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starting radiothereaphy dec

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Re: starting radiothereaphy dec

Mazzalou I didn't know that I could have problems with movement of my arm with RADS treatment that is really annoying because I have only just got rid of cording! Hopefully will be ok but I am going to keep up with the exercises in preparation. I still can't get used to my new tats especially the one on my chest it looks like a big blackhead that needs popping, I really have got to ignore it.

Please keep us posted queenie on any tips you get along the way, I feel really anxious about the RADS think maybe when first one is over with I will be ok. They suggested taking a CD into the treatment room, is it worth it for the time you are in there? I do love my music but also can't help jigging about when it is on worried that I wouldn't be able to keep still :))

Mazzalou
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Re: starting radiothereaphy dec

I suppose that one of the pluses of chemo (as opposed to the countless downsides!) is that I didn't have to worry about shaving my legs or underarms all summer.

Today I am 8 weeks since my last chemo and I keep looking at my leg hairs which have started appearing, and, like King Canute, I keep telling them to go back and reappear on my eyelids but they do not take any notice, and just wave at me!

Why is it we wait so long for certain hairs to appear, whereas the ones we have previously spent hours in the past getting rid of, come and flaunt themselves shamelessly? Is there no justice in this world?!

At least all this points to my ‘green shoots of recovery’ as my body slowly recovers from the battering it has endued these past few months.

Anyway, back to the tips for starting radiotherapy - I have also been advised to try and wear cotton and natural fibres next to my skin and avoid underwired bras. I bought some Sloggi crop-tops to wear in bed after my mx with reconstruction and these are a good idea as they give you some support, but are lovely and soft against your skin. They wash well and are quick to dry too which at this time of the year is important too. They cost around £10.

I think that this is worth bearing in mind too. I had my 6th of 15 rads today and asked the radiologist if the treatment makes you feel tight and stiff in the underarm area as I seem to be finding raising my arm on the treated side uncomfortable. She said this can happen as the area becomes inflammed, and recommended that I now start doing my post-operative exercises again, and continue for a couple of weeks after my treatment finishes.

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Re: starting radiothereaphy dec

ladies hope you dont mind if i join in!!i`am day 4 out of 20 so far so good only thing i will get hopefully is fed up with the travling 1 and a 1/2 hous there and back for 10 mins at hospital (if they are on time)am putting on aqueous cream all over boob cheast area will keep you posted as how i`am doing
take care
queenie

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Re: starting radiothereaphy dec

many thanks Mazzalou you know what I don't know what we would do without this site it is so helpful

and oh boy yes I am glad it isn't going to be hot weather after the lymph op when I couldn't shower properly or shave etc my pits were........well shall we say not pleasant :)))

I have been putting little spots of E45 on my scars and now my tats looks like I need to slap it on all over thanks for the tip x

Mazzalou
Member

Re: starting radiothereaphy dec

Just a quick one to say that, if you are not prescribed aqueous cream, you can buy it over the counter relatively cheaply. Remember too that your breast tissue extends beyond your boob so apply it over a wider area for better protection going up to your neck, extending to your underarms and down your torso.

Also, I was told not to use deodorant either when having my radiotherapy session so let's be thankful that this is not hot, sweaty weather!!

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Re: starting radiothereaphy dec

thanks you ethlydsyl really pleased you didn't feel sick, I can cope with anything but that. I am going to call the RADS team today regarding moisturising before hand as I say they never mentioned it all they said was I would receive a pot of cream when I start the RADS so thats interesting.

