Thanks Summer, will pm you xx
If you want to know anything nottsgirl just pm me. Glad to offer any support needed x
4 weeks on I am thinking of driving and i am walking and resumed normal house duties but no lifting. Cleavage again I have been in touch with the ladies on my diep and they have been great Dima. Good to know what to expect. Have a happy Easter everyone x x x
'Feeling fab'says it all Summer - congratulations! x
Great news Summer. I hope I'll be having the same op in October.
Hi all well what a difference an op makes! Feeling very happy and new woman like since diep flap op last weekend. Still have restrictions for approx 6 weeks. No driving, no lifting, no walking too far until upright etc
I definately recommend to anyone 🙂 feeling fab and more like the old me. X
Yes-good luck Summer - will be thinking of you. Let us know how it goes - there's another forum called 'my diep' you might want to look at/join.
Keep well everyone x
Hi Dima and Summer,
Very best of luck with your recon Summer. Just think, you won't have to worry about necklines any more.
Dima, I feel like you, I want to be normal again. I was looking at some old photos this morning of me and my husband pre-BC. We both looked so carefree and happy, it made me cry. I want to be back to that person again. Not sure that the recon and finishing herceptin will do it on their own but it'll be a good start.
Love to all x
Just thought I would let you know I.m booked for recon on 17th march yikes! Having deep. Excited, scared, looking forward to after ! Hope everyone is keeping well. Jenx
Hi Nottsgal - I too wanted to get on a waiting list for recon sooner rather than later- my surgeon also prefers to wait until Herceptin is over which will be at the end of May, but he only does the LD recon. So at my annual review in November I was referred to an oncoplastic breast surgeon in Manchester to discuss the DIEP procedure which seems to be the appropriate choice for me (although very scary). That appt was in January and I'm now on the waiting list which could be 9 months from now. I suggest you push for your referral asap, although presumably you'll get sorted much sooner than me if you have private cover. I dont know about you, but I coped fairly well with mastectomy, chemo, radio, ongoing herceptin and tamoxifen, but now the worst is over I feel really low and depressed. I've had enough - I just want 2 boobs.
I have herceptin number 14 on Monday - hunt the vein time again. I don't have a date for recon yet either. My onc said I couldn't have it whilst on herceptin but I've since heard that if your heart is Ok you can. Anyway, I didn't want delays after I finish Herceptin (in June)so I contacted the BCN to get referred. She said she would send me some info as 'some ladies decide not to go ahead as they are happy as they are'. I told her this did not apply to me but she insisted I read the stuff she sent before I could make an appointment with her. I got an appointment with her before Christmas and she said I would need to see the surgeons at the hospital where I have Herceptin, but then they would have to refer me somewhere else because they don't do the recon I want. I have an appt to see the surgeons in the original hospital on 23rd March, so heaven only knows when I would get an appt with a surgeon who can actually do the procedure I want. Fortunately, I have BUPA cover through work, so I am trying that route.
Haven't been on here for an age - just had my 13th Herceptin - 5 more to go. Where are you up to with yours Nottsgal? I think you were on a similar regime to me? So much has happened to us all, but strangely the last year has flown by. Personally I wont feel any level of normality until I've been 'reconstructed' and I still dont have a date for that yet. Take care all. x
Just idly wondering what we were all doing a year ago (page 336). A lot were injecting themselves / getting husbands to do it. Kaz needed springing from hospital and some others had been into hospital and come out again.
Now we're back to supposedly normal life, it all seems so long ago.
I'm not on here v often now but still think about you all.
Cant wait for our meet up my train is booked woo xpinkies go to Bath xx
hey all u pinkies. . .
Are you on facebook have a look for me same profile pic as here julie sunderland or newcastle it sometimes comes up as and ill send a link xx kaz might be able to tell you if theres any rooms left but it would be lovely to see you xx hope you keeping well x
Hi Gill glad you found us easily and hope our tips have been some help omg youre profile pic brings back some nasty memories of needles and red stuff yyuukk i feel sick just thinking about it ha ha how far are you through treatment x
Happy 2012 to all!
Been ages since I was on here, good to catch up a bit with all the familiar names, like long lost friends you are 🙂 How do I find you on Facebook? And is there room for a gobshite Manc on your next meet up???
