I reckon minding1yr old Grandson (gorgeous as i am sure he is) and taking Mum to hairdressers are exhausting enough with having had the Radiotherapy. It is difficult becasue we all want to / have to carry on as normal for everybody else.
In terms of side effects from Radiotherapy i was lucky they were minimal, bit of pink skin, scar tightening etc but i did have a week or so after i had finished completely where i had to have a rest in the afternoon and this is not my usual. I reckon the Nurse is so right and to carry on for at least 2/3 weeks after as if you were still having Radiotherapy.
Take Care of yourself Claireglen and try to get rest although i know this is not always easy when you responsibilities.
Take Care Gilly x
I have done day 4 of rads today. Magical Moon's post made me think about waiting room etiquet. (Magical Moon is one of my favorite people here, so this is not critical). The first few trips to oncology I found myself quickly looking away from anyone with no hair or visibly ill. Then I saw a lady the other day with her head down scurrying past and I realised she's even more worried and frightened than me. Recently I have found it quite comforting when strangers in waiting rooms have wanted to talk because it distracts me and hanging about in waiting rooms is my worst time for negative thoughts. So I have decided to try to maintain an open body language and smile rather than turn away when I see someone I percieve as being poorly. Would anyone with no hair like to comment on how they find the other idiots in the waiting room? Elaine
I have seen another post on that here. I am on the Import High trial which is looking at higher intensity near where the lump was and lower intensity further away. Although beforehand I though I would not want to be a guinea pig, when I looked at it, I didn't feel there was much risk and I will get more detailed checkups.
If you put Fast Forward in the search box you might find the threads.
am about to start radiotherapy and have been asked if i want to be involved in a clinical trail Fast Forward where you have 1 week rads instgead of 3 weeks anyone else doing this or have any comments thankyou Gill x
Great that you have started and are comfortable with the process. It is a bit of an unkown isn't it until you start.
I finished 3 weeks ago and did not like the first few sessions but settled down to it and the time went quite quickly. The delays are quite frustrating, specially if like me you always arrive early!
I applied lots of cream before, during and after. The other thing that was mentioned to me was to drink lots of water.
Hope it all goes smoothly for you.
Hi Pink-lady and welcome to the BCC forums
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Day 3 today. It's not been bad but yesterday I was shocked to find one of the radiographers was a young lad (can't even use the term man). I wasn't expecting this I was expecting all female staff. I felt awkward having to strip off my top in front of him. Today same lad called my name & when I went in there was another young lad, so that was two male radiographers. Couldn't believe it. I had a cropped top on today as I've felt more comfortable with it than going bra-less. So I just pushed it down once I was on table. Then a female assistant came in as a chaporone I think. But all 3 were less personable than the two female staff I had on Mon. They seem to be on a rota which I can understand so they're not exposed every day but does no-one think about the female patients at a female breast rads treatment clinic?
2catlady. How awful! Why did you have to pull your knickers down for breast rads planning? He should be sacked. That sounds wrong.
I had WLE & SNB mid August. Had quite a wait for various test results. Decided not to have chemo. Had rads planning 3 weeks ago. Hospital cancelled start date last week. Had to buy (I see some on here are given it) acqueous cream, but I think it's making me a little spotty. Started rads today & hospital told me that they've had new guidance & they've been told there is no evidence of cream making any difference. Also, just to report my experience, no gown offered at my hospital as you just go in the room with the machine & strip off, same with the planning session. They also told me no shaving & no deodrant unless it's Pitrok or similar which I've moved to anyway which doesn't contain aluminium or parabens, but just washing at the mo with Simple soap but gonna give the cream a miss for now. I will be having bone density scan before I start hormone therapy once rads finished.
Hope the radio is going ok. We have a room to change into and also provided with a gown which we can take home until our treatment is finished. Must say the care at our hospital has been excellent. Good luck
I had WLE and SNB on 6th Sept - clear margins and no lymph involvement. I did ask if I would need chemo at my diagnosis and was told it would be like cracking a walnut with a sledgehammer as my tumour was so small (12mm). Now nearly half way through 4 weeks of radiotherapy and started on Tamoxifen.
I am glad I wasn't given the choice as I really don't know what I'd have done.
