Thanks for all the Christmas good wishes and I'm sending lots of Merry Xmases to you all too and Happy healthy New Years. You've all been really great listeners and been really encouraging throughout so thanks for that - its definitely helped me as I was struggling at the end of 10 months after 3 big treatments.
I think its the end of this thread for me as my rads finished 10 days ago and my itchy skin seems to be peaking and now I'm waiting for it to flake off- lovely, not! Might be itch free for Xmas but I don't get a follow up until March with radiotherapy as they said it continues to work for several months. Hope everyone still on rads gets some comfort from itching by Xmas too.
I'll be moving to the Tamoxifen and hormone threads now. My medicine is Relonchem and I've now begun to take it at night but seen no difference in hot flushes yet..... Got an assessment meeting today with a local complementary therapy charity about menopause symptoms and acupuncture. Hope they can fit me in soon. I'll be posting messages now with my blogs on acupuncture to reduce hot flushes!
Its been lovely exchanging messages with you all.
Take care of yourselves xxx
Good morning ladies, , ,
well it seems that the thread is almost coming to an end now. Its my last zap today and i cant believe how fast the last five weeks have gone. It all seemed so daunting at the start but it really has gone fast and so so easy after chemo. My team of nurses have been just wonderful and i could not have wished for better treatment from them or my consultant dr. I will be seeing her today after my last zap and will no doubt get a follow up in two to three weeks time. But at least i can take a well earned break for christmas,, this puts my long ten months of hospital treatment to an end, got plenty of follow up appoitments already booked for next year.my skin is holding up quite well and the team said i am doing really well considering how many zapz ive had so I'm pleased with that, I'll be properly well done by xmas lol.
us christmas birds will be all ready and prepared for the big day ha ha.
i would just like to thank you all for coming along to join me on my radiotherapy joirney and wish you all the very best for christmas and the new year. And to those that still have some zaps to go take care and keep putting on the lotion.
love and best wishes to you all
deelush x x
p.s. i may be meeting up with some of you in the hormone therapy threads. . See ya. .x
Sounds like you have got your husband sorted (pyjamas and cool bedroom) -now its time to focus on yourself! Hope your skin is not too itchy, as mine is, and of course it feels worse with hot flushes!
I've been asking my bcn about hot flushes as I'm getting really frustrated by them now (6 months of them!) and acupuncture has been recommended so I'm going to investigate that today. I need to give something complementary a try as I don't really want to take another medicine to combat them (just yet). Its also been suggested to take my Tamoxifen at a different time of day to see if that has any effect. I can now address this problem as my other treatments are finished and I was just too bogged down before.
Hope everyone's skin is being good.
Good morning ladies, hope those of you that are still having zaps are doing ok, ive got my last five boosts this week and am starting to get a little sore now but nothing major as yet. Will be seeing my lovely dr on friday after my last zap and then will be free from hospitals for the christmas period, unless my skin decides to play up and i need to get some medication for it (Fingers crossed it doesn't )
anyone else finish this week ??
deelush x x
Sorry you wanted to rant in the early hours but I did the same on here a few weeks ago and felt much better afterwards. I hope your Saturday turned out ok in the end. Its n
o wonder you are feeling not yourself as sleep disturbance and deprivation makes everything much harder to cope with. I was really wakeful with the steroids for chemo and would go nearly a week each cycle without sleep! The slightest stress from my kids and I had to walk away so I didn't lose it! I still wake every night with hot flushes which makes me tired and irritable too.
I finished my rads early this week and now the blisters are beginning to show which are really itchy. This makes me even more irritable as the hydrocortisone cream doesn't seem to calm it much!
My moods go up and down often and I'm sure others do too - its normal. I picked up some really good Macmillan leaflets at the hospital which are for patients and partners to read -all about emotions and how you might feel when you get to the end of treatments - I'd recommend you have a read. I've also tried to tell friends and family that its not quite all over yet, but I know its hard for them to understand how I feel.
Take care fro the rest of the weekend. Remember you only have a week left of daily hospital visits- then you get some freedom back and are no longer a hospital patient!
Congratulations Mel51 for completing your rads, hope the skin stays good , now you can look forward to no appointmnts for a while and enjoy christmas.
deelush x x
Congrats on getting to the end of the rads. I feel a bit strange and empty too having finished on Tuesday although, there is no rest for the wicked for me, as my daughter is now off sick from school so I'm in caring mode - well not too caring as she's stuck in front of the telly and I'm on the computer!!
You are right that friends and family are ready to celebrate but I've already made a point to them that it is not all over yet as I'm waiting for physio on my shoulder and I need to sort out the hot flushes and night sweats!! These are just the physical effects - the psychological ones run deeper!
I think we should be getting a follow up with our BCN fairly soon to tell us about follow up and help available to us. Do you look at the NICE guidelines online as they tell you what the current standards are for treatment and follow up?
Interestingly, I read today that there is a guidline about age 40 cut off point for rads and boosters for certain early breast cancers. My hospital were following the guidelines to a T.
Enjoy your Christmas tree now its up.
It has been good to find others are going through the same things and what is happening to you is "normal". Onwards and upwards.
Congratulations Forties on completeing your rads, and all your treatment,enjoy your celebration you so deserve it.
deelush x x
I got my answer about 'no boosters'. I'm too old-my hospital gives them to the under 40s but also to anyone of any age who's surgery margins are not as clear as mine. So I'm happy with that explanation and will feel now that I've had all the treatments possible to get rid of the cancer ( for good).
I'd love to say its all over but its not yet as I'm waiting for physiotherapy on my now weak shoulder and I want to sort out these constant, annoying and sleep disturbing hot flushes!