Hey Julita good to see you have joined the thread on here my lovely 'virtual buddie' x

ethlydsyl
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Re: starting radiothereaphy dec

sunflower-never felt sick at all x

ethlydsyl
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Re: starting radiothereaphy dec

hi ladies-i had a wle july 5th and started 15 sessions of rads on aug 17th. i moisturised like mad with aqueaus cream for weeks beforehand-no side effects whatsoever-moisturised 3 times a day during rads-used no soap or deodorant on effected side-boob went a bit pink but no probs really.my hospital wasn't too far away but i did book some time off work-i am 57 and fit before dx.11 weeks down the line all fine-but i do get exhausted sometimes-but just listen to my body and have a rest(which is against my nature as i'm an always on the go sort of person)-good luck to all-this time 3 months ago i was petrified-but i have been discharged from the oncology clinic and it's just yearly mammagrams from now-feel free to ask me anything-on here or private msg me-stella x

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Re: starting radiothereaphy dec

Hi I am definitely joining this thread because my RADS start 7th December, been today for CT scan and tats. Thought I was coping well with everything then had a wobble last night worried about what today would bring, at least it is over now and I have a plan in place.
I am going to read the links that Lucy has put on now because no one mentioned cream today and I was too stressed to remember to ask.

I met a lady today who had just finished her last treatment of 20 RADS today she said it has been ok just the travelling to and from has been a pain and middle of the 2nd week she became very very tired so after treatment went home had an hour then was ok. Know we can't all do that but sounds like a good idea, she said she tried battling through the tiredness but couldn't do it.
Spoke to another lady she said she hadn't really noticed any difference so I think it all depends on you and your circumstances, she only had 5 mins to get to the hospital other lady was doing a long trip like me so maybe it is the actual journey too, I don't know but we are soon going to find out!!

They told me today that the RADS may start to make me feel a bit sick and tired over christmas, well Happy Christmas! hopefully our SE's will be small

Lucy_BCC
Member

Re: starting radiothereaphy dec

Hi Deanima

I am posting a link to the BCC radiotherapy information booklet which may help, you can also contact our helpline or Ask the nurse service for help with your query using the following links:

http://www2.breastcancercare.org.uk/publications/treatment-side-effects/radiotherapy-primary-early-b...

Ask the nurse & Helpline

http://www.breastcancercare.org.uk/breast-cancer-services/ask-us-your-questions

Best wishes
Lucy

Mazzalou
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Re: starting radiothereaphy dec

Hi there

Just in from my 5th radiotherapy session so only 10 more to go. So far so good, and I have been recommended to use Simple Soap, apply aqueous cream and only pat the area dry. I have been told that any soreness or redness is likely to appear 2 weeks after treatment finishes which for me will be over the Christmas period!! Let's hope the aqueous cream does the trick!

As for tiredness, I'm not at work at the mo which I think is a big help, especially at this time of the year when it is so grey and miserable out. So far the most tiresome part is the 60 mile round-trip journey, and because car-parking is so bad I make sure that I get to the hospital well ahead of the visiting time parking to be sure of a space. The only trouble is this means a lot more hanging around waiting for my appointment, but, hey - you can't win 'em all!

Compared to chemo, radiotherapy is a doddle, and, as Cherrytom says you get tattoos into the bargain!

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Re: starting radiothereaphy dec

Hello dear ladies!

Since I found this site I was asking thinks for my mother.Her breast cancer was diagnozed in march.After her tumour was removed she started the chemotheraphy,which she finished at the end of september.Because of some kind of cyst on her breast wich was removed she wasn't able to strat the radiotheraphy.I think that this will happen soon.She's worried about the theraphy because of its side effects.She heard that the rads could affect some of the organs.What do you think about this and which are the side effects you experienced?

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Re: starting radiothereaphy dec

hello ladies am on day 3 of 20 will finish on the 16 dec.so far so good have also started tamoxifen (for 5 years) and again so far so good keep puting the cream on.ive got 1 and 1/2 hours jouney to the hospital so thats what i think will tire me out but you never now.at least its the last hurdle to jump!!!!!!!!!!!!!!!!!!.

