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worried awaiting results

30 REPLIES 30
Jenna1987
Member

Re: worried awaiting results

Thank you feistyflora for your reply.

Your attitude is inspirational, massive high five to you!!! You're right, the fear of the unknown is overwhelming. If I do get the unwanted results I know ill kick it's ass. It's limbo land that's the issue!!

Do you recall what your US looked like at all?

Keep fighting.

Jenna xx
feistyflora
Member

Re: worried awaiting results

Hi Jenna

 

Of course nobody minds you joining in! You are not alone. We have all felt like you are feeling at the moment. We all understand what a very scary time this is for you. Most people feel "dazed" and "in shock at the beginning of all this, it is understandable.  I felt as though I must be having a bad dream and would soon wake up. I felt like crying and my heart was beating like a sledgehammer. It is nerve-wracking having to wait, I think it is mainly fear of the unknown. You wonder if you should tell people, how much to tell, who to tell, what to tell, when to tell etcetera.  I expect your mind will be racing with a hundred different thoughts but I am sure you will feel calmer once you have discussed things with your medical team and you will receive lots of help both at the hospital and on this website. To answer your question yes I was shown my ultrasound.  I am a year further down the 'cancer road'.  I have had the whole works - a biopsy, a lumpectomy, chemotherapy and radiotherapy - and guess what, I am still here to tell the tale, still making a damn nuisance of myself and as you can see smiley happy Smiley Happy.  I am doing okay, in fact I am more than okay, in fact I feel flippin fantastic so you see there is hope!  This website is such a blessing, as you will find. Best practical advice I can give you - take one step at a time. Love and best wishes xxx 

Janet_BCC
Member

Re: worried awaiting results

Hi Jenna1987

 

Waiting for results is a really difficult time.  The thread you've posted on hasn't been active for a while so I wondered if more people might see your post if you begin a new thread.  I hope other members will then see it and come along to offer some support.

 

Very best wishes

 

Janet

BCC Moderator

Jenna1987
Member

Re: worried awaiting results

Hi ladies I hope you don't mind if I join in.

I'm currently awaiting results. I found a lump in my left breast just above the nipple. Went to the gp and he referred me to the breast clinic for an ultrasound. At the time he did say it was for clarity and he didn't think that anything is wrong.
3 days later I went to the clinic. Saw the consultant who has a feel and said that he thinks it feels ok but have the US then come back straight after to see him.

Went for US expecting to see just a nice round fluid filled lump or whatever but no, it was a solid mass. Imagine a balloon full of peas but obviously much smaller, that's what it reminded me of, the shape was different to a balloon though, kind of like an hourglass but didn't go in as much in the middle.

She did 2 biopsies on it there and then. I was totally shocked as it was just supposed to be a straightforward US. She didn't say much and because of the shock I didn't ask anything. I just booked an appointment for next Wednesday (15th) and walked out in a daze.

Any ideas? Did you see your US?

Thanks xxxxx
kate89
Member

Re: worried awaiting results

Thanks hannah I have joined the Facebook group are you on there? I'm finding telling people and their reactions the hardest x
hannah203
Member

Re: worried awaiting results

Sorry to hear that Kate please do let me know if there's any questions you have or need someone ur age to talk to. I have found it hard as the leaflets/services are mainly aimed at women 50+ and the ones for younger women are still mainly aimed at the 35-50age group as we are rare. I would love another woman in her 20s to chat to at times xxx
kate89
Member

Re: worried awaiting results

I have breast cancer. Am looking at a mastectomy and clearing lymph nodes. May the madness commence
kate89
Member

Re: worried awaiting results

Just have to make it until 3:30 today. Have been up feeling sick but not sure if that was alcohol related or because of the antibiotics.
janie4
Member

Re: worried awaiting results

Know what you mean - had my diagnosis today & actually feel much better! At least once you know what you're dealing with your mind stops working overtime about what it might be! Glad you're feeling ok x

 

Lifesabeach
Member

Re: worried awaiting results

Hi ladies, I totally understand how you are all feeling if your waiting for your biopsy results. I have to say those 2 weeks waiting in limbo were the worst. I got my results on Monday and it was confirmed that I have IDC and will have a year of treatments. The weird thing is I feel so much better since I know what I'm dealing with. I think it's the not knowing which is the hardest, I was really anxious and kept crying but since I've been diagnosed I've shed no tears and have had to pass the tissues to friends and family. Good luck to you all waiting to hear and I hope you get good news you want.
janie4
Member

