75.2K members
1.2M posts
cancel
Showing results for 
Search instead for 
Did you mean: 

tamoxifen alternative

5 REPLIES 5

Re: tamoxifen alternative

Sorry to hear you are having a hard time Tracy. As others have suggested you could try a different  brand and if a different brand doesn't work then you could talk to your oncologist. Perhaps they could lower the dose or suggest something else. Just keep trying different alternatives until you get something that works best for you. 

 

 

Re: tamoxifen alternative

Hi Tracy

Have you tried different brands? Honestly it makes a difference. On one brand I was waking every 45mins throughout the night. Due to the lack of sleep, I was foul tempered and ready to shove these tablets where the sun don't shine 😉

BUT

Just changing brands, and I am sleeping better, having less hot flushes and feeling more like the old me!

I don't feel perfect! But then sadly I don't think we ever will. Not sure what treatment you have had, or when it started. But I found the first few months after active treatment the hardest emotionally. It was at this point that everyone around you thinks you should be happy, because you had got through it! But I found I mourned for my old life! My life before BC! I couldn't get used to the 'new' me! But I'm 6months on now, and although I have the odd bad day, mainly I'm 'good'!

I would discuss your feelings with the Oncologist, but I really would suggest you try another brand. Also have you got some support? Family or friends! Dealing with all these feelings can be really isolating. Some people find talking to a counsellor helpful. All things worth considering.

Keep sharing your feelings on here Hun, we all know how you feel. Xxxx

Re: tamoxifen alternative

Totally fed up of the whole experience and there's absolutely nothing I can do... I am sick and tired of this constant worry I find myself in and ime pretty sure it's these tablets messing with my emotions..

Re: tamoxifen alternative

Hi Tracy

Sorry to hear you are struggling. Can I make a suggestion. Have you tried changing the brand of Tamoxifen that you are taking? I was completely ready to give up on Tamoxifen while I was taking Relonchem, but since going back to a different brand. Things are more bearable now!

Definitely worth giving a different brand ago, before you consider stopping or taking an alternative. Sending you a ((((((big hug))))))) sounds like you could do with one! Xxxx

Re: tamoxifen alternative

Hi Tracy
I am sorry to read that you are having such a difficult time at the moment, along with the support you will find here please call our helpliners to talk this over, lines are open again in the morning 9-5 (weekdays) and Sat 10-2 on 0808 800 6000

There is a thread running about different brands of tamoxifen which may be of some interest to you:

http://forum.breastcancercare.org.uk/t5/Hormone-therapy/Tamoxifen-Brands/td-p/691203

Take care
Lucy BCC

tamoxifen alternative

I have been on tamoxifen for 6weeks and quite frankly I feel like an emotional wreck.. I stopped sleeping so was put on sleeping pills.. My joints ache like ime 90..ime 43... My emotions are all over the place as worry and anxiety over future reoccurrence of BC..I cry..... Is there an alternative to this tamoxifen... How do I find out my reoccurrence with nd with out tamoxifen as have been told my BC sayge 1 grade 1.. Is estrogen based as per menopausal... Sutrely if its estrogen based there is other stuff I can take to do the tamoxifen job without all the side effects.. I have2 kids and I think its very unfair to them to b seeing me like this ..