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Re: starting radiothereaphy dec

Hi, I start radio today! Last one will be 19th of december. Im looking forward to xmas like never before. But Im nervous, I so desperately want to keep 'normal' life going during treatment, doing the school run etc. Apart from skin complaints, how tiring have others found it? Were you able to cope with day to day life? And, all that is in my head at the moment is why? Why me? xxx

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Re: starting radiothereaphy dec

Hi all, I'm also starting rads In Dec. Start on 1st and finish, all going well on the 21st - so just mananged to get all the active treatment done by Christmas. I was told to use aqueous or E45. Had my planning meeting yesterday and had my 1st ever tatoos! (Ok, they are only freckles!)
Best wishes to all xxx

Julita
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Re: starting radiothereaphy dec

Hi everyone
I am joining this link as I now have my treatment plan and I go for the CT Scan next week (Tuesday) then RADS from 13th December until 5th January. It should have been just 3 weeks but the holidays in the middle mean that only one week will be the full 5 lots, not sure if that is a good or bad thing, I felt that I would prefer to have the 5 visits each week and get it all over as quickly as possible, but I do not have a choice and I feel bad about moaning about even this as I have been one of the lucky ones with the op sorting me out completely no lymph node involvement and only RADS to cope with. I know that many have much much more to cope with. I am using Aqueous cream already after reding what has been said here, I am sure that it cannot do any harm and just may do some good.

Cackles
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Re: starting radiothereaphy dec

Evening tiger pig and Kinsee. Think you are right Kinsee. Skin care is important and varies from unit to unit. It is always best to use what you unit recommends rather than potions which might cause problems. If in doubt ask your Radiotherapist. Aqueous cream is the most commonly used but the most surprising creams can contain things that might cause rashes etc. in combination with DXT.
The biggest thing with Radiotherapy is not to rub the area or use anything containing perfume and pat the treated area dry or use a cool hair dryer. I downloaded the BCC publication, and you can ask for it from the Helpline.
Cackles

tigerpig
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Re: starting radiothereaphy dec

Kinsse-Never knew that,i bought myself a bottle just after surgery,funny have not used it but tonight because my skin feels so dry put a few drops in the bath.Tigerpig

kinsse
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Re: starting radiothereaphy dec

I thought I'd read somewhere that bio oil contained oestrogen, so if you're oestrogen positive you shouldn't be using that

Kinsee

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Re: starting radiothereaphy dec

Hello I've been using bio oil all through my chemo and asked BC nurse if bio oil ok to use while having radio she said check with radio team as thinks there may be some ingredient in was not quite sure I going to ask when there on 7 th dec but maybe someone might find out before me or you. Having boob out the way my scar looks not looking forward to that but it worked when I breast fed so hey Ho....

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Re: starting radiothereaphy dec

I'm also starting radiotherapy about the same time for 3 weeks so will also be watching this thread avidly. The comment about having boobs out on show really made me laugh although sure it wasn't funny at the time.
Karlofkat, you mentioned bio oil - how soon after your surgery did you start using that? I'm 4 weeks postop and have been moisturising whist doing anit-lymphoedea massage and massaging chest to soften boob ( had lat dorsi flap reconstruction at same time) but have been avoiding scars so far. Wondering if I should start on the scars now too!

Slendablenda
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Re: starting radiothereaphy dec

Thank you Karlofkat, maybe it won't be so bad after all. I've got a lovely picture in my head of you proudly sporting yukky boob!

sivam
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Re: starting radiothereaphy dec

i too srart Rads end dec hpofully ,last TAX-C 23rd Nov.From the posts above looks like the moisture treatment should start now, having Seroma drained almost weekly since Aug,hope it has dried up by then.Alredy this thread has come up with so many tips already.Find BCC forums so informative and helpfull Thank you BCC.
Love and Light xxMavis

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Re: starting radiothereaphy dec

Hi to all you girls about to start with RADS I had 5 weeks of RADS which started 6 weeks after my second op so still had lots of scar tissue but had been using Bio Oil and as firm a massage as I could bear before the RADS, during I stuck to the Aqueous cream and kept it in the fridge pure bliss on a hot sore boob. The last two weeks of treatment I went braless as was just too uncomfortable with; had last treatment on a friday and although skin was red wasn't blistered or broken, then woke up on monday moring to the boob from hell............advise from BCN was to try to keep it dry & uncovered, good job hubby didn't mind me sitting around in evenings with scabby boobs on show LOL! About a week after end of RAD was healing so back into sports bra then onto underwired after about 10 days. Suddenly realised about 12 days after end of treatment that I didn't feel so tired and now it has been 11 weeks post op and 5 weeks since end of RADS and apart from tiny biy of scar tissue (keep massaging) and odd shooting pain feel almost like normal, have check up with ONC on 25/11 but hopefully will be signed off until next mammogram (could be 3, 6 or 12 months. I'm 51 and was otherwise fit & health before all this kicked off in April, so to all you newbies hang in there, there is light at the end of the tunnel. XX

