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tamoxifen make me sad

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Re: tamoxifen make me sad

Hi Seabreeze. You get so many different opinions on what you can and can't take. I asked my doctor about sage and she said not to take it. Anothe friend mentioned black cohosh she said no to that too! I have my yearly check up on Monday so will add it to my list of questions I want to ask. Pleased it's helping you, especially in this heat, it is very uncomfortable!..xx

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Re: tamoxifen make me sad

Hi Katlynne, Heidi and Poppy,

 

I'm on Tamoxifen and take a low dose of Citalapram which is an anti-anxiety med and is supposed to help with hot flushes (although I found sage far more effective re hot flushes), but may help you re other angles?  

 

Poppy - My oncologist suggested I try sage to reduce the hot flushes . I was slightly sceptical and was pleasantly surprised that it did reduce the freqency and magnitude of them for me. It seems as though the sage doesn't work quite as well after 8 or 9 months so I either have a brief break from sage or switch when I take the tamofen (onc said this could help kickstart a readjustment).  Ceramics is good too for losing yourself in, in a good way!

 

Hope you all find ways of adjusting to make the side effects less intense for you.

 

Seabreeze x

 

 

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Re: tamoxifen make me sad

Very interesting riversidedawn. Thank you x
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Re: tamoxifen make me sad

Hi Katlynne. Sweetie I feel your pain! I have been on Tamoxifen since April 2016. I have put on loads of weight and agent sad all the time. I have taking sertraline (an anti anxiety drug) since Nov and feel a little better. The sweats drive me mad and play havoc with my skin too. I guess I would recommend the sertraline. I have at least managed to volunteer and now have 2 days paid work in a charity shop. Good luck. X
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Re: tamoxifen make me sad

Hi Poppy, 

I can imagine how brutal that feels, immediate menopause must be astonishingly hard to deal with....no gradual lead in or adjustment time. I at least hope your creativity and walking are helping find a path through it, which it sounds like it is. I guess just like 'normal' menopause eventually settles, this will too. X

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Re: tamoxifen make me sad

Hi. Just thought I'd give you a quick update. After being on tamoxifen for two half years the side effects from that is nothing compared to how I feel after having my ovaries removed five weeks ago. I haven't had a good night sleep since due to hot flushes. My mood is all over the place, joint pain, my skin and hair have changed...the list goes on. All I am hoping for is that this is temporary while my body sorts itself out! I think no matter what you do you as you go through your journey with cancer is swap one lot of side effects for another.

 

Really good idea to get creative. I've taken up drawing. I'm not very good at it, but while I'm drawing my mind is elsewhere and not thinking about what's happened to me. I also find walking clears the mind. If I feel sad or angry I take myself off for a walk and feel much calmer when I get back.

 

Hope this helps anyone who is thinking of asking to have their ovaries removed. Sudden menopause is just another thing for our bodies to tackle. 

Sending lots of love..xxx

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Re: tamoxifen make me sad

hi poppy, your right about that. I spoke with my doctor this past week and he said the same thing. But even if I had them removed I would still have to take the tamoxifen due to the estrogen in my body. I got cancer when I was 47 1/2 which is still pretty young but that was the problem because I was young that I would have estrogen in my body still. It may or may not make a difference... I was so hoping that it would help me but I'm stuck on the tamoxifen for the next three years. I've been trying to find ways to occupy myself, to get up and move even when I'm tired and don't feel like it. I've spoken with a therapist, she has encouraged me to do things I like, writing, drawing, I guess the idea is to Turn the sadness around and put it into something creative.

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Re: tamoxifen make me sad

Hi.I recently found out I had ovarian cysts. They decided to take them out and then because of my BC history they decided to take my ovaries and tubes. I still have to take tamoxifen due to oestrogen still being present in my body even though I no ovaries.I can understand why you would want them out, but make sure it will actually make a difference rather than put yourself through another op. Xx

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Re: tamoxifen make me sad

You're right it is a tough decision, the conversation will be just as tough. They don't want me to have any surgery because of my heart condition. And I fear that if I tell them how I really feel I will be opening a can of worms, so to speak. I guess it's about finding the right people to confide in who may have the right answer for me. I just found out recently that if I insisted that they take my ovaries out my cardiologist has the final say and can deny me my request. That doesn't mean I couldn't go to another cardiologist, it would become time consuming and not worth taking that route.

