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starting my pink road of cemo, 15th nov

Re: starting my pink road of cemo, 15th nov

i cant accept the job until i have the results Kaz - if it is back then i will not be going back to work

Re: starting my pink road of cemo, 15th nov

fab about job offer claire, take it hunny. x

when have u to return to see surgen

xx

Re: starting my pink road of cemo, 15th nov

ive been to ground and wished i'd been on here sooner. the butterfly lane crew will know that i have had a wallop again - firstly got recall on mammogram - turned out to be "thickening" anmd ok and then just a week or so later - i had decided to get myself MOT'd (dentist smear etc) i got a recall on my smear and ended up in hospital friday just gone, having a general anasthetic to have colposcopy, hysteroscopy ( d and c? ) biopsy (cone biopsy) and letzz (zapping) - all i know is that the doc said he removed a polyp. i have to wait two weeks for the results.

i am pretty low again ( i must say the citalopram ive taken since june has really helped me though) and i feel so lonely. my kids are with their dad this weekend and being on my own post hospital brings it all back - how i felt during chemo when i didnt go out etc. I am so scared of the results.

i too realise that this is never ending - i was in tears before the anasthtist knocked me out cos he was insisiting it was ok to stick needles in my affected arm and asking who had told me it was not acceptable - obviously at that stage i was vulnerable and wasnt able to quote anything but the forum!! i wrote "no needles" on my arm in pen in the end - they must have had a real laugh in theatre when they saw that whilst i was asleep.

lots of love to you all - ive missed being on here but just dont want to be blue n sad.

i was thinking i was about to be able to pick myself up off the floor and move forwards too - ive been offered a new job - 16 hours a week which will be a start and will mean i dont have to go back to my old job that caused me so much stress. however, i cant accept/start that job pending the results and dare not resign from my current job which is still been held open for me until i know what i am dealing with - what a mess. I hate dealing with all this lot on my own too - anyone know a nice lonely man who needs someone to love??????!!!!!!

Re: starting my pink road of cemo, 15th nov

Yehhhhh be cool

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Re: starting my pink road of cemo, 15th nov

I could come up n meet you in Brum...and do some Bath planning 😉

Re: starting my pink road of cemo, 15th nov

Hey minny. Was wondering how u was, , enjoy oz.we are all on face book, so email pm if u want to join

Val thats poo, , ive been offered the testing too. When u comming to brum, we need to sort out bath x

Back home now enjoyed stoke but i was a nervous wreck yest thi king about my lump , so thatnx for reassuring guys xxxx

Re: starting my pink road of cemo, 15th nov

Hi everyone, long time no posting. I'm hoping everyone is keeping well. Well, where did that year go?? Took a while to find the forum page, it's all changed!

I'm tickety boo. Did have another swelling under my arm which thankfully was just a seroma (still)!! Taking a while to go but with no visible glands there now, drainage is a bit of a problem. I've found out that i'm negative for the breast cancer genes. So i'll put it down to bad luck having had it twice and my Mum and Gran too.

I've been discharged from the hospital and only have to go back for annual mammo and bone scans (every 2 years) Reconstruction at some point early next year. I'm getting on well with the Femera and thankfully not suffering with side effects that i cant handle.

Looking forward to a mega holiday to Oz over Christmas. So excited! I'll try not to remember last year as it really wasn't one of the best.

Thank you all for being around in my hours of need. I don't know how i'd have managed without you. Cyber hugs and good luck moving on.. xxxxxxxxxxx Gill

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Re: starting my pink road of cemo, 15th nov

Fingers xed Kaz....I have lumpy scar tissue too, don't worry too much! I have just found out i'm neg for BRCA 1 & 2 which is a great relief as they thought i had a 50/50 chance of one or other.
They still say its highly genetic and am a high risk of recurrance just they don't know which gene!
Means I get checked every 6 months which is good.
Having problems adjusting to the new normal too....

