triple negative in liver?

[Gillg78]

I am not TN but Er+ Pr- Her-. I have several large liver tumours and a large area of small splatter tumours. I have had 6 chemo and am waiting on end result scans. I have had pains in my ribs and several other places in my abdomen all the way through my chemo. The mid way scans showed reduction of 30%, and several other people that experience pain here and have found results to be reduction rather then progression!

[Desi-2]

Just seen this thread and would like to know how you are doing. I'm due to start Capecitabine soon but over the last week have had a return of nausea which my onc thought was down to pressure from skull mets. However after rads to my skull the nausea did go only to return a few weeks later. I'm now concerned that it may be connected to possible liver mets. The feeling of discomfort you describe and sitting up to alleviate it is also familiar to me. what was the outcome of your scan? X

[EJ81]

Just noticed date on the first post -I'm guessing you're not still waiting for a scan!!!!

[EJ81]

Hi, I have tnbc with spread to liver. Found out just after MX in June. Had 3 cycles of EC which didn't work for me then moved on to abraxane (paclitaxel) and avastin which is working so far. Onc assured me there are still lots of treatment options. I haven't asked about life expectancy as I don't think its helpful, I also don't think its possible to know at this stage either. 

Sorry you are having to wait so long to find out. If you are really worried I would try and speak to your bcn or onc. I would have thought the mention of blood in your urine would speed things up. xxx

[2catlady]

Hi,I have TN in liver,lungs and bones. I was diagnosed in 2013 with primary and bone ,then it spread last year.im on capecitabine chemo which hopefully is keeping me stable till it stops working. I don't ask about my life expectancy ,I just try to enjoy what time I have and hope it's a while yet.
Wishing you all the luck in the world that it's not spread for you but if it has this is a fantastic place to get help,support and advice from a fantastic bunch of ladies,huge hugs,Helen xxxxx

[kavir]

Hi there,

My situation is slightly different. I was diagonised with secondary TN in the first instance last august. It had spread into lymph nodes and neck and 2 tumours in liver. Hence they could not take tumour from breast out as priority was to stop spread of disease. I had 11 sessions of taxol and avastin - did not work and have now started me on ec chemo. They are not overly concerned with the liver right now as they believe there are other treatments available priority is still to control the spread. I hope your scans are ok and keep your chin up. Wishing you well.

[Guest user]

Hi RevCat
Thanks for your reply and the links. I'm still waiting for the ultrasound scan, which will be in 3 weeks' time and then it seems that I will have to wait another week or two for the result. In the meantime the pain is worsening both in intensity and the size of the area involved, and it looks like I sometimes have blood in my urine. It's very difficult to not worry.

[RevCat]

Hello NotYetHalfWay,

Sorry to read of your concerns. My experience is totally different from yours but I know there are TN ladies with recurrences and secondaries who post on here. This rpely should BUMP up your post. A couple of links to relevant threads are these:

http://www.breastcancercare.org.uk/comment/2060601#comment-2060601

and

http://www.breastcancercare.org.uk/community/forums/triple-negative-secondaries-recurrences?page=75#comment-2059202

Hopefully someone will be along soon who is able to answer your exact questions.

One thought, perhaps after the weekend you could call the helpline people 0808 800 6000 as they are very knowledgeable and helpful.

[Guest user]

Hi
I've joined this site to ask if anyone has been diagnosed with secondary cancer in the liver. I had a mastectomy for my triple negative tumour almost ten months ago, then FEC chemo, but I've been having discomfort in the area where my liver is since before the chemo. It's come and gone but in the last four weeks the ache / pain has been constantly there, making me need to sit up straight to relieve it. I'm also having a couple of other symptoms of cancer in the liver, but not other symptoms of gallstones. My G.P. is referring me for an ultrasound scan to check for gallstones, of course.
I wondered if anyone has experienced triple negative breast cancer spreading to their liver, and has any information about treatment and life expectancy when this type of cancer has spread there. The treatment for triple negative will be different from that for other types of breast cancer, and I think the life expectancy will be too but the information I can find is all about other types of breast cancer that has metastasised.
I'm one of those people who prefer to know the size and shape of a problem, I'll worry if I don't know what I may have to deal with. I've been looking at these forums for information about cancer on and off for over ten months now and I know that a lot of people offer kindly reassurances to people worrying about issues, but I don't need that, it wouldn't work for me anyway. I'll feel much better if someone can give me some information though.
It's very hard looking through the forums, I keep finding so many sad stories. There are many people who are having / have had a worse hand dealt to them than I have. My best wishes to you all.