Thanks for posting. It sounds as if you’re having a really worrying time with your mum at the moment.
It’s unsurprising that your both concerned as she was expecting a year of treatment and this is being stopped halfway through due to coronavirus.
I wonder if your mum is having chemotherapy and trastuzumab (Herceptin), Trastuzumab is usually given for a year. Although we can’t advise on an individuals’ situation, we know that chemotherapy and targeted treatment, such as trastuzumab. can put people at greater risk of developing coronavirus and of becoming seriously ill from it.
The unexpected situation we find ourselves in means planning treatment differently for some people. Doctors and multidisciplinary teams (MDTs) are needing to make decisions about changing treatment pathways for each of their patients. This will understandably cause anxiety to patients and relatives.
It’s important that the potential benefits of treatment possibly outweigh the drawbacks. Its sounds as if your mum’s doctors feels it’s in her best interest to not continue with treatment.
Patients and relatives cannot override a decision made by the doctors, but your mums’ team can explain in more detail why they believe this decision the right one for her individual situation. It may help if you can also speak with her treatment team about this.
It might also help to know that for several years; clinical trials have been looking at giving trastuzumab for HER2 positive breast cancer over shorter periods. Based on these trials, experts believe shortening some people’s treatment is an acceptable way to proceed. This allows everyone who needs this to be safely treated as possible.
The latest advice for people at high risk is to follow the guidance on shielding. Shielding is a practice used to protect extremely vulnerable people from coming into contact with coronavirus.
Our webpage has more information about coronavirus for people with breast cancer.
I’d also encourage you to call the Helpline to talk with one of us about your concerns and anxieties. We have plenty of time to listen to you and will also be happy to signpost you to other support if appropriate.
Your call will be confidential, and the number is free from UK landlines and all mobile networks.
The number is 0808 800 6000 (Text relay prefix 18001).
Out of hours you can leave a message and we will call you back when we next open.
Breast Cancer Now Nurse
This thread will now be closed from further replies. If you have any additional questions or would like to provide feedback, please start a new thread.
Thanks for posting your question. I am sorry we haven't been able to respond today.
We hope to be able to respond to you on Monday.
Our Helpline is open from 9am on Monday, if you do phone our Helpline please let us know that you have asked a question on our forum so that we know your query has been answered. Thank you
With best wishes.
Ask Our Nurses Co-ordinator
My mum who is going through chemo therapy for ‘her 2 positive’ breast cancer is half way through her year long course of chemo and radio therapy. She has just been told by her oncologist that the is not able to do the rest of her remaining 6 months of chemo due to Covid 19. She is distraught and has been told despite begging to continue at her own risk, that she has no choice in the matter and she has been taken off of her treatment programme. She has stage 3 aggressive cancer and this is shocking that she has not been given the option to carry on her life saving treatment. She lives in Scotland, and gets her treatment at the beatson. Can someone please confirm that there is nothing we can do to continue the treatment and override this decision? We are all desperate to find a solution.