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what should i do

5 REPLIES 5
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Re: what should i do

thanks all . i was going to call today but slept all day

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Member

Re: what should i do

Hi Fredflowerpot

Sorry you are not getting help from your medical team all I echo what Pippie,lynn and Lizzie have said you need to ask questions don't be afraid to come back to us and let us know how you go on.

Good Luck xxx

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Member

Re: what should i do

Hi Fredflowerpot,

 

I am sorry to hear you are going through this frustrating time but it is good to see you are already getting support from our users.

 

In the meantime please do call our helpline at 0808 800 6000 who will be able to talk to you about standards in care, you care plan and offer a friendly ear.

 

Best wishes, 

 

Lizzy 

 

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Member

Re: what should i do

Hello. Just read your post. You should certainly push it. As Pippie suggests you could contact your oncologist's secretary.

When was your primary diagnosis. Is there a breast cancer nurse that you could ring. If so then do...make a list of questions and ask them all. Find out what your hospitals usual procedure is when secondaries are diagnosed.
Also make a list to ask your onc., even if you've already asked the BCN the same question.
You could also speak to one of the nurses on this site - they are very helpful.
Good luck and do come back and let us know how things go..
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Re: what should i do

Hi, contact your oncologists secretary and ask for a urgent appointment , you should not have been left without any advice or support.
I was diagnoised 14 months ago with SBC to bones, lung and now eyes - I get scanned every 3 months. I'm currently on daily anastrozole and monthly demosub injections with ad all tablets daily. I have had rads on my left eye over Christmas and everything is stable.

I hope you get the information you need soon, this will save you anymore unnecessary stress and anxiety.

Take care

Pippie
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what should i do

i have just read ttps://www.breastcancercare.org.uk/information-support/secondary-metastatic-breast-cancer/standards-care-se... .

as of yet 3 weeks on i have had none of what is said in this  ,no care plan, no info or support no clinical nurse specialst  nothing just told i have it in my bone ... what should i do