Re: starting my pink road of cemo, 15th nov

Hugs jo. Your taking control n thats ace. Youll get there, citalaphrams ace im on it

I went to my year check with surgeon yest. N he felt the area he toon lump n nodes from n it really hurt n i said it feels like a lump. He felt it toox then the breast care nurse felt it n both said it seems like scar tissue. I said wat if it isnt n he said well do a needle boipsy. Results next wed. Oh my god wat if it is. I feel like my lifes flashing in front of me.
Andy was worried but stays calm n logically. Cemo rads operation wide margins n tamo n clear mamogram. Its the waiting n not kneing makes u loose all logic

In stoke today n to maz. Andys working up here so im off around threatnham gardens. We are off out eith friends later

Hugs xxxx

Re: starting my pink road of cemo, 15th nov

Hugs jo. Your taking control n thats ace. Youll get there, citalaphrams ace im on it

I went to my year check with surgeon yest. N he felt the area he toon lump n nodes from n it really hurt n i said it feels like a lump. He felt it toox then the breast care nurse felt it n both said it seems like scar tissue. I said wat if it isnt n he said well do a needle boipsy. Results next wed. Oh my god wat if it is. I feel like my lifes flashing in front of me.
Andy was worried but stays calm n logically. Cemo rads operation wide margins n tamo n clear mamogram. Its the waiting n not kneing makes u loose all logic

In stoke today n to maz. Andys working up here so im off around threatnham gardens. We are off out eith friends later

Hugs xxxx

Re: starting my pink road of cemo, 15th nov

Hiya
Just read all this & do agree - It is important to try to get back to "real" life - if not "normality". Iam very lucky with my work. I have struggled massively but the one thing I said to my boss was that I didn't want to be signed off sick again. that would have felt like such a negative & backwards step & she has been supportive enough to agree & so there's no pressure. I have been on citalopram for 2 weeks & just back from a break at half term & feel much more positive. I've also got a referral for counselling so I feel I have taken matters into my own hands & sought the help I need right now to re integrate back to my life, whether that is my old or new or normal or different life.
Having read other comments on another thread called "where did I go?????" we are most definitely "normal" to be feeling the way we are as loads of others struggle to get back after all this but we will & having eachother is a major support in making that happen.
XXXXXXXXXXXXXXXXXXXXXX jo XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX

Re: starting my pink road of cemo, 15th nov

its still poo though pam xx

Re: starting my pink road of cemo, 15th nov

Thanks Kaz, I suspect though that I should stop grumbling and be grateful that herceptin is available.

Re: starting my pink road of cemo, 15th nov

thanx trip, , think thats the kick i needed xxxx

pam, , , i wish i could make it better 4u

xxxxxxxxxxxxxxxxxxxxxxxx

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Re: starting my pink road of cemo, 15th nov

Re work. I think it is so individual, and so much related to what job you actually do. I was lucky - I had two part time jobs, total of six and a half hours Mon-Fri - so although very long days, there was at least a change of scenery in between each. I won't say a 'break' as I got no more than half an hour at home for a cup of coffee in between school runs etc, but it was still easier than knowing I was facing an eight or nine hour stretch in one place. Tiring? Yes, very - but the upside for me was a return to normality, not a new normal, but the old one - and that was very empowering. I love the girls I work with at my day job (cooking in a school kitchen), and to be honest, as a cleaning supervisor in the evenings, if I didn't feel like doing much, I could get away without doing much!!!

But - my school job offered me promotion and extra hours if I would work one weekend in three (12-6, so not dire), and that's only about 12 weekends in an entire year, once you knock out school hols. It meant that the latest I would be home would be 5.45, not 8.45, I would have the school hols entirely free, so basically I won't have to work more than seven weeks without having a week off. When I was offered it, I realised just how desperately I wanted to quit my evening job - and since doing so, I have realised JUST how tired I really was.

