Thank you so much for taking the time to reply to my post. I have found all your replies most helpful.
Its a scary time and I went into a panic!! I feel calmer now and have decided to give my bcn a call tomorrow to discuss some of my fears and worries.
What a journey eh!
Hoping you all have had a good weekend,
Love n thanks,
Hey Looby Lou - DON'T PANIC!
I was oestrogen positive and when the doctor explained it to me she was very 'excited' to tell me so. She kept saying "that's good!" I agree with Sharon that if you have a strong positive then they can tackle it better. This type of cancer is the most common one so lots and lots of research done on it. I am on tamoxifen for 10 years. I've been taking it since July - no problems. I get night sweats frequently but who says I wouldn't anyway - I'm 49!! There are people walking around who have no protection from getting this cancer. You and I, and many other lovely ladies, are being offered a way of keeping it away. Who's shoes would you rather be in? My oncologist told me that Tamoxifen will actually destroy cells that are 'doing whatever'. That made me feel really good about it. As far as I'm concerned I am now a step ahead of anyone who hasn't had BC and I take the drug without a second thought. My son was born without a thyroid gland and takes thryoxine every day and will do for the rest of his life. I will be honest I struggled with the 'long term-ness' of it to start with, but it's nothing. Where would we be if they hadn't discovered it? We feel lucky for him. It's no different than a vitamin pill, apart from it's free and it could save your life. Oh not the same then!
Just one little nag to add; why are you reading those websites? They spout a load of generalised and often Americanised carp!! I found a site that actually stated as fact that if your tumour is attached to the skin then it is immediately upgraded to Grade 3 and chemo is required. Absolute nonsense! Mine was attached to the skin and I was Grade 2 no chemo!
Keep your chin up; you've done so well.
When I did some research, and plugged my numbers into the Predict tool that is available to us as well as doctors, it said that my survival chances were higher because my cancer was strongly oestrogen positive so I don't think you should assume this to be bad news. It also means that you have hormone treatment as an option to help prevent recurrence which wouldn't be the case if you were ER negative so it is yet another tool you can use in the fight against cancer.
I've been told that taking Tamoxifen would increase my survival chances slightly, and like you I read about the side effects with a sinking heart, but we need to remember that it is not a given that we will get all or even any of the side effects and even if we do, there are ways to deal with them and if they get too severe, we could stop taking it and I understand that within 6 weeks there would be no Tamoxifen left in our systems so on that basis alone I think it's worth a go.
I think it's worth giving the BCC helpline a call, or talking to your own doctors, as I think they'll be able to reassure you.
Im sat here reading through a copy of a letter which my consultant has written to (modular new build team)?? After reading the letter im so worried and scared as it mentions that my cancer was strongly ER positive and after doing some research I have discovered that the survival rate is significantly lower than ER negative cancers.
Im not in a good place now as feeling very anxious and scared.
Can any of you lovely ladies helpnme understand what strongly positive really means.
The consultant wants me to take tamoxifen for two years and then arimidex for three years. The side effects from these drugs sound horrible and if at the end of five years I still have a high chance of it returning whats the point in messing up the next five years. I really dont know which way turn, totally confused by web sites!
I would appreciate you sharing your views and experiences.