Thank you for the replies,
You are so right, The waiting is the worst bit, worse still is having an idea what it is could be but with no information to be going on with, I'm not a fan of the unknowns, I'm quite a thought organised person, i need all the facts, all the outcomes and a path to follow, I feel like I've been left in a deep pit and th rope to get me out has been cut, just in view but too high to reach.
Thanks again for your words,
I have no experience of this but didn't want to pass by without saying something. I hope some one comes along soon with some info for you.
Wishing you the best.
I was originally diagnosed in oct 2013, I had a mastectomy, axillary clearance, FEC-T, herceptin, radiotherapy and Tamoxifen. Since i finished chemo in April, i've had discomfort in my ribs, My onc sent me for a bone scan which was clear but because the issue was still there she decided to send me for a CT scan.
On Thursday my husband rang me whilst i was out shopping with my 3 young girls, He said that my Oncologist had requested an urgent appointment for me the next day. I didn't sleep a wink that night, I kept having arguements with myself for being silly, I told myself I was worrying over nothing, in my mind I'd done all they asked of me and treatment should have worked so really I should be in the clear.
Anyway, I went along yesterday (Friday) to see her and got the shock of a life time, My ribs had shown nothing out of the ordinary but there are several lymph nodes under my sternum that are "presenting with a fullness". I'm being sent for a PET scan as it's a high probability of there being cancer, If it shows that there is then I have to be sent to a cardiovascular surgeon to discuss biopsies/removal of them.
I'm terrified because again we're left waiting, it's a big unknown and I can't find any information on it online. I don't know what it will mean for me if there is cancer there again, It's scary to consider that all the chemo I had adn the herceptin that I'm still having haven't worked.
Has anyone else experienced this, I would appreciate any words of wisdom please.
Thank you in advance