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The Unknown


Re: The Unknown

Hello Jemma

Thanks for your post explaining about your recent results and the need for further surgery.

It can be really difficult when you have had the news that you will need further surgery because you have more invasive breast cancer than was thought and that it’s in your sentinel node. You may find our booklet on pathology useful to read.

Whilst you are waiting for the surgery to your lymph nodes it maybe that your treatment team have organised for you to see the oncologist which generally happens after you have had your initial surgery. An oncologist is a doctor who specialises in cancer (oncology). A medical oncologist specialises in cancer drugs. A clinical oncologist specialises in radiotherapy alone or radiotherapy and cancer drugs. As Delly has said you may want to ask your breast care nurse if this is what the general medical appointment is for.

We offer a range of free supportive services that you might be interested in. For more details about all of these services, please see the information on the link.

Some online courses have been set up while face to face services are suspended.

Do call our Helpline if you would like to talk this through or have any further questions. Your call will be confidential, and the number is free from UK landlines and all mobile networks.

The number is 0808 800 6000, (Relay UK -prefix 18001).

If you would like a nurse to call you do complete this form. Ticking the box agreeing to a call back.

Our opening hours are Monday to Friday 9am - 4pm and 9am -1pm on Saturday. Out of hours you can leave a message and we will call you back when we next open.

Best wishes




Breast Care Nurse

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Re: The Unknown

Hi jemma

This is a very anxious time. Your team is working hard for you but it’s very difficult for them to address anxieties - they are focused on treating you. Your breast care nurse should be able to talk you thought it on the phone BUT, from memory, you need to have a pre-surgery assessment. Blood tests, ECG to check your heart rhythm, urine sample and more questions you’d think were possible, some asked again as you move from health worker to health worker. It should all be in one place but it may not be - when i went for my pre-assessment for my recent biopsy, I did a LOT of walking.  Finally, you sign that pink form giving your consent to the surgery planned and you have the chance to ask questions that are plaguing you.

If lymph nodes are infected, it means they have done their job, not that the cancer may have spread, The higher the proportion of nodes infected, the more likely you will have full axillary clearance which leads to a life of daily exercise! This will hopefully ensure the cancer has been contained.All the best, Jan x


Re: The Unknown

Hi jab-tuk

I'm presuming you have a BCN? Why don't you contact her/him, and ask for more details?? Hope all goes well for you.

Delly xXx


Re: The Unknown

Hi Jemma

Thanks for posting your question.

We hope to be able to respond to you on Monday.

In the meantime our Helpline is open until 4pm today, and we are open between 9am and 1pm tomorrow (Saturday) if you would like to talk things through. 

If you do phone our Helpline please let us know that you have asked a question on our forum so that we know your query has been answered. Thank you

With best wishes.


Ask Our Nurses Service Co-ordinator

Please read the Ask Our Nurses disclaimer  Full details on how we collect and use your data can be found in our Privacy Policy


The Unknown

So I was diagnosed with DCIS with microinvasion in June . I had a mastectomy with immediate reconstruction and sentinel lymph node removal 24th august. Monday 6th September I had my results and it turns out there was more invasive cancer than expected and in my sentinel node.  I am now scheduled for another op to remove more lymph nodes to see if it has spread further. Couple days before my op I’m booked in with general medicine I was just wondering what they do ? I get very anxious if I don’t have some idea of what I’m walking in to . I was given 20% chance of a spread which I thought was great and now I’m becoming very nervous that it’s going to be worse than what we all expected .

Any advice, experiences welcome

thank you