The moral? (If this were an American soap) You CAN do it, you can still do anything you set your mind to, in my opinion - but if it is all too much, then admit it. Don't be frightened of going back to work, embrace it - but be realistic. There are huge positives to getting back out there again - I am once more a working woman and mum, not a cancer patient... and the social life improves along with it - but after, say, three or four months, take stock, sit back, how do you really feel? How do your closest friends/rellys view how you are doing? Can you cope? Could you do more? Or do you need to rethink your career?

Bear in mind that LiF and others have herceptin, too - and that is STILL chemo - my comments are more for those of us who escaped that, and are getting by with tamoxifen or similar. Or have finished treatment altogether.

Sorry for the lecture - but I do sometimes feel that bc can be an excuse for not getting back to living again - all well and good when you are still undergoing treatment, and only sensible.. but there has to be a time when you move on, or you will be an invalid forever. And we are all too damn important to be invalids or martyrs xxxxxxx

Re: starting my pink road of cemo, 15th nov

if chemo was the pink road, then herceptin feels like the endless road. Unlike Val, my veins did get a break between chemo and herceptin as I didn't start herceptin til after RADs (apparently you can mix TAX and herceptin but not FEC and herceptin). But my veins are still shot and it means I don't finish herceptin til June 2012 - all I can say is it's a good job I decided against running in the Olympics as the 3 weekly herceptin would have well messed up my training ;0)

Re: starting my pink road of cemo, 15th nov

Hugs val n pam x i think your amazing coping with hrerceptin.xxxxxx

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Re: starting my pink road of cemo, 15th nov

So glsd its not just me Notts! I had my herceptin on Monday and by monday night felt terrible with an arm that was throbbing...the so called good arm! By this morning I ached all over like I had been bashed...even my fingers and toes hurt!.....Still only 3 more to go til my poor veins get a break in December....that will be the end of 15 months of iv every 3 weeks!!!
As for the tamoxifen.....

Re: starting my pink road of cemo, 15th nov

LiF, I agree with you about Herceptin. I told my boss today that I don't want any meetings in my diary the day after Herceptin (my boss was ok with this even though my job is going to meetings). The last 2 Herceptins have made me feel rough that night and the following morning. I had to give a presentation to 60 people at a conference the morning after my latest Herceptin and felt like sh*t. I'm doing 40+ hours a week after going back in June. I had 8 and a half months off but felt like I was under pressure to go back once rads was finished. When I had my last Herceptin th enurse said my arm was swollen (the side they put the cannula in, not the mx side) and asked whether I was worried about it - I wasn't til she mentioned it!

Good luck when you go back Kaz. It takes some getting used to.

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Re: starting my pink road of cemo, 15th nov

Dont often come on these boards much now but regarding work....

I had to sell my business, I can manage a few hours here and there doing self employed stuff for other people but if I do 4 hours I am totally washed out for the rest of the day! I volunteer in the local community shop for 3 hours on a tuesday and have to sit down all afternoon! I do walk a lot to alleviate the awful aching i get from the herceptin....I have increasingly bad ses from it.

We have to be kind to ourselves and not try and be as we were before...because we are not, we have a new normal...

Re: starting my pink road of cemo, 15th nov

Kaz - Knowing how I have struggled with a very gentle return to work don't underestimate how tiring it can be. I regret starting in Sept & wish I had waited at least another month. I only work 18 hours & am still not up to that level yet!!!. I do hope things will be easier for you but it's not just the physical tiredness there's also the psycological effect of returning to where you were before all this. Be kind to yourself if you can & don't over do it too soon. Massive hugs XXXXXX jo XXXXX

Re: starting my pink road of cemo, 15th nov

Phased return is as follows

Ive had my hoildays paid while i was off. Phased return is paid on what hours i do

I have 7 weeks of phased discussed today, got para a bit as i felt like they thought i was milking it. they were fine its just in my head.

