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waiting for results

14 REPLIES 14
shazanne
Member

Re: waiting for results

Hi Everyone,
My first appointment with the breast clinic was on 6th Oct. Where they took a biospy of a lump in my lymph node and booked me in for a stereo biospy for my breast. Unfortunately the stereo biospy machine broke. I eventually had the scan on 25th Oct.
On 4th Nov I was told I have cancer in the lymph nodes and invasive cancer in the breast. I will need chemo and surgery. But they are hopeful that the chemo will shrink the breast cancer to an undetectable size. They will ‘clip’ it on the MRI as they will be able to remove healthy tissue to make sure it has all gone.
The real problem appears to the lymph nodes. I would need an MRI, CT and Bone scan. The clinic have arranged the MRI for 17th Nov and told me I would see the oncologist immediately afterwards as I would definitely need chemo regardless of the results.
However, I am sure the nurse told me that they didn’t need to wait for the results before I started chemo and the oncologist would see me directly after I had the MRI scan.
When I got the appointment through for the CT scan, it was the same day as the MRI so I phoned to make sure this would not affect the oncologist appointment. The receptionist for the CT told me there was no oncology appointment booked and I would have to wait 2 more weeks for the results before they start any treatment.
I have tried to stay positive but it really got to me. If this is true I am unlikely to get all the results through until around 1st Dec which will be 8 weeks from when they took the biopsy and still no treatment.
I broke down a bit and decided to ring the helpline from this site. The lady on the phone has made me feel so much better. She has told me to not to just take information from a receptionist. And to contact the breastcare nurse and get a proper timeline of what I can expect. It seems obvious but I can’t always think clearly when I am upset.
I have a lot of support around me and several friends have said ‘just ring me day or night’ which is great to hear but I cant bear the thought of upsetting them. So Just to talk it through with someone without having to worry about them is so liberating. She helped me to put everything into prospective and get my positive attitude back.

katytc
Member

Re: waiting for results

Hi Lille,

Very thorough, fantastic news about the left, another worry over!! Only till 25th now and hopefully you can put this all behind you. Take care and happy hugs xx

lille345
Member

Re: waiting for results

Hi katytc, mimsy and sue,
thanks again for your lovely messages of support,
well spent the morning having my paddle view mammogram, followed by a very thorough ultrasound. No mass was found, great news, but my left breast imaging is very differant to the right breast. was told there are lots of calcifications, and then was sent for further mammogram views, followed by another session of ultrasound scanning. the radiologist was considering doing another core biopsy or sending me to another unit for a stereotactic biopsy (sorry if the spelling is off). In the end she got a second opinion of another radiologist, who decided that I come back on the 25th november, when the team meeting has taken place. Feel relieved that it all "seems" ok and kind of grateful that although it has now been 6 weeks they are being so thorough.
sending you all best wishes for a nice weekend and a big thank you for being there,
take care
lille xx

lille345
Member

Re: waiting for results

Hi katytc,
fantastic news, you must feel so relieved,
thanks again for your good wishes, I feel more positive about it all today, hope that feeling continues tomorrow morning,
take care and best wishes
lille345 xx

katytc
Member

Re: waiting for results

Lille345, my scan results were fine, well pleased yeah!!!!!!
Remember and let us know how you get on, lots of luck to you xx

sueinspain
Member

Re: waiting for results

Good luck today Lille! Will be thinking of you. You too Mimsy.
Love Sue xx

lille345
Member

Re: waiting for results

Hi Katytc,
thank you again for your support, I really wish you all the best with todays scan. will keep my fingers crossed for you too, hope it is good news,
take care and gentle hugs
lille345 xx

katytc
Member

Re: waiting for results

Hi Lille345,

Just wanted to say all the best for tomorrow! I'm off for my scan today, keeping fingers crossed, take care and lots of hugs xx

lille345
Member

Re: waiting for results

Hi Katyc, Thanks for your support, you are completely right about the waiting, most of the time Im positive, but after 5 weeks now, I feel a little overwhelmed at times. but the care shown on these forums is so good to have, makes me feel less as if Im alone, if that makes sense.
I send you my best wishes and thank you again for your kind words,
you take care too,
Lille xx

katytc
Member

Re: waiting for results

Hi Lille345,

Just wanted to say all the best for your appointment on the 11th, waiting is the worst time ever, so the very best of luck, take care xx

lille345
Member

Re: waiting for results

Hi there mimsy,
thanks for your support, I go on the 11th of November, for further ultrasound and mammogram and hopefully time will pass quickly. Its very odd the range of emotions you go through whilst waiting for results, but again I will say that all the care and support on here is truly fantastic,
hope you have a good weekend, take care and thanks again
lille xx

mimsy
Member

Re: waiting for results

Good luck Lille,
I hope you get good news,
Mims

lille345
Member

Re: waiting for results

Hi Sue,
thank you so much for such a caring and lovely reply, sorry you too find yourself in this position , lets hope that it will all be okay for you this time too.
I also had this kind of situation 2 years ago and was so pleased to get
the good news that it was a benign lump. You are completely right about it not making it any easier this time around, I find all the posts I read such a help, good luck with your tests and will be thinking of you, sending you my thanks again, take care
kind regards
lille xx

sueinspain
Member

Re: waiting for results

Hi Lille
I just wanted to say hi and tell you that I know exactly how you are feeling with the waiting and the anxiety, I dont think there is anyone I have come across on here who hasnt felt the same way at some point. Im afraid I cant offer any words of wisdon or advice other than to take care of yourself and try (I know thats so hard!!) to stay positive.
The affect that all this waiting and testing creates is like a disease in itself. Im waiting for tests next week having had the same anxiety 3 years ago (which all turned out ok in the end thank goodness!) - but it hasnt helped me stay any calmer this time!
I hope you get good news soon.
Love Sue x

lille345
Member

waiting for results

hello everyone,
first off just wanted to say that last posted on here about a month ago, and all the support and advice on here is amazing. I just know it has kept me calmer.
My situation is referred to breast clinic on 28th sept with lump in left breast, had mammogram and ultrasound scan, with a core biopsy being done on the right breast, for a suspected fibroadenoma, that proved to be benign.
Week later received a letter to say consultant has reconsidered and would like to biopsy lump in left breast, Returned on the 20th of oct, had the biopsy done that unfortunately resulted in a huge haematoma and a return to hospital to have compression bandages to stop bleeding.
Returned last week for results and was told that they seemed normal but would be discussed as a team.
Have now been told further imaging is required, has anyone else had this, would be so grateful for any advice as now 5 weeks in no matter how hard I try to remain calm and positive the little doubts keep creeping in. Sorry for the spellings and if its a long winded post.
many thanks and kind thoughts to you all xx