Good luck to you and to Dana1 with this decision XXX
What a tough decision. My only advice would be to talk to everyone you can (good idea to get a second opinion) and keep an open mind.
Sending lots of hugs and posiitive vibes X
Ladies, the one bonus of rads is I no longer need to shave my armpits!!!!!
I just washed with simple soap or boots own brand.
Deodorants - be careful and ask at your clinic, as these 'pure' ones are a pure aluminium salt, so not good during rads. Look at the contents list....
All the best to all of you, I found it OK even tho it was a160 mile round trip every day for 3 weeks!
I know exactly what you mean about accepting that you have cancer, I'm not sure I have either. I mean I am now used to telling people without getting upset but do I really believe it, not sure. For ages after the dx I kept thinking that they must have got the samples muddled up in the path lab. Apart from the little lump there has been no other symptons, it has not made me feel ill, its the treatment that has done that.
It's a strange business that's for sure.
Feeling a bit down this evening I guess, I had to wait nearly an hour for my rads this afternoon and now they've changed two of my appointments to early evening which doesn't suit at all. I don't like all the man handling or lying there on my own while the machine does it's thing.
Sorry to sound gloomy.
Glad it's all going well
I'm just over a week into a four week program of rads and so far it hasn't been as bad as I was expecting. I'm starting to get a little sore and red and the area is feeling bruised but nothing too bad at all. I'm a terrible sleeper and constantly tired anyway so no change there then!
We've been told to use aqueous cream (provided) or aloe vera gel - but only to use one or the other, not both as they will cause clogging. I am also of the smelly armpit brigade, am using the crystal type one from H&B but it doesn't seem to do much - I have ignored their advice of not shaving as I aleady feel ugly with the scar and I'm not making it worse with hairy armpits!
Countrybumpkin - I know what you mean about them being so young. I'm 44 and I swear everyone in the radio department are young enough to be my children. Such a lovely bunch of people though and it's hard not to move when they're making me laugh so much!
Good luck everyone
Yes, it wasn't too bad, I just don't like lying on those machines...
The vest top worked well, Someone else on the forum suggested it I so thank you for that. I just pulled it down when I got onto the table.
It is strange that different places have different rules for what you should and shouldn't do, I'm one of the smelly armpit brigade!
Thank you Sian for sharing your experience, I'm glad it's gone well for you.
1 down another 14 to go....
I thought you might like to hear from someone who has just finished rad 3 weeks ago. I'm almost 61 and a small lump was removed at the end of July. I didn't need Chemo thankfully so cannot compare. I had 15 sessions of radiotherapy and apart from a little tiredness in the second week I felt Ok. I had a little blip on the 2nd session when I thought "what am I doing here" and got a bit overcome. The first day I was asked If I'd like a gown but there was no changing space so I guessed my answer was supposed to be "no". That day it felt OK as the were 3 females in attendance. The second day however it was 3 males. I'm not prudish but I think it was then that I felt as if I was a bit of meat on the butcher's slab! The staff were always very lovely but I think it was that day that it really hit me that I had BC. We keep soldiering on saying "I'm fine" so much that we can almost believe it. Almost.
3 weeks on and I do feel normal now. My energy levels have returned and I want to get stuck into projects again.
Hopefully it's all behind me now and the new year will bring good things to you all too
Very best wishes
Your situation sounds similar to mine, I am a week ahead of you, start tomorrow.
My hospital have recommended using doublebase gel on the breast so I have got that on prescription,it's quite nice, fairly light. Different hospitals all seem to give different advice as to what creams etc to use.
The assessment session wasn't great, at one point I had 4 people peering at my wound as it still had a scab on it. The consultant is going to have a look at it tomorrow to make sure they are happy with it.
They have also said to bring a dressing gown as they have nowhere to change????? Can't work that one out.... if nowhere to change then at what point and where am I supposed to change into gown? Anyway I have bought one of those vests with breast support so will just pull it down before I lie on the machine.
Will let you know how I get on. My treatment is at st Thomas's, London.
All the best
Yes, I am starting on Monday and am VERY apprehensive.
I had wle and snb early September and no chemo so the rads are terrifying me at the moment.
Good luck to you and keep us posted.
Anyone starting radiotherapy soon. I start next week. have had my marks put on and had a CT scan. am not as haprehensive as I wa swith Chemo. Good luck to all of you starting it.