Week one 3days 4hour day
Week two 3days 5hour days
Week three 4 days 5hours
Week four 4days 6hours
Week five 4days 6hours
Week 6 and 7 5days 6hours

Re: starting my pink road of cemo, 15th nov

hola chickstas.

how are you all doing.

i have a monkey too, i forget sometimes what we have gone through then he pokes me and reminds me not to get to happy!!! aaaaaaaahhhhhhh go away

when u away kez, wish i was comming.

spain was fab, but glad to get back as my mate was a bit too much, i have noticed how much i enjoy my on space now, lol. but was a nice break

still havent heard about my momogram and surgeon app for 6 weeks!! it was only the fact that my doc checked on line for me.

return to work interview tommorow. havent a clue what hours to suggest, as i put a plan togthr and andy said it wasnt enuff

hugs to all xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Re: starting my pink road of cemo, 15th nov

Hi all:)
Polly - dont like our monkeys!!!
Having the period from hell:( My hurty ovaries mustve been period pains. Dare not go out because its soooo heavy,hurts and feel lightheaded too. Bah, stupid body. Worrying slightly less because i know why i was hurty, if that makes sense. Not liking the period malarky, AT ALL!!!!!
Hey ho, holibobs in 2 weeks. Didnt want to be around for my dx 'anniversary' so me and kids decided on egypt and told rob he could come if he wanted:)))))) so we booked it with our friends so all bodies are happy:)))
kerry xxxx

Re: starting my pink road of cemo, 15th nov

Hi girls, good to read about everyone again. I still can't give up reading all the threads. Kerry, I've got the monkey too !! He's not very nice and I want him to go away. I've started to try and get fit and lose weight and I've also started trying to do a bit of work. I'd rather stay at home though.
Poppy hope you have a lovely time in Spain.
Summer good luck with reconstruction.
Polly xx

Re: starting my pink road of cemo, 15th nov

Hey all:))
Kaz - enjoy spain:))))))
Pam - i have the wockhardt tamoxifen, i worry that my hot flushes have stopped! I only get them them occasionally, if i am too hot or have been drinking wine! Good luck for thursday, i havent got my on year mammo until january, so am even further behind you.
Summer - what type of recon are you having??? I had an LD flap in June and i love it:))))))))) Glad you getting on with your life and enjoying yourself:))
Suzy - i too am guilty at looking at predictors.
Went a football do last night that descended into a scene from shamless at the end. Ambulances and police were called and i have a huge scratch and a massive bruise from where some stupid drunk woman attacked me. Never a dull moment!!!
Still going to the gym and have lost 4lbs so far which is nice and steady. Loving my zumba, my gym buddy has deserted me though!
Got a monkey on my shoulder whispering all sorts of nonsense. tried sticking my fingers in my ears and LA LA LA LA LA LA LAing, but he(bound to be a he!) keeps filling my head with un positive thoughts and doubts. Anyone got a monkey frightner?????
kerry xxxxxxxx

Re: starting my pink road of cemo, 15th nov

Kaz, due to me being too disorganised to get my prescription early enough, I had to take what the chemist had in stock - which was Wockhardt. I've taken 2 so far. It'll be interesting to see if it is worse on these than it was the last 2 months on APS.

Going to try to get a free flu jab this week.

xxx

Re: starting my pink road of cemo, 15th nov

Oh no notts.big hug. How do u think the flushes on the different tamox brand are
Good luck for thursday hunny xxx ull be fine
Im back to work in 4weeks' dreading it.my hat is off to u all that went back sooner
Xxxx

Re: starting my pink road of cemo, 15th nov

as always, I'm way behind and haven't had my one year mammo yet (here they do it one year from surgery) it's on Thursday this week. Please all keep everything crossed that I'm not the one who isn't clear. I think I'm OK but I'm so tired all the time and achey this weekend. However, I've had the week from hell at work - very long days and lots of driving, and I still never get a good night's sleep thanks to the tamoxifen hot flushes.

Summer, let me know how you get on re recon. I can't have mine til I finish herceptin in June 2012.

