Thanks for posting.
It’s understandable you’re feeling frustrated after receiving conflicting advice, especially when it affects any decisions you have to make.
You don’t say who told you initially that you needed a BRCA test, but it sounds as if you may now have been seen in a specialist genetic clinic. They should have explained to you the reasons why you are not eligible for the test. Their decision would have been based on National Institute for Health and Care Excellence (NICE) guidelines.
There are only a small number of people who will be at a greater risk of developing breast cancer because they have a significant family history.
You can read more information about risk in our booklet Family History, genes and breast Cancer.
Here at Breast Cancer Now we are not able to recommend private companies who offer genetic testing.
However, if after reading all the information it’s something you still wish to pursue, you may find some recommendations from other women on our on- line discussion forum. The forums are message boards where people affected by breast cancer and breast health concerns can post messages of support and share information. There is a forum post about private BRCA testing.
Do call our Helpline if you would like to talk this through or have any further questions. Your call will be confidential and the number is free from UK landlines and all mobile networks.
The number is 0808 800 6000 (Text relay prefix 18001).
Our opening hours are Monday to Friday 9am - 4pm and 9am -1pm on Saturday. Out of hours you can leave a message and we will call you back when we next open.
Breast Cancer Now Nurse
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Hi there I'm new to the site. I was told last week I qualified to have the Brca test on NHS only to go in for the appointment and be told I don't!!! I felt really powerless, upset and frustrated. I need to have this test to help me decide whether to have a uni or bilateral mammogram. Time is very much of the essence, especially since the NHS has taken a month to come to this decision. Can anyone recommend a private doctor or clinic or online service that does the rapid test, is cheap and based in the South East. Many thanks