There isn’t specific guidance for treating recurrent DCIS. but guidelines support giving radiotherapy following a lumpectomy, which you mention was the case for you. In this situation a mastectomy would usually be recommended, as radiotherapy cannot be given to the same area twice.
Although having a lumpectomy without radiotherapy is not usually recommended, it’s certainly something you can speak to your surgeon about. Sometimes a second opinion can help even if it confirms the initial opinion. I imagine the thought of a mastectomy for this area of DCIS does feel drastic as you say. Perhaps you have a breast care nurse you could talk to.
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i had a lumpectomy and radiotherapy for high grade DCIS 3 years ago. At my annual check up, a 9mm DCIS has been found close to the original site. My consultant has recommended mastectomy as apparently I cannot have radiotherapy again. It feels drastic to have a mastectomy for 9mm. Is it possible to have it removed without losing the whole breast and wait and see?
what is the guidance please as I want to be as fully informed about my options as possible?