I'll have a celebration anyhow at completing the 'official 3 treatments'. My children think its the end and have been through plenty so we'll have an immediate family treat -probably a cinema trip to see Paddington Bear. Should be fun!
I might have finished but I'm still thinking of you all and hoping everyones skin holds up, treatments go according to plan and you all get the care you need to get through.
Keep on looking after yourselves and adding messages to help each other.
I might start to add some thoughts to the hormone and Tamoxifen threads!! Maybe the moving on ones too..........
i hope your lasr rads goes ok and that your all fighting fir for christmas. I some times dispair at the drs who seem to have no idea about their patients, as you say they should read the notes before they call you in so they understand your treatment plan etc. Will see what rads nurse says later. Hope you get an explanation as to why no boosters needed.
deelush x x
I'm really sorry to hear you do not feel happy about your treatments at the hospital recently - and by your description it sounds like a complaint worth acting on. Drs should be reading notes over before they speak to and treat patients. I hope you are supported by the hospital in your queries.
Whilst on chemo I saw a dr at the cancer hospital with a stomach rash and he sent me home with cream for hives. I wasn't totally happy with the diagnosis but unsure about flu like symptoms as chemo gave me those anyhow! 3 days later I went to my GP who took a swab of the spots and I was diagnosed with shingles!!! As I was immunosuppressed for several more months, I then took anti virals too on top of all the other stomach drugs, bone marrow boosters and antibiotics etc. One oncologist did comment that my prescription " ..was a meal in its own right!" Luckily I was in a mood to be humoured at the time!!!!!
My last treatment today and the final time to feel like a whiteboard, or rather a pink board as it now is!!!
Got a few questions written down for the dr too so I don't forget as this could be my last meeting for a while although I think my bcn is going to meet me for a follow up chat. I'm definitely asking why I don't need boosters when I also had a lumpectomy - I'll let you all know.
Hope todays treatments run on time for everyone.
Thanks Sodastream, im 14 down now last normal one today (15) then 8 boosts, my skin is holding up really well. I had terrible pains down my rads side last night but i think it was stitch, not had any pains really to complain about, so, so far so good. Fingers crossed it stays that way. i would mention the ribs pain to the rads team when you go today but its probably from treatment, they always seem to be able to put our minds at rest.
Deelush x x
Thanks Mel51, i am going to verify today with my rads nurses that this other dr did indeed have my notes to hand so could see which type of boosters i am to receive and that he wrote no comments on my notes file and then take it from there. my husband is not happy. I'll probably have to complian in writing so will need to get an address off them. I wouldn't say he was particularly rude just felt there was no need for the meeting or to be stripped off and drawn on as it wasnt required. Oh and i did have to ask him not to press down on my boob with what ever it was he was using to line up the marks as they are painful, you'd think he'd know this and be careful !!!
deelush x x
Have followed this thread whilst going through radiotherapy at the same time. Just wanted to say now I've finished have sore area under boob but am grateful that if I'd have had smaller boobs might have been a mastectomy. Team at st James Leeds could not have been kinder. And having talked to friends abroad, especially the USA, I thank UK for the NHS.
so im just back from hospital and told the nurse in rads that i was concerned about the marks etc, and she said she would go and have a word with my dr why i was getting set up on the bed so she could come and check the marks and re do them if necessary, i sais yes please i would like it checked.
so the nurse comes back and says, you dont need the marks your not having that type of booster yours will be done and lined up using your tatoos, this was all in my notes so the dr i saw on friday should have been aware of this and he didnt even write anything in my notes just drew on me, i now feel that the wait in clinic on friday which was a long wait ( two hours) was a complete and utter waste of time and i feel vialated that i was drawn on by a male dr for no apparent reason, im not happy he had my notes he knew what type of boosters i was having. Would you complain if it was you ??
Deelush x x
im definatley going to query it this evening, because if i dont and just think oh well they know what they are doing (which they most often do) i will just worry like crazy after treatment has finished and regret not saying something thinking it wasnt right and i wasnt given boosts in correct place. I'll post later this evening with their response .
deelush x x
Thats what i thought area around where the lump was, i had very good clear margins after surgery didnt need any further clearance so bit confused. i just feel that the box marked isnt quite where i was expecting it to be, and as clinic was running very late on friday i didnt get to see my specialist lady, they brougth in back up staff to clear the waiting room and i saw a quy so wasnt really happy about this and didnt want to be in with him any longer than necessary, when he said he was going to mark me up i asked what with he said pen i said oh will it not wash off i have to have a shower every morning because i am dripping wet with sweat at night and he said oh do you !!!!!!!!!! I was like err mate i couldnt leave the house without a shower or expect the rads team to man handle me knowing i wasnt clean....what the .....he then said well just dont scrub that area .....scrub really.....i said the sweating at night will wash the marks off before i get into the shower . . it was obvious by his aroma when he lent over me to check his markings that he doesn't shower every morning.....the nurse that was in with him just looked at me gob smacked when he said oh you shower everyday, when he left the room she kindly gave me a new sealed marker pen so i could top my lines up after i have showered. I just feel like it was all rushed and i am concerned its not the right place, the boosters are important and theres no point in having them if they are not treating the area they are supposed to, i want to see my lady dr. .i dont feel happy. . . Moan over
deelush x x
Bit confused ladies about the boosters.
I was under the impression that these were aimed at the site of the tumor bed, although i dont start mine until wednesday i have been marked up for them already which was a bit pointless as showering every morning after sweating every night is washing the marks off. But in my mind i am pretty sure my tumor was not in the centre of this box that they have draw on me, it was more over to one side, this box seems to centre the scar, i know it may sound silly but did anyone of you ladies that have had / having boosters experience the same. I will ask today when i go but its not until this evening.
deelush x x