Kaz, yeah we must meet up soon. Have a great time in Spain.

xx

Re: starting my pink road of cemo, 15th nov

Jo, hugs.its still all raw hun.
Suzyb 15th nov partner dont look at them predictors. Just take how your feeling at the mo and worry about stuff as n when and if u need to

Summer heyyyy clear mamo, good bout recon

We are all having our one year mamos and even though pink road is over we are on butterflyblane with pink buts, so glad we are all here for each other still.
People think going for an appointmnet is easy, but it brings it all back -having the mamo was so nerve wracking.ibhave actually been waiting 5weeks for my results, luckly the doc told me as she went online and checked, but can u imagine if i hadnt known

Ive a mind to complain
Its the weekend, ive spent the day today with my friend jo i did the walk with, her moms funeral was wednesday, we went into brum today for lunch
Im off to spain mon till fri with my mate diane, cant wait

Hugs xxxxxxxx

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Re: starting my pink road of cemo, 15th nov

hi everyone long time since i've posted but i do read. My 1 yr mammo was clear hurrah and I now have an apt with a plastic surgeon for reconstruction! Living life full on i can't seem to fit enough in. Am going to zumba every week and playing squash and going to try out korfball next week - omg what a larf! I'm also catching up with lots of friends that i have missed over the years. Hardly ever catch me at the pub these days just trying to live healthily and eat what i like although plastic surgeon apparently will stop the eats as I have to get to my optimum weight or similar 🙂

Anyone else going for reconstruction?

Much luv to all
Jenx

Re: starting my pink road of cemo, 15th nov

Hi all
I too have been absent, getting on with life and stuff but so glad you're all here:-)
I was just reading another thread about online predictors and then tested my prognosis and have had a blub but now dried my eyes and just think I'm not going to let this get the better of me. I suppose I'd started to think everything was OK but of course it never will be really.
Love to you all
xxxxxxx

Re: starting my pink road of cemo, 15th nov

Hi there

just saying hello - & sorry for not joining you here again sooner. I have to admit I am struggling after my check up even though it's all good news & clear and all. I'm hating work & very wobbly & keep crying. It's so wonderful to read everyone's clear so far - I'm dreading one of us getting bad news - this is all still so scary -
Massive hugs to you all XXXXXXXXXXXXXXXXXXXXXXXXXXX

Re: starting my pink road of cemo, 15th nov

kez, i love u, u make me laff

my ovaries hurt, i havent had a period since fec number 4 though. . odd
xxxx

Re: starting my pink road of cemo, 15th nov

Hey all:)
just popping in. Got achy ovaries, i think, thought it was my appendix growing back, can that happen???? Will google it, most of my medical knowledge (or lack of!) comes from google:) so was just checking that someone else had achey ovaries on this forum, and they do! Not that its a good thing, but reassuring none the less:)))) Means i wont be camping outside of my doctors, demanding an appointment this side of christmas.
Hugs to all
kerry xxxxxxxx

Re: starting my pink road of cemo, 15th nov

We are on butterfly lane xxxxxxxx

Re: starting my pink road of cemo, 15th nov

Hi girls.
Well it's a year today since I went to the doc and she referred me to breast clinic just to be in the safe side.
What a year it's been. Never thought I would get through it and it would have been so much harder without all of you being there for me.
Glad we are through to this next chapter.
Thank you all.
Polly xx

Re: starting my pink road of cemo, 15th nov

hey hun,
u make me laff xx even if we had the words to say its been a w*nk 12 months ect ect no one would understand unless they had gone through it. so u prob said the right thing.

i so love the tilt of head thing, and also the reaction of no way, or your joking. . . oh yeh sorry i lied not!!!
kez, did u get the thank u card
o my fiend i did the walk with , her mom died suddenly monday, so i have been to see her quite a bit, she had parkinsons, ut had a massive heart attack.

well its pink oct, and i suppose if it gets the message across and raises money thats good. its just a daily reminder for a whole month.