Re: worried awaiting results

Good news Jan, but sorry you've had a terrible experience. Definitely follow it up x

kate89
Member

Re: worried awaiting results

Oh Jan that's terrible, but fantastic news that you're all clear! Hopefully your gp will be more helpful.
I have convinced myself that mine is bad news but I'm OK with that, not sure I will feel the same this time tomorrow.
hannah203
Member

Re: worried awaiting results

Sounds terrible Jan please consider an official complaint?
Glad to hear some good news though on the cancer front 😄 make sure u celebrate xx
Taglagoon1
Member

Re: worried awaiting results

I've got a copy of my biopsy results and it says B1 normal , thank god !!!!
Ive still not had any discussion with any medical person as regards monitoring this . Nor any answers as to why the lump is there along with thickened lymph nodes at the area .
I'm going to make a appointment with my GP to discuss my concerns with then and my HRT . I'm disgusted with our local breast clinic as they have not contacted me regards theses results I had to beg my GP to request a fax so I could get my results . Surely there should be some sort of process for even for those with a good result , I've been through the mill these last two weeks and a range of thoughts & emotions , who is giving me information or reassurance .. No one !! It's terrible , we've had a turmatic time, mini surgical procedures, the waiting ... And yet I feel left high and dry without any answers as what to do now .. Xx
kate89
Member

Re: worried awaiting results

Hi hannah thanks for your reply. I was so convinced that it was nothing because I had been told that it was on so many occasions, I burst into tears when I was told they had to do a biopsy.
I have been surprising calm the last couple of days but my husband is finding it difficult. Only 1 more day to get through before I get some answers and a plan if I need one.
Did you get any more clarity Jan? X
hannah203
Member

Re: worried awaiting results

Hi Katie and Jan
Sorry you are both going through this. The waiting is truly awful. I hope you get some answers soon Jan.

I am 24 Katie and although I don't have kids I can relate to a lot of what you've said.... I didn't expect anything to come of going to the clinic so went on my own... When they said they were treating my lump seriously and cancer survival rates are high i burst out crying outside the consultants room!!!!! I couldn't believe it. Its not on our radar at our age. I can relate to the guilt of putting everyone through the stress & the feeling of making a mountain out of a mole hill (you're not!!!!! Its a blimmin stressful wait).... My mum told the whole family before I knew it but please be assured if its a false alarm everyone will be relieved and not annoyed you told them about it!

Hoping for the best news for both of you. & If it is cancer there's lots of options for treatments and it will be curable!!! Lots of lovely ladies here for support, hopefully you wont need support with this worry much longer!! Xxxx
kate89
Member

Re: worried awaiting results

Oh no that's rubbish! I would think normal was good? Maybe try ringing the cancer care nurse tomorrow, they can read your notes and inform you properly about what's going on. So sorry you've been left like this x
Taglagoon1
Member

Re: worried awaiting results

Feeling confused ... I rang the hospital this morning , the oncologists secretary said my results were in but she wasn't authorised to give me them , she said the lead nurse who would deal with them was on holiday, and she would get the oncologist to ring me this afternoon. I immediately rang my docs and asked if they could request the results to be faxed over to quicken the process . She said she would and get a doc to call me this afternoon ...
I've spent all day stressing , no call from the oncologist .. My docs rang at 6.30pm , a locum doctor , has no knowledge of my recent appointments at the breast clinic , asked me what I'd had done there and just said the biopsy looks normal .... I asked all 3 biopsys?she said she didn't know and I should wait for the hospital to contact me !!! I asked again for reassurance and she said just says normal !!
I don't want to sound ungrateful but did she know what she was talking about ??
I have a lump and thickening axillery nodes ?? Is that normal ?? I asked if there was any follow up will I need more checks , she couldn't say . My other breast isn't the same so I'd say that one was normal !!!
I can feel my left breast isn't right ,it's painful , it feels hard at the side near the armpit , lower down from that at 2 o'clock there's a lump ... Is that it ? Will I not need more tests , investigation ? What if it is cancer .. Why have I got something going on with my body which is classed as normal ???
I feel like I'm in limbo still even though ive just been told it's normal !!
Am I being irrational ?? Jan x
kate89
Member

Re: worried awaiting results

Fingers, toes and everything else crossed for you x
Taglagoon1
Member

Re: worried awaiting results

Oh no , as if you don't have enough to worry about .. The oncologist is ringing me this afternoon .. My kitchen has been scrubbed and scrubbed again 😳 xx
kate89
Member

Re: worried awaiting results

I now have mastitis as a result of swelling after the biopsy. I'm going to the doctors today so I can start a course of antibiotics so if it is bad news Thursday I won't have an infection.
Any news yet Jan? Thinking of you x
kate89
Member

Re: worried awaiting results

I almost went alone and would have done if it wasn't for my 9 week old daughter needing someone to watch her But I'm very grateful that my husband insisted on coming with me.