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Re: starting radiothereaphy dec

Hi Michells

I used a rose cream (from a health food shop) on my scar and aqueous cream all over the breast.
When l started Radiotherapy I used Blue Tansy aromatherapy oil mixed in with the aqueous cream and I had virtually no problems at all.
You do hear some horror stories but I'm happy to say my skin was all healed in just over two weeks after treatment ended.
The aqueous cream will moisturise but the B/T oil will help it heal quickly.
I would say it's most important to use this whilst you are having the course of treatment, and not just aterwards.
Good luck xx

lisha
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Re: starting radiothereaphy dec

Hi everyone, just one more week and im starting mine but i hope you dont mind if i stay with this thread as i have four weeks so will still be having them tilk dec 16th xx

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Re: starting radiothereaphy dec

Hi
I have an appointment on Wednesday regarding RADS, I am thinking that the treatment will start pretty much straight away, hope so anyway to zap any gremlins that are left! so I think I will be going through this process with you in December hope you don't mind me joining this thread

Slendablenda
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Re: starting radiothereaphy dec

Hello
I'm starting rads on November 29th and finish on 23rd.December.
Have been told to use aqueous cream only before and during rads so have requested large pot from GP on prescription as they are free during treatment. I have been told that due to my surgery scar position and skin type I will have problems with my skin so am expecting a hot, sore boob for Christmas this year!

sunshine_1
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Re: starting radiothereaphy dec

I start on 1st December for 3 weeks so will be finished by Christmas. Have got a large pot of aqueous cream from hospital pharmacy. Was told not to use boots brand (tesco and superdrug are fine). Have to moisturise the area twice a day at least a week before. Luckily after axillary clearance 5 weeks ago I am able to get into the right position for treatment, although having been left with cording it is a bit uncomfortable.

xx

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Re: starting radiothereaphy dec

Hi Lisha
I was told the same re aquis cream.
I start my rads on 8th dec for 4 weeks so that's Christmas a bit hampered but at least the chemo out of the way.
I hope we all sale through this with none or very little SE.
Good luck xx

lisha
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Re: starting radiothereaphy dec

Hi Everyone ,im starting my rads on nov 21 but will still use the dec thread as i wont finish till dec 16th.Thats all being well with my bloods on thur for my last chemo ,otherwise i will be a week later .Fingers crossed .Ive been told my unit give you aqueous cream so started putting E45 on already to moisturise it xx

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Re: starting radiothereaphy dec

I completed my course of Rads in August, what I can recommend is that you moisturise your skin as much as you possibly can before hand, then when they give you the aqueous cream try to use it at least 3 times a day, also let the air get to your skin as much as you can too.
Rad can make you tired, so listen to your body and rest when you need too.
I worked all the way through my treatment, I had just a day and a half off for my operation, but that's because we have our own business, but I did go home early when I neeeded to and still do, yes I got tired and very emotional, so basicaly on the worst days would flop onto the sofa when I got home and let himself do the dinner etc.

sarahlousie
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Re: starting radiothereaphy dec

Hi,
I am also starting radio in Dec for 3 weeks, still recovering from my mx with lymph node clearance 7 weeks ago and still cant get my arm above my head which apparently I will need to be able to do otherwise they wont be able to do the radiotheraphy. Will follow this thread. I've not been using anything on the scar tissue just showering as per normal I did get blisters from the compression bandage they put on me in hospital to bring the swelling down and I have been putting aloe vera gel straight from my plant split a leaf down the middle and push out the gel I think its pretty good and you know there is nothing nasty in it. Dreading the feeling hot thing, bad enough with the hot flushes I'm still on herceptin and recently added tamoxifen.

