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Recurrence in 2 years still ER + despite Tamoxifen


Re: Recurrence in 2 years still ER + despite Tamoxifen

Hi Siân

Thanks for posting.

Finding out that your cancer has come back can be overwhelming and can cause a mix of emotions, so it’s understandable that you are feeling scared. 

When breast cancer has come back after treatment it is known as recurrence.

When you are diagnosed with a recurrence, it’s routine for treatment teams to use staging tests such as a CT and bone scan, as you have mentioned, to check if there is cancer in any other parts of your body before starting treatment.  This doesn’t necessarily mean they think the cancer has spread, but your team will want to check to be sure you’re being offered the most appropriate treatment. 

It’s good to hear you are seeing the consultant next week as it’s important that you have a chance to ask questions. Your treatment team can give you information that’s tailored to your individual situation, including what treatments they will be recommending.  You mention that they are considering surgery and chemotherapy.  Although you are concerned about the tamoxifen not working, there are other hormone therapies that your consultant will be able discuss with you.

If you have a breast care nurse it may be helpful to contact her before your appointment next week as she may be a further source of information and support. 

Waiting for your scan results can be a stressful and worrying time, you may find it helpful to read our tips on coping with anxiety.

We also offer a range of free supportive services that you might be interested in.

You may find it helpful to call our Helpline  to talk  through how you are feeling.  We have plenty of time to listen to your concerns and answer any questions. Your call will be confidential, and the number is free from UK landlines and all mobile networks.

The number is 0808 800 6000 (Text relay prefix 18001).

Our opening hours are Monday to Friday 9am - 4pm and 9am -1pm on Saturday. Out of hours you can leave a message and we will call you back when we next open.

Best wishes


Breast Cancer Now Nurse

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Recurrence in 2 years still ER + despite Tamoxifen

I recently found a lump below my armpit on side where I had mastectomy 2 years ago. Originally had DCIS and small 11mm invasive ER +8. No rads or chemo then. New lump biopsy shows it is 4mm invasive ductal carcinoma ER + 7! So basically Tamoxifen hasn’t worked 😥 looking at probable chemo and surgery, seeing Consultant this week. So scared it’s spread and also waiting for CT/ bone staging scans. Anyone had similar? Wonder what they can use instead of Tamoxifen? 
Siân 💕