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Re: Neratanib

Hello AngieG

Thanks for posting.

I imagine it was disappointing to hear you need to continue for another year with a different drug.

To hear about others experience you may want to post in this section of our Forum. You may also want to know about our Someone Like Me service. As neratinib is a newer drug for primary breast cancer we don’t have someone who has been on this, but we do have women who have been on a number of different treatments over a period of time.

We also have a range of other services that may be of interest.

Do call our Helpline if you would like to talk this through or have any further questions. Your call will be confidential, and the number is free from UK landlines and all mobile networks.

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Best wishes


Breast Cancer Now Nurse

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I’ve just been told that when I finish the herceptin in June the consultant wants me to start taking Neratanib. Apparently this is a similar type of drug that I will take for a year. I was hoping to just be taking letrozole and the ibandronic acid and not start something else. I’ve still got a lot of joint pain and other side effects, I’m not sure which drug either herceptin or letrozole is causing what side effect, so I was looking forward to just being on one. Has anyone been on Neratanib and what side effects have you had please. I’ve looked online and it doesn’t look pleasant 🙄I know my BC was high grade HER2 positive and obviously want to reduce the risk of it coming back., but I really thought I was close to the finish line for at least one drug.