Wishing you well:)

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Re: tamoxifen make me sad

Hi Riverside, I was on Zoloft and adivan when I started radiation the only problem I had with that was everything just seem to roll off me like it didn't matter. I guess I didn't like that feeling. Not that I like being depressed either. I was really hoping for a happy medium. I have three more years on the tamoxifen. So I am going to look into other alternatives. My gynecologist was not too keen on ovary removal either:). They really want me to stay on the tamoxifen and have offered to give me other medicines for depression. I have a lot to discuss with my doctors... Thank you

wishing you well 🙂

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Re: tamoxifen make me sad

I was hesitant to write this, until riverside wrote her reply. I was taken off tamoxifen after only 6 weeks, as my mental health changes were so severe that there was simply no quality of life left. I became a risk to myself, but it was no surprise as I had also had a post natal pyschosis some years prior, from sudden hormonal changes. I don't like to give the impression ever to people to stop tamoxifen, as I wish I was able to take it, just with some side effects would be fine. It us about weighing up potential gain from tamoxifen, with the quality of life losses. Thry are tough decisions and conversations, but sometimes necessary.
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Re: tamoxifen make me sad

Hi Katlynn and Heidi, you need to discuss all your options with your medical team. There are alternatives. I was put on sertraline for depression and one of the side effects was reduction in flushes. I found tamoxifen unbearable after less than a year. Went on to anastrazole (ai) and monthly injection (forgotten the name of that) but that combination gave me drenching sweats about 10 times a day/night - like I'd run a marathon, had to change clothes and dry my hair!

I discussed ovary removal as a friend had that but gynaecologist was not keen, and side effects can be the same.

In the end my oncologist agreed that I come off all drugs. He had wanted me on tamoxifen for 10 years as I was grade 3, 2 tumours 8cm and 2cm and 26 lymph nodes affected. But for me it's quality of life, my kids need a happy mummy not one living in a dark angry fog. Onc said I have to get in touch if I notice any changes and I'll see him or surgeon 2-3 times a year.

Good luck, you need to find what works for you xx
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Re: tamoxifen make me sad

Kat,they would still want you to consider the meds they give to post menopausal ladies even without ovaries ,but it would give you more choices (think there are 3 different types of med ) and they may not affect your mood in the same way as they work in a different way to the Tamoxifen .Definitely worth having a good discussion with the Oncologist about the options .Good luck !
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Re: tamoxifen with all it's lovely side affects

Hi Heidi, I understand how you feel, I've been on tamoxifen for 2 years and have slowly fell into a deep depression due to the effects of tamoxifen. I suffer from a loss of Joy also, but I'm so glad that I can come here to this group and  talk openly. The people in this group seem to be the only ones that understand completely how I feel. I'm going to look into other alternatives, and I will post any information that I am given. Take care,    

katlynne

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Re: tamoxifen make me sad

Hi Jill,

oh that's a great idea!... Thank you that gives me so much more hope. I could do that, remove my ovaries and I won't have to take the tamoxifen. I'll give my doctor a call Monday. I'm sure after I explained to him my hopelessness and depression he will see that would be a better option for me.:) 

 

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Re: tamoxifen with all it's lovely side affects

Hello everyone. My name is Heidi and have been on tamoxifen for about a year. It is the darkness, sadness, no longer feeling like myself, feeling amost possessed with a differnt personality. I am suffering, my husband is outraged with me and my behavior. This forum has given me validation, not excuses for my behavior but, an understanding. I can feel the tears coming and the feeling of loneliness creeping in as I write these words. 

I can't remember the last time I've felt joy, been light hearted. I'm grateful to my doctors, and my recovery but, where the hell am I........any suggestions besides taking another pill. I don't want to take a pill to off set another pill. 