Does anyone else feel guilty? I feel terrible that my family are having this worry too. My husband made me tell my parents so that they are prepared if it is bad news but I can't help but feel bad for upsetting them.
Taglagoon1
Member

Re: worried awaiting results

I went on my own , my OH played golf ... He feels very guilty now .. Think I'm going to milk this one lol
Jan xx
janie4
Member

Re: worried awaiting results

I also went on my own, by choice. Husband wasn't happy at all, but I was stubborn & probably completely unreasonable! I just thought that I would cope better on my own, particularly if I needed a biopsy, and to be honest I think I did. I think I would have been more scared if he'd been there, because I could! I did say that I would take him in future and I will definitely need him there on results day. He's struggled to understand why I didn't want him there at the first appointment, but it wasn't that I didn't want him in particular, I just didn't want anyone to whom I was emotionally attached.

MrsGoggins
Member

Re: worried awaiting results

My dear husband has insisted on attending everything else since...
Lucy_BCC
Member

Re: worried awaiting results

Hi Kate and welcome to the BCC forums
I am sorry to read that you have this worry, along with the support you have found here please feel free to call our helpliners to talk your concerns over, they are on hand with practical and emotional support for you. Lines are open 9-5 weekdays and 10-2 Saturdays on 0808 800 6000

Take care
Lucy BCC

kate89
Member

Re: worried awaiting results

Thanks katie. Luckily my husband insisted on taking me for my appointment because I would have been in no state to drive myself home so I can't imagine how you managed x
MrsGoggins
Member

Re: worried awaiting results

Hi Kate89

So sorry you find yourself on this site.  The waiting is really the worst part. We have all been through it no matter our age or circumstances it feels the same. It is hard not to 'fill the gaps' or 'join the dots'. I was only recounting to my OH this evening that the worst, very worst, was when I attended the first appointment on my own which included examination, mammogram, US and biopsies on my own as I was confident that nothing was amiss to see clearly after mammogram and in US room that all was not OK... I cant change that appt or feeling but I can deal with all that has come since. I now feel, after bi lateral surgery, having also declined chemo (long story) and about to start radiotherapy and hormone treatment that I am in control at this very moment.  And all we can do is live in the moment.

I so wish you all the best and please feel free to ask anything or PM if you wish.

Warmest wishes

Katie

x

 

kate89
Member

Re: worried awaiting results

Thanks Jan. I hope you are put out of your misery soon! I am feeling much better today than yesterday, I think I was in shock because I truly believed it would be nothing and we were just crossing it off the list of possibilities
Taglagoon1
Member

Re: worried awaiting results

Hi Kate .. No words will stop you from worrying but your not alone , this site has been a great help to me , lots of experience and knowledge to be shared .
I've just had my first breast check and was only expecting a feel and a few leaflets , I had 2 mammograms , ultra sound and 3 biopsys , the radiographer said I had a mass and thickening nodes . I've been waiting 10 days and still no results . It's hard waiting but whatever the outcome I will deal with it , and so will you with the love and support for everyone around you xx Jan
kate89
Member

worried awaiting results

Hi I'm new to the forum. I'm 26 and I found a lump in my left breast about 6 months ago whilst pregnant followed by another in my armpit. I mentioned this to my midwife who said it was just a blocked duct and would clear once baby was here. I later told my breastfeeding consultant because my baby refused that side but she confirmed what the midwife had said.
At my 8 week post natal appointment I told my gp because it still hadn't gone. She said that it was most likely a blocked duct too but referred me to the breast clinic just to confirm her suspicions. I got my appointment through a couple of days later for yesterday.
I saw the consultant who examined me and also reassured me that it felt like nothing but that they may have to drain the milk from that breast. I then went into the ultrasound to be told that it isn't a blocked duct at all but a solid mass which needed biopsy. I had 6 biopsy on 3 lumps.
When I went back in to see the consultant he suddenly changed his mind said it might be cancer, how long was I planning on breastfeeding for, and that I had to come back in a week for the results. There were 2 cancer care nurses in the room and I was given the impression that the diagnosis was already fairly conclusive but my husband disagrees.
I don't know of I am making a mountain out of a mole hill and it's normal procedure to talk about cancer treatments this early on. Not sure how I'm going to get through this week.