Thanks for your post. It’s understandable the phrasing of the letter to your GP has caused you to worry.
The word metastatic does mean cancer has spread but this might be just to the lymph nodes under your arm as you have been told. This would still be considered primary breast cancer and is not the same as cancer that has spread further than this, to other organs for example.
It might help to call your breast care nurse to check and talk this through. You are also very welcome to call us here. Your call will be confidential, and the number is free from UK landlines and all mobile networks.
The number is 0808 800 6000 (Text relay prefix 18001).
Our opening hours are Monday to Friday 9am - 4pm and 9am -1pm on Saturday. Out of hours you can leave a message and we will call you back when we next open.
We have a range of other services as well that you might be interested in.
I had started to feel better about my diagnosis, but just received a letter from the hospital about my diagnosis - a copy of what is going to my gp. It describes my diagnosis as “metastatic breast cancer”. I know I have lymph node involvement but is this commonly described as metastasised? I can’t see anything else about other organ involvement but somehow the phrasing has worried me that the diagnosis is worse than I was thinking...