Hope all well, love and hugs to you lovely people who've helped me so much over the last year. Here's to better health all round
Pink princess if you dont read any other pages read the chemo tips page 2 on here thats what helped us the most. As for node involvement theres no guarantees with or without node involvement i know people node negative who have had secondaries but the chemo and rads give you a benefit % this is greater than if you dont have treatment so you just have to concentrate on the benefits its giving you and greatly reduces the risk of reoccurence so try not to focus on that. I also believe that a positive state of mind and outlook helps a lot so live laugh and enjoy doing nice things on youre good days.you will start to plan and look to the future again .... honest xxxx big hug jules
Happy new year pinkies found myself on here again as i reflected over the past year and a half Two years in march for my initial diagnosis and it makes me so sad to still be reading those posts of just diagnosed and starting chemo. It brings back all those panicky low emotional times. But hey ho here we all are and planning our 2nd pinkie meet up. Woo hope all you ladies finished treatment are keeping well and all the new pink ladies on here still battling treatment big hugs to you all and it does pass quicker than you think and you will get there ....... you can do it and kick its ass ..... love to all Jules xxxxxxx
PS poppy it branched out onto butterfly lane xxxxxxxx
Happy new year pinkies
Hey both.long time no chat
Where did that pink road 12months go.
Hope ur all doing gud n hheres to the nect 12 months xxxx
A Very Happy christmas to you all and echoing cat's words. I too have not been on here in ages but thinking about you all and those having treatment. What a difference a year makes indeed!!!
Hope eveyrone is keeping well
Love to all!
Jen x x
Not sure how many of you lovely pinkies are still keeping up with thie site, I haven't been on here for ages!
Wishing you all a wonderful, happy and healthy Christmas!! And what a difference a year makes!
To all those ladies out there having treatment, my love and heart goes out to you during a tough time.
Love to you all and your families.
noway, . its affecting so many people
dotn worry about cooking, watch the programs in the day and youll soon get some tips lol
tell the onc next week how u felt at diff stages x
just feel weird, when i had chemo apart from feeling a few rough days felt ok, thought this is a breeze but not feeling that now.
lost my job and cant cook to save my life I AM SO NOT HOUSEWIFE MATERIAL lol
one on my fiends friend has just been DX at the grand old age of 34!!
try not to think on what if's just look at your building up yoru army to fight , , it all preventative hun, , the cancer has been took away
hopefully you should pick up now as your in week 3. xxxxxx
really dont know hun, i tried not to ask about it comming back.
the cemo hopfully kills off any random cells that may have gone elsewhere. as for lymph node involvement im unsure what diff that makes as they are removed the same as unaffected ones
batts going on the phone, im low tonight im on day 16 and its all happening ekkk xxx
another strange question but i really need to ask!
are you more likely to get secondries with lympy node involvment? ONC said to me i wasnt in the high risk cat but not in the low risk cat of it coming back?!?
so does having chemo lower that risk or will i always think im in the medium risk cat?
hey hun, gatecrash as much as you like babe, however we all seem to go on facebook now. . .
lady garden is usually the first to go. lol xx ill tex u
hope everyone is well?
can i bump into and gatecrash ur thread? day dat 16 on first chemo and head hurting, lady garden coming out big time but i dont mind that hehe!!
read some of the post but cant read all pages as i wouldnt have a social life lol!!
Oh babe . Thats poo
People have no idea wat its like unless theyve been on the pink road themselves
I agree it must be awful for parents to see their child go through cancer. However they dont see what we hide from them , your kids saw it all
Scarletts letter had a right to go in with grandmom. . No one has the right to stop u
Wish i lived closer. But you ave us pinkies. N we understand lean on us babe xxxxxxxxxxx
Hi Kerry. What an awful time you're having. What harm would it have done to put Scarlet's letter in the coffin?
It sounds like you're not getting support where you need it from your mum either. Anyone would think youhad a choice in whether you got cancer or not!
Sending you a big hug.
hello mrs Bird
I am so so sorry to read that you have had such a horrible time , there are so many times when we feel so alone and feel we cant turn to anyone , i can really feel your pain , all of us suffering this dread full desease have at one time or another felt alone and isolated .
But were all in this together and we will be here for eachother and helping eachother through the hard times so if you need to talk or just let off steam your in the right place so please keep posting .
Ime sending you Positive thoughts
And also Big Hugs
Have wrote this post so many times, then deleted it, because its crap.