5 weeks left off work., . ooooooooo so dont wanna go back.
me and andy have been ripping out the side headge and front lawn, hard work but its been nice doing thast togther,small changes make it not the house the x wife lived in. . he still dont ant to get married though, i could get quite upset about that

home alone this week, mom and step dad are away, moms really well at the moment, she looks great and saw the onc last week, she is realy happy with mom and dont want to see her for 2 months. she thinks the blood she is loosing is from the op and is residue in the bladder. so not to worry.

anyway, x factor, and curry. nite gals xxx miss u all

Re: starting my pink road of cemo, 15th nov

Hi all:)))))
A year ago today i went to see my gp with a lump, he told me it was more likely than not something bad. Me being me, walked out of the room telling him that it would be fine. What do i know, lol!!! I just keep thinking back to this time last year. Not a good thing to do, i know, i need to look to the future, but the future has no guarantee's, not anymore. Hohum. I bumped into an 'aquaintance' when i was asda, got the tilty head thing and told how much better i was looking. I mustve looked rough before!!!! Then she asked if i had the 'all clear'. Do we actually get an 'all clear'????? Or is it more a case of its not back? How do you answer that question??? told her that it was gone, for now. So hard. in the changing room at gym one of the ladies asked about my back scar. i told her why it was there, explaining is tough. I've had treatment for breast cancer seems to be a flimsy explanation for something that dominate's my life. Keep googling statistics, silly i know:( either looking at stats, hot australian rugby players or clothes for french bulldogs:))))random, much???
Gym stuff going good:) Rob still a tit, eugene lovely, kids happy:))) Just me in an odd place head wise:)
Hope everyone is ok. Hugs to all the lovely ladies:)))
Kerry xx

Re: starting my pink road of cemo, 15th nov

hey all,
xx

pam, i thought u looked fab when i saw you for cofee. must do again soon.

claire, how cool was that of the ladies to clap, xxxxxxx

jules, good luck hunny, xxx how much pop have you been consumng, lol, carry on. xx

polly, hey

Kez, i love you, your attitude is great, so u are allowed down days, there seems to be a lot at the moment , i heard of 2 deaths this weekend, not BC. i think its like when u buy a car and then everyone in the world has the same one!! not nice though xx

pink october is nearly upon us. i dont know why but the pink stuff really doesnt bother me,. im just glad that people riase money for the cause that can help so many people like us. xx

have had a vile cold since friday, and really moody with it. but iv4e managed to stay calm about it, lol, , 6 weeks left off work, aaaaaaahhhhhhhhhhhhh i wanna go back but not to there. but hey ho. it will be phased return,. how does that work anyway, do i say what hours i want or do they tell me.

hugs to all xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Re: starting my pink road of cemo, 15th nov

feel a bit flat - read some of those articles Pam - very useful - it really is a question of time isnt it for us to get our heads round things - following my scan/mammo clear results on thur i feel that everyone just feels "that's it" "everythings ok" and "lets get back to normal" but we are still living with it arent we?

julie - thinking of you re scan. when is it?
polly n kerry - im impressed by you getting fit -im still finding excuse after excuse

I cant do mirrors still - i just hate looking at myself- my hair is thick but it is very curly and i still have no fringe.

lots of hugs to all
claire x

Re: starting my pink road of cemo, 15th nov

Kerry, I know what you mean about hair. OK, so mine has length but it is thin at thr sides. This morning we had some 'family photos' taken (step-daughter's idea) and I thought I look crap in all of them. We still have to get some and put them up in the house though.
Is Rob still being a nuisance? I wondered if you had given him this to read http://www.cancercounselling.org.uk/northsouth/extra4.nsf/WebResHarvey?OpenView&ExpandAll&Count=500
My psychologist told me to get my husband and boss to read it after I'd just finished RADs. My husband read it but I didn't give it to my boss to read. I did get my parents to read it as they didn't seem to understand why I hadn't gone back to work sooner.
Julie - good luck with scan.
Just got my appointment for mammogram 13th October, which was the day of my mx last year. Hopefully not unlucky 13 again.
Impressed by those getting fit - I never seem to have time or energy after work.
xx