Love and light
Sarahlousie xxxx

GIJaneH
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Re: starting radiothereaphy dec

I read somewhere to get the skin well moisturised before you start, because skin is made up of loads of layers and you want all of it in good shape, not just the top layer. I don't think it matters much what you use pre-radiotherapy - use your favourite or whatever works for you. As OAL said, there was a mixture of experiences DURING rads... most units recommend Acqueous Cream - there's a whole thread about that, and about how it's shown to thin skin on people with excema (and therefore, presumably, us too). My unit said I could use anything that was OK for babies - I had bought an Arbonne moisturiser because it FELT coolingi when I tried it. As it had the picture of a baby on it, they said it was OK! I liked the Aloe Vera Gel (99% pure) straight after treatment, it cooled it down. I used the Arbonne morning and night other times. My skin didn't break at all, and I had no problems at all.

The area you need to "prepare" depends on what you have had/are having done. I had a mastectomy and node clearance. I prepared the "boob" area, but never thought to prepare the armpit, or up the neck on that side - both of which were radiated....

Fatigue is common after rads finish.... I was told it was because the good cells were killed along with the bad, and the body was putting its energy into repairing the good cells. I have been very lucky - I was still tired from chemo and didn't notice any difference after the rads! Just been getting stronger and stronger.. nearly 6 weeks post rads now and I'm going back to work next week after nearly 8 months off! Hope all goes well for you..Jane

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Re: starting radiothereaphy dec

Hello I will follow this link too as I to am starting in dec. Good luck to us all xxx

oldandlumpy
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Re: starting radiothereaphy dec

I think it is different if you have chemo before radio therapy because your body is still recovering from that. I just had rads. I decided to try and get my skin in good condition before it started. and I dont suppose it matters what you use for that. Bio oil,moisturisers etc. But leave aqueous cream alone. I moisturised the whole area under the armpit and accross to the other breast, paying special attention to the bit in the fold under your breast. I stopped wearing wired bras so that the skin was not being worn away before treatment started.

radiotherapy is every day and not necesserily at good times, so you need to get your life organised and get any transport and support systems in place. If the daily appointment and travelling is going to take say two hours out of your day, what are you going to give up. Trying to fit it all in as usual is not going to work, you will wear yourself out and then the side effects will be worse.

Lots of discussion what to use to help the skin not break. I hated aloe vera, did nothing for me. But some love it. I used emu oil, but then I am wierd. But my skin did not break. My breast got very very hot after treatment had finished but i just hung my neck buddy down on it and it really helped.

Tiredness, well they said i should not have a problem, but two weeks after it finnished I hit a brick wall and suddenly had to spend long periods in bed, I was gobsmacked cos i thought i was sailing through it. i am ok now though it did not last long. But i suppose it is still early days

lisha
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Re: starting radiothereaphy dec

Hi hope you get some replies soon i shall watch this tread with interest . I finish my chemo on 27 oct (hopefully unless any delays) so i am hoping i will be having radio in dec .Not sure how long u wait inbetween people keep saying three weeks but is that the three normal weeks you have after chemo or three plus . Hope you get your answers soon xx

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Re: starting radiothereaphy dec

Hi michellem,

While you waiting for replies I thought it might be helpful to attach a link to BCC's publication on Radiotherapy:

http://www2.breastcancercare.org.uk/publications/treatment-side-effects/radiotherapy-primary-early-b...

Please do also give the BCC Helpline a call if it would help to have further information and/or support Tel. 0808 800 6000 Mon-Fri 9am-5pm and Sat 9am-2pm.

With best wishes,
Anna, BCC Facilitator

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Re: starting radiothereaphy dec

I'm nearly ready to start, and leaving well alone. Too much meddling about isn't always a good thing, well for me it isn't.

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starting radiothereaphy dec

Hi I am starting radiotheraphy in Dec how should i be preparping myself, for this stage of my treatment, like my masectomy scar should i apply cream to that area reading mixed reviews about aqeaous cream and E45