your mom

The wedding in france was soooo beautiful and relaxed and just lovely all round. oh and it was soooo nice to see the sun and relax a bit ( but not in the sun sadly) and literally get away from things - i truly did feel that i pushed some of the cr*p to one side for a few days. i was with people who i didn't know very well for the most part so they did not know about bc and just chatted to me about anything and everything. (well those who spoke english chatted , the rest tried to chat to me but my french is limited i'm afraid)

back to cold, windy birmigham which is a far cry from marseille. oh well.

........and to rads starting thursday - good job volcanic ash cloud didnt close in , would have had to drive back to make rads appt.

hope you lot all ok

claire xx

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Re: starting my pink road of cemo, 15th nov

LIF your day sounds wonderful & how fantastic to have such an event where everyone is onvolved in the prep so hands on & it is all part of the experience. wonderful & you so deserved a fabulous time. You don't mention her who shall not be named so I assume you applied your own slap (or not as you felt inclined) & just enjoyed the champagne XXXXX

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Re: starting my pink road of cemo, 15th nov

I haven't, but that would work well, if you have some. I tend to just do the old flour, butter, milk thing, but have used single cream in the past to replace some of the milk (not all, or it gets too rich). I don't know any measurements - I tend to just lob a chunk of butter in the saucepan, and then add flour/liquid according to how much it looks like I'll need!!!

The odd thing is, although I can make a perfectly good white sauce, I am absolutely useless at gravy.. my mum just cannot understand it!

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Re: starting my pink road of cemo, 15th nov

Oooops, really ought to sort out my punctuation. Though a nice little pasta tree would fit well in the garden. Do you use creme fraiche in the white sauce?

Thanks
Pam

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Re: starting my pink road of cemo, 15th nov

Aren't you clever to grow pasta? lol..

I tend to make just a basic white sauce, with a bit of dill chopped up and mixed in, but seafood works just as well with a tomatoey/garlicy sauce too - I think a tomato base might suit the chives better, too. Mmmm, seafood pasta...

Sophie x

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Re: starting my pink road of cemo, 15th nov

Glad you had such a fantastic day LiF. You and your family so deserved it to be wonderful. Look forward to seeing pics.

Thanks also for the info about milk, and thanks Trip for pointing out that what I'd been told was incorrect. That's one less thing to worry about - and I won't assume the reflexologist necessarily knows what she is talking about now either!

Meanwhile, anyone got a good recipe for sea food pasta? I have prawns, mussels and scallops and lots of spiral pasta(fusilli) and chives growing in the garden, but haven't a clue what to do for a sauce.

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Re: starting my pink road of cemo, 15th nov

Lif it sounds like you all had a fabulous time. Congratulations.
Polly x

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Re: starting my pink road of cemo, 15th nov

Thank you LiF xxxxx (See, I do listen, lol)

Sophie xx

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Re: starting my pink road of cemo, 15th nov

LiF, So pleased to hear everything went off so well - it must have taken ages for you to type, but it was worth it as it was good to read all about your fantastic day - then you managed to come back down to earth with explanation about milk - thanks.
Looking forward to the pictures.

Stella xx

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Re: starting my pink road of cemo, 15th nov

Milk.....

For those worried about milk and dairy products and hormones....

Milking cows in the UK and Europe are not under any circumstances organic or non organic given ANY hormones at all to make them produce more milk. Cows, both organic and non organic have a calf every year and as a result produce milk...just like any mammal. They are then served by a bull or by AI when they come back in season, which is about 6 weeks after calving. They then carry on milking until about 6 weeks before the calf is due, obviously decreasing yeild as time goes by. About 6 weeks before calf due cow goes 'dry' and has a little holiday from milking until she calves again. This is a totally natural cycle and the only difference between suckler cows (cows that are allowed to keep their calves until weaned naturally and are then reared for beef) and dairy cows is that dairy cows have their calves taken away at about 4 days old and hand reared so they can be milked for us to drink and be made into cheese and butter.
This is exactly the same for organic and non orgainic. The ony difference between the 2 is in pasture management and how medicines such as wormers and antibiotics can be used.
....oh and beef cattle in uK and Europe are not given hormones either. All milk and meat produced in Britain is safe....I know as I am involved!