Re: starting my pink road of cemo, 15th nov

Hi all:-)))
Claire - so happy for you:-))))
Julie - hope your scan goes ok, fingers crossed it's just the alcohol:-)))
Polly - I am back at the gym too 😕 been 4 times this week and done a zumba class. Trying really hard to watch what I eat, taking control of my body, lol.
Still trying to be positive, got upset today, been for my hair cut and I hate it, couldn't even look at myself in the mirror, hate looking like this. Sigh. It's hat weather soon though:-))))
Hugs to all
Kerry xxxx

Re: starting my pink road of cemo, 15th nov

Hi pinkies ooooorrr claire youre post made me cry iam so pleasd all went well and a good result Iam hoping my raised enzymes is due to the alcohol on my holiday or tamoxifen side effect but shes still booked me in for an abdominal scan. Now ive got the scan booked which is what i wanted for peace of mind, im worried sick again.... so you cant win really we know that life is so precious now and how easy it can all just go Tits up .......... excuse he punn.... anyway hope all the pinkies on here are doing well how is the others who started a long time after us is anyone still having tratment or rads or is everone done now xxxx

Re: starting my pink road of cemo, 15th nov

Hi girls. I'm here too.
Claire so glad things were ok.
Kerry I agree totally with what you said about living for now. I went to a funeral of a former neighbour today. She was diagnosed with BC after me tho I think it had probably already spread.
We need to try and enjoy life as much as we can.
I've been trying to start to get fit again and have done a couple of old lady classes at my gym as I'm not up to doing the classes I used to do yet. They're hilarious. Also having a free session with a personal trainer tomorrow. Think they may despair when they see me.
Nite nite all. Xxx

Re: starting my pink road of cemo, 15th nov

yes kerry , i agree - as you know i was recalled from first mammo for a scan - just come back and scan was clear - phew! want to enjoy the moment - even my daughter said that she is afraid to clebrate in case it all goes wrong again - i said well, lets live for the moment - cant believe i said it. i never thjought like that before bc.

my recall on tuesday came moments after i had found out that the lady i sat next to for my last chemo had died - i was already reeeling from that news when i picked the phone up to my bc nurse for the recall. the last 48 hours have been a real downer again.
at the hospital today sat in the wainting area for the scan - you know how it is usually quiet, well there was a girl who was "loud" not in an unpleasant way but she obviuosly didnt twig that i had had chemo etc (hair must be longer than i think) and she was talking to another lady about cysts they had had etc (you sit there thinking i wish mine had "only" been a cyst and please stop) she kept on and on and then looked at me and asked why i was there. i told her and she went quiet. I went for my scan and my aunty had obviuosly filled them in whilst i was in the room and when i came out - i stuck my thumb up to my aunty - i couldnt speak- and the ladies all clapped and said they were pleased for me - how sweet is that?

Re: starting my pink road of cemo, 15th nov

Hi all.
Pffffttt .. Just when you think you got this bc lark under control and put in the box marked 'phew, that's that done' does something come out of the blue. On Monday my mum brought her friend to see Eugene, not me, Scarlett or will! This lady has secondries, having had ovarian cancer. Then today I was speaking to a lady who had lost her daughter to cancer, originally lung and then spread to her brain and lymph nodes. Made me start to think, two ways of living, either grasp life with both hands an enjoy the ride or sit and worry at every ache or pain, because if anything is going to happen, it wil happen if you are happy or sad, fat or thin, have rapunzelesque hair of a short crop. So from today, I am going to try living each day as it comes and try not to wallow.
I haven't really sat down before to think about stuff like that, just been glad to get each treatment ticked off, each appointment ticked off and remembering to take my tamoxifen every day. Sounds silly maybe, but it's true, for me.
Hugs to all
K x

Re: starting my pink road of cemo, 15th nov

thanks Kaz - i know you are - so kind of you. xx

Re: starting my pink road of cemo, 15th nov

thanx june, do u feel like you came on the walk with us when reading the poem.

claire, im here.
xx

Re: starting my pink road of cemo, 15th nov

hi all - you all ok?? gone to facebook?