My grandma died, not unexpected, but sad. The usual family arguments, scarlett (with no prompting) wrote a letter and drew a picture, glued it and asked for it be placed in mo's coffin. Two of my mums sisters have over-ruled this, incase my scarletts letter is malicious. My mum said she didnt fight our corner because she has her own crap going on. Santa took the letter to mo's away with the kids present lists. Feel really let down and pushed out, and angry with my mum, which leads on the second thing. My mum is been investigated for an ulcer, caused she tells me by 'my cancer'. My mum rings me maybe once a week, see's us every school holiday. Thats all, she lives about 20 minutes away, but is busy with her dogs. She wasnt around when i was doing chemo, she didnt help, she didnt see me ill. She has been signed off work for a month to cope with the stress, and is seeing a counsellor to talk through her stress. Feel really bad for saying it, but how dare she discuss my illness with strangers. She has been told that when a child has cancer it really affects the parents, she told me i was selfish when i said that it affected my children more, because they saw me poorly, rubbed my back when i was sick and cuddled me in bed when it hurt to move. crying writing this, feel so upset. sorry if i have upset anyone, but no one else to talk too. Tried to talk to my aunty, but she didnt want to know. sorry
hey,, yehhhhhhhhhhh all ok, thats good news.
poo about yoru back though. . and tamox has a lot to answer too!!
get on face book hun, we have a group on there, and its prviate so only the pinkies can see it. bath info on there.
march last weekend. xxx
Hi Poppy. Sorry to hear you're not feeling well.
Got on ok at check up. Had back x ray as I had a bad back for a few weeks. Was ok so seeing Osteopath at work now. Having CT scan in next few weeks. Had a few headaches but I'm sure it's the tamoxifen.
How's it going at work. Hope it's not too much for you.
When are you all going to Bath? I might be able to come if that's ok.
All the best.
Bumping. How did u get on polly
I need to sort out bath too. Pinkies go to bath!!!!!
Ps full of cold sore throat n aches. Should our immune sytem be back to normal now
What a year we've had. It still seems unbelievable doesn't it.
Couldn't have got through without all my fellow pinkies.
First check up tomorrow. Fingers crossed.
Love to all.
thanks for the bump Julie, i hadn't expected to find thread so easily! :))
Just bumping this up for some newbies xx
Xxxxx suzyb xxxx we did it girl xxx join us on facebook
A year ago 15th nov cemo start. I think how amazing we have done xxxxx
Hiya girls just thought id pop in on our year anniversary sorry i dont come on much but i do keep up with most of you on face book to anyone thats not on there i hope you keeping well and feeling stronger after all treatment over and possibly back to work. Hope you all keeping well and maybe meeting a few more of you in our meet up in Bath in March xx take care all Julie
Nearly a year now since we started the pink road of chemo...feeling a bit down - this time last year I had both boobs and longish hair, I was me. Just feeling a bit sorry for myself today, wishing I'd never had to go through it all and that my body was still OK. Daft bint I am, I'll get over myself, probably be fine tomorrow but quite teary today (and at work!!! need to get a grip!)
Hope others OK
kez, , great u had nice time, dont worry about the tan, , get a spray. lol
i know what you mean about being two people. .im a bit like that, , kaz on the inside that gets scared and upset. and the one the world sees. . ill do a deal with ya, , we get to be the people the world dont see with each other xxx
and yehhhh come to brum
went to work yesterday , and tommorow and friday, it was ok, but i think that will wear off when i have to do more hours. lol
Kaz - excellent news re tests
Little Angel - huge hugs xxxxxx
To everyone - keep on keeping on
Love to all
Minny - enjoy oz:-)
Claire - good news on the job. Fingers crossed. I have had blood taken from my bad arm, doctor told me its ok to have it done.
Kaz and Claire - will be down in brum some time soon - rob has loads of silver to take to jewellery quarter so may be able to arrange something????
Home from holidays, was nice an relaxing. Don't tan like I used too, and didn't get munched by Mosquitos like usual! Wonder if I taste bad now??? Twas my dx anniversary on Saturday. Really want to be able to leave this year behind and get on with my life, trying to with gym, going out and stuff, but it's hard. I seem to be two people - there is a getting on with it Kerry, who says it's just a blip, it's all ok here and a sh** scared, did that really happen to me person. Other people don't help either I seem to be a poster girl for being brave to the tiilty brigade or it's as if nothing has happened. Probably because they see the Kerry that says 'HOW VERY DARE YOU ' to the whole cancer schizz........
Kaz- so pleased for you xxxxx
jackie- all the best
i went for my results today of the lump i had on my operation area. they lost my results, and found they had gone to cheltenham in error. by this point i was nearly passing out with fear. . anyway after a wait they were obtained, and was clear. crying flooded out, then i went asda and got some high in calories cookies. no butler for me tonight
hiya poppy ime starting mine as well on that date so maybe we might bump into each other , ime worrying myself sick about it, i had my mastectomy on sept 28th an been in the waiting room since , i think the waitings the worst , take care , jackie xx