 

Heidi

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Re: tamoxifen make me sad

Kat have you spoken to Oncologist re alternatives to Tamoxifen ,if your symptoms are so bad would it be worth considering ovary removal and then try taking an AI meds (Letrozole /anastrozole/arimidex ) These meds all have side effects but some are more bearable than others ?Jill.
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Re: tamoxifen make me sad

Hi, yes I am in the U.S. 🙂 I don't have a cancer nurse that I see regularly although I wish I did. I just see the oncologist, and the radiation specialist, and the surgeon, they all have agreed that If I stay on the tamoxifen for five years then my chances at not getting breast cancer again rise to 2/3. Without it I most definitely will get it again. I don't really have much of a choice,  I tried to weigh in the good things about tamoxifen like surviving  in the future without incident of a complete double mastectomy. Is it worth it to me to stay on the tamoxifen...yes. But knowing this doesn't make it any easier.To be honest I haven't left my home but a handful of times in the past six months. That was for groceries, my daughter does a lot of the shopping. And I have not been out with friends for two years. I don't have any motivation to get up and do anything, especially have fun. And I do tire easily. Feeling tired may or may not be a side effect of tamoxifen but it's definitely a side effect of depression which I didn't have before the tamoxifen. Summer is coming  soon and I have no motivation to even go out and enjoy the weather. I wish there was a way I could snap myself out of this... I just want to get back to who I was before the cancer, I'm not sure if that's possible. Thank you, for listening to me... My apologies to you if I sound negative.

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Re: tamoxifen make me sad

Hi again, 

 

are you in the US ? JUst wondering as you said PCP ? 

 

i really think you need someone to help you weigh up the quality of life you are having, compared to the potential tamoxifen gains. I'm not saying to stop it of course, but it is something I and others have had to do if we felt that the effects on mood were so severe that it was unbearable. Do you have a breast cancer nurse ? 

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Re: tamoxifen make me sad

Hi charys, 

 

Yes I have discussed it with my family and the doctors, my oncologist was concerned,  he treated the physical symptoms "hot flashes"etc...with Gabapentin which It didn't work. I am allergic to venlafaxine but perhaps I will give the primrose a try. My PCP is Young and really doesn't understand the effect that tamoxifen can have on a woman. In fact she really doesn't understand the effects of being sick with cancer at all. She, like most people lack  sympathy because they do not have a good understanding of what it's like. An old saying goes  " he who feels it has known it"  I had a better day today but I'm having some trouble sleeping tonight 🙂 I'm really glad you replied to my post, thank you for the advice. 

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Re: tamoxifen make me sad

Hiyer Katlynne,

 

I do feel very sorry for you, thats a really horrible two years you've had. I can understand it very well, as I also had a lot of emotional impact from the short time I was on tamoxifen. There is no doubt that, same as the menopause, tamoxifen can cause mood changes. I know a number of people who have been prescribed the anti-depressant venlafaxine, which can be taken with tamoxifen. This might be worth discussing? Another thing I was recommended was a very high dose of evening primrose, the dosage you would need to find out from your gp...and to be honest mine went back to the oncologist for advice on the amount they suggested. I didn't get as far as taking it, so can't say if it had an effect for me.

 

I presume you mentioned to your doctor about the 'hopeless' feeling you are experiencing? It doesn't sound, from the few brief words you've said here, that you had any sympathy and suggestions from the gp !

 

I'm sure others will be along shortly.....

 

 

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tamoxifen make me sad

hi everyone, I started to take tamoxifen 2 years ago, as part of my breast cancer treatment. Although I don't miss menstruating, I've been having a really hard time on this medicine. Not only have I gained 40 pounds, I'm sad all the time. I Cry throughout the day and sometimes feel hopeless. According to my doctor's I have another three years to go before I can stop the medicine. I've become very moody also. Just trying to get through each day. If anybody knows of anything that can help please let me know. Whether it be a